Familial Experiences of Caring for Schizophrenia Patients during the Covid-19 Pandemic: A Qualitative Study (original) (raw)
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INDONESIAN NURSING JOURNAL OF EDUCATION AND CLINIC (INJEC)
Introduction: Families who care for schizophrenia patients will experience various challenges, which are influenced by the family's knowledge and understanding of schizophrenia. This study aims to explore the family's understanding of schizophrenia in their families in rural families in Indonesia in 2020.Methods: This study uses a qualitative research design with a phenomenological approach, which was conducted in East Java Provincial Health Office from July to October 2020. The study participants were five family members who cared for a schizophrenia patient at home. Researchers conducted semi-structured in-depth interviews with participants and analyzed using interpretative phenomenological analysis.Results: Based on the thematic analysis, three main themes were found, including 1) Family doesn't understand schizophrenia; 2) Family ignorance about how to care for the patient; and 3) Schizophrenia patients are considered a burden.Conclusions: The family's ignorance ...
Background: A caregiver is a primary nurse and has a major role in providing care for people with schizophrenia. Caring for those with schizophrenia for a long period of time is a challenge for families, especially caregivers. Various needs ought to be studied by nurses to assist caregivers in providing optimal care for family members who experience schizophrenia. Objective: This qualitative study aims to explore the needs of caregivers in treating schizophrenia at home. Methods: The method used in this study is the method of purposive sampling with the number of participants as many as 10 people with criteria: 1) have family members diagnosed with schizophrenia, 2) directly involved in home care patients, 3) caring for schizophrenia for more than one year, 4) willing to be a participant by signing informed consent, 4) being able to identify what is needed in treating schizophrenia. Colaizzi is used to analyze interview data. Results: The results of the study found four themes of caregiver needs in caring for schizophrenia patients at home, namely: 1) seeking information about schizophrenia, 2) sought schizophrenic relatives' recovery, 3) looking for appropriate rehabilitation for relatives with schizophrenias, and 4) utilizing mental health facilities. Conclusions: It is expected that nurses have the knowledge and skills in identifying and helping families, especially caregivers, to meet unmet needs so they can optimize home care.
Family Burden of Schizophrenia in Pasung During COVID-19 Pandemic: A Scoping Review
INDONESIAN NURSING JOURNAL OF EDUCATION AND CLINIC (INJEC)
Introduction: The long-term care in schizophrenia patients can cause care burdens, which will relate to the family's decision to do pasung. The perceived burden will be even heavier because of the COVID-19 pandemic. This review aims to identify the family care burden affecting pasung in schizophrenic patients during the COVID-19 pandemic. Methods: This scoping review was conducted by searching four databases, namely ProQuest, Science Direct, and EBSCO, and Google Scholar in the past ten years. This study uses the PRISMA 2009 protocol in filtering articles from the database. Researchers summarize based on the significance value for quantitative research, based on themes’ qualitative research, and discussed factors mentioned which may influence the family. Thus, we obtained 15 articles for final review. Results: The results obtained that the subjective burden felt by the family is a feeling of worry and sadness due to the patient's aggressive behavior and the safety of the pat...
Schizophrenia and the Family Burden During the Pandemic
2020
6 Dunarea de Jos University of Galati, Faculty of Medicine and Pharmacy, Galati, Romania, chiroscaliliana@gmail.com Abstract: This article focuses on the issue of the burden that families with people with schizophre-nia in care are confronted with. The pandemic caused significant disruption to the family dynamics of people caring for individuals with schizophrenia due to their higher risk of infection and worse outcomes. Families with patients with schizophrenia should pay close attention to detect both res-piratory and psychiatric symptoms as early as possible. They may need health care pro-fessional support, guidance and help to prevent COVID-19 infection among people di-agnosed with schizophrenia. However, the issue of the difficulties that families with people diagnosed with schizophrenia face remains a serious matter.
International Journal of Mental Health Nursing, 2021
Family and carers play an important role in supporting service users who are in receipt of acute mental health inpatient care, but they can also be significantly emotionally and physically impacted. The aim of this study was to examine their needs and priorities during this time. Fourteen family and carers of inpatients experiencing psychosis completed semi-structured interviews examining their experiences of inpatient care during the COVID-19 pandemic. Thematic analysis was used to analyse data. Four key themes were identified: 'A turbulent journey to hospital admission', 'I need information and support', 'Maintaining my relationship with my loved one' and 'Inpatient care is a mixed bag'. Each theme comprised four or five subthemes. The findings demonstrated that family and carers feel excluded from inpatient care and struggled to maintain contact with their loved ones, which was exacerbated by COVID-19 related restrictions. Communication and being regularly informed about their loved one's care, as well as visiting loved ones, was particularly problematic. Inpatient care needs to be more inclusive of family and carers and ensure they are kept in mind at every stage of the admission.
International Journal of Environmental Research and Public Health, 2021
Many studies have shown that the COVID-19 pandemic can have a great influence on mental health. However, there is still not enough research to fully understand how people suffering from schizophrenia experience crisis situations such as a pandemic. This qualitative study aims to explore this subject. Ten outpatients suffering from schizophrenia were interviewed in a semi-structured format using an interview designed by the authors for the purpose of this study. The interviews were transcribed, and a conventional qualitative content analysis was conducted. The general themes identified in the content analysis were organized into four categories: first reactions to information about the pandemic; subjective assessment of the pandemic’s impact on patients’ mental health; patients’ attitudes towards the temporary limitations and lockdowns; psychiatric treatment and psychotherapy during the pandemic. A variety of different experiences were observed, but the general conclusion arising fro...
A Qualitative Study About Schizophrenia Caregiver’s Experiences and Needs
Enhancing Capacity of Healthcare Scholars and professionals in Responding to the Global Health Issues
Caregivers in schizophrenia patients have a high burden of care so they are unable to care optimally and have an impact on the high relapse. The study aimed to explore the experiences and needs of caregivers in caring for patients. This was qualitative research used a phenomenology approach. Participants were 11 caregivers who directly cared for schizophrenic. Purposive sampling technique was applied. The data collection method used in-depth interviews. The results gained four themes: caring experiences, perceived burdens, used coping mechanisms and caregivers' needs in caring for patients. Caregivers' experiences in caring for patients often encountered problems including insufficient knowledge, financial and support that created physical, emotional/psychological, and social burdens. Adaptive and maladaptive coping mechanisms were used. Caregivers' needs in caring for their family members affected by schizophrenia including knowledge, support and health services. Caring and support from people around them will reduce the risk of disruption of well-being and can improve the welfare of patients with schizophrenia. It can be concluded that caregivers' needs were some knowledge on how to care for patients and their treatment, supports and health services.
https://ijshr.com/IJSHR\_Vol.5\_Issue.4\_Oct2020/IJSHR\_Abstract.0029.html, 2020
Families in the care of clients with Schizophrenia disorder act as the primary support system that provides direct care to any (healthy - sick) client. Most families ask health workers for help if they can no longer afford to care for them. Therefore, family-focused nursing care not only restores the client's condition but aims to develop and improve the family's ability to overcome the family's health problems. This research aims to determine the family's knowledge of outpatient Schizophrenia in the central asylum area of North Sumatra Province year 2011. The study used a descriptive design. This study's population is the entire family of schizophrenic patients who are on the road medicine at Poli Clinic of Central Mental Hospital in North Sumatra Province. The sampling in this study was to use accidental sampling techniques as many as 25 respondents. Data collection techniques using questionnaires. Data that has been obtained manually with step editing, coding, tabulating, scoring, and data analysis. As a result of the well-knowledgeable study of 5 people (20%), respondents were enough as many as nine people (36%), fewer respondents as many as 11 people (44%). Based on the results of this study can be concluded that the family's knowledge of Schizophrenia is knowledgeable less. So it is expected to the family to enhance further and deepen understanding about Schizophrenia.
BMC Psychiatry, 2021
Background The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of family caregivers. Such changes may directly affect the family performance and the patient’s recovery stage. Present study aimed to explain the positive experiences reported by family caregivers of patients with schizophrenia. Methods The present study is a qualitative study of content analysis. Data were collected using semi-structured and in-depth interviews with 15 family caregivers of patients with schizophrenia referring to one of the psychiatric hospitals in Zahedan, Southeast part of Iran. Purposive sampling method was applied and data analysis was conducted using conventional content analysis proposed by Graneheim and Lundman. Results Data analysis created a theme entitled “family achievements in struggling with schizophrenia”. This theme included four categories including Developing positive personality traits in...
International Journal of Social Psychiatry
Background: The coronavirus disease 2019 (COVID-19) has affected the vulnerable Brazilian population. In this study, we investigated the burden of COVID-19 on caregivers for patients with schizophrenia. Objective: This study assessed objective and subjective burden of caregivers for patients with schizophrenia during the COVID-19 pandemic and compared the measurements obtained in the study to that before the pandemic. Methods: The study included 50 caregivers who were assessed using the Sociodemographic Questionnaire, and the Family Burden Interview Schedule, Brazilian version (FBIS-BR). An adaptation of the Clinical Global Impression-Improvement (CGI-I) was made, in which caregivers evaluated their ‘clinical’ impression about the patient during the COVID-19 pandemic in comparison to pre-pandemic mental status. Results: Most caregivers were female, aged between 24 and 80 years, who were in contact with the patient for about 88.56 hours/week. In relation to caregiver burden, there wa...