The Head and Neck Cancer Patient Concern Inventory(©) : Patient Concerns' Prevalence, Dental Concerns' Impact, and Relationships of Concerns with Quality of Life Measures (original) (raw)
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A national survey of health-related quality of life questionnaires in head and neck oncology
Annals of The Royal College of Surgeons of England, 2004
Aims: To identify the health-related quality of life (HRQOL) questionnaires employed by the physicians and surgeons who manage patients with head and neck cancer. Also, to gain an impression of the perceived difficulties and advantages of their use. Methods: A national survey was performed of active UK consultant clinicians on the mailing list of the British Association of Head and Neck Oncologists. Results: Of 267 questionnaires, there were 191 replies (71.5%) from clinical oncologists (40), ENT surgeons (53), general surgeon (1), oral and maxillofacial surgeons (59), and plastic surgeons (38). Fifty-five consultants (29%) used HRQOL questionnaires and the most popular questionnaire was the University of Washington Head and Neck Cancer (65%). Questionnaires were most likely to be used both before and after treatment (67%) and administered in clinic by either nursing staff or consultants. The main reasons for not using HRQOL questionnaires included lack of resources and proven value. Conclusions: Despite the vast amount of literature on the importance of HRQOL in head and neck cancer, this survey shows that there is still a substantial amount of work required before HRQOL measurement becomes an established part of routine practice.
ASSESSMENT OF QUALITY OF LIFE IN HEAD AND NECK CANCER PATIENTS – A PROSPECTIVE QUESTIONNAIRE STUDY
Background: Head and neck cancers are commonly encountered malignant tumors in dental practice. Patients attending the clinics for the treatment of these conditions have their own expectations towards their illness. Aim: To assess the patient's perspectives on quality of life (QoL) in head and neck cancers. Material and methods: 276 patients were included for the study and a well-structured consumer quality of life (CQoL) questionnaire was designed and inputs from the patients were recorded and transferred to the database for statistical analysis. Statistical analysis was performed by SPSS 22. Descriptive statistics, paired t test, chi square test and Pearson correlation were done to compare the association between the subgroups. (P<0.05). Results: A total of 278 subjects were included for the study of which 191 male and 87 female. The mean age of diagnosis in males is 47.3 +/-11.1 years. And in female are 50.6 +/-13.9 years. The most preferred language for answering was Gujarati (187 67.2%), followed by Hindi (91, 32.8%) and English (0,0). the critical issues found in the questionnaire were 1) when questioned about the pain 153 (55%)subjects had pain and pain is negligible in 86 (30.9%) subjects. 2) appetite levels – good appetite 163 (58.6%), diminished in 72 (25.8%). 3) depression about having cancer – 114 (41%) stated yes and 37 (13%) were normal. 4) family relationship – 199 reported that their family relationship was not disturbed and in contrary 54 subjects were neglected by them. Conclusion: It is important to identify factors that are predictors of a poor physical and psychological outcome after treatment for head and neck cancer because rehabilitation programs could then be optimized on an individual basis and health-care workers could focus better on restoring function and assisting patients to achieve an acceptable QOL.
Annals of the Royal College of Surgeons of England, 2018
Introduction The National Institute for Health and Care Excellence guidance Improving Supportive and Palliative Care for Adults with Cancer (2004) and the Cancer Reform Strategy (2007) support the premise that assessment and discussion of patients' needs for physical, social, psychological, and spiritual wellbeing should be undertaken during oncology follow-up. We report the use of the Patient Concerns Inventory in a routine head and neck cancer clinic setting over a seven-year period, summarising the number of available clinics, the number of patients completing the inventory within a clinic, the range of clinical characteristics and the concerns they wanted to discuss. Methods The data were analysed from oncology follow-up clinics between 1 August 2007 and 10 December 2014. Audit approval was given by the Clinical Audit Department, University Hospital Aintree. Results There were 386 patients with 1198 inventories completed at 220 clinics, median 6 (range 4-7) per clinic. The m...
British dental journal, 2014
Patients experience considerable dental-related difficulties following head and neck cancer (HNC) treatment including problems with chewing, dry mouth, oral hygiene, appearance and self-esteem. These can go unrecognised in busy follow-up clinics. The Patient Concerns Inventory (PCI) is specifically for HNC patients, enabling them to select topics they wish to discuss and members of the multi-professional team they want to see. The study aimed to identify the clinical characteristics of patients raising dental concerns on the PCI and to explore the outcome of onward referral. Assessments included the PCI and the University of Washington Quality of Life Questionnaire (UW-QOL) version 4, with clinic details collated from hospital and cancer databases. PCI data were obtained from 317 HNC patients between 2007 and 2011. Their mean age was 63 years and 60% were male. Most had oral squamous cell carcinoma and underwent surgery. The median (IQR) time from treatment to first PCI was 13 (4-42...
European Archives of Oto-Rhino-Laryngology
Introduction The Patient Concerns Inventory (PCI) is a condition specific prompt list that was initially developed for head and neck cancer (HNC) and is referred to as the PCI–HN. There have been numerous publications regarding the PCI–HN, since it was first published in 2009. To date, there has not been a review of its development, validation and clinical implications. A collation of relevant papers into key sections allows multidisciplinary teams and researchers to have an overview of the PCI–HN’s background, evaluation and utility. This is essential if colleagues are to have confidence in the tool and be able to reflect on how to optimise its use in clinical practice. Methods Five search engines were used: EMBASE, Medline, PubMed, CINAHL and Handle-on-QOL for the specific term ‘Patient Concerns Inventory’ up to and including 1st February 2022. In addition, an accumulation of PCI–HN data of 507 HNC patients was drawn from previous studies in Liverpool and Leeds between 2007 and 20...
BMC cancer, 2018
The consequences of treatment for Head and Neck cancer (HNC) patients has profound detrimental impacts such as impaired QOL, emotional distress, delayed recovery and frequent use of healthcare. The aim of this trial is to determine if the routine use of the Patients Concerns Inventory (PCI) package in review clinics during the first year following treatment can improve overall quality of life, reduce the social-emotional impact of cancer and reduce levels of distress. Furthermore, we aim to describe the economic costs and benefits of using the PCI. This will be a cluster preference randomised control trial with consultants either 'using' or 'not using' the PCI package at clinic. It will involve two centres Leeds and Liverpool. 416 eligible patients from at least 10 consultant clusters are required to show a clinically meaningful difference in the primary outcome. The primary outcome is the percentage of participants with less than good overall quality of life at the ...
2009
Head and neck cancer patients face considerable challenges as a result of their diagnosis and therapy. Psychosocial aspects are accepted as critically important in their care. Our hypothesis was that ‘carefully designed and structured questionnaires can be used to improve the quality of life of head and neck cancer patients’. This thesis reports the development of and findings from a series of studies considering the opinions and preferences of patients and clinicians about questionnaires and the process of care, supported by interviews and analysis of taped consultations. This work provided a detailed insight into aspects of head and neck cancer care from all perspectives. In summary, my main conclusions were: · The current practice of relying on consultations alone to manage the care of cancer patients does not ensure that all concerns are identified. This is particularly true for emotional and psychosocial issues. · There are substantial differences in patient characteristics, th...
A Second National Survey of Health-Related Quality of Life Questionnaires in Head and Neck Oncology
The Annals of The Royal College of Surgeons of England, 2009
INTRODUCTION With an increasing number of publications on health-related quality of life (HRQOL) following head and neck cancer, the recognition of a number of well-validated questionnaires and a growing awareness of the potential role of HRQOL in practice, it was our aim to repeat the survey of 2002 reported in the Annals to see how practice changed. MATERIALS AND METHODS A postal survey of members of the British Association of Head and Neck Oncologists was undertaken in January 2006 with reminders sent in February, March and April. RESULTS The response was 50% (106 of 210) of which 53% were using or had used HRQOL questionnaires. The main reasons for not using HRQOL questionnaires were that they were too time-consuming or intrusive in a clinic setting and that there was a lack of resources. CONCLUSIONS Clinicians still see the use of questionnaires as a research-tool only, rather than an adjunct to giving patient information, promoting choice, and identifying patients with problem...
Clinical Otolaryngology, 2006
Objectives: (i) To evaluate head and neck cancer patient perspectives regarding the usefulness of quality of life questionnaires in communicating their health problems to clinicians and (ii) to identify the quality of life questionnaire that head and neck cancer patients find most useful. Design: Randomised questionnaire study. Patients completed all four validated head and neck cancer quality of life questionnaires -European Organisation for Research and Treatment of Cancer (EORTC), Functional Assessment of Cancer Therapy Scale (FACT) HN35, Washington quality of life questionnaire, Auckland quality of life questionnaire. Order of questionnaire presentation was randomised to counterbalance order effects. Setting: Tertiary referral head and neck cancer centre. Participants: Eighty patients diagnosed and treated for head and neck cancer. Exclusion criteria: blindness, learning difficulties or inability to understand or read English.