The experiences of men with breast cancer in the United Kingdom (original) (raw)
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Experiences of men with breast cancer: an exploratory focus group study
British Journal of Cancer, 2003
Management and care of men with breast cancer is based on that developed for women. Our study reports that men have specific issues regarding certain aspects of their breast cancer experience, including diagnosis, disclosure, support and gender-specific information, and offers suggestions for improved patient care.
Male cancer: a qualitative study of male breast cancer
Breast, 2000
S U M M A R Y. Breast cancer is a rare condition in males. There is a dearth of information about the psychological and social impact of this condition. Data from six in-depth interviews with men who had breast cancer identified seven major issues. These were associated with delay in diagnosis, shock, stigma, body image, causal factors, the provision of information and emotional support. The findings from this small study suggest that there are psychological and social factors for men diagnosed with breast cancer which have implications for their care and management. The recommendations arising from this study are the development of a structured education programme aimed at all primary health-care professionals; with availability of pre and postoperative gender-specific information to alleviate the potential psychological problems associated with the diagnosis; and provision of appropriate support/counselling services for partners of patients. #
Experiences of men with breast cancer: a qualitative study
The Journal of Men's Health & Gender, 2007
Background: Recent reports indicate that male breast cancer rates are increasing in North America. While there have been numerous large-scale studies examining women's experiences with breast cancer, to date there have been no North American studies examining what a man experiences with a breast cancer diagnosis. The objective of this qualitative study was to describe the experiences of a sample of Canadian men diagnosed with breast cancer. Methods: After written informed consent, unstructured audio-taped interviews were conducted with 20 men. Since little is known about a man's experience with breast cancer, an exploratory qualitative approach was utilized. Results: Participants experienced concerns related to the lack of awareness of male breast cancer within both public and health professional groups. Many men suffered stress related to the cancer diagnosis, body image concerns and role strain. The lack of male-specific breast cancer information was identified as a major concern. All denied interest in traditional support groups. In retrospect, a number of men felt the breast cancer experience vastly improved their lives. Conclusions: Needs identified by participants include increased public and health professional awareness of male breast cancer, written information specific for men, and male participation in breast cancer research. Further study is also necessary to identify supports considered helpful by men with breast cancer and other malignancies.
Experiences and perceptions of men following breast cancer diagnosis: A meta-synthesis
Background Men with breast cancer (MBC) experience unique physical and emotional challenges. However, a thorough understanding of these experiences including the psychosocial effects and supportive care needs have received less attention. In some settings, MBCs experience stigma within the healthcare system and their care needs are not prioritised. This influences the level of professional support offered, consequently worsening their health and well-being outcomes. This review explored the variabilities in the experiences and treatment outcomes of MBCs across different demographic contexts. Methods All primary study designs including qualitative, quantitative and mixed methods studies that reported on the experiences, treatment approaches and outcomes of MBC were included in this systematic review. Six databases (Embase, Medline, PsycINFO, Global Health, CINAHL and Web of Science were searched for articles from database inception to 2021. A results-based convergence synthesis was u...
Supportive Care in Cancer, 2014
The aim of this qualitative exploratory study was to assess the perceived needs and preferred services of male partners of women newly diagnosed with breast cancer. Methods Twenty-seven male partners participated in semistructured telephone interviews. Interviews were recorded and transcribed verbatim. An inductive analysis was used to identify the patterns, themes and categories from the data. Results A diagnosis of breast cancer and subsequent treatment significantly affect the male partners of women diagnosed with this illness, creating 'needs' that require coping responses. To help them support their wife and family, they relied on their internal resources and informal sources of support. Many participants suggested that the health care system provides information addressing their needs to facilitate their role of caring for their wife. The findings did not support the clinical assumption that men would be interested in a men's group focused on them and their needs. Conclusions The diagnosis of breast cancer significantly affected the male partners, creating the need for support services including information on a variety of topics. An information binder tailored specifically to their needs was the preferred method of facilitating their husbandly role and coping. Findings did not support the clinical assumption that men would be interested in a men's group focused on them and their needs.
Men’s awareness of breast cancer risks
2017
Introduction: male breast cancer is a rare disease with increasing incidence, accounting for <1% of total breast cancer cases. Due to the rarity of the condition, research data is sparse and the condition is not fully understood; for this reason, data is extrapolated from female treatment pathways and implemented into care, but has shown lower efficacy rates in males. Aims: to increase awareness of breast cancer amongst men through the improvement of health literacy. Methods: a qualitative literature-review based discussion which aims to investigate the possible reasons for poor prognoses in males compared to females. A poster was developed as an awareness aid to be presented to 15 males to gauge their responses. Results: It was established from the literature that there is obvious poorer treatment response rate of male breast cancer compared to female breast cancers. For question-1, focus group fourteen participants agreed that the poster was an acceptable mean for education of ...
Men seeking counselling in a Breast Cancer Risk Evaluation Clinic
Ecancermedicalscience, 2018
Hereditary breast and ovary cancer syndrome affects both genders but little is known about the uptake of genetic services by men. The objective of this study is to characterise the male population counselled through a multidisciplinary breast/ovarian program. Descriptive analysis of male patients counselled from January 2000 to December 2015. Data in this analysis include new cancer diagnoses during prospective follow up. From 4,320 families registered, 362 male patients were identified: 236 (65.2%) from hereditary cancer families (HCF) and 126 (34.8%) from non-HCF. In HCF, 121 patients (51.3%) were mutation carriers (MC):- 102 (84.3%),- 16 (13.2%),- 1 (0.8%) and- 2 (1.7%). Non-HCF included 126 patients: 85 (67.5%) belonged to families without pathogenic mutations or with variants of unknown clinical significance; 22 (17.5%) refused testing after counselling and 19 (15.0%) did not meet criteria for testing. Both HCF and non-HCF included patients with previous cancer diagnoses: HCF- ...
Psychological Distress in Men With Breast Cancer
Journal of Clinical Oncology, 2006
This article reports the first United Kingdom study to examine the prevalence of psychological distress in men with breast cancer and the factors associated with increased distress.
2016
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