Cross sectional survey on the concerns and anxiety of patients waiting for organ transplants (original) (raw)
Related papers
2003
Patients were significantly more anxious at the post compared to the pretransplantation stage. Patients with a higher belief that one's health is determined by chance factors showed lower levels of anxiety. Male patients showed stronger agreement with statements:“Others will consider me as a different person” and “I will see myself as a different person after transplantation”. Patients scored higher than students on the MCQ. Implications are discussed. Key words: renal transplantation, anxiety
Psychological Impact and Quality of Life in Patients Who Received Solid Organ Transplantation (Atena Editora), 2024
INTRODUCTION Solid organ transplantation, including kidney, liver, and heart transplants, has become increasingly prevalent, with significant improvements in surgical techniques and immunosuppressive therapies enhancing survival rates. Despite these advancements, patients face numerous challenges, including the psychological burden of chronic illness prior to transplantation, immediate post-transplant psychological reactions, and long-term adjustment issues. The importance of pre-transplant psychological evaluation and the impact of immunosuppressive therapy on mental health are crucial aspects of patient care. The role of support systems and the measurement of quality-of-life indicators are essential for understanding the overall well-being of transplant recipients. This study aims to address the existing gaps in research by providing a comprehensive review of the psychological and quality of life outcomes in patients who have undergone solid organ transplantation. OBJETIVE To comprehensively evaluate the psychological impact and quality of life in patients who have received solid organ transplants, with a focus on identifying key factors that influence mental health outcomes and overall well-being post-transplant. METHODS This is a narrative review which included studies in the MEDLINE – PubMed (National Library of Medicine, National Institutes of Health), COCHRANE, EMBASE and Google Scholar databases, using as descriptors: “Psychological Impact” AND “Quality of Life” AND “Solid Organ Transplantation” AND “Mental Health” AND “Post-Transplant Adjustment” in the last years. RESULTS AND DISCUSSION The study found a high prevalence of anxiety and depression among post-transplant patients, significantly impacting their quality of life and graft survival. Pre-transplant psychological state plays a critical role in post-transplant outcomes, highlighting the need for comprehensive psychological assessments. Immunosuppressive therapy, essential for preventing organ rejection, often leads to mood disorders and cognitive impairments, necessitating regular mental health evaluations. While physical health typically improves post-transplant, psychological and social dimensions of quality of life may not show the same level of improvement. Medication adherence is closely linked to better psychological outcomes, whereas non-adherence correlates with increased mental health issues and poorer graft survival. Social support, including family, friends, and healthcare professionals, is crucial for improving psychological resilience. The study also noted differences in psychological impact among various types of organ transplants and highlighted the significant influence of socioeconomic and cultural factors on psychological outcomes. Gender differences were evident, with female patients experiencing higher levels of anxiety and depression. The effectiveness of patient education and support groups was emphasized, along with the growing role of telemedicine in providing psychological support. CONCLUSION The psychological impact and quality of life in patients who have received solid organ transplants are influenced by multiple factors, including the prevalence of anxiety and depression, pre-transplant psychological state, and the impact of immunosuppressive therapy. Social support and tailored interventions are essential for improving overall quality of life. Addressing socioeconomic and cultural factors, along with gender differences, is crucial for designing effective psychological support programs. Integrating psychological care into transplant patient management through multidisciplinary care teams can significantly enhance patient outcomes. Future research should continue to explore and refine strategies tailored to the diverse needs of transplant patients, ensuring a holistic approach to their care.
Swiss Medical Weekly
Various non-specific questionnaires were used to measure quality of life and psychological wellbeing of patients after organ transplantation. At present cross-organ studies dealing specifically with the psychological response to a transplanted organ are non-existent in Germanspeaking countries. Methods: The Transplant Effects Questionnaire TxEQ-D and the SF-36 Quality of Life Questionnaire were used to examine the psychological response and quality of life of 370 patients after heart, lung, liver or kidney transplantation. The organ groups were compared with regard to psychosocial parameters. Results: 72% of patients develop a feeling of responsibility for the received organ and its function. This feeling is even stronger towards the patient's key relationships i.e. family, friends, the treatment team and the donor. 11.6% worry about the transplanted organ. Heart and lung patients report significantly fewer concerns than liver and kidney patients. Overall, only a minority of patients report feelings of guilt towards the donor (2.7%), problems in disclosing their transplant to others (2.4%), or difficulties in complying with medical orders (3.5%). Lung transplant patients show significantly better adherence. Conclusions: A feeling of responsibility towards those one is close to and towards the donor is a common psychological phenomenon after transplantation of an organ. Conscious feelings of guilt and shame are harboured by only a minority of patients. The fact that heart and lung patients worry less about their transplant might have primarily to do with the greater medical and psychosocial support in this group.
Psychosocial Level of Patients Undergoing Solid Organ Transplantation
Introduction: Organ transplantation has been developed over past 100 years. It is a process which is challenging for patients and his/her family members. It requires lifelong commitment which results in psychosocial distress. Hence along with the clinical evaluation of the patient psychosocial assessment is also important. Purpose: The objectives of the study were to identify the psychosocial level of patients undergoing solid organ transplantation. Materials and method: A quantitative descriptive study was done among 50 patients who were planned for undergoing solid organ transplantation at AIMS, Kochi. A standardized questionnaire, Stanford Integrated Psychosocial Assessment Tool was used for assessing the psychosocial level along with the questionnaire for socio demographic and clinical variables. Results: The study results shows that among 50 subjects 36(72%) were males and 14(28%) were females. Majority 47(94%) of them had good social support .Out of 50 subjects 37(74%) are waiting for kidney transplantation and 13 (26%) are waiting for liver transplantation. With regard to psychosocial levels 68% were belongs to category of good candidates. The mean score of the study was 16.14. There was statistically significant association were found between education and monthly income (p<0.005) Conclusion: The patients who are undergoing organ transplantation or on transplantation treatment are connected with long term emotional tension, experiencing strong anxiety, depressive disorders and so on. Hence the psychosocial assessment is very essential for transplant patients to cope up with the life after transplantation.
Dusunen Adam: The Journal of Psychiatry and Neurological Sciences, 2017
Psychiatric evaluation of organ donor candidates in a university hospital and their anxiety, depression and quality of life levels Objective: The aim of this study was to conduct a psychiatric evaluation of organ donor candidates and to investigate their levels of anxiety, depression and quality of life. Material and Methods: This study was performed between May 2015 and February 2016. It included 102 volunteers. The socio-demographic Data Collection Form, DSM-IV Clinical Interview Form-Clinical Version Structured for Axis Diagnoses (SCID-I/CV), Beck Anxiety Inventory (BAI), Beck Depression Inventory (BDI), Symptom Checklist (SCL-90-R), and SF-36 Quality of Life Survey (SF-36) were administered to the patients. Results: The average age of the applicants was found to be 41.64±12.02, 42.2% (n=43) being male and 57.8% (n=59) being female. When it comes to the degree of affinity between potential donors and recipients, 57.8% (n=59) were first-degree relatives, 19.6% (n=20) were spouses, and 22.5% (n=23) were other relatives and/or close relations. By dividing donor candidates into groups by the degree of their affinity to recipients, there were statistically significant differences revealed between BDI, BAI and SCL-90-R total scores and interpersonal sensitivity subscale scores. Conclusion: As compared to the global average, the number of living donors is higher than cadaver donors; and donor candidates mostly comprise spouses and first-degree relatives. Therefore, family members and first-degree relatives who are affected directly or indirectly by the transplant process are exposed to social and psychological effects more as the donor candidates/donors. It is of crucial importance to evaluate the psychosocial states of donors, in addition to recipients, in order to manage the long-lasting transplant process, a treatment-and care-demanding one in a more appropriate way.
Waiting for a Kidney Transplant: Association With Anxiety and Stress
Transplantation Proceedings, 2014
Background. The pretransplantation period is characterized by many stressful events that can result in symptoms of anxiety and stress and ultimately can have a negative impact on graft outcome. Our objective was to evaluate the association between symptoms of anxiety and stress in patients awaiting kidney transplantation. Methods. This was a transversal study describing 50 randomly selected patients undergoing hemodialysis and waitlisted for kidney transplantation. We collected social and demographic data, and adopted the Beck Anxiety Inventory and the Lipp Stress Symptoms for Adults Inventory to respectively evaluate anxiety and stress. Results. The mean age was 50.2 AE 11.7 years, 54% of patients were female, time on dialysis was 6.5 AE 4.5 years, and transplant waitlist time was 5.9 AE 4.4 years. Forty-six percent of patients were married or had a stable relationship, 50% were illiterate or had only finished primary school, and 64% were pensioners. Stress was documented in 60% of patients, of which 30% had severe stress, whereas 56% of patients showed symptoms of anxiety. The presence of stress was associated with longer waitlist time (P ¼ .006) and longer time on dialysis (P ¼ .052). Less severe stress was associated with higher education level (P ¼ .031), whereas patients in more advanced phases of stress showed higher levels of anxiety. After a multivariate analysis, stress was 3.6 times (CI 1.34 to 9.89) more frequent among individuals with anxiety. Conclusions. Stress and anxiety were prevalent in patients on a waitlist and were associated with social and chronic kidney diseaseerelated patterns. This observation can stimulate the adoption of strategies for the prevention of stress and anxiety, avoiding posttransplantation complications, such as nonadherence to treatment.
Psychosocial challenges before and after organ transplantation
Transplant Research and Risk Management, 2015
This review addresses psychosocial challenges before and after solid organ transplantation. Stressors, corresponding psychosocial changes of the recipient, and psychological interventions in the different phases of the transplant process are described. Furthermore, important aspects of the preoperative psychosocial evaluation are presented with a special focus on living donors and patients with alcoholic liver disease. For the postoperative period, adherence, quality of life, and return to work are highlighted. Finally, research and clinical implications are presented.
Journal of Psychosomatic Research, 2007
Objective: The pretransplant medical evaluation of transplantation candidates includes an assessment of psychosocial data. This study investigates psychosocial vulnerability as a predictor of posttransplant outcome. Methods: Seventy-six patients were assessed prior to lung, liver, or bone-marrow transplant. Pretransplant vulnerability markers were cognitive beliefs (sense of coherence and optimism), affect (anxiety and depression), and external resources (social support). In addition, psychosocial functioning was assessed by professionals. Quality of life, general life satisfaction, need for counseling, and survival rate were assessed 12 months after transplant. Results: Pretransplant variables explain 21-40% of the variance in posttransplant psychosocial outcome variables. Cognitive beliefs predict mental quality of life; affect (depression) and social support predict life satisfaction; and expertrated psychosocial functioning predicts life satisfaction and need for counseling. Conclusion: The multidimensional vulnerability model is suitable for predicting posttransplant psychosocial outcome. Patients with high pretransplant vulnerability should receive ongoing psychosocial counseling. D
Clinical transplantation, 2016
Organ shortage remains a major barrier to transplantation. While many efforts have focused on educating the general population regarding donation, few studies have examined knowledge regarding donation and donor registration rates among waitlisted candidates. We aimed to determine waitlisted patients' willingness to donate, elucidate attitudes surrounding organ allocation, and identify barriers to donation. A cross-sectional survey was distributed to assess demographics, knowledge regarding organ donation, and attitudes regarding the allocation process. Responses from 225 of 579 (39%) waitlisted patients were collected. 71 respondents (32%) were registered donors, while 64 patients (28%) noted no interest in participating in donation. 19% of respondents felt their medical treatment would change by being a donor, while 86 patients (38%) felt their condition precluded them from donation. 40 patients (18%) felt they should be prioritized on the waitlist if they agreed to donate. A ...