The experience of receiving a kidney transplant from a deceased donor: Implications for renal services (original) (raw)
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Waiting for a kidney from a deceased donor: an interpretative phenomenological analysis
Psychology, health & medicine, 2015
Demand for kidneys from deceased donors far outstrips supply. Despite this, there appears to be little research that focuses solely on the experience of waiting for a kidney from a deceased donor. This study uses the qualitative methodology interpretative phenomenological analysis to explore the lives of 10 people on the transplant list, with the aims of illuminating the potential psychological challenges those on the list may face during this time, and providing information to help clinicians more fully support such people in the future. Two themes connected to the experience of waiting - adjustment to the uncertainty of waiting and thinking about receiving a kidney from a living donor - are presented here. Participants describe a sense of confusion and uncertainty around life on the list, and discuss their strategies for dealing with this. Novel complexities around the ambiguous challenge of receiving an organ from a deceased donor are revealed. It is recommended that health care ...
Journal of health psychology, 2015
Much previous research into living kidney donation has focused on the decision-making of the donor, despite evidence suggesting this may be a more psychologically challenging time for the recipient. This longitudinal study explores the experiences of four recipients of kidneys from living donors throughout the transplant process. Transcripts were analysed using interpretative phenomenological analysis. Three themes arose from the data, which were as follows: changing perceptions of relationships with kidney donors; upbeat, temporal strategies for remaining positive and journey of the self. Findings from the first theme are presented in detail here. It was found that each participants' relationship with their donor grew and developed in different ways, presenting their own complex challenges in terms of developing relationships and ambiguity around the decision to use the chosen donor.
Transplant Trajectory and Relational Experience Within Living Kidney Dyads
Qualitative health research, 2015
Living kidney donation is considered common practice across most Westernized countries. While extensive research has documented the experience of living donors, few studies have addressed the perspective of recipients, and even fewer have examined the experience of donor and recipient as an interactive dyad. In this study, our aim was to examine the reciprocal influence between donors and recipients across the transplantation process. We recruited a homogeneous sample of 10 donors and recipients, who were interviewed individually. Data were analyzed using interpretative phenomenological analysis. The presentation of results follows the stages of the transplantation process: the disease experience, the experience of offering and accepting a kidney, the screening period, the surgery, and the post-transplantation period. Results are discussed within the framework of Mauss's gift exchange theory, social roles, and altruism. This comprehensive description of the dyadic experience pro...
Transplantation Proceedings, 2004
We investigated the psychosocial and demographic features of living related kidney donors and recipients during follow-up visits between August 2002 and March 2003 using two new questionnaires, one for donors and one for recipients. The surveys were distributed to 22 donors and 55 recipients, 18 (81.8%) donors and 49 (89.1%) recipients completed their questionnaires. Concerning level of satisfaction with quality of life after transplantation, 93.9% of the recipients and 72.2% of the donors were "highly satisfied". Almost all donors (94.4%) said that they would make the same decision again and would also strongly encourage others to donate. Issues related to donor dissatisfaction involved beliefs that preoperative information was inadequate and perceived negative effects of transplantation on personal health at the time the survey was conducted. Only 6.1% of the recipients said they were dissatisfied with their quality of life after the operation. The main issues were psychiatric morbidity and beliefs that preoperative information was inadequate. Overall, the vast majority of donors and recipients reported that they had a positive transplantation experience. Only a small proportion of the subjects developed psychosocial morbidity or were dissatisfied with their quality of life. These results are preliminary, but it appears that better psychological preparation for the transplantation process and close psychiatric follow-up would reduce negative outcomes.
Nondirected living kidney donation: experiences in a Swedish Transplant Centre
Clinical Transplantation, 2007
The qualitative study was carried out as a part of a larger longitudinal study on renal transplant recipients (RTRs) following a successful transplant in Pakistan. The aim was to explore why recipients with similar physical health status and healthy kidney functioning, differ in perceptions of Quality of life. Using in depth interviews the study participants with the highest and lowest scores on a standardized QoL index were asked to describe their experiences and attributions regarding kidney failure and to describe their health status pre-and post-transplant. The themes emerging from the analysis related to individual differences in the 'impact' of transplant on 'relationships' with significant others, (family, work and social life) 'self identity', 'social comparisons', perceptions of 'health care and medical professionals', adjustment, acceptance and 'coping' with a transplant. The recipients with a positive perception in these aspects tend to report a more satisfied QoL.
Donors and recipients of living kidney donation: a qualitative metasummary of their experiences
Journal of transplantation, 2011
With the notable growth in the qualitative investigation of living kidney donation, there is value in aggregating results from this body of research to learn from accumulated experience. The present paper aims to draw a complete portrait of living donors' and recipients' experience of donation by metasummarizing published studies. We found that donors' experience, particularly the decision-making process, has been more extensively studied than the recipients' perspective. Donors differ in their initial level of motivation to donate but on the whole report positive experiences and personal benefits. They also identify difficult periods and the need for additional resources. Recipients report an often positive but more ambivalent reaction to donation. In terms of relational issues between dyads, while the topic remains understudied, the donor-recipient relationship and gift reciprocity have received the most attention. Results are discussed in terms of their implicatio...
Perceptions in Living Kidney Donation: What Protagonists Think and Feel
Transplantation Proceedings, 2011
Background. Although donor perceptions of donation have been evaluated in several programs, evaluation of associated recipients has not been as frequent. Purpose. Our aim was to evaluate and compare after transplantation, donor and recipient perceptions of donation. Methods. After transplantation 35 recipients and 45 donors completed a sociodemographic and a donation perception questionnaire. We applied the Fisher test to descriptive (absolute and relative frequency) data. Results. 57.8% of donors were female and 62.9% of recipients male. 53.3% of donors were siblings, 44.5% parents, and 2.2% a daughter. Most recipients (71.9%) thought that the donation was the donors' initiative and 21.9% that it was suggested by medical team. 96.4% responded that it was the donor's wish that determined their decision; 51.4% had serious or some doubts about accepting the option, but for 48.6% it was an easy decision. Among the donors, 88.9% decided by themselves and 8.9% were asked for donation. For 91.1%, their wish was the main reason of the decision, but 8.9% felt a moral obligation; 77.8% thought it was an easy decision, and 17.8% hesitated a little 84.4% were not worried about their future health. Conclusions. Altruistic motivations were predominant in both groups. Most recipients thought that the motivation for donation was self-determined, a finding that agreed with donor perceptions. Perceptions about the quality of and changes in emotional relationship were the same in both groups. Donors and recipients referred to the donation process as positive, but there were some negative emotions and perceptions.
BMC Nephrology, 2020
BackgroundCurrently very little is known about the perceptions and experiences of kidney transplant recipients from a qualitative perspective. As highlighted by the European Kidney Health Alliance recommendations, providing holistic care to kidney patients is important however this is currently an unmet care need in renal disease. It is imperative to understand patient experiences to ensure that they are included in key strategies and future renal service planning. Ignoring these important patient views means that there is a significant risk of inappropriate renal service provision and lack of adequate support impacting on overall health.MethodA purposive sampling strategy will recruit individuals currently living with a kidney transplant, 6 months to 5 years post-transplant. A maximum of 30 patients will be recruited between two Regional Nephrology units within the United Kingdom via clinical gatekeepers. In-depth interviews will be undertaken with participants living with a kidney...
Psychological Changes in Post Kidney Transplant Recipients: Phenomenology Study
Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal)
Aims: Kidney transplantation can have a big impact on recipients, so they must be able to adapt to many changes, including psychological changes. Psychological changes are the most complained about by post- kidney transplant recipients. Psychological changes including feelings of anxiety and worry after kidney transplantation, these feelings arise due to post-transplant complications, feelings of guilt and fear of rejection, treatment regimens and uncertainty about the future. Therefore, recipients must be able to deal with psychological changes after kidney transplantation. Objective: To explore the psychological changes of post-kidney transplant recipients. Methods: A qualitative study using a phenomenological approach. This study was conducted on 6 participants who were undergone kidney transplantation. Purosive sampling was performed and data was collected through 35 to 60 min. Data collection in this study was carried out through in-depth interviews, audio recording and field n...