Prospective evaluation of parental anxiety related to newborn foot disorder (original) (raw)
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Assessing Knowledge on Clubfoot Among Parents Having Children with Clubfoot Deformity
2015
Background: The burden of childhood disability as a public health problem in developing countries remains relatively unrecognized. One out of 750 children born in the world suffer from club foot among them 80% are in low and middle income countries. Most of these babies have limited access to receive effective treatment for their clubfoot due to lack o knowledge, awareness and some barriers. We actually dont know the level of knowledge of parents who have child with clubfoot deformity. The purpose of this study was to assess the level of knowledge of parents who have children with clubfoot during clubfoot treatment. Materials and Methods: This cross sectional study was conducted among 102 parents who have children with clubfoot deformity during its treatment in a selected clinic. The samples were selected purposively from the clinics where clubfoot treatment was given and face to face interview was done by using semi-structured questionnaire. Results: The mean (±SD) age of the resp...
Congenital clubfoot: parents’ considerations about the disease and its treatment
Scientific Journal of the Foot and Ankle, 2018
Objectives: To learn parents' impressions regarding the diagnosis of congenital clubfoot and its treatment. This information may favor persistence with treatment, breakdown of taboos and therapeutic success. Methods: A qualitative and descriptive study with 10 parents whose children have congenital clubfoot. The tabulation of the data occurred through the use of three methodological figures: central idea, key expressions and collective subject discourse. Results: When asked about impressions generated when their child was diagnosed with congenital clubfoot, 70% reported feelings of sadness, fright and worry, and only 30% showed a calm acceptance of the diagnosis, devoid of fear and worry. When asked about the treatment that was being done, 100% of the parents showed optimism and satisfaction with the results presented, 40% mentioned the comfort level brought by the therapeutic methods and 20% mentioned the importance of the involvement of the entire health team in the therapeutic approach. Conclusion: Fear and concern were common feelings, which improved with the best elucidation by the health team regarding the disease. Regarding therapy, the parents' satisfaction was unanimous. Level of Evidence V; Expert Opinion.
SA Orthopaedic Journal, 2017
In the Eastern part of Africa, the incidence was estimated to be up to 2 per 1 000 births 5 while among black South Africans, it was reported to be 3.5 per 1 000 births. 6 In Nigeria, the incidence was estimated to be 3.4 per 1 000 births. 7 The birth of a baby is a major life event for parents, and in the southwestern part of Nigeria it is a celebrated event. After first observing the baby's deformed limb, parents are initially shocked and then tend to experience emotional distress characterised by mood disturbances such as anxiety,
Problems Faced by Parents in Care of Children with Congenital Clubfoot
2019
Objective: This study aims to identify physical, psychological, social and financial problems faced by parents in care of children with congenital clubfoot. Methods: A cross-sectional study among 52 parents of congenital clubfoot child was commenced purposively who attended Hospital and Rehabilitation Center for Disabled Children (HRDC) outpatient department for treatment. The self-constructed tool with 22 item 5-point Likert scale questionnaire was used for interview. Confidentiality and privacy of the participants was maintained. The internal consistency of the tool after pretesting was as high as 0.887. Descriptive statistics i.e. frequency, percentage, mean, standard deviation was used for data analysis. Results: The study revealed that most of the clubfoot children had bilateral clubfoot (55.8%). Parents (57.7%) had “quite a bit” problem with cutting down work time, (61.5%) “very much” worried about their child’s future, (19.2%) “a little” problems with interaction with othe...
Barriers Facing by Parents During Clubfoot Treatment of Children with Clubfoot Deformity
MOJ Orthopedics & Rheumatology, 2014
Background: One out of 750 children born in the world suffers from club foot and among them 80% was in low and middle income countries. Most of these babies had limited access to receive effective treatment for their clubfoot. While receiving treatment, their parents were facing several problems and barriers to complete the treatment regime. Although the majority of clubfoot babies were in developing countries but we actually didn't know how much are dropping from treatment and its actual reason, which may cause severe disability as a consequence. The purpose of this study was to investigate barriers facing by parents who have children with clubfoot during clubfoot treatment. Methods: This cross sectional study was conducted among 102 parents who had children with clubfoot deformity during its treatment in selected clinics. The samples were selected purposively from the clinics where clubfoot treatment was given and face to face interview was done by using semi-structured questionnaire. Results: The mean (±SD) age of the respondents was 24.7 (±6.0) years where 87.3% respondents were female and 59.8 % respondent's educational status was up to primary level. About 44.1% respondents started treatment of their child within 6 months of birth and 33% within 6 to 12 months where 57% respondents were referred by health care professional to clinics. About 69.6 % respondents agreed with prolong treatment regime and about 83.4% respondents reported about prolong waiting time where 93.1% were motivated to completion the treatment. On the other hand about 89.3% respondents were able to understand the clinician's information correctly. About 61% respondents told about financial problems where 92.2% respondent's main earning members were paying treatment cost. Additionally 18% respondents had transport problem and about 78% had to come in the clinic for treatment from more than 11 km away. Conclusion: There is need to improve the communication skills of clinicians offering treatment to children with clubfoot at the Clinics. Need to minimize cost and develop patient friendly service so that parents get service within short possible time. Finally, there is need to decentralize clubfoot treatment services away from referral hospitals to the people in the community through outreach programs.
2020
Introduction: Clubfoot, is one of the commonest deformity among congenital and developmental musculoskeletal deformities, that responds best to gold standard Ponseti treatment to achieve pain free, supple, callosities free, normal feet. The success of treatment in fact depends on strict compliance to protocols of its lengthy phase of bracings to maintain correction. The study is aimed to asses the psychosocial impact of Poseti treatment with use of foot abduction brace on patient and the family. Patients and Methods: This cross-sectional study was carried out clubfoot clinic of the department of Orthopedics, Jinnah Postgraduate Medical Centre, Karachi, Pakistan. Study includes 105 Parents of either gender, aged 20 60 years whose children having idiopathic congenital typical clubfeet, aged < 12 years, undergoing Ponseti treatment for more than three months were included. The study duration included June to December 2018. Those accompanying the child but not any one of parents, tho...
2020
Corresponding author / Sorumlu yazar: Bahtiyar Haberal Address / Adres: Başkent Üniversitesi Tıp Fakültesi Ortopedi ve Travmatoloji Anabilim Dalı, Yukarı Bahçelievler Mah. Mareşal Fevzi Çakmak Cd. 10. Sok. No:45 06490, Bahçelievler, Çankaya, Ankara, Türkiye E-mail: bahtiyarhaberal@hotmail.com 󠄀 Ethics Committee Approval: For the present study, the approval of Başkent University Research and Ethics Committee was obtained (Project Number: KA17/209). All procedures in this study involving human participants were performed in accordance with the 1964 Helsinki Declaration and its later amendments. Etik Kurul Onayı: Bu çalışma için Başkent Üniversitesi Araştırma ve Etik Kurul onayı alınmıştır (Proje No: KA17/209). İnsan katılımcıların katıldığı çalışmalardaki tüm prosedürler, 1964 Helsinki Deklarasyonu ve daha sonra yapılan değişiklikler uyarınca gerçekleştirilmiştir. 󠄀 Conflict of Interest: No conflict of interest was declared by the authors. Çıkar Çatışması: Yazarlar çıkar çatışması bil...
Paediatria Croatica, 2019
When treating clubfoot, doctors prefer objective measurements, while knowing the subjective quality of life of a patient is secondary rather than observing the two in parallel. The aim was to highlight the significance of patient reporting in the quality of life questionnaires. This retrospective study included 75 patients with clubfoot (44 boys and 28 girls, mean age 12.45 (range 2-30 years; 3 missing). The treatment was typical in 55 patients (posteromedial release), while Ponseti method was used in 20 patients. The following questionnaires were used: EQ-5D-3L and Clubfoot Disease Specific Instrument for Health Science, Rosenberg Scale for Psychological Sapiens, and our own sociological questionnaire. The mean EQ-5D index was 0.86 and mean EQ-VAS was 79.92, scoring lower than the Hungarian population data. According to the results of the special quality of life questionnaire, foot pain and finding shoes that fit caused the biggest problems for the study patients. The quality of life questionnaire results showed that finding shoes that fit without exacerbating pain was the biggest problem for study participants. The mean Rosenberg scale score was 22.2 (maximum 30) points. There were no significant findings in individual cases, however, correlations were found when examining low-self-evaluation participants in the group. Internal consistency of the instruments employed was appropriate (Cronbach alpha: 0.831-0.939), and combined questionnaires used to identify each aspect as indicated by the medium and high Spearman correlation values (rs=0.539-0.916).
Objective: Ponseti treatment for clubfoot is effective and inexpensive, improving children's social participation. Two rehabilitation centres in Madagascar piloted Ponseti treatment; however, at one centre 46% of infants failed to complete treatment. The aim of this study was to determine the causes of defaulting in order to facilitate subsequent improvements nationwide when treatment is rolled out to all centres. Methods: Questionnaire-based interviews. Patients: Twenty mothers of infants younger than 1 year were interviewed after 3 months of treatment in relation to difficulties they experienced with continuing treatment. Results: Fifteen families of these had financial problems: 7 incurred debt, 2 sold possessions, 4 parents stopped work an 2 did not give any further details. All mothers experienced distress; 9 hid their child's foot, and 8 were accused of wrongdoing during pregnancy. Three families travelled more than 500 km to the treatment centre and journeys were costly and difficult. Ponseti splints were acceptable, but aftercare of the splints proved problematic. Conclusion: Repeated travel to the clinic resulted in financial and social burden on the families, which reduced their ability to engage in treatment. The findings of this study are similar to work from other countries, but publications on rehabilitation from Madagascar are few. Improved support for parents, information, splinting with better materials and provision of treatment more locally are needed. Financial support for parents is key to enhancing children's life chances.
Clubfoot treatment with Ponseti method – Parental distress during plaster casting
2020
Background Clubfoot is one of the most prevalent musculoskeletal congenital defects. Gold standard treatment of idiopathic clubfoot is the conservative Ponseti method, including the reduction of deformity with weekly serial plaster casting and percutaneous Achilles tenotomy. It is well known that parents of children with severe and chronic illnesses are mentally stressed, but in recent studies regarding clubfoot treatment, parents were only asked about their satisfaction with the treatment. Largely unknown is parental distress before and during plaster casting in clubfoot.Therefore, we want to determinate first, how pronounced the parents' worries are before treatment and if they decrease during the therapy. Second, we hypothesized that parents faced with an extreme deformity (high Pirani-Score), reveal more distress, than parents whose children have a less pronounced deformity (low Pirani-Score). Therefore, we wanted to investigate weather the Pirani score correlates with the p...