THE IMPACT OF AUTISM ON FAMILY WITH AUTISTIC CHILD (original) (raw)
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Challenges Faced by families of Autistic Children
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Autism Spectrum Disorders (ASD) is a complex neurological disorder that affects brain function which causes impairments in multiple areas of development including social interaction, communication, and behavior and typically appears within the first three years of life. Families having children with ASD face many challenges as the disorder is associated with disruptive antisocial behavior. Parents with ASD children face extreme difficulties in dealing with challenging behaviors, teaching their child to communicate, teaching basic life skills, guarding their child from danger, and preparing their child for adult life. Besides, such families also experience high levels of stress, high recurrence risks, misconceptions and assumptions, feelings of guilt and blame regarding child’s diagnosis. The social stigma attached to the disorder causes lot of discrimination not only of the autistic child but also of the family as a whole because the family is seen to be a part of the illness. The p...
Impact of Autism Spectrum Disorder on Family
Autism-open access, 2019
Background: Autism is a complex syndrome which consists of a set of developmental and behavioral features. Children with autism face different challenges in family and as well as society. Aim: The aim of this study was to find out the impact of autism impact on family. Method: A narrative review was done to conduct this study. Findings: Autism has a persistent impact on the family, economic status, sibling and considerably modifies the lifestyle of each member of the family. Conclusion: This study strongly found that whole family members are affected by the condition of children with Autism.
Autism and its Impact on Families
and is conducted within a nine-month time frame to demonstrate facility with basic social research methods. Students must independently conceptualize a research problem, formulate a research design that is approved by a research committee and the university Institutional Review Board, implement the project, and publicly present their findings. This project is neither a Master's thesis nor a dissertation.
The Impact of Autism on Families
2017
Abstract This research works toward identifying the impact of autism on parents, siblings, neighbors, friends and teachers. How autism affects a family and its members, how friends react to their autistic friend, neighbor’s perception and teachers behavior towards the autistic children. An empirical causal framework was developed following some previous studies and tested through quantitative techniques. In-depth interview questions were set for conducting survey with the employees and the managers. The results were analyzed using Cronbach’s α, Pearson’s correlation and regression analysis techniques. The study examines the relationship between the impact of autism on parents, siblings, neighbors, friends and teachers showing various sufferings suffered by autistic children through his different phases of his life and with his association of different people in the society. 40 people participated in this survey. The research presents a comprehensive and recent review of the effect of autism. The parent who is the primary caregiver of these children was interviewed about recognition/ diagnosis of autism in their child, services accessed, and the impact of having a child with autism on their family. The findings of the research can aid practitioners in autism sector is focusing their efforts on areas that can be taken under observations for the improvement of autistic children as well as the society.
The Impact of Autism Diagnosis on the Family
2011
Introduction: Having a child diagnosed with autism can be a challenge for any family. The study aims to identify the parental couples' emotions in order to start the process of parent involvement as a cotherapist to recover the child. Materials and methods: Twenty parents were included in the study, which have at least one child diagnosed with autism. We used a questionnaire composed of five parts which covered the following: Age of the child, the age at which the parent has seen the first signs of disease and the age at which the child was diagnosed with autism; Identifying the emotions (and their intensity) arising from knowing the diagnosis of autism; Placing the parent in one of five stages of the mourning process (denial, anger, bargaining, depression and acceptance); The description of the coping mechanisms used by parents with COPE questionnaire.; Specifying the parent type of locus of control and social desirability using the LOC scale. Results and discussion: The results allow us to make the following statements: Emotions identified by parents were: sadness, concern, pain, despair; The parents included in the study are in one of the stages: anger (10%), depression (10%) and acceptance (75%); The time elapsed from diagnosis to finding its acceptance is between one month and three years; The coping mechanisms used are: positive reinterpretation, acceptance, planning, the use of social support, active coping, religious coping; The locus of control belongs to a normal range of values and the social desirability was quantified in a range of increased values. Conclusions: The reaction to finding the diagnosis of autism varies from one family to another and may encounter a large variety: from disbelief, anger, guilt, helplessness, devastation, surprise, or even rejection of the child, to understanding and relief when finally the parents have an explanation for their child behaviors. Early intervention is important in the psychological sustaining of the parent, as parent involvement in the recovery of the child with autism has a determinant role in his development and in ensuring a high quality of life.
Families with autistic children
Interdisciplinary Journal of Family Studies, 2011
The specific aspects of autistic persons’ communication and interaction require responses based on the parents’ personal capacities for coping, but also on the characteristics of the family system. The aims of the study were to analyze the relations between the perceptions of the parental couple about the styles of functioning of the family, and the competencies of their autistic children. It was hypothesized that the presence or absence of Intellectual Disability comorbid with the autism could influence these relations. Participants were 20 children, 85% males, age range 4-7 years, with a diagnosis of Autism Spectrum Disorder, 50% with Intellectual Disability, and both their parents. PEP3 to assess the performances of autistic persons, and FACES-IV to assess family functioning were used as instruments. The results demonstrated that cohesion, communication and satisfaction in the family system are higher when Intellectual Disability is not associated with autism. Higher cognitive sk...
Support for Learning, 2012
The focus of the study was to explore parental experiences of raising a child with autistic spectrum disorder (ASD). A mixed-method approach consisting of questionnaires and semi-structured interviews was used in order to elicit parental perspectives of raising a child with ASD. Two semi-structured interviews were conducted with parents of children with ASD. Questionnaires were sent to parents of children with ASD in two special schools. The findings indicate that although each of the parents had a child with ASD, their experiences were all different. Many interesting accounts were documented and a wealth of information regarding the characteristic traits that children with ASD portray was recorded. The findings suggested that the majority of the parents experienced a low level of support from agencies and professionals. The general verdict was that of poor communication and a lack of understanding of parents' needs following formal diagnosis. Finally, a series of coping strategies were discovered ranging from family support to paid help.s ufl_1505 37..45
The Problems Of The FAMILIES Who Have Autistic Children: A Qualitative Research
Life Skills Journal of Psychology, 2018
Autism is defined as one of the neurodevelopmental disabilities which continue for life and affect social development, communication and behaviors of the individuals in a negative sense. Purpose of this study is to determine how parents with autistic children figure out the autism, what their reactions are and what the effect of the believe is to accept it, how they declare it to the people around them and how the reaction of people is, who and how they get support from and what the possible future difficulties and requirements are. The study was based on qualitative research method and interview form prepared based on the purpose by the researcher was used in the study. The study is based on case study which is a qualitative research method and uses an interview form that is prepared by the researcher according to the purpose of the study. Study group is composed of 15 mothers and 8 fathers selected by purposive sampling method among parents of children going to special education centers. Study results have been shown that, it was found that the parents first noticed the inadequacy of language development without noticing the autism. In addition, it was seen that the first reaction of the parents' children to get autism was also the intense sadness. There is another result which is that parents need to get information about an autism with the sadness they have experienced. Parents have expressed concern about the future of their children, depending on the strength of their children's selfexpression. It has been determined that the society has negative attitudes towards autistic children and that parents would like to see the society to be more moderate towards autistic children. Results have been determined, it is important to establish empirical studies that will increase the awareness of other individuals about autism while showing the needs for supporting from autistic families. Study findings have been discussed with similar study findings included in the literature.
PSYCHOSOCIAL SUPPORT FOR FAMILIES OF CHILDREN WITH AUTISM
This paper draws attention to the stress levels and coping strategies used, in the families of children with autism. Differences in the stressors perceived and coping strategies adopted by the father, mother and siblings of a child with autism have been discussed. Given that pre-intervention parental stress levels predict the success of early intervention programmes and determine the prognosis, the paper highlights the importance as well as the lack of providing psychosocial support to the families of children with autism. The authors have illustrated various ways of delivering effective support services for parents. The article progresses from childcentred, professional dependence for service delivery to developing strategies that are family centred and encourage active participation of parents of children with autism themselves. The paper also draws attention to the prevailing scenario of autism in India.