Art, authenticity and citizenship for people living with dementia in a care home (original) (raw)
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2020
This chapter uses the case study of Raising the Curtain (RTC), a community based participatory research project (CBPR), to explore the opportunities and insights that resulted from an education – arts – health care collaboration. RTC occurred in a long-term care facility located in rural British Columbia and was a collaboration between researchers, artists, health care workers, and people with lived experience of dementia. The project's goals were to: (1) increase understandings of the lived experience of dementia by highlighting the sociocultural constructions of the disease; (2) uncover innovative strategies for building an education – art – health care collaboration; and (3) spawn creative and innovative approaches to participation, engagement and advocacy for individuals with lived experience of dementia. Insights gained from RTC point to the promise of integrating creative and social justice-oriented community engagement into leisure practice. Ultimately RTC created a '...
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2019
This paper presents the preliminary ethnographic stage of an ongoing PhD project that aims to explore how ludic, and creative activities can support older residents living with dementia in residential care. Observations of care units, as well as formal and informal interviews with care staff provided an understanding of the daily routines and activity within the environment, identified in-house activities, and gave insights into supporting the wellbeing of residents. Observations of arts based activity sessions, and interviews with the creative practitioners who deliver them, provided insights into how creative activities can be a valuable resource in supporting the wellbeing of residents living with dementia, as well as the limitations associated with this field. The paper presents the context for the research question and outlines the methods that were used in addressing it. A summary of the findings are given followed by a brief discussion, focusing on the value that creative act...
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Conduct in Dementia: Video Analysis of Arts Interventions
Sociological Research Online, 2019
This study applies video analysis to an investigation of interactions among people with dementia in a cultural context, specifically a visual art exhibition in a gallery. The study adopts a sociologically informed approach to explore the role of artworks and how these may be beneficial to dementia care, by focusing on meaning-making conversational practices among people living with dementia. The interactions of different individuals with various forms of dementia were recorded during three gallery visits, including their engagement with gallery attendants and artworks. The findings reveal the socially empowering impact of interactions related to artwork, with complex patterns in bodily behaviour and facial expressions meaning that orientation to dementia became negligible. The article makes a contribution to the growing field of sociology of ageing and well-being from an interaction analytic perspective, indicating that cultural values can play a greater role in the care of people l...
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Theorizing How Art Gallery Interventions Impact People With Dementia and Their Caregivers
Purpose of Study: Dementia refers to a variety of diseases that are characterized by cognitive difficulties and an overall decline in daily living skills. Psychologically informed arts and health programs may be particularly beneficial ways of improving the lives of people with dementia and their caregivers. This study sought to better understand how programs at contemporary and traditional art galleries might play a role in the lives of people with dementia. Design and Methods: Participants included 12 people with mild-to-moderate dementia, their 12 caregivers and 4 gallery facilitators. Those with dementia and their caregivers were engaged in art viewing followed by art making over an 8-week period. Data, collected through postintervention interviews with participants, field notes and extensive written communication between the facilitators and research team, were analyzed using grounded theory methodology to theorize how gallery-based interventions affect people with dementia and those who care for them. Results: The emerging theory has four primary components: the art gallery is seen as being a physically valued place that provides intellectual stimulation and offers opportunities for social inclusion that can change how dementia is perceived. These components coalesced to create positive emotional and relational effects for those with dementia and caregivers. Implications: The resulting theory has potential implications for the use of gallery-based programs in dementia care within public health, healthcare, and museum/art gallery policy and practice.
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Dementia
Introduction Relationships between people with dementia and their carers can prove challenging over the trajectory of the disease. Interventions with a potential to address this include arts and music-based activities. This research project aimed to evaluate a community engagement programme (Carers Create) where both people with dementia and their carers participate together in singing and other activities. A specific focus was on the impact of the sessions on the dyadic relationship. Methods A grounded theory approach involved conducting three focus group interviews with carers of people with dementia ( n = 16) facilitated by members of a local U3A (University of the Third Age) who were trained and supported by university researchers. Recorded conversations were transcribed and analysed using a three-stage coding and thematic development technique. Results Four overarching themes were identified from the discourse: remembering the positive qualities of the cared-for, the physical a...
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Drawing in-situ: Matters of care and representation in daily life with dementia
Qualitative Research
This article brings methodological insight into in-situ drawings as representations of daily life with dementia. As part of ethnographic fieldwork in dementia care units in a nursing home, drawings were made on site by a researcher. We suggest that the ambiguity of in-situ drawings, and the ensuing possibilities to disambiguate them, is valuable. Inspired by Asdal and Moser’s (2012) concept of “contexting,” we experimented with arranging the drawings with fieldnotes, discussing them with staff members, as well as with configuring multiple drawings and fieldnotes in sequences. This led to reflexive engagements with the drawings, creating space for discussing concerns in research practices and care practices. Switching between different forms of contexting produced tensions, revealing that what was cared for through the practices of researchers, staff members, and residents, diverged. In this way, we argue that contexting in-situ drawings may intervene in ways of knowing, caring for, ...
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