Needs of patients with hemophilia: Suggested clinical pathway (original) (raw)
Assistant professor and lecturer at faculty of nursing, Cairo University Hemophilia is a worldwide disorder of coagulation system. It is a hereditary bleeding disorder characterized by decreased function or absence of factor VIII (classic hemophilia or hemophilia A) or absence of factor IX (Christmas disease or hemophilia B). Patients with hemophilia have physical, psychological and social needs that should be not by the health care professions. Therefore the aim of the current study isto explore needs of patients with hemophilia and to suggest clinical pathway for these patients. To fulfill the aim of this studyan exploratory descriptive researchdesign was utilized. A purposive sample of 30 patients with hemophilia was selected over a period of 3 months from hematology ward in a governmental hospital. Two tools were utilized (I) personal and medical data, (II) needs assessment of patients with hemophilia. The study findings revealed that,(43.3%) of the studied patients had hepatitis C virus and (26.6%) of them had deformity in the shape and functions of knees joints. (40%) of the studied patients received information about their disease from other patients. (90%) of the studied patients mentioned that;the medical team did not receive patients when they were admitted to the hospital and (100%) of them mentioned that; there were no one of medical team did hospital orientation for them and no one of them engage the patients in their treatment plan and (100%) of the studied patients did not perform any kind of exercises or perform pleasure activities and (90%) of them did not find the medical team when needed. (96.7%) of the studied patients were not satisfied with the medical services provided to them.Based on the results of the current study it could be concluded that; patients with hemophilia have physical, psychological and social needs. A comprehensive multidisciplinary assessment of the physical, emotional, and social needs of adult hemophilic patients is essential. Clinical pathway may provide comprehensive health care for patients with hemophilia based on patients 'needs to ensure that all important issues are involved also clinical pathway has been recommended to improve clinical outcomes, decrease mortality rates, and improve cost-effectiveness in health care settings.
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