Needs of patient with advanced stages of cancer in a Thai community (original) (raw)
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Journal of Health Science and Medical Research
Objective: To estimate the prevalence of patients requiring palliative care in outpatient clinics and associated factors.Materials and Methods: A cross-sectional study was conducted by retrospectively reviewing the electronic medical records of cancer patients visiting the outpatient clinics in the major tertiary care institution in southern Thailand during 1 January– 31 December 2018 from the Hospital Information System. The Supportive and Palliative Care Indicators Tool in Low Income Settings (SPICT-LISTM) was used to determine if the patients would benefit from palliative care. Forward stepwise multiple logistic regression was used to assess associations between potential factors and the need for palliative care.Results: Nine thousand nine hundred and ninety medical records were reviewed. 3,628 (36.3%) patients were male and 6,324 (63.3%) were female with a median age of 58.7 years. The prevalence of cancer patients requiring palliative care according to the SPICT-LISTM criteria ...
Assessment of the Family Caregiver Needs for Patient with Cancer regarding Palliative Care
Tanta Scientific Nursing Journal
Background: Cancer is one of the leading causes of death globally and palliative care is an integral component of the comprehensive care for patients in oncology. It is improving the quality of life. The aim of the study: was to assess the family caregivers' needs of patient with cancer regarding palliative care. Subjects and Method: Design: Descriptive study design was utilized in this study. Setting: This study was conducted in Oncology Outpatient Clinic of Tanta Health Insurance Hospital at Tanta city. Subjects: Simple randomized sampling of 400 family caregiver of patient with cancer who attended the previous setting. Tool of the study: Structured interviews schedule was used to collect the necessary data it composed of three parts. Part 1: Socio-demographic characteristics of the family caregivers. Socio-demographic characteristics and medical history of cancer patient. Part 2: Needs of the family caregivers about the palliative care and consisted of five types of needs (Informational, financial, Physical, Psychological and Social) Result: 46.8 % of the family caregivers had high need level for information, while 47% of them had high financial need level for palliative care and 44 % of them had low physical needs level. Moreover 58.3% of them had high psychological needs, and (70 %) of them had high social needs level about palliative care. Conclusion and Recommendations: Most of the family caregivers had high and moderate total needs level about palliative care: Therefore, community health nurse should provide special educational programs to all family caregivers to upgrade their knowledge about palliative care.
Journal of Health Research, 2017
Background: Although palliative care provides benefits to healthcare system, good management practice of palliative care is not broadly analyzed to all kinds of illnesses. Patients with chronic illness have impaired quality of life and emotional well-being but have less obtainment of palliative care. Healthcare providers are expected to have more knowledge related to palliative care, good perception and provision of care to maintain patients' quality of life. This study aimed to describe the level and identify the most influential factors of healthcare providers to knowledge, perception and provision of palliative care. Method: This study was a cross-sectional descriptive quantitative research based on surveying to identify knowledge, perception and provision of palliative care by Thai healthcare providers in private hospital to non-cancer, life-limiting and chronic illness patients. In order to obtain all the formation, 227 health provides were participated in the data collection process. Result: The average of sum scores of the participants was 19 meant they had good knowledge (x̅ = 18.97, S.D. =2.11). However, most participants incorrectly answered on palliative care in patients with heart disease (n=111, 49.1%). The most influential factors of healthcare providers to the level of palliative care knowledge significantly were age (p= 0.04) and position of work (p =0.001) (p < 0.05). In their perception, the aspects that had the most effect to palliative care were "ethic and legal issues" (x̅ = 4.18, S.D. = 0.648) and "organization and policy" (x̅ = 4.17, S.D. = 0.584). For the provision of palliative care, the behavior that healthcare providers mainly performed is providing care gently (x̅ =4.48, S.D. = 0.693) but less performed in providing conversation about the aims of life and the life after death with patient (x̅ =2.80, S.D. =1.350). For the most influential factors of healthcare providers' demography to the level of provision of palliative care significantly were position of work (p = 0.029) and palliative care education (p =0.002) (p < 0.05). Conclusion: Palliative care knowledge, cooperation of multidisciplinary care team and training palliative care skill are important for healthcare providers to cope with the patients and families. It is to explore the needs and also policy planning to provide good quality of palliative care.
BIRDEM Medical Journal, 2021
Background: Home-based palliative care (HPC) is a community-based palliative care approach with various advantages over institutional care like comprehensive care at patient’s known comfortable environment. This study aims at describing a pilot HPC program. Methods: A 3-year pilot project was implemented by Centre for Palliative Care (CPC) of Bangabandhu Sheikh Mujib Medical University (BSMMU), Dhaka, Bangladesh, supported by the Ministry of Education. At the end of the project period the team attempted a survey to capture a picture of HPC recipients, of their suffering and their needs and to assess as to what extent these needs can be met in the best possible way with the present strategy. A total of 34 patients and their caregivers were interviewed over telephone about receiving homecare. An attempt was taken to compare with the patients who used to get conventional care along with an access to the 24/7 telephone care service. Results: A total of 1634 home visits were made to 338 ...
The Suffering Experiences: Family Caregiver of Home Based Palliative Care in Malaysia
Open Access Macedonian Journal of Medical Sciences
BACKGROUND: Caring for a family member who has advanced cancer and is nearing the end of their life comes with a slew of concerns and obstacles for the caregiver. A thorough understanding of the hardships and tribulations of caregiving may be a step toward resolving the issues that these patients’ family caregivers confront. AIM: The present study aimed to explore the suffering experienced faced by Malaysian family member who has advanced cancer and is nearing the end of their life. MATERIALS: The present qualitative study was conducted through in-depth semi-structured interviews held with seven family caregivers of cancer patients selected through purposive sampling. Interviews continued until the saturation of data. All interviews were recorded, transcribed, and analyzed through conventional content analysis. RESULTS: The codes extracted from interviews produced five main themes, including empathic suffering, powerless and hopeless suffering, predictive suffering, compliance suffe...
Terminal Cancer Patient’s Experience in Decision Making of Palliative Care at Home
KnE Life Sciences, 2019
Background: Increased cancer prevalence, especially in terminal condition, needs a comprehensive management approach through a palliative care. Cancer patient is very encouraged to be involved in an independent decision making especially palliative care at home. Objective: This study aimed to explore the experience of terminal cancer patients in their decision-making process of palliative care at home. Method: This study was a qualitative study using descriptive phenomenological approach. The data were obtained through in-depth interview technique for 40-60 minues with 10 palliative cancer patients with the focus of the question exploring the experience of terminal cancer patients decision making for home-based palliative care. Analyzed by using Collaizi method. Results: The results obtained 2 themes which significantly describe the dynamic of patients with cancer from medication process to decision making of palliative care at home. Two themes emerged in this study were (1) patient wish to stay treated in the hospital and (2) the influence of family dominance in making palliative care decision. Conclusions: The study was expected to be a reference for nurses in conducting therapeutic approach by considering participant's characteristics. It was also expected to improve nurses' knowledge and communication skills in advocating and clearly informing palliative care purposes and program at home. Thus, patients do not have doubt to receive discharge from hospital and palliative care at home. In addition, a strategy from government is needed to optimize palliative programs through palliative care based on home care in various regions in Indonesia.
International Journal of Environmental Research and Public Health
Palliative care is an effective, multidisciplinary healthcare service to alleviate severe illness patients from physical, psychological, and spiritual pain. However, global palliative care has been underutilized, especially in developing countries. This cross-sectional survey aimed to examine the factors associated with older cancer patients’ willingness to utilize palliative care services in Myanmar. The final sample was composed of 141 older adults, 50-years of age and above who suffered from cancers at any stage. Simple random sampling was applied to choose the participants by purposively selecting three oncology clinics with daycare chemotherapy centers in Mandalay. We collected data using structured questionnaires composed of five sections. The sections include the participant’s socio-economic information, disease status, knowledge of palliative care, psychosocial and spiritual need, practical need, and willingness to utilize palliative care services. The study found that appro...
Nurse and Health: Jurnal Keperawatan, 2021
Background: Assessment of the needs of palliative care is the first step to know about the picture quality of life and determine interventions to solve problems experienced by patients with chronic conditions and terminal. One of the instruments that can be used is the PROBLEMS AND NEEDS IN PALLIATIVE CARE INSTRUMENT - SHORT VERSION (PNPC-sv). Instrument PNPC-sv examines the 8 dimensions of activity and excersice, physical symptoms, autonomy, psychological, spiritual, financial, and information needs. Methods: This research uses qualitative method with case study approach. Data collection was conducted by means of questionnaires filled in the assessment of the needs of palliative care (PNPC-SV), then performed in-depth interviews in accordance with the results of the assessment and observation on the 6 participants in the space of oncology in one of hospital in Semarang. Result: The theme results of this research are: (1) Self-acceptance as well as support to the family of the cond...