Transfer of Adolescents With Congenital Heart Disease From Pediatric Cardiology to Adult Health Care (original) (raw)

2011, Journal of the American College of Cardiology

Adults with congenital heart disease and heart transplantation: Optimizing outcomes

The Journal of Heart and Lung Transplantation, 2014

The growing population of adults with congenital heart disease (ACHD) present a distinct set of challenges in the evaluation, listing and safe performance of heart transplantation. We review existing literature to a) describe the complex anatomic and physiologic features that characterize this group of patients b) discuss factors contributing to high wait-list times and wait-list morbidity and mortality experienced by this population and, finally, c) to identify risk factors for the elevated post-transplant morbidity and mortality reported in ACHD patients. We conclude with a discussion of critical areas in need of further investigation, as well as ways to amend the current listing criteria in order to better accommodate ACHD patients in need of heart transplantation.

Optimizing patient care and outcomes through the congenital heart center of the 21st century

Congenital Heart Disease, 2018

Pediatric cardiovascular services are responding to the dynamic changes in the medical environment, including the business of medicine. The opportunity to advance our pediatric cardiology field through collaboration is now realized, permitting us to define meaningful quality metrics and establish national benchmarks through multicenter efforts. In March 2016, the American College of Cardiology hosted the first Adult Congenital/Pediatric Cardiology Section Congenital Heart Community Day. This was an open participation meeting for clinicians, administrators, patients/parents to propose metrics that optimize patient care and outcomes for a state-of-the-art congenital heart center of the 21st century. Care center collaboration helps overcome the barrier of relative small volumes at any given program. Patients and families have become active collaborative partners with care centers in the definition of acute and longitudinal outcomes and our quality metrics. Understanding programmatic metrics that create an environment to provide outstanding congenital heart care will allow centers to improve their structure, processes and ultimately outcomes, leading to an increasing number of centers that provide excellent care. This manuscript provides background, as well listing of proposed specialty domain quality metrics for centers, and thus serves as an updated baseline for the ongoing dynamic process of optimizing care and realizing patient value.

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