Beyond breaking bad news: The roles of hope and hopefulness (original) (raw)

2008, Cancer

BACKGROUND.Hope is important to patients, yet physicians are sometimes unsure how to promote hope in the face of life-threatening illness.Hope is important to patients, yet physicians are sometimes unsure how to promote hope in the face of life-threatening illness.ANALYSIS.Hope in medicine is of two kinds: specific (hope for specific outcomes) and generalized (a nonspecific sense of hopefulness). At the time of diagnosis of a life-ending condition, the specific goal of a long life is dashed, and there may be no medically plausible specific outcome that the patient feels is worth wishing for. Yet the physician may nonetheless maintain an open-ended hopefulness that is compatible with the physician's obligation to be truthful; this hopefulness can help sustain patient and family through the turbulent period of adaptation to the unwelcome reality of major illness. As this adaptation evolves, the physician can help patients and families adapt to suffering and loss of control by selecting and achieving specific goals such as improvement of the patient's environment in hospital or hospice, pain control, and relief of sleeplessness. Thus hope for specific (but far more modest) future events can again become a positive part of the patient s emotional landscape. The authors do not propose that physicians remain upbeat no matter the circumstance, for they must respect the constraints of reality and the patients' mortality. However, physicians can provide both cognitive and affective support as patients learn how to adapt. Hope and hopefulness are both important in this process.Hope in medicine is of two kinds: specific (hope for specific outcomes) and generalized (a nonspecific sense of hopefulness). At the time of diagnosis of a life-ending condition, the specific goal of a long life is dashed, and there may be no medically plausible specific outcome that the patient feels is worth wishing for. Yet the physician may nonetheless maintain an open-ended hopefulness that is compatible with the physician's obligation to be truthful; this hopefulness can help sustain patient and family through the turbulent period of adaptation to the unwelcome reality of major illness. As this adaptation evolves, the physician can help patients and families adapt to suffering and loss of control by selecting and achieving specific goals such as improvement of the patient's environment in hospital or hospice, pain control, and relief of sleeplessness. Thus hope for specific (but far more modest) future events can again become a positive part of the patient s emotional landscape. The authors do not propose that physicians remain upbeat no matter the circumstance, for they must respect the constraints of reality and the patients' mortality. However, physicians can provide both cognitive and affective support as patients learn how to adapt. Hope and hopefulness are both important in this process.SUMMARY.Hope is always important to patients. Physicians can and should promote hopefulness without endorsing unrealistic hope. Cancer 2008. © 2008 American Cancer Society.Hope is always important to patients. Physicians can and should promote hopefulness without endorsing unrealistic hope. Cancer 2008. © 2008 American Cancer Society.

Is there hope in palliative care

Is there hope in palliative care? Dave McKay MBChB FRNZCGP Patients receiving bad news that they have a serious life threatening illness will ask ‘What hope is there for me?’ Many feelings surge through the per- son, their family, friends and their medical carers. One response to the illness is a search between hope and hopelessness. An understanding evolves and changes at times and over time during the course of the illness. Change is the critical process. Hope is no longer a single or concrete phe- nomenon when one is dying; this is a fundamental in understanding for the patient, their family and the doctor. This paper explores hope within the context of terminal illness and palliative care, defining its essential influences and effects. Hope does not only apply to the patient but applies to all of those involved, each of whom is searching for their own meanings. Hope is discussed from its origins to effects on the patient, family and their doctor. It appears there are stages of hope similar to the stages of dying. A dynamic understanding of hope can be used to beneficial effect when faced with despair caused by a diagnosis of terminal disease.

Exploring the therapeutic value of hope in palliative nursing

Palliative and Supportive Care, 2010

Hope is a multi-dimensional concept that is integral to a dying person's needs. It is an essential resource that assists individuals with a life-threatening illness to cope during times of intense physical and psychological distress. The objective of this article is to explore and analyze the therapeutic value of hope. The phenomenon of hope will be explored through the analysis and application of Dufault and Martocchio's Multidimensional Model of Hope (MMH) to a clinical scenario. Factors determining hope in cancer patients as well as interventions that can foster hope in dying patients will be identified. Discussion includes examination of literature gaps, relevance to nursing practice, and practical strategies to engender hope and thereby enhance quality of life (QOL) in advanced cancer patients.

Fostering hope in terminally‐ill people

Journal of Advanced Nursing, 1990

This study explored the meaning of hope and identified strategies that are used to foster hope in a convenience sample of 30 terminally‐ill adults using the technique of methodological triangulation (interview, Herth Hope Index and Background Data Form) Cross‐sectional data were collected on 20 of the subjects, and longitudinal data were collected on 10 of the subjects in order to provide a clearer understanding of the hoping process during the dying trajectory Hope was defined as an inner power directed toward enrichment of ‘being’ With the exception of those diagnosed with AIDS, overall hope levels among subjects were high and were found to remain stable over time and across the background variables Seven hope‐fostering categories and three hope‐hindering categories were identified based on the interview responses The findings could serve as a guide for the development of interventions to foster hope in terminally‐ill people

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