Progressive exhaustion: A qualitative study on the experiences of Iranian family caregivers regarding patients undergoing hemodialysis (original) (raw)
Related papers
Indian Journal of Palliative Care, 2018
Background: Although dialysis treatment is considered as a life-saving treatment for chronic renal failure patients, the caregivers face challenges in caretaking of these patients. Objectives: This study is aimed to explain the perspectives and experiences among caregivers of the patients undergoing hemodialysis in Iran. Methods: A qualitative design, based on a thematic analysis approach, was used to reach the study aim. In this study, 25 hemodialysis family caregivers were selected by purposeful sampling. The data were gathered through in-depth and unstructured interview and field observation and analyzed by the inductive thematic approach. Results: The three main themes were generated from the analysis of the data indicating that the caregivers face challenges such as heavy burden of care, tension in care, and emotional exhaustion. Conclusion: Caretaking of the hemodialysis patients is constantly accompanied with challenges and concerns regarding the effective care for patients. Health-care providers need to address these concerns based on both patient-and caregiver-focused approaches, rather than only patient focused, to the design and planning for helping the patients and their caregivers.
Journal of Renal Care, 2016
Background: Coping skills enable caregivers to establish and maintain supportive relationships with the haemodialysis patients they care for. These skills are very important in terms of social support, promotion of mental health and social and family relations. The aim of this study is to investigate the coping skills of Iranian family caregivers as they take care of patients undergoing haemodialysis. Methods: Twenty participants were selected for the study through purposive sampling. The data gathering techniques used for the research were in-depth and unstructured interviews. The researchers used an inductive thematic analysis approach to analyse the data generated from the interviews. Results: Four main themes emerged from the data: help-seeking skills, self-nurturing skills, time management skills and stress management skills. Conclusion: The focus of attention was on the stress management coping skills of the caregivers of haemodialysis patients together with their ability to cope with complex problems. Healthcare providers, by taking into account these skills and strategies of empowerment, can help other caregivers of haemodialysis patients cope with their heavy care conditions and better define their purposes in caretaking.
BMC Psychology
Background Family caregivers of patients receiving hemodialysis experience physical and psychological disorders. They are unfortunately neglected. The aim of this study was to explain the psychological consequences for family caregivers of patients receiving hemodialysis. Methods This qualitative inductive conventional content analysis research approach was conducted in Tehran, Iran. Nineteen hemodialysis patient caregivers were enrolled via purposive sampling. Data collection was conducted through in-depth and semi-structured interviews until reaching data saturation. All interviews were recorded, transcribed, imported into the Open Code Software, and analyzed using the Graneheim and Lundman methods. Results The results included two main categories: (1) threats to the psychological integrity; (2) development of capabilities. The first main category comprised the sub-categories of “care-related negative feelings and emotions,” care-related stress and its behavioral impacts on care, ...
Jundishapur Journal of Chronic Disease Care, 2017
Background: The high dependence of hemodialysis patients on home caregivers is a great source of care burden for them; therefore, accountability with appropriate communication as well as appropriate behavior and attention to needs of caregiver by health care team is a serious impact on care burden. Methods: A content analysis approach was used for data collection and analysis. The participants included16 family caregivers selected through purposive sampling from 4 medical education centers affiliated with Ahvaz Jundishapur University of Medical Sciences, Iran. Semi-structured interviews were held to collect data. Results: Data analysis led to the emergence of 3 themes including "responsive treatment team" "negative influences of the treatment team," and "collaborative care," which were all incorporated into the main theme of "an effective treatment team". Conclusions: The treatment team can play an effective role in improving the caregivers' well-being by appropriate treatment, accountability, and responsiveness to the needs of patients and their caregivers; meanwhile, it provides a better position for better care, however, it will reduce the care burden.
BMC Nephrology, 2021
Background Patients with end-stage kidney disease experience serious complications which affect their lives. Few studies have investigated the patients’ quality of life qualitatively from the perspective of family caregivers as the closest individuals to the patients. The family caregivers are directly involved in the patients’ disease progression and observe the changes, problems, and complications of disease and hemodialysis. This study aimed to explain the components of quality of life in hemodialysis patients from the family caregivers’ perspective. Methods In this qualitative inductive content analysis, 16 family caregivers of hemodialysis patients, presenting to the teaching hospitals of Tehran, Iran, were enrolled via maximum-variation purposive sampling; sampling continued until reaching data saturation. The data collection method included in-depth semi-structured interviews. Also, an inductive content analysis was carried out based on Elo and Kyngas’ method. Results A total...
The Burden of Caregivers of Patients Undergoing Hemodialysis
Journal of Holistic Nursing and Midwifery, 2021
There is a scarcity of literature about the burden of hemodialysis patients' caregivers. Caregivers often receive little attention, and the primary focus is always on the patients. Frequent hospitalizations and factors associated with the disease can lead to depression and reduce the caregiver's quality of life. Objective: The study aimed to determine the burden of caregivers of patients undergoing hemodialysis at a tertiary care hospital. Materials and Methods: This cross-sectional analytical study was conducted in a tertiary care hospital in northern India. A total of 110 caregivers who were providing care to their patients for more than 3 months were selected by purposive sampling method. The study data were collected by self-prepared demographic questionnaire to collect basic information regarding patients and caregivers, and the level of burden was assessed by a revised Zarit Burden Interview (ZBI) standardized on a 5-point scale. Descriptive and inferential (the Chi-square and Fisher exact test, 1-way ANOVA test) statistics were used for data analysis. Results: The Mean±SD age of caregivers was 37±13 years. Nearly half of caregivers, 50 (45.46%), reported mild to moderately burdened, while 15 (13.63%) caregivers had moderate to severely burdened. The caregivers were mild to moderately burdened as the mean burden score was 25±12. There was no significant association between the levels of burden scores and selected sociodemographic variables of the participants. Conclusion: It was found that caregivers of hemodialysis patients experienced moderate burden while caring and being with the patient, which may alter their health and quality of life.
Scandinavian Journal of Caring Sciences, 2017
Commitment to care: the most important coping strategies among family caregivers of patients undergoing haemodialysis Background: Caregivers of patients undergoing haemodialysis often experience an intensive burden of care; therefore, it is important to understand the type of strategies that are used by caregivers to adapt and to commit themselves to caring for another individual. Aim: The aim of this study was to explore the specific coping strategies used by family caregivers of patients undergoing haemodialysis. Methods: In this qualitative study, 16 family caregivers of patients undergoing haemodialysis were selected through purposive sampling in four dialysis centres in south of Iran. Semi-structured interviews were used to collect data. A content analysis of the interviews was performed to determine relevant themes. Results: Data analysis resulted in the emergence of four categories including 'cultural and religious constructs', 'sense of responsibility', 'self-restraint' and 'satisfactory caring', as whole of these categories are included in the main theme of 'commitment to care' which is experienced by the family caregivers during the care of patients undergoing haemodialysis. Conclusions: This study demonstrates that coping strategies stemming from the cultural beliefs of caregivers are very salient in their commitment to care; thus, the health-care team, especially nurses, should encourage family caregivers to use these strategies to maintain their physical and psychological health and to provide quality care for patients.
The relationship between care burden and quality of life in caregivers of hemodialysis patients
BMC Nephrology
Background: Caregivers of hemodialysis patients endure a significant caring pressure as a result of caring for patients with chronic illness, which can affect their quality of life. Disruptions in the quality of life of these caregivers impose double pressure on them and disrupt the care process. Therefore, the present study aimed to determine the level of care burden and its relationship with quality of life of caregivers of hemodialysis patients. Methods: In this descriptive-analytical study, 246 caregivers of hemodialysis patients were enrolled by census method, so that, all patients and caregivers who attended the study environment at morning, evening and night participated in the study. The study tool was a three-part questionnaire, which included personal information, Novak & Guest Care burden Questionnaire, and WHOQOL-BREF Quality of Life Questionnaire. Data were analyzed by descriptive, statistical and inferential tests. Results: In total, 37.4% of caregivers were experiencing high and very high levels of care burden and 42.7% of them were experiencing a moderate level of care burden. The mean and standard deviation of the quality of life of caregivers was 76.27 ± 13.67 out of 130. There was a significant and negative correlation between the total scores of care burden and quality of life (r = − 0. 436, P < 0.001). The factors influencing care burden included variables such as; level of patient's caring capability, the patient's incidence of other chronic diseases, and the age of the caregiver. So that, in case of reduced patient's capability in self-care, the patient's incidence of other chronic diseases, and the increased age of the caregiver, the level of care burden on the caregivers would be increased. Conclusions: The caregivers of hemodialysis patients endure high level of care burden and this pressure has a negative effect on their quality of life. Therefore, it is recommended to pay more attention to the needs of caregivers and provide adequate social, economic, physical and psychological support for them.
Caregiver’s Burden Among Families of Hemodialysis Patient: a Cross-Sectional Study
NurseLine Journal
Background: The end-stage renal disease affects almost every aspect of the patients' and caregivers' lives. Several studies have been conducted to explore the experiences of family caregivers in caring for hemodialysis patients. However, a survey of the burden of family caregivers has yet to be conducted in Indonesia, a country with strong family bonds among family members. Purpose: This study aimed to identify the burden among family caregivers of hemodialysis patients. Methods: This study was a cross-sectional study conducted in May 2021 on 60 family caregivers of hemodialysis patients. selected using a purposive sampling technique. Semi structured questionnaires were used to measure socio-demographic. The Caregiver Reaction Assessment-Indonesian Version (CRA-ID) was used to measure their burden. Data were analyzed using descriptive analyzes and bivariate analyzes. Results: Women represented 65% (n=39) of participants, married participants were 83.3% (n=50), and were 63.3%...