Measurement of mothers' confidence to care for children assisted with tracheostomy technology in family homes (original) (raw)

Journal of applied measurement, 2011

Abstract

The purpose of this research was to develop an objective, linear measure of mothers' confidence to care for children assisted with tracheostomy medical technology in their homes. Caregiver confidence is addressed in this research for three technologies, namely, a) trachesotomy, b) tracheostomy and ventilator, and c) BiPAP/CPAP although detailed measurement results are only reported for tracheostomy, and its co-calibration with tracheostomy and ventilator caregiving items. The sample consisted of 53 mothers responding to several caregiver questionnaires based on a caregiving task matrix after content and clinical validation. A major challenge was integrating this construct with overarching principles already established by Functional Caregiving, a multi-level humanistic caregiving model for children with intellectual disabilities. Empirical analyses included principal components analysis, and then linear transformation of Tracheostomy item ratings to an objective, equal-interval ...

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