Primary Caregivers’ Support for Female Family Members With Breast or Gynecologic Cancer (original) (raw)
Related papers
2019
The diagnosis of cancer involves the patients, their caregivers, and families. Caregivers should obtain guidance from health care professionals to promote care facilities. The current study aimed at investigating the economic, socio-individual, informational, and psycho-spiritual problems of caregivers in post-treatment phase of breast cancer. Methods: The present descriptive study was conducted on 251 subjects using a questionnaire consisted of demographic part and the caregivers' difficulties. Answers were estimated based on a Likert scale. Data were analyzed using SPSS software. Results: Totally, 42% and 37% of participants were spouses and close relatives, respectively; 97%, 89%, and 74% of caregivers had psychological, economic, and spiritual problems, respectively. All of the caregivers had individual, emotional, physical, economic, and informational problems with care giving (P<0.0001). Significant relationships were observed between the employee group and individual, emotional, informational, and economic problems (P<0.0001). There were significant negative relationships between either of the occupational, educational, relationship, caregiving duration, and marital status with spiritual problems (P<0.0001). Significant correlation was observed between the duration of caring and the socio-individual, physical, informational and economic problems (P<0.0001). Conclusions: Although the current study reported insignificant relationships between the socio-individual, informational, and psycho-spiritual problems of caregivers and some demographic variables, related positive trends were observed. Future studies with powerful strategies are needed to alleviate the observed concerns.
J Fam Nurs, 2014
Being a family member of a patient who is being treated in an acute care setting for cancer often involves a number of challenges. Our study describes Norwegian cancer care health professionals' perceptions of family members who served as family caregivers (FCs) and their need for support during the in-hospital cancer treatment of their ill family member. Focus group discussions were conducted with a multidisciplinary team of 24 experienced social workers, physicians, and nurses who were closely involved in the patients' in-hospital cancer treatment and care. Drawing on qualitative hermeneutic analysis, four main themes describe health professionals' perceptions of FCs during the patient's in-hospital cancer care: an asset and
Family caregiver's emotional concerns in advanced cancer: A qualitative content analysis
Purpose: The process of caregiving for patients with advanced cancer poses a multitude of emotional concerns for family caregivers. The aim of this study was to explore the emotional concerns of family caregivers of patients with advanced cancer. Methods: A qualitative approach was conducted through face-to-face and in-depth semi-structured interviews with 11 Iranian family caregivers in advanced cancer and 1 oncologist using purposive sampling. These interviews analyzed with conventional content analysis. Lincoln and Guba’s criteria of rigor were employed to ensure the trustworthiness of the study. Results: The analysis of the data led to the formation of three main themes with 9 subthemes. The major themes emerged from family caregivers' experiences including (1) chaotic mentalities, (2) troubling interdependence, and (3) desperation emotions. Conclusion: The family caregivers of patients with advanced cancer usually find themselves in an extremely delicate psychological state...
The experience of family caregivers of people with cancer. Phenomenological study
2021
Objetivo: Comprender la experiencia vivida de los cuidadores familiares de personas que padecen enfermedades oncológicas. Materiales y métodos: Estudio de enfoque cualitativo, basado en la fenomenología interpretativa. Se desarrolló en Medellín, Colombia, entre julio de 2018 y junio de 2019. La recolección de la información se realizó a través de entrevistas semiestructuradas realizadas a diez cuidadores familiares de personas con enfermedades oncológicas. El total de los participantes estuvo determinado por la saturación teórica de los temas emergentes. Resultados: La experiencia que vive el cuidador familiar de una persona que padece cáncer, se manifiesta a través de tres temas emergentes: enfrentarse a un nuevo camino, en el que hay situaciones derivadas de la enfermedad que imponen unas cargas y demandan un sobre-esfuerzo al cuidador. Organizarse para cuidar, el cual se refiere a la manera como se organizan a través del establecimiento de roles, rutinas y redes de apoyo, para ha...
2014
Purpose: To explore how family caregivers of women with breast cancer in Iran describe the areas in life which are important to their quality of life (QoL), and to determine which areas in life that are influenced by having a family member with breast cancer. Methods: The study is descriptive and prospective. A total of 88 family caregivers of women newly diagnosed with breast cancer were interviewed using the Schedule for the Evaluation of Individual Quality of Life (SEIQoL-DW) at a time close to diagnosis and then again at 6 months after. Interviews were analyzed by manifest inductive qualitative content analysis. Results: Areas related to the categories Own and Family health, and Relationships were considered to be the most important to QoL. A majority of the family caregivers reported that concerns categorised as Psychological impact had high influence on QoL shortly after diagnosis and the following six months. Other areas that were frequently mentioned at both time points were categorized as Focus on family health, Concerns about the disease, and Change in family relationship. Positive aspects in life were also reported as a consequence to the breast cancer diagnosis. Conclusions: High psychological impact is a concern of family caregivers six months after diagnosis of breast cancer. It is imperative that family caregivers are given early attention, and the opportunity to express their perceptions and needs, as this may lead to a better understanding of their experience, thus providing guidance for supportive interventions.
Spouses' experience of caregiving for cancer patients: a literature review
International Nursing Review, 2013
The spouse is generally the primary informal caregiver for cancer patients. Many studies have explored the experience of caregiving for cancer patients, but it is unclear whether there are gender differences in the spousal caring experience for cancer patients. Aim: This review describes the recent published research on the stress process of spousal caregiving experience for cancer patients, and aims to identify any gender differences in the caregiving experience. Methods: Electronic, manual and author's searches were conducted. Articles included were published in English and Chinese, from January 2000 to March 2012. Study population is couples coping with cancer. Focus is on caregiving experience for spouse with cancer, and findings include both male and female spousal caregivers in quantitative studies. The databases searched included MEDLINE, CINAHL, Science Citation Index Expanded, Scopus, PsycINFO and the China Academic Journal Full-text Database. The key search terms used were 'cancer' or 'oncology' or 'carcinoma' AND 'caregiver' or 'caregiving' or 'carer' AND 'gender differences' or 'gender' AND 'spouse' or 'couple' or 'partner' . Spousal caregiving experiences of cancer patients were explored by adopting the 'stress process' of the Cancer Family Caregiving Experience Model from the gender perspective. Results: Twenty-five articles were identified and included in this review. It was revealed that female spousal caregivers perceived higher level negative experience in caregiving, such as lower mental health, lower physical health, poorer health-related quality of life, lower life satisfaction and decreased marital satisfaction than male spousal caregivers. However, female spousal caregivers are more likely to experience personal growth than male spousal caregivers. Conclusion: This review identified that female spousal caregivers for cancer patients had higher levels of negative experience in caregiving. A better understanding of the spousal caregiving experience will provide healthcare professionals with the information needed to develop interventions to support and prepare spousal caregivers to care for their loved ones with cancer.
Social Work in Health Care, 2014
This study investigated levels of symptoms, caregiver burden, and changes over time in 278 family caregivers (FC) of cancer patients. FCs experienced high levels of depressive symptoms and sleep disturbance, low levels of fatigue, and low to moderate levels of caregiver burden, yet these symptoms remained relatively stable over time. Being female and not being employed were factors associated with an increased risk of symptoms and caregiver burden. The understanding evolving from this study can enhance social-and health care professionals' awareness of FCs' challenging situation and the
Multidisciplinary Cancer Investigation
Introduction: Breast cancer could adversely affect the self-esteem of women, family performance, sexual role, and quality of life. Sources of support are considered as one of the most effective coping strategies against problems and consequences of breast cancer. The current study aimed at evaluating different supportive sources and their impact on coping behavior of patients with breast cancer. Methods: The current descriptive, analytic, cross-sectional study included 100 patients with breast cancer. The instruments consisted of a questionnaire designed to measure the sources of support and another questionnaire on coping behavior with the disease. The data were analyzed by the Pearson correlation, linear regression, and descriptive statistics (mean and standard deviation) with SPSS version 14. Results: The mean age of the patients was 45.59 ± 9.1 years. Overall, 69% of the study subjects were married and 77% were housewives. There was a positive and significant correlation between the received supportive sources and the disease coping behavior (P=0.049). In addition, the mean score of supportive source received from mothers and sisters was the highest in women with breast cancer (3.86). Conclusions: Results of the current study indicated that women with breast cancer had the highest rate of coping behavior when their mothers and sisters supported them. This emphasizes the importance of required advice for all sources of support available for patients; therefore, the patients with breast cancer could deal with their disease more desirably.
2012
This study aimed to investigate strain and hopelessness among family caregivers of patients with gynecologic cancer and corelates patients’ symptom burden. This research was planned as a descriptive, cross-sectional and correlation study between May and December 2010, using a sample of 338 patient and family caregivers of gynecologic cancer patients. The results of this study show that family caregivers of patient with gynecologic cancer are at risk for hopelessness and strain. The strongest positive correlation was found between strain and hopelessness (r= 0.23, p < 0.004). Patients reported various problems with their chemotherapy experiences, including nause, feeling weak, mouth problems, and hair loss. Some characteristics were significant predictors of the caregiver's strain and hopelessness such as age, gender, education, income level, had a child, caregiving duration, cancer type, stage of cancer, chemotherapy cycles, lenght of disease, caregiving hours, level of perso...