Quality of Life in Patients with Haemophilia – Qualitative Study (original) (raw)

Haemophilia is hereditary disease that can affect the quality of life if the patient does not respect its limitations. Nowadays modern treatment can improve the quality of life. The aim of the study was to map which dimensions of quality of life are particularly affected by the disease. The sample consisted of four patients aged 14, 24, 40 and 60 with severe haemophilia type A. The research method was semi-structured interview. The results of the interviews indicate that the patients are the most limited in the physical area. In the symptomatology there predominated bladder and bleeding in the joints that lead to arthropathy in the elderly patients who experienced chronic joint pain. The risk of bleeding was reduced by a suitable choice of leisure time activities. They also had to adjust the disease to the selection of school and occupation. At the emotional level, there dominated the fear of establishing a family and of the gradual loss of self-sufficiency. The comparison of patien...

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