A Systematic Review of Family Caregivers of Persons with Serious Mental Illnesses in Non-Western Countries (original) (raw)
Related papers
Challenges of Family Caregivers of Patients with Mental Disorders in Iran: A Narrative Review
Iranian journal of nursing and midwifery research
Family caregivers of patients with mental disorders play the most important role in the care of psychiatric patients (PPs) and preventing their readmission. These caregivers face different challenges in different cultures. We conducted this study to determine the challenges of caregivers of patients with mental disorders in Iran. This study is a narrative review with a matrix approach conducted by searching electronic databases, SID, IRANMEDEX, MAGIRAN, PUBMED, SCOPUS, Web of Sciences, from February 2000 to 2017. Searched keywords include challenges, family caregivers of psychiatric patient, family caregivers and psychiatric patient, mental illness, families of psychiatric patient, and Iran. One thousand two hundred articles were found in English and Farsi, and considering inclusion and exclusion criteria, 39 articles were examined. The results of the studies show that not meeting the needs of caregivers, burnout and high burden of care, high social stigma, low social support for ca...
PLOS ONE, 2021
Background There is a wealth of literature exploring the experiences of family caregivers of people with severe mental illness (SMI) in western countries, however, this topic has been neglected in the Middle East, despite families being the main source of caregiving in this context. The purpose of this review was to conduct a systematic review and qualitative meta-synthesis to explore the experiences of family caregivers living in countries in the Middle East caring for a relative with severe mental illness. Methods A systematic review and meta-synthesis were conducted, to comprehensively gain a thorough and detailed overview of what is known about family caregivers’ experiences from published qualitative research in the Middle East geographical area from inception to May 2021. The review protocol was pre-registered with PROSPERO (Ref: CRD42020165519). Results The review identified twelve qualitative studies that explored caregivers’ experiences of caring for relatives with SMI in M...
Family Burden for the Caregivers of People with Mental Disorders: A Systematic Review
Jurnal Ners, 2019
Introduction: The main caregivers of people with mental disorders are their family members. Families as the caregivers of people with mental disorders is associated with a significant burden. This systematic review aims to identify and summarize the main focus based on the scientific evidence about family burden as the caregivers of people with mental disorders. Methods: The databases used were Scopus, Science Direct and Sage Journal with the keywords 'burden', 'family', 'caregiver', 'mental', 'health', 'illness', 'disorder' and they were limited to 2014-2018 from within nursing and health science journals. One hundred and four full text articles were reviewed. The 14 articles that fulfilled the inclusion criteria were analyzed using narrative synthesis followed the Joanna Briggs Methodology model for the Qualitative Systematic Review to find the main themes of each article. Results: Seven main themes were found to be related to family burden as the caregivers of a family member with mental disorders. The 7 themes were knowledge, emotional burden, physical burden, medication, financial burden, social burden, health services and government support. Conclusion: The findings suggest that the family burden on the caregivers was diverse and that this has an effect on the ability of the family to care for patients with mental disorders. Family burden has become an important indicator for the provision of mental health services.
Systematic Review: Coping and Supports of Family Caregivers for Adults with Serious Mental Illness
Caring for a loved one with serious mental illness is a challenging role to be in. The purpose of this systematic literature review is to integrate the current literature which values the viewpoint of the caregiver regarding their own strength perspective of discovering what coping skills and support systems they have found to be beneficial. The studies included in the review were peer reviewed empirical, qualitative and quantitative studies, representing several countries and age groups. Inclusionary terms for this study included: “chronic mental illness” or “mental illness”, some version of the word caregiver, family, related, adapt, cope and long-term. Exclusionary terms included race and dementia. Common themes of strength found in the research included: educating the caregiver about the illness, the behaviors and prognosis, creating partnerships with the loved one and treatment team, finding acceptance of the illness and life situation, living situation effects, the importance of the caregiver caring for and finding support for themselves, finding a new life purpose and planning for the future. Future research would benefit from further evaluating disseminating educational materials, guidelines for development of support groups, training for peer mentoring and future planning into areas of the world that are more rural or limited in availability of services.
Barriers to Family Caregivers' Coping With Patients With Severe Mental Illness in Iran
Qualitative health research, 2018
The broad spectrum of problems caused by caring for a patient with mental illness imposes a high burden on family caregivers. This can affect how they cope with their mentally ill family members. Identifying caregivers' experiences of barriers to coping is necessary to develop a program to help them overcome these challenges. This qualitative content analysis study explored barriers impeding family caregivers' ability to cope with their relatives diagnosed with severe mental illness (defined here as schizophrenia, schizoaffective disorders, and bipolar affective disorders). Sixteen family caregivers were recruited using purposive sampling and interviewed using a semi-structured in-depth interview method. Data were analyzed by a conventional content analytic approach. Findings consisted of four major categories: the patient's isolation from everyday life, incomplete recovery, lack of support by the mental health care system, and stigmatization. Findings highlight the nece...
Support Needs for Family Caregivers of Clients with Mental Illness in Iran: A Qualitative Study
Issues in mental health nursing, 2018
This paper explored the support needs of family caregivers of people living with a mental illness in Iran. This descriptive study focused on the experiences of 20 family caregivers as well as the views of 29 professional support workers through individual face-to-face interviews. From these interviews three key themes emerged in regards to the care needs of family caregivers: (i) social support; (ii) emotional support; and (iii) safety and security. These themes highlighted the complex role of caring for a family member with a mental illness and the emotional, social and economic challenges that these caregivers experienced as a result. Iranian caregivers garnered support not only from other family members but also from neighbors and religious leaders but lacked the much needed respite care found in western countries. This research study highlighted the importance of ensuring that the caregivers themselves receive appropriate and adequate support to fulfill their caregiving role.
Experiences of family caregivers of persons living with mental illness: A meta-synthesis
Curationis, 2019
Background: Meta-synthesis is used to generate and understand new insights from a qualitative perspective. Caregiving is associated with a range of physical and psychological symptoms. Caregivers bear the brunt of caregiving and this has become worse since the inception of de-institutionalisation, as more patients are discharged into the community under the care of their families. Objectives: The purpose of this study was to synthesise phenomenological qualitative studies and create a comprehensive chronicle of phenomena of family caregivers' experiences of caring for relatives living with mental illness. Method: Google Scholar and different electronic databases, which included CINAHL, MEDLINE, EBSCO and PubMed, were searched using keywords for relevant studies published from 1994 to 2014. To obtain an in-depth view of caregivers' lived experiences, a qualitative meta-synthesis was employed to review the findings of 10 studies. Results: A total of 10 studies were included in the meta-synthesis. The family caregivers described their caregiving experiences under four themes: perceived responsibility of caregiving, experiences of emotional effect, experiences of support needs and experiences of changed perspective. Conclusion: The meta-synthesis revealed a lack of emotional coping among the family caregivers. This calls for robust family caregiver interventions to facilitate their mental health.
Barriers to Self-Care Planning for Family Caregivers of Patients with Severe Mental Illness
Journal of Patient Experience
The chronic nature of severe mental illnesses is necessary for constant care provided by the family caregivers. Considering the significance of family caregivers in providing care, it is imperative to ensure their self-care if they are to play the role of caregiving effectively and efficiently well. The present study was conducted using the purposive sampling method and in-depth semi-structured interviews among 13 family caregivers and five health team members. The data were analyzed via a conventional content analysis approach. In the data analysis, seven main categories and 18 subcategories emerged: “A troublesome patient and me,” including “Care-induced distress,” “Caring dilemma,” “Emotional fluctuations,” and “Self-forgetfulness”; “Passive–destructive individuality,” including: “Mental stereotypes” and “Unhealthy lifestyle”; “Family turbulence,” including: “Family malfunction” and “Break in family ties”; “The conjoined influencing social factor,” including “Lack of awareness at...
BMC psychiatry, 2017
Caregivers are responsible for the home care of family members with mental-health disorders often experience changes in their life that can generate stress and burden. The aim of this study was to identify factors associated with the burden of caregivers of family members with mental disorders. This cross-sectional study was conducted with a non-probability sample of family caregivers, whose patients attended a community services program, the Psychosocial Care Centers, in three cities in the southwest region of Goiás State, Central Brazil. Data collection took place from June 2014 to June 2015. The participants were 281 caregivers who completed a sociodemographic questionnaire and the Zarit Burden Interview (ZBI). Bivariate analyses (t test, analysis of variance, and Pearson correlation) were performed, and variables with values of p < 0.10 and gender were included in a multiple-linear regression model. Values of p < 0.05 were considered significant. The caregivers were mostly...
The Open Public Health Journal
Background: Due to the mental health reforms in developed countries, the focus of mental healthcare services has shifted from hospital-based to community-based care. This suggests that family members are expected to care for their Menal Health Care User (MHCUs). This study aimed to explore the support caregivers for MHCUs receive from healthcare professionals and other family members. Methods: The participants were conveniently selected from the primary healthcare centres. Unstructured interviews were conducted with twelve family caregivers. Data were analyzed using Tesch’s open coding method. Ethical issues and trustworthiness were followed throughout the study. Results: The study revealed two themes, poor support from healthcare professionals and poor support from family members, and seven sub-themes. Conclusion: There is a dearth of information about the support offered to family caregivers of MHCUs in the context of South Africa. Training programs for caregivers are recommended ...