HAE-AS: A Specific Disease Activity Scale for Hereditary Angioedema With C1-Inhibitor Deficiency (original) (raw)
Psychometric study of the SF-36v2 in hereditary angioedema due to C1 inhibitor deficiency (C1-INH-HAE)
Avner Reshef
Orphanet Journal of Rare Diseases, 2022
View PDFchevron_right
Psychometric Field Study of Hereditary Angioedema Quality of Life Questionnaire for Adults: HAE-QoL
Carmen Gómez-traseira
The journal of allergy and clinical immunology. In practice, 2016
View PDFchevron_right
Long-term health-related quality of life in patients treated with subcutaneous C1-inhibitor replacement therapy for the prevention of hereditary angioedema attacks: findings from the COMPACT open-label extension study
Hilary Longhurst
Orphanet Journal of Rare Diseases
View PDFchevron_right
How Angioedema Quality of Life Questionnaire Can Help Physicians in Treating C1-Inhibitor Deficiency Patients?
Henriette Farkas
Clinical Reviews in Allergy & Immunology, 2021
View PDFchevron_right
Health-related quality of life in Danish patients with hereditary angioedema
T. Caballero
Acta dermato-venereologica, 2015
View PDFchevron_right
Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project
Miguel Tejedor
Health and Quality of Life Outcomes, 2012
View PDFchevron_right
Hereditary angioedema with C1 inhibitor deficiency: clinical presentation and quality of life of 193 French patients
isabelle boccon-gibod
Annals of Allergy Asthma & Immunology, 2013
View PDFchevron_right
High attack frequency in patients with angioedema due to C1-inhibitor deficiency is a major determinant in switching to home therapy: a real-life observational study
Arturo Genovese
Orphanet Journal of Rare Diseases, 2016
View PDFchevron_right
Evidence-based recommendations for the therapeutic management of angioedema owing to hereditary C1 inhibitor deficiency: consensus report of an International Working Group
I. Boccon-Gibod, Henriette Farkas
Allergy, 2012
View PDFchevron_right
Baseline level of functional C1-inhibitor correlates with disease severity scores in hereditary angioedema
Lilian Varga
Clinical Immunology, 2010
View PDFchevron_right
Letting the patients speak: an in-depth, qualitative research-based investigation of factors relevant to health-related quality of life in real-world patients with hereditary angioedema using subcutaneous C1 inhibitor replacement therapy
Patricia Koochaki
Allergy, Asthma, and Clinical Immunology : Official Journal of the Canadian Society of Allergy and Clinical Immunology, 2021
View PDFchevron_right
Hereditary angioedema with C1 inhibitor deficiency: delay in diagnosis in Europe
Marcus Maurer
Allergy, Asthma & Clinical Immunology, 2013
View PDFchevron_right
A nationwide survey of hereditary angioedema due to C1 inhibitor deficiency in Italy
Sergio Neri, Maria Guarino, Mauro Cancian, Tiziana Pasquale
Orphanet Journal of Rare Diseases, 2015
View PDFchevron_right
The Global Registry for Hereditary Angioedema due to C1-Inhibitor Deficiency
isabelle boccon-gibod
Clinical Reviews in Allergy & Immunology, 2021
View PDFchevron_right
Hereditary angioedema: quality of life in Brazilian patients
Anete Grumach
Clinics, 2013
View PDFchevron_right
Health-related quality of life in Danish children with hereditary angioedema
Ingrid Poulsen
Allergy and asthma proceedings, 2017
View PDFchevron_right
Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies
Hilary Longhurst
Health and Quality of Life Outcomes, 2015
View PDFchevron_right
Hereditary Angioedema Due to C1-Inhibitor Deficiency in Romania: First National Study, Diagnostic and Treatment Challenges
Valentin Nadasan
Iranian journal of immunology : IJI, 2020
View PDFchevron_right
C1 Inhibitor Activity and Angioedema Attacks in Patients with Hereditary Angioedema
Joseph Chiao
The Journal of Allergy and Clinical Immunology: In Practice, 2019
View PDFchevron_right
Assessment and management of disease burden and quality of life in patients with hereditary angioedema: a consensus report
cristine radojicic
Allergy, Asthma, and Clinical Immunology : Official Journal of the Canadian Society of Allergy and Clinical Immunology, 2021
View PDFchevron_right
A Cross-Sectional Study of Quality of Life in Patients Enrolled in the Romanian Hereditary Angioedema Registry
Valentin Nadasan
Cureus, 2024
View PDFchevron_right
Indirect comparison of intravenous vs. subcutaneous C1-inhibitor placebo-controlled trials for routine prevention of hereditary angioedema attacks
Moshe Fridman
Allergy, Asthma & Clinical Immunology, 2019
View PDFchevron_right
Variability of disease activity in patients with hereditary angioedema type 1/2: longitudinal data from the Icatibant Outcome Survey
Marcus Maurer
Journal of the European Academy of Dermatology and Venereology, 2021
View PDFchevron_right