THE HEALTH IMPACTS OF CAREGIVERS OF PATIENTS WITH CANCER TRIGATED BY THE EXERCISE OF CARING (Atena Editora) (original) (raw)
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Psycho-Oncology, 1998
A diagnosis of cancer affects not only the patient but also their significant others, especially when a lot of care tasks are involved. Some caregivers perceive the care as a burden, while others consider it a challenge. In this article, findings concerning the impact of cancer caregiving on informal caregivers will be described. No consistent results are reported, and little is known about patterns of caregiving changes in relation to the course of the patient's illness. Attention will be given to factors which have been identified as influencing the course and consequences of caregiving. These factors form the basis of a conceptual research model for caregivers of cancer patients. As cancer progresses, care tasks are generated, which can be perceived by the caregiver as either negative (i.e. burden) or positive. Furthermore, these caregiver experiences may lead to negative as well as positive effects on the caregiver's health and these relationships can be assumed to be bidirectional.
Responsibilities and Difficulties of Caregivers of Cancer Patients in Home Care
Asian Pacific Journal of Cancer Prevention, 2014
Background: Having been known as a virulent disease in 1970s, cancer is now onsidered a chronic disease and 64% of cancer patients live for five years after diagnosis. Home care has gradually gained more importance and it is a great burden on the shoulders of caregivers. Caregivers have to undertake the responsibility of the cancer patient's home management, and organize care and arrange health care services according to the everchanging condition of patients. Caregivers should be prepared for home care so they can provide accurate and complete care to patients. This descriptive study aims to investigate challenges that caregivers encounter in the home care of patients and the reasons for these challenges. Materials and Methods: The research group consisted of caregivers of outpatients in a daily treatment center in a university hospital. The research sampling consisted of 137 voluntary caregivers of patients who attended the Daily Treatment Center for control, chemotherapy or other supportive cares services between January-June, 2011. Data were collected with face-to-face interviews in the Daily Treatment Center. Ethics Committee approval was taken university hospital; caregivers and their patients were informed about the research and their approval was taken as well. Results: It was found that 54.01% of caregivers help patient's nutrition, 50.36% help medicine use, 26.28% help oral hygiene, 26.28% help to meet urinary needs and 51.82% help to change clothes, 69.34% of caregivers help to change bed sheets, 38.69% help the patient to communicate with their environment and 71.53% help to bring the patient to hospital or outside. Conclusions: This study, it was found that caregivers experience challenges due to following factors: patient nutrition, medicine use, oral and body hygiene, colostomy maintenance and stomach tube feeding, concern of dropping the patient, feeling incompetency in body temperature and fever control, fatigue, and lack of personal time.
The effect of the burden of patient care with cancer on family caregivers
Progress in Health Sciences
Cancer is a major problem that affects today's society. Besides patients suffering from this disease, cancer has also a huge impact on the quality of life of the family. This study aimed to investigate the latest bibliography on the effect of the burden of patient care with cancer on family caregivers. Family caregivers face physical health problems such as physical pain, fatigue, sleep disturbances. Moreover, several psychological effects are shown, in which various disorders such as depression are included. Psychological disorders, also, include adjustment disorder, panic disorder, anxiety, and emotional reactions such as anger, frustration, and fear. In the financial sector, caregivers face several problems due to the coverage of medical needs which are reinforced by reducing or stopping their work because of the care burden. At the same time, they are confronted with social impacts in which loneliness and isolation are attributable to the limitation of their social activitie...
Determining the Care Burden of Caregivers Taking Care of Patients with Cancer
2016
This descriptive study was conducted in an attempt to determine the caregiving burden of caregivers taking care of patients with cancer. The study was performed with 80 patient relatives taking care of patients with cancer at Ali Osman Sönmez Oncology Hospital. Regarding the study participants, 87.5% stated that they volunteered in caregiving, 73.75% had an interrupted sleep, 80% were affected in terms of family life, 56.25% business life and 80% emotional life. Comparing the care giving burden of women, as well as those who were older than 51 and were married according to their gender, age and marital status, we determined significant differences. There was a significant difference in caregiving burden in those living with their patients for 5 years and those taking care of their partners according to the variables of caregiving. The study results show that the caregiving burden is mainly put on partners. In order to decrease the personal burden, it is required to share the care in...
PROTECTIVE FACTORS TO MENTAL HEALTH IN CAREGIVERS OF ONCOLOGICAL PATIENTS (Atena Editora)
PROTECTIVE FACTORS TO MENTAL HEALTH IN CAREGIVERS OF ONCOLOGICAL PATIENTS (Atena Editora), 2022
The present study aimed to identify and describe the protective factors and coping strategies developed by caregivers of cancer patients. Eighteen participants who were waiting in the waiting room of a general hospital in the interior of São Paulo were interviewed. To characterize the sample, a sociodemographic questionnaire developed by the authors was used. To assess mental health, the Depression Scale “CES-D” and “Caregiver Burden Scale” were used. The analysis of the questionnaire showed that the largest number of caregivers are women (84.2%) between the ages of 50 and 60 years. The scales pointed to an important index of depression indicators (20.2), low overload, except for the isolation and general tension dimensions, with the most present aspect of protection in this sample being religious confrontation. In view of the results, it was possible to observe that the preparation for care influences the reduction of burden and better adaptation of the caregiver to their tasks.
2015
Abstract: Caregiving is a complex task that may affect physical as well as mental health. Without proper supervision and skills, caregiving may become burden for some for the healthcare systems. The current paper made an attempt to uncover the respective roles of different cancers and stages variation of cancers on the mental health of the caregivers in terms of psychological distress (burden and burnout) and the coping strategies (to deal with their distress). In this study, primary informal caregivers of cancer patients were selected. Burden assessment schedule, burn out inventory and Coping checklist II had been selected to assess their psychological distress andcoping styles. Comparison among the groups of caregivers reveal that in terms of burden and burnout there are significant variations among caregivers of stage wise different cancers. In case of coping strategies caregivers show significant stage wise difference on emotion focused coping strategies (distraction positive, a...
Caregiver burden: An increasing problem related to an aging cancer population
Journal of Health Psychology, 2019
This prospective cohort study identified risk factors for the development of caregiver burden and included older cancer survivors, middle-aged cancer survivors, older patients without cancer and their caregivers. Overall, more than 16 per cent of caregivers experienced high-to-severe burden at baseline. This proportion remained stable after 1 and 3 years. Caregivers who experienced increased caregiver burden at baseline were at higher risk maintaining their caregiver burden over the following years. Caregiver burden was not related to the cancer diagnosis but rather to the baseline psychosocial well-being of both the caregiver and patient and the physical condition of the patient.