Code of Ethics for Community Informatics Researchers (original) (raw)

Research Ethics Codes and Guidelines

Handbook of Research Ethics and Scientific Integrity, 2020

Although the origin of professional codes of ethics can be traced back to ancient Greece, their peak was in the late twentieth century with more than 70% of codes of ethics being created after 1990. Today professional ethical standards are formulated as codes of ethics, sets of principles or guidelines, declarations, conventions, charters, or laws, and they differ in scope, form, and content. As there is no consensus on what is meant by "research ethics" and "research integrity," both concepts are clarified here.

Ethics Review Framework and Guidelines for Social Science Research

2019

This last chapter provides an outline of the most important social research ethics principles and values that should be considered by social science researchers and research ethics committees (RECs) who review social science research projects. The principle framework of the United Nations Educational, Scientific and Cultural Organisation (UNESCO) Universal Declaration on Bioethics and Human Rights (2005) is primarily used to organise the relevant ethics principles and considerations. The following ten principles are considered: (1) Respect for human dignity; (2) Beneficence and non-maleficence; (3) Autonomy and informed consent; (4) Vulnerability; (5) Privacy, anonymity and confidentiality; (6) Equality, justice and equity; (7) Non-discrimination and non-stigmatisation; (8) Respect for cultural diversity and pluralism; (9) Social responsibility and integrity; and (10) Benefit sharing. Lastly, the most important and relevant ethics review questions for each of the principles and valu...

The San Code of Research Ethics

Equitable Research Partnerships, 2019

The San peoples of southern Africa have been the object of much academic research over centuries. In recent years, San leaders have become increasingly convinced that most academic research on their communities has been neither requested, nor useful, nor protected in any meaningful way. In many cases dissatisfaction, if not actual harm, has been the result. In 2017, the South African San finally published the San Code of Research Ethics, which requires all researchers intending to engage with San communities to commit to four central values, namely fairness, respect, care and honesty, as well as to comply with a simple process of community approval. The code is the first ethics code developed and launched by an indigenous population in Africa. Key to this achievement were: dedicated San leaders of integrity, supportive NGOs, legal assistance and long-term research collaborations with key individuals who undertook fund-raising and provided strategic support.

Introduction to Research Ethics

ABSTRACT This module will introduce you to the ethical concepts underlying applied ethical decision-making in the area of research involving human participants. We will also learn what the issues are that people involved in research on research ethics are concerned with. Ethics without an understanding of historical and legal context makes arguably little sense. It is for this reason that this module will begin with a brief history of research ethics and ends with a brief overview of the relevant national and international guidelines pertaining to ethical issues in research involving human participants.

Revised CIOMS research ethics guidance: on the importance of process for credibility

This paper reviews the 2016 CIOMS International Ethical Guidelines for Health-related Research Involving Humans. I argue that these new guidelines constitute a significant improvement over the guidelines they replace. However, the procedures put in place by CIOMS resulted in an authoring group consisting of a majority of authors and advisors hailing from the global North, while the guidelines squarely aim at influencing policies in the global South. I question CIOMS' strategy to produce a consensus-based document, and raise concerns about frequent appeals to authority designed to establish the credibility of these guidelines and the processes that led to them. It is unclear why it should be the role of a small organisation such as CIOMS to try to guide the research ethics policies in countries of the global South.