Fragile Resonance: Caring for Older Family Members in Japan and England (original) (raw)

Troubling Detail: Mother, Gender, and Care in Carolyn Ellis'Revision

2010

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Carer narratives of fatigue and endurance in Japan and England

Subjectivity , 2017

Caring for an elderly person often requires constant attention, physically challenging tasks, and emotional strain, all of which accumulate over periods and manifest as fatigue. Despite the prevalence of descriptions of fatigue in carer narratives, and the massive clinical literature on ‘carer burden’ and ‘exhaustion’, the significance of fatigue as a component of care rather than a mere by-product has not been fully explored. Drawing on Levinas’ phenomenological theory of fatigue I argue that experiences of fatigue shape carer subjectivities as both vulnerable and enduring, qualities that are essential for inaugurating new ways of being towards and taking ethical responsibility for the cared-for. At the same time, fatigue can become tragic if not supported by social and cultural narratives that recognize it and give it value. Cite as Danely, J. Carer narratives of fatigue and endurance in Japan and England. Subjectivity 10, 411–426 (2017) doi:10.1057/s41286-017-0037-7

The dual production of bodies: aging, illness and care in the daily life of a family

Cadernos Pagu, 2022

December 2018 marked 5 years that Leonor had been taking care of her elderly, blind, deaf, toothless mother, who also had cancer in one of her kidneys and advanced Alzheimer's. Dona Carmen's aging was absorbed to the daily life, body and mind of her daughter and caregiver Leonor, who developed a genital prolapse, tendinitis and depression due to the work of care combined with domestic work. In this text I present how the relationship of care between mother and daughter, elderly woman, and caregiver, overlap in daily life and produce strength and vulnerability. By describing the life of these women, I show the process of co-production of bodies through the duality of aging and illness in connection with a heterogeneous set of illnesses that accumulate with the passage of years. I also analyze the co-production of bodies in relation to broader social processes and temporalities.

A mother’s experience of her child’s time in intensive care: Part 1

Connect: The World of Critical Care Nursing, 2001

In the first part of her story, Kate Macdonald describes in detail what happened when her daughter Mary was admitted to her local hospital with whooping cough and pneumonia. In part two (to be published in the next issue of Connect) she recalls the events when, later, Mary was transferred to the regional paediatric intensive care unit (PICU). Mary became increasingly ill during her time in hospital and Kate was dealing with the worst situation a mother can imagine. She offers a vivid description of a mother's reactions to her infant's illness, recalling her own thoughts at different stages during the hospital admission. She says that initially she was not aware of the seriousness of her daughter's condition. For example, in the beginning, she focused on minute-by-minute events such as feeding, and was incapable of seeing the whole picture i.e. that her child was seriously ill in hospital, in an isolation room, requiring oxygen therapy and constant attention. Later, when Mary needed to be transferred to the intensive care unit (ICU), Kate began to realise that her child's life was out of her control. In addition to coping with this critical event she and her husband had to make arrangements for their other children, Lucy and Holly. It was a problem to let the children visit the unit because she and her husband needed to be with Mary all the time. During all of this, Kate was aware of how the staff were acting, reacting and interacting and she often comments on this. Kate Macdonald's article is very touching and very relevant for nurses who care for the parents of critically ill infants. There is much that nurses can learn from Kate's experience. KATE MACDONALD CONTINUES: My youngest daughter Mary was eight weeks old. She had had a cough for three weeks. After the third visit to our family doctor she was admitted to hospital.

An Autoethnography on Being the Daughter of a Frail, Sick Mother in Transitional Care

Ethics and Social Welfare

The article reflects on and explores a daughter's experience of being the relative to a frail, sick elderly mother in Norway. Recent reforms of the Norwegian healthcare services have had a major impact on the relationship between patients, their families and healthcare workers. The daughter's experiences elucidate the failure of the primary healthcare service to interact with the specialist health service and the patients' family. The article has a qualitative design and is based on one of the authors' autoethnographic accounts. The researchers are inspired by collaborative autoethnography (CAE). The co-authors reflect on and explore the daughter's experiences in order to increase the understanding of the interplay between personal and experiential aspects on the one hand and the social, cultural and political context on the other. The article is evocative and analytical, and investigates critically the ways in which system routines, procedures and practices restrict the opportunities for real user involvement and partnership. We address frail older people in transition between various levels of the health service and explore the opportunities of the relative to voice their expectations for user participation in nursing care.

Between Bodies : Rethinking Physical Disability through the Concepts of Abjection and Ressentiment (中岡成文教授 退職記念号)

2014

Between Bodies: Rethinking Physical Disability through the Concepts of Abjection and Ressentiment 1 Minae INAHARA Introduction: My Experience of Physical Disability My body responds to the way I feel and experience the social world. Emotion, sense, and affect are positioned at the very centre of my understanding of the lived world. When I am frustrated, stressed, anxious, or upset about my physical disability, my body tries to tell me that something is not right. For example, involuntary movements and neck pain might develop after a particularly stressful experience, such as seeing peopleʼs reactions to my disabled body and unintelligible speech. I have had mild cerebral palsy (CP) since I was born. 2 CP is defined as follows: Cerebral Palsy is ʻa persistent but not unchanging disorder of movement and posture due to dysfunction of brain, excepting that caused by progressive disease, present before its growth and development are completed. Many other clinical signs may be present.ʼ (The World Commission for Cerebral Palsy quoted in Griffiths and Clegg, 1988: 11) Thus, there is no cure for CP. It occurs when the areas of the brain that control movements and postures do not develop properly or are impaired. However, some medical treatments and social cares may improve 1 An earlier version of this paper was presented at the Second Uppsala University Body/Embodiment Symposium (18 th-19 th November, 2010). 2 The sign of my cerebral palsy appeared around three months old. My mother felt uneasy that my head was not steady and I could not suckle at all. I was slow to roll over, sit, crawl, or walk.