Burden, psychological well-being and quality of life of caregivers of end stage renal disease patients (original) (raw)
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Assessment of the Quality of Life of Caregiver's of Patients Suffering from Chronic Kidney Disease
Background. The impact of chronic kidney disease has a profound and pervasive effect on family and friends resul-ting in psychological strain, social isolation, relationship strains and financial strains from the added responsibili-ties of managing the patients. Few studies have found a sig-nificant burden on the caregivers, but the data from the Indian setup in lacking. Hence, we designed this study to assess the quality of life of caregivers of patients with chronic kidney disease. Methods. This prospective study was conducted on 68 ca-regivers of patients suffering from chronic kidney disease. The caregivers were divided into two groups. Group A vo-lunteers were caregivers of patients on haemodialysis, whe-reas Group B were caregivers of patients not on haemodia-lysis. The caregivers in both the groups were subjected to Za-rit Burden Interview (ZBI) and WHO-QOL-Bref scores. Results. 68 caregivers were enrolled in the study with an average age of 41.6±15.9 years, and a ZBI score o...
Open Journal of Psychiatry & Allied Sciences
Background: Caregivers face a lot of adversities while supporting their near ones undergoing haemodialysis, and their burden is often ignored by health professionals. The paucity of research in the Indian context has kept their needs out of sight. Aim: To explore the level of burden in the caregivers of patients with chronic kidney disease (CKD) undergoing haemodialysis and to assess whether patient related variable affects the burden. Methods: Fifty-one patients and their caregivers from two dialysis units in Sikkim, India, were assessed cross-sectionally. The Zarit Caregiver Burden Scale (ZCBS) was administered to measure the caregiver burden. The Patient Health Questionnaire-9 (PHQ-9) and the Charlson's Comorbidity Index (CCI) assessed the patient's depression and medical comorbidities, respectively. Descriptive analysis was done for the sociodemographic and clinical variables. Chi-square test was used to find the association between the categorical data. Kruskal-Wallis tested the association between categorical and quantitative variables. Results: Mean age of patient was 46.13 (±13.15) years and that of the caregiver was 44.78 (±12.14) years. 68.6% of caregivers had mild to severe levels of caregiver burden. Caregivers who were unemployed and educated till secondary school were more likely to report caregiver burden. Female gender, older caregivers, and caregivers attending patients with a longer history of haemodialysis reported a more severe burden. Conclusion: The level of burden in caregivers of CKD patients is significant and is affected by various factors, which, in turn, also affects patient's wellbeing. Further research in this area is needed in our country for better management of patients and policymaking.
Determinants of the Caregiver Burden of CKD Patients Undergoing Hemodialysis
International Journal of Psychosocial Rehabilitation, 2020
Families who treat chronic kidney disease (CKD) patients are at risk of experiencing caregiver burden. The family caregiver burden depends on the ability of the families to care for their family members who experience CKD when undergoing hemodialysis. The purpose of this study was to determine the factors associated with the caregiver burden of caring families (primary caregivers). This study used quantitative research and a cross-sectional design. The sample consisted of 95 respondents determined using consecutive sampling from the population in the Hemodialysis room of Muhammadiyah Lamongan Hospital. The variables of this study were caregiver burden (Y), Age (X1), Gender (X2), Educational level (X3), Salary (X4) and Treating the patient's time (X4). The research instrument consisted of the Zarit Burden Interview (ZBI) method to determine the caregiver burden. Multivariate analysis was done using logistic regression. The results showed that the caregiver model shows a significant burden with a variable in salary and age. The accuracy of the model when predicting caregiver burden was 62.1%. These two variables can explain the burden of the caregivers by 10%. The equation model obtained the results of Caregiver burden=-0,277+0,818*salary-1,313*age (adults)-0,738*age (elderly). There is a need for social support from other families who care. Support system can influence the level of caregiver stress.
Japanese Psychological Research, 2021
The current study aimed to examine the effect of depressive and anxiety symptoms on physical and psychological quality of life (QOL) in end-stage renal disease patient-family caregiver dyads using the Actor-Partner Interdependence Model. This was a descriptive cross-sectional study. Dyads' (N = 120) symptoms of anxiety and depression and QOL were assessed via the Hospital Anxiety and Depression Scale and the World Health Organization (WHO)QOL-BREF, respectively. The depression scores were higher (worse) in patients than in caregivers (8.74 AE 5.23 vs. 6.9 AE 3.9, t[df 119] = 3.339, p = .001). Patients had lower (worse) scores on the physical domain of QOL than the caregivers (47.37 AE 22.9 vs. 64.1 AE 17.49, t[df 119] = −7.165, p < .001). Anxiety and depressive symptoms exhibited actor effects on the physical and psychological QOL of the dyad. Only depressive symptoms in caregivers exhibited a partner effect on the psychological domain of QOL in patients (β = −.745, p < .05). In conclusion, anxiety and depressive symptoms in both patients and caretakers are equally crucial in end-stage renal disease management.
Healthcare, 2021
Background: Caring for a patient with end-stage kidney disease (ESKD) is highly stressful and can impact negatively on the physical and psychological well-being of caregivers. To accurately assess caregiver burden (CB), health care providers (HCPs) need to identify characteristics associated with an increase in CB. Aim: The aim of this review is to explore CB in caregivers of adult patients with ESKD and to identify characteristics associated with any increase in CB. Method: A comprehensive literature search was completed using five electronic databases. Medline, Embase, CINHAL, PsycINFO, and Scopus. The Joanna Briggs Institute checklist (JBI) was used to quality appraise full text papers included in the review. No time limit for the date of publication of studies was employed, to enable the inclusion of more extensive literature. Results: A total of 38 relevant studies from 18 countries were identified and included in the review. A variety of patient and caregiver factors can impac...
The Relationship between Burden and Depression in Spouses of Chronic Kidney Disease Patients
Depression Research and Treatment
The purpose of the present study was to investigate the burden and depression in spouses of patients with chronic kidney disease (CKD). The interrelation between burden and depression in family caregivers has been pointed out by previous researches in several chronic diseases and researchers agree that they clearly go together and one cannot talk about one without considering the other. More particularly, in the present study, the caregiver burden, the depression, anxiety, and also health-related quality of life and demographic factors of spouses of patients with CKD were examined, using self-report questionnaires. Participants were 50 spouses of patients with CKD, 29 of whom were dialysis dependent and 21 were not dialysis dependent. Group differences were examined for participants. Results confirm the interrelation between caregiver burden and depression in spouses. The increased perceived burden related to higher levels of depression. Low levels of caregiver burden, depression, a...
Anxiety in Family Caregivers of Dialysis Patients in Nairobi County, Kenya
2018
End stage kidney disease (ESKD) signifies that the kidney has failed to work. Henceforth, in the absence of a kidney transplant, the work of the kidney is carried out by the process known as dialysis. A diagnosis of ESKD and subsequent dialysis results in major lifestyle changes in the family. It also calls for drastic measures in caregiving for the patient as changes occur in medication and diet. With time, one member of the family, referred to as the Family Caregiver (FCG) becomes responsible for all the patient’s care. Studies have shown that this caregiving burden may compromise the FCG’s health, resulting in, among other mental disorders, anxiety. However, this has not been studied enough and therefore there is need to consider the incidence of and factors associated with anxiety among FCGs of dialysis patients. In a cross-sectional study, using a convenience sample of 96 FCGs and their patients in various private hospitals in Nairobi and using the Beck Anxiety Index (BAI), thi...
Transplantation Proceedings, 2015
Background. We compared the caregivers of hemodialysis (HD) patients and caregivers of patients with renal transplantation (Tx) in terms of anxiety, depression, sleep quality, and caregiver burden. We believe that caregivers of HD have more difficult conditions than caregivers of the patients with Tx. Methods. This cross-sectional study analyzed the psychological status of caregivers of Tx patients compared with those of HD patients with using the Hospital Anxiety and Depression Scale, Zarit Burden Interview, and Pittsburg Sleep Quality Indexes. We recruited 133 caregiversd65 caregivers in the Tx group and 68 in the HD group. Results. Mean age was 43.1 AE 8.5 years. The age, sex, income level, and education level were similar between the 2 groups. Caregivers in the HD group had significantly higher rates of anxiety and depression compared with the Tx group (P ¼ .007 and P < .001, respectively). Good sleep quality rates for caregivers in the Tx group and caregivers in the HD group were 92% (n ¼ 60) and 63% (n ¼ 43), respectively. Poor sleep quality was significantly higher in caregivers in the HD group compared with caregivers in the Tx group (P < .001). Caregiver burden scores were significantly higher for caregivers in the HD group compared with caregivers in the Tx group (P < .001). Conclusions. We suggest that Tx is the more appropriate renal replacement therapy for caregivers who undertake the care of patients with end-stage renal disease and chronic kidney disease.
Medical Journal of Indonesia, 2018
Background: In Indonesia, chronic kidney disease (CKD) is primarily managed by hemodialysis (HD) because limited resources rule out the possibility of renal transplantation. HD patients are commonly accompanied by caregivers. However, most studies have neglected the health of caregivers, who play an important role in the survival of HD patients. This study aimed to determine the proportion of caregivers who suffer from anxiety and depression and the factors involved. Methods: This was a cross-sectional study involving 100 caregivers in the HD unit of Cipto Mangunkusumo Hospital, Jakarta. This study used the hospital anxiety depression scale (HADS) to determine the extent of anxiety and depression among caregivers. All caregivers were asked to fill out the questionnaire without assistance. Results: A total of 28% and 18% of caregivers were found to be anxious and depressed respectively. The caregiver's relationship with the patient, whether the caregiver was being paid or unpaid, the total duration of care, and income were not associated with levels of anxiety and depression. However, the proportion of each 24-hour period spent on care was significantly associated with anxiety (p=0.037) and depression (p=0.015). The time spent on care every 24 hours was also a significant predictor of anxiety (p=<0.001) and depression (p=0.021). Conclusion: One-third of caregivers were found to be anxious and/or depressed. The time spent on care every 24 hours was a strong predictor of both anxiety and depression.
Quality of Life of Family Caregivers of Elderly Patients on Hemodialysis and Peritoneal Dialysis
American Journal of Kidney Diseases, 2006
Background: Despite the growing number of elderly patients with end-stage renal disease who need support, there are few studies about their caregivers. The objective of this study is to describe caregivers' characteristics and evaluate their burden and quality of life. Methods: We studied caregivers of elderly patients (>65 years) on hemodialysis (HD) therapy (n ؍ 84), on peritoneal dialysis (PD) therapy (n ؍ 40), and a group of caregivers (n ؍ 77) of nonelderly HD patients. Their quality of life was evaluated by using the Medical Outcomes Study 36-Item Short-Form Health Survey questionnaire, Caregiver Burden scale, and Cognitive Index of Depression. Results: Most caregivers of the elderly were women (78%) aged 55 ؎ 15 years and sons or daughters (41%) or wives or husbands (50%) of patients. Caregivers' Emotional Aspect, Vitality, and Mental Health were the most affected dimensions. The Mental Component Summary mean score, adjusted for patient race, educational level, primary diagnosis, hematocrit, comorbidities, and physical functional status, was worse for caregivers of PD than HD elderly patients (36.3 ؎ 1.9 versus 44.8 ؎ 1.5; P < 0.01). The most affected Caregiver Burden scale dimensions were General Strain and Environment. Thirty-two percent of caregivers showed signs of depression. Conclusion: Caregivers of elderly dialysis patients, especially of those on PD therapy, experience a significant burden and adverse effects on their quality of life. Educational, social, and psychological support interventions should be considered to improve the quality of life of caregivers. Am J Kidney Dis 48:955-963.