Determine the Level of Burden among the Caregivers of Mentally ill Patients (original) (raw)
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International Journal of Advanced Psychiatric Nursing, 2022
Background and Purpose: History of mental health showed that mentally ill have been tremendously stigmatized in most parts of the world. It is currently being recognized that all mental illness is characterized by some disruption of normal social and interpersonal relationship. The family forms one of the most important parts of the multidimensional care system for the mentally ill, of course many patient with serious mental illness becomes detached from the families. But even when the families want to participate in the patient care, they often feel excluded. With the trend towards deinstitutionalization, family are often primary care givers, confidentially laws designed to protect the privacy of consumers, or often used as barriers to provide families with basic information for family care giving. This study was conducted to assess the family burden and to find out the associated factors of family burden among caregivers of mentally ill patients in a OPD of selected mental hospital, Kolkata. Methods: Hundred family members were selected by purposive sampling technique. A quantitative non-experimental survey approach is selected for the present study to assess family burden and correlates among the caregivers of mentally ill patients. The family burden was assessed by the tool Interview Schedule on Caregiver Burden Scale by Zarit et al. 1980 Gerontologist,20(6),649-55 through interviewing and the co-relates are find out by using the tools Interview Schedule on demographic characteristics and associated factors. Associated factors refers to perceived stress, daily living activities, faced financial problem etc. Results: Out of hundred family members, 56% family members had moderate family burden, 31% had mild family burden, 8% had severe family burden and 5% had no or minimal burden. It is also assessed that there is a significant association of family burden with financial problem faced to bear treatment expenses, which was statistically significant as evident from the chi square value i.e 14.117 and difficulty faced in self routine adjustment, the chi square value is 6.338. Out of hundred family members 90% had moderate stress and only 3% family members had low stress. And there is positive co-relation between family burden and perceived stress of caregivers which was statistically significant as evident from 'r' value (0.362). And there is negative co-relation between family burden and independence in activities of daily living which was statistically significant as evident from 'r' value (-0.29,-0.39,-0.34). Conclusion: Our study was conducted to assess the family burden and identity its co-relates among caregivers of mentally ill patients. The following conclusions are based on the study findings of the study. In this study, 56% caregivers had moderate family burden, 31% had mild family burden, 8% caregivers had severe family burden and 5% caregivers face no or minimal family burden. The study could be implicated in different areas of nursing practice and nursing research with recommendation. This study can be done in large sample.
Burden assessment schedule. Instrument to assess burden on caregivers of chronic mentally ill
Indian Journal of Psychiatry
The family is a major source of support for the mentally ill in India. Although Indian families show tremendous resilience in caring for their ill relatives, they experience a lot of physical and emotional distress. The burden assessment schedule (BAS) aims to assess both objective and subjective burden experienced by the primary care givers of chronic mentally ill patients.
Instrument to Assess Burden on Caregivers of Chronic Mentally Ill
Indian Journal of Psychiatry, 1998
The family is a major source of support for the mentally ill in India. Although Indian families show tremendous resilience in caring for their ill relatives, they experience a lot of physical and emotional distress. The burden assessment schedule (BAS) aims to assess both objective and subjective burden experienced by the primary care givers of chronic mentally ill patients. Stepwise ethnographic exploration has been used in the development of this 40 item instrument. Reliability exercises have been carried out throughout the development of this schedule. Criterion validity has been established by comparing with another standardized instrument to assess burden, which has been developed in India.
Caregiver Burden among Caregivers of Mentally Ill Individuals and Their Coping Mechanisms
Journal of Neurosciences in Rural Practice, 2018
Background: During a given year, almost 30% of the people around the world are affected by mentally ill health. In India, it accounts for about 20%. Caregivers face a lot of strain, ill health, and disrupted family life, with literature suggesting an increasing concern about their ability to cope up. The needs of caregivers of the mentally ill are given low priority in the current health-care setting in India. Aim: The aim of the study was to assess the burden of caregivers of mentally ill individuals and their coping mechanisms. Methods: A cross-sectional study was employed with a quantitative approach. A convenient sample of 320 caregivers was taken from two private tertiary care centers and one public secondary care center in Udupi taluk. This study was conducted using the Burden Assessment Schedule (BAS) and Brief Cope Scale (BCS). Statistical analysis was done on categorical variables, and they were expressed as frequencies and percentages. Continuous variables were measured us...
Determining the caregivers’ burden in caregivers of patients with mental illness
Pakistan Journal of Medical Sciences
Objective: To examine the factors associated with caregivers’ burden in individuals providing care to family members suffering from serious mental illness. Methods: This Cross Sectional Study was carried out at Armed Forces Institute of Mental Health, Rawalpindi, from May 2015 to December 2015. A purposive sample of 120 family caregivers (60 males and 60 females, age range= 18-65) who were taking care of patients with serious mental illness (i.e. Major Depressive Disorder, Bipolar Disorder & Schizophrenia) for at least one year were recruited from the hospital and assessed through Zarit Burden Interview (ZBI) and Brief COPE inventory. The decline in functional status, and diminished physical capacity compromising the independent living of the care recipient was assessed through Katz Index of Independence in Activities of daily living (ADL) and Lawton Instrumental activities of daily living (IADL). Results: The results suggest that the longer the duration of illness (F=25.71, p < ...
Caregiver burden in medical versus psychiatric patients: A cross-sectional comparative study
Indian Journal of Psychological Medicine, 2017
Background:An informal care-giver is generally an unpaid individual who looks after the personal and medical needs of the patient. India being a country of traditions and family values, this informal care-giver is usually a family member. These care-givers, being untrained in this job undergo tremendous stress. Available research studies the burden individually in the relatives of chronically medically ill patients and those of psychiatrically ill patients. Furthermore the previous research targets the burden in individual diseases. This study stands out as it makes a comparison between the two broad groups, taking into account almost all possible chronic diseases in each group.Methods:This is a cross-sectional analytical descriptive study that was conducted on the family caregivers of chronically medically ill and psychiatrically ill patients, using the Caregiver's Burden Scale. Data were analyzed by SPSS 20 statistical software and Pearson correlation coefficient tests. Significant difference between area of caregiver burden of medicine and psychiatric patients was tested using relative deviate “Z” of SEDM test at 5% level of significance.Result:There is a significant difference between each category of Caregiver's Burden Scale among chronically medically ill and psychiatrically ill patients. (P < 0.05).Conclusion:The outcome of this study may help the health care providers in designing stress relief programs for primary care-givers. Overall this study may help better delivery systems of care for both the chronically medically ill as well as psychiatrically ill patients, by proper specific framing and psycho education programs for the caregivers of specific chronic illnesses.
Journal of Widya Medika Junior
Background: Aging is synonymous with decreased body function due to natural factors (aging process) and diseases. The elderly who are unable to do their activities can cause dependence on the caregiver. In carrying out its role, the caregiver has burdens that can affect their life quality. Objective: To measure the correlation between the burden and the quality of life in caregivers of dependent elderly in Prawirodirjan Sub-district, Gondomanan District, Yogyakarta Municipality. Materials and Methods: This study used a cross-sectional method with a total sample of 33 participants. Caregiver burden was measured using the Zarit Burden Interview (ZBI) and Caregiver Reaction Assessment (CRA) questionnaires. Measurements of quality of life were conducted using the WHO QoL BREF questionnaire. Spearman rank correlation analysis was administered to conduct statistical analysis. Results: There were very significant negative correlations between the caregiver’s burden (ZBI) and WHO QoL BREF p...
Journal of Nepal Health Research Council, 2018
Schizophrenia and bipolar affective disorder are chronic psychiatric illness that requires long term care. This study tends to measure psychological burden and factors associated with it among caregivers of these two illnesses. This is a cross- sectional study that included participants by purposive sampling method. Self designed performa was used to collect the socio-demographic details of the caregivers. Modified caregiver strain index was used to assess the overall stress. Beck`s depression inventory and Beck`s anxiety inventory was used to assess depression and anxiety respectively. Hundred caregivers, 50 each of schizophrenia and bipolar affective disorder were enrolled. Seventy-two percent of caregivers were found to have higher level of stress. Twenty-five percent had depression and 29% anxiety related problems. Stress was found to be significantly associated with being in debt, longer duration of illness, education level, marital status, subjective feeling of psychological s...
Burden of Care , Mental Health and Subjective Well Being of Family Caregivers of Elderly Patients
2016
This study is aimed at identifying how the burden of care of the elderly patients suffering from dementia and physical disabilities is related to mental health and subjective well-being of the family caregivers. In this study, survey research design was used and data were collected through convenient sampling from 100 caregivers of elderly patients with dementia (n = 50) and physical disability (n = 50). Four tools were used; The Caregiver Strain Index (Robinson & Price, 1982); General Health Questionnaire (Goldberg, 1978); and The Subjective Happiness Scale (Lyubomirsky and Lapper, 1999). Correlation and t-test were carried out and findings showed a significant negative correlation between burden of care and the caregiver’s quality of life. The caregivers of dementia patients showed a significant decline in their mental health as compared to the caregivers of patients with physical disability; however both the groups did not show any significant difference in terms of burden of car...