6. Information for patients (original) (raw)

Increasing Patient Engagement: Patients’ Responses to Viewing Problem Lists Online

Applied Clinical Informatics, 2014

Objective: To characterize the opinions, emotions, and actions taken by patients who viewed their electronic problem list via an online personal health record (PHR). Materials and Methods: An online survey of patients who viewed their problem lists, as maintained by their healthcare provider, in a web-based PHR linked to an electronic health record for the first time. Results: A total 3,649 patients completed the survey, yielding a response rate of 42.1%. Patient attitudes towards the problem list function were positive overall, with 90.4% rating it at least somewhat useful and 86.7% reporting they would probably or definitely use it again. Nearly half (45.6%) of patients identified at least one major or minor problem missing from their list. After viewing the list, 56.1% of patients reported taking at least one action in response, with 32.4% of patients reporting that they researched a condition on the Internet, 18.3% reported that they contacted their healthcare provider and 16.7% reported changing or planning to change a health behavior (patients could report multiple actions). 64.7% of patients reported feeling at least somewhat happy while viewing their problem list, though others reported feeling sad (30.4%), worried (35.7%) or scared (23.8%) (patients could report multiple emotions). A smaller number of patients reported feeling angry (16.6%) or ashamed (14.3%). Patients who experienced an emotional response were more likely to take action. Conclusion: Overall, patients found the ability to view their problem lists very useful and took action in response to the information. However, some had negative emotions. More research is needed into optimal strategies for supporting patients receiving this information.

Information for patients: should we reconsider our assumptions?

InfoDesign, 2023

Article | ArtIgo Information for patients: should we reconsider our assumptions? Informação para pacientes: devemos reconsiderar nossos pressupostos? Karel van der Waarde In order to take medicines correctly, it is essential that people receive suitable information. Without information it is difficult to consider, take, store, and discard medicines. At the moment, many people have difficulties to find, read, understand, and apply information about medicines. In the European Union, most information about medicines is presented in a text format. Very few visuals are used. Furthermore, information about medicines does not make much use of the digital opportunities. The logical next steps are to improve the design of visual information about medicines, and to embrace digital opportunities. However, the regulatory frameworks that govern information about medicines need to be modified. The regulations need to focus on usability, understanding, findability, and relevance. Experiments and prototypes are essential to find out what kinds of information and formats are effective. This requires a shift towards a 'digital design strategy based on healthcare outcomes.' Para usar medicamentos corretamente, é fundamental que as pessoas recebam informações adequadas. Sem informação, é difícil considerar, usar, armazenar e descartar medicamentos. No momento, muitas pessoas têm dificuldades em encontrar, ler, compreender e aplicar informações sobre medicamentos. Na União Europeia, a maior parte da informação sobre medicamentos é apresentada em formato de texto. Muito poucos recursos visuais são usados. Além disso, a informação sobre medicamentos não aproveita muito as oportunidades digitais. Os próximos passos lógicos são melhorar o design da informação visual sobre medicamentos e aproveitar as oportunidades digitais. Contudo, as regulamentações que regem a informação sobre medicamentos precisam ser modificadas. Os regulamentos precisam se concentrar na usabilidade, compreensão, localização e relevância. Experimentos e protótipos são essenciais para descobrir que tipos de informação e formatos são eficazes. Isso requer uma mudança em direção a uma 'estratégia de design digital baseada em resultados de saúde.' visual design, information about medicines, evidence, performance design visual, informação sobre medicamentos, evidência, desempenho

The clinician's role in meeting patient information needs: suggested learning outcomes

Medical Education, 2001

Background Patients have always ful®lled their information needs from a variety of different sources over time. Clinician±patient consultations are one part of that process. Some patients have increasing opportunities to obtain information through new sources such as the internet, touch-screens, and patient-held records. Others remain poorly informed.

Patients’ informational needs and information received do not correspond in hospital

Journal of Clinical Nursing, 2005

Patients' informational needs and information received do not correspond in hospital Aims and objectives. This study describes and compares the information patients want with the information they receive and examines whether this varies between patients. Background. Patient information during hospitalization has received increasing attention. Previous studies, however, have identified problems of inadequate or insufficient information from a patient's point of view. Design. Descriptive, survey design with questionnaires. Methods. The categorical data were collected by specifically designed questionnaires from adult patients (n ¼ 928) on discharge from one Finnish hospital. The data were analysed statistically using descriptive statistics and non-parametric tests (Mann-Whitney U, Kruskal-Wallis, McNemar and Wilcoxon Signed Ranks tests). Results. Patients attached great importance to information on illness and treatment, and information in this area was provided quite satisfactorily. Less importance was attached to information regarding patient's daily management of illness, such as aftercare, prognosis and patients' rights and less information was reportedly provided. Female gender was systematically associated with attaching greater importance to information and to better evaluations of informational areas. Conclusions. Patients informational needs and the information received from staff did not correspond. The findings confirm the importance of nurses' roles in assessing patients' informational needs to tailor and provide explicit and relevant information to satisfy patients' informational needs. Relevance to clinical practice. More emphasis should be put on developing methods to ascertain patients' informational needs, to evaluate the content of information and to develop tailored information packages for different patients. This can be Ó 2005 Blackwell Publishing Ltd 1167 done by empowering and helping patients to access and understand relevant and appropriate information, for example, by Web-based information systems.

The recognition and valuing of patient knowledge: a way forward

The health care that patients receive, particularly in acute care settings, is mainly based in biomedical knowledge. The scientific method of investigating health conditions has directly contributed to the development of this knowledge. This has made a significant contribution to increased survival rates, reduced recovery periods and extending the duration of life.

Patients' Uses of Information as Researchable Domains of Social Practice

Health Informatics Journal, 2012

In this article we argue that research into information for patients has to extend beyond an evaluation of particular information resources to studies of how those resources are engaged with, made sense of and used in practice. We draw on empirical data collected in the course of a study of a patient information resource designed for breast cancer patients in Liverpool and Newcastle in order to demonstrate the limitations of a restricted focus on information resources alone – namely, that it does not take into account the specific ways in which information is incorporated within what patients do as the grounds of ‘further inference and action’. Our interest is less in discussing the strengths and weaknesses of this particular resource than in explicating some neglected aspects of the commonplace ways in which patients ‘work’ with information. We conclude by sketching some broad features of those ‘reading’ and ‘linking’ practices, the study of which, we believe, would help us as researchers to explicate the ‘problem of information’ as it is actually encountered and resolved by patients in realworld settings for their own practical purposes. Taking our lead from ethnomethodological studies and related research in various fields, we argue patients’ uses of information are social practices that can and should be treated as researchable phenomena.