Coping Strategies and Quality of Life of Adolescents with Inflammatory Bowel Disease (original) (raw)
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How do psychological variables influence coping strategies in inflammatory bowel disease?
Journal of Crohn's and Colitis, 2013
Background: Adjusting to chronic disease is a complex process and one that, in the case of inflammatory bowel disease (IBD), has received very little attention. The objectives of this study were to identify coping strategies used by patients with IBD and to explore how these strategies are related to psychological characteristics. Methods: A transversal study was designed in which 875 patients with IBD were prospectively enrolled. Independent variables were evaluated using a sociodemographic questionnaire and a clinical questionnaire-the Hospital Anxiety and Depression Scale (HADS) and the Perceived Stress Scale (PSS); dependent variables were evaluated using the COPE Inventory (Coping Orientation to Problems Experienced), a multidimensional scale for evaluating general coping styles. Multiple linear regression was used to identify the variables associated with the type of coping used. Results: The participation rate was 91.3%. The most common coping strategy was emotion-focused coping (X ¼ 2:64; 95% CI = 2.61-2.69), with no differences in relation to type of disease. The highest scores for anxiety were associated with emotion-focused coping (β = 0.164, p = 0.001) whereas, for depression, the highest scores were associated with escape-avoidance (β =0.108, p=0.044). No correlation was found between stress levels and type of coping.
Journal of Research & Health, 2023
Background: Inflammatory bowel disease (IBD) is a group of disorders that cause chronic inflammation (pain and swelling) in the intestines. IBD includes Crohn disease and ulcerative colitis. Both types affect the digestive system. This study aims to compare coping strategies in people with inflammatory bowel disease and healthy people, according to internal and external sources of health control. Methods: The present study method was causal-comparative. The study population included all patients with inflammatory bowel disease and healthy people referred to the Bowel Department of the Jam Hospital in Tehran City, Iran, from April to September 2020. The research sample included 200 subjects (87 healthy people and 113 people with inflammatory bowel disease) selected by purposeful sampling. The participants completed the multidimensional health locus of control and the Folkman and Lazarus coping strategies inventory. For the data analysis, statistical indices of mean, standard deviation, distribution indices, and univariate and multivariate analysis of variance were performed in SPSS software, version 24. Results: The findings showed that of 8 coping strategies, two problem-oriented coping strategies, namely positive reappraisal, and responsibility, were seen more in people with IBD, and no difference was seen in other coping strategies between patients and healthy groups (P>0.05). About the variable of the source of health control, it was found that of 8 coping strategies, only the emotion-oriented coping strategy of avoidance was more common in people with an internal locus of control and in using other coping strategies between the two study groups with a source of control no difference was observed between internal and external control. Conclusion: In the present study, according to research, coping strategies are statistically similar in 4 groups of inflammatory bowel disease patients and healthy people.
The IBD-Cope: A new instrument for measuring coping in inflammatory bowel disease patients
Journal of Crohn's & colitis, 2016
Inflammatory bowel disease (IBD) has a major impact on psychological well-being. How an individual copes with IBD determines quality of life. We aimed to develop a brief, IBD-specific questionnaire to assess coping strategies (IBD-Cope) and to determine its test-retest reliability and validity. Twenty IBD coping strategies were initially deemed to have face validity. Participants were recruited from an existing study, specialist outpatient clinics, and via email. Distribution analyses were performed before test-retest reliability was determined. Exploratory factor analyses (EFA) were then performed before cross-sectional validity was tested. The majority of participants in the study samples were female and most had Crohn's disease. All participants were aged between 18 and 65 years. EFA on the initial validation sample produced two components explaining 42% of the variance, and broadly reflected "good" and "bad" coping. EFA on the repeat validation sample sho...
Journal of Crohn's and Colitis, 2014
Background: Inflammatory bowel disease (IBD) starting during childhood has been assumed to impair quality of life (QoL) of affected children. As this aspect is crucial for further personality development, the health-related quality of life (HRQOL) was assessed in a Swiss nationwide cohort to obtain detailed information on the fields of impairment. Methods: Data were prospectively acquired from pediatric patients included in the Swiss IBD Cohort Study. IBD activity was evaluated by PCDAI and PUCAI. The age adapted KIDSCREEN questionnaire was evaluated for 110 children with IBD (64 with Crohn's disease 46 with ulcerative colitis). Data were analyzed with respect to established reference values of healthy controls. Results: In the KIDSCREEN index a moderate impairment was only found for physical wellbeing due to disease activity. In contrast, mental well-being and social support were even better as
Journal of pediatric gastroenterology and nutrition, 2015
Inflammatory Bowel Disease (IBD) and abdominal pain of functional origin (AP) are common gastrointestinal disorders in children that are associated with increased risk for depression and disability. Both symptom severity and coping with symptoms may contribute to these outcomes. We hypothesized that children with AP use different coping strategies compared to those with IBD for a number of reasons, including the fact that fewer treatment options are available to them. We also examined if coping was related to depression and functional disability beyond the contributions of symptom severity. Secondary data analysis of two existing datasets including 200 children with AP (73% girls; mean age 11.2) and 189 children with IBD (49% girls; mean age 13.8). Compared to IBD patients, AP patients reported more use of coping strategies of self-isolation, behavioral disengagement, and catastrophizing as well as problem-solving and seeking social support. Multivariate analyses revealed that, in b...
Journal of Clinical Psychology in Medical Settings, 2012
The current study examined factors associated with adolescent and parent participation in a coping skills intervention for adolescent girls with inflammatory bowel disease (IBD) and examined factors associated with attrition related to intermittent missing data. Thirty-one adolescent girls with IBD and their parents enrolled in the intervention. Psychosocial and disease factors related to participation in the 6-week web component of the coping skills intervention were examined as were baseline group differences between those who provided post-treatment data and those who did not. Adolescents experiencing more difficulties related to their disease and psychosocial functioning participated less in the web component of the treatment intervention. Families who attrited had higher baseline levels of parental catastrophic thoughts, parenting stress, and adolescent depression. Families experiencing greater levels of psychological and disease-related difficulties may be at risk for low participation and eventual dropout from pediatric IBD psychological treatment interventions.
Journal of Pediatric Nursing, 2012
Perceptions of living with inflammatory bowel disease (IBD) during adolescence were explored in a cross-sectional study with a multimethod design. The adolescents as a group described general wellbeing and ability to handle the disease, which was related to their self-reported self-esteem. However, a subgroup of adolescents with a severe disease course reported a more negative view of the impact of IBD in their daily lives. Encouraging adolescents to communicate in different ways may help professionals to identify vulnerable subgroups with impaired health and to provide more appropriate support and treatment for those most in need.
Psychological distress in adolescents and young adults with inflammatory bowel disease
Revista Salud y Conducta Humana, 2021
Background: Inflammatory Bowel Diseases (IBD) are a group of pathologies characterized by affecting the digestive tract, which includes Ulcerative Colitis (UC) and Crohn's disease (CD). In recent years, there has been a significant increase in IBD cases in Puerto Rico in children of age 14 and under. In contrast to their peers, adolescents and young adults with IBD experience challenges due to the nature of the disease. While the physical challenges of IBDs are well known, the disease also affects their quality of life due to emotional and social obstacles. The vulnerability of experimenting anxiety and depression symptoms in patients with IBD, could have negative implications in the treatment of the disease. Objective: We aimed to describe the psychological distress presented in adolescents and young adults with IBD. Method: The database of Centro Médico Episcopal San Lucas pediatric unit was used for data collection between the years 2015-2019. Eleven cases of patients between the ages of 14-20 years old with IBD were identified. Conclusion: Results did not present a significant difference between the categories of IBD and the presence of depression and the presence of anxiety. However, when UC and CD patients were compared, there was a noticeable increased presence of depression symptoms among patients with UC.
Stress coping, distress, and health perceptions in inflammatory bowel disease and community controls
The American journal of gastroenterology, 2009
This study compares a community inflammatory bowel disease (IBD) sample of individuals with a matched non-IBD community sample of individuals on psychological functioning and health perceptions. Participants in the population-based Manitoba IBD Cohort Study (n=388) were directly compared with sex-, age-, and region-matched controls from a national random-sample health survey on the aspects of psychological health, coping, and perceived general health. Overall, the IBD sample had lower psychological well-being and mastery, as well as higher distress than did the non-IBD controls (P<or=0.02). Those with IBD used avoidant coping significantly more often, and active coping modestly more often than did the non-IBD sample; both had similar levels of "self-soothing" behaviors. Patients with Crohn's disease and ulcerative colitis had similarly poor levels of functioning along these dimensions compared with the non-IBD sample, as did those with active disease (P<0.01). Ho...
Psychosocial burden of inflammatory bowel disease in adolescents and young adults
Internal Medicine Journal, 2020
BackgroundThis study examined the psychosocial burden of inflammatory bowel disease (IBD) in young people aged 15–25 years attending a tertiary specialist health centre for adolescents and young adults in Brisbane.AimsTo describe the impact of IBD on psychosocial well‐being in young people and to compare well‐being in the IBD cohort to well‐being among young people with other chronic conditions, with a view to identifying characteristics and challenges unique to those with IBD.MethodsYoung people with IBD provided demographic information and psychosocial data through a cross‐sectional self‐report survey. Psychosocial data included the Kessler Psychological Distress Scale, Perceived Stress Scale, Brief Illness Perception Questionnaire, World Health Organisation Well‐being Index, Paediatric Quality of Life Inventory, Short Quality of Life Questionnaire for IBD, Multidimensional Scale of Perceived Social Support, Connor Davidson Resilience Scale 2 and the Multidimensional Health Locus ...