Health Disrupted: On the Loss of Public Values in the Stride Towards Better (Digital) Health (original) (raw)
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Recent years have witnessed an intensive growth of systems of measurement and an increasing integration of data processes into various spheres of everyday life. From smartphone apps that measure our activity and sleep, to digital devices that monitor our health and performance at the workplace, the culture of measurement is currently on the rise. Encouraged by movements such as the Quantified Self, whose motto is 'self knowledge through numbers', a growing number of people across the globe are embracing practices of self-quantification and tracking in the spirit of improving their wellbeing and productivity or charting their fitness progress. In this article, I examine the biopolitical aspects of the Quantified Self practices, exploring some of the ideologies and rationalities underlying self-tracking culture. I argue that such practices represent an instantiation of a 'biopolitics of the self' whereby the body is made amenable to management and monitoring techniques that often echo the ethos of neoliberalism. Rather than being restricted to an individualized form, self-tracking practices are also becoming part of a biosocial and communal phenomenon in which individuals are incited to share with others information about their physical activities and biodata. In exploring some examples of this data sharing culture, I critically address the extent to which the sharing of personal physical data can be seen as a 'solidaristic' act that can contribute to a larger Big Data ecosystem and inform the wider medical community and healthcare research and policy. I link this discussion to debates on 'data philanthropy', highlighting the emerging tension between philanthropic discourses of data sharing and issues of privacy. From here, I go on to discuss further ethical and political concerns, particularly in relation to data security and the marked shifts in healthcare responsibilities.
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How knowledge relevant to health and well-being is dis- tributed in the digital society, and how the search for this knowledge, ie, navigating knowledge landscapes, influences everyday life and health needs to be clarified. We present different definitions of health and healthrelated values. The usual approach to explaining health definitions would be to give a historical and chronological overview showing the development of the ideas over time to better understand the current position. In contrast to this, in the online environment, the overload of information and limitless opportunities of content presentation result in co-existence of different views. We claim that, today, we need a historical overview to identify and understand this multiplicity of views and standpoints co-existing in the digital environment. This co-existence being the product of digital society could be referred to as “digital anachronism”.
Digital health and the biopolitics of the Quantified Self
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Recent years have witnessed an intensive growth of systems of measurement and an increasing integration of data processes into various spheres of everyday life. From smartphone apps that measure our activity and sleep, to digital devices that monitor our health and performance at the workplace, the culture of measurement is currently on the rise. Encouraged by movements such as the Quantified Self, whose motto is 'self knowledge through numbers', a growing number of people across the globe are embracing practices of self-quantification and tracking in the spirit of improving their wellbeing and productivity or charting their fitness progress. In this article, I examine the biopolitical aspects of the Quantified Self practices, exploring some of the ideologies and rationalities underlying self-tracking culture. I argue that such practices represent an instantiation of a 'biopolitics of the self' whereby the body is made amenable to management and monitoring techniques that often echo the ethos of neoliberalism. Rather than being restricted to an individualized form, self-tracking practices are also becoming part of a biosocial and communal phenomenon in which individuals are incited to share with others information about their physical activities and biodata. In exploring some examples of this data sharing culture, I critically address the extent to which the sharing of personal physical data can be seen as a 'solidaristic' act that can contribute to a larger Big Data ecosystem and inform the wider medical community and healthcare research and policy. I link this discussion to debates on 'data philanthropy', highlighting the emerging tension between philanthropic discourses of data sharing and issues of privacy. From here, I go on to discuss further ethical and political concerns, particularly in relation to data security and the marked shifts in healthcare responsibilities.
Sociology of Health & Illness, 2019
In this editorial introduction, we explore how digital health is being explored at the intersection of sociology of health and science and technology studies (STS). We suggest that socio-material approaches and practice theories provide a shared space within which productive tensions between sociology of health and STS can continue. These tensions emerge around the long-standing challenges of avoiding technological determinism while maintaining a clear focus on the materiality and agency of technologies and recognising enduring sets of relations that emerge in new digital health practices while avoiding social determinism. The papers in this Special Issue explore diverse fields of healthcare (e.g. reproductive health, primary care, diabetes management, mental health) within which heterogenous technologies (e.g. health apps, mobile platforms, smart textiles, time-lapse imaging) are becoming increasingly embedded. By synthesising the main arguments and contributions in each paper, we elaborate on four key dimensions within which digital technologies create ambivalence and (re)configure health practices. First, promissory digital health highlights contradictory virtues within discourses that configure digital health. Second, (re)configuring knowledge outlines ambivalences of navigating new information environments and handling quantified data. Third, (re)configuring connectivity explores the relationships that evolve through digital networks. Fourth, (re)configuring control explores how new forms of power are inscribed and handled within algorithmic decision-making in health. We argue that these dimensions offer fruitful perspectives along which digital health can be explored across a range of technologies and health practices. We conclude by highlighting applications, methods and dimensions of digital health that require further research.
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Digital technologies are increasingly being developed, implemented and used in the delivery of health and care, contributing to potentially disruptive changes in how healthcare is practised and experienced by health professionals, patients and those within their wider care networks. The papers in this collection explore how sociological theory, often at the intersection with science and technology studies (STS), can help us understand these changes. With contributions from international scholars in the field, papers in this collection explore diverse fields of healthcare (reproductive health, primary care, diabetes management, mental health) within which heterogenous technologies (health apps, mobile platforms, smart textiles, time-lapse imaging) are becoming increasingly embedded. They offer insights into the promissory discourses that constitute digital health and the ways in which knowledge, connectivity and power are re-configured in a range of situated health and care practices.