Expectations of Personal Life Development and Decision-Making in People with Moderate Intellectual Disabilities (original) (raw)
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Background Problems with psychological and social adjustment of siblings of children with disabilities have become a major problem on their growth and thus siblings are in need of support. It is contemplated that the problems of adaptation of siblings are largely due to dynamics of family relations. Therefore, we developed a support program for family (siblings, parents, children with disabilities). The purpose of this study is to examine the effects of this program. Method The subjects were the siblings of 16 children from 6 to 15 years and their family. The program named "The Joy Joy Club" was carried out over six sessions, two hours every two weeks. The contents are as follows: 1) Free play time, 2) Activity for the whole family, 3) Group activity (siblings, parents, the children with disabilities), 4) Joint sibling and parent activity. Participants experienced playful movement activities to facilitate family relationships and discussed, learned and played games according to the chosen theme. To measure the effect of the program, siblings and their mothers were asked to complete the same questionnaires before and after "The Joy Joy Club." They were also interviewed to provide feedback about the program. Results After the program, 62.5% of siblings reported improved feelings about their brother or sister with disabilities, and the results of the statistical analysis showed this to be significant in three siblings. On the Family Diagnostic Test, 62.5% of siblings and 68.8% of mothers showed positive changes. Both before and after the program, negative feelings of the siblings were negatively correlated with their mother's "acceptance" and positively correlated with their mother's "indifference." Conclusions The results suggest that siblings' negative feelings about their brother or sister with disabilities are related to their parent-child relationship and to this family support program. "The Joy Joy Club" was able to improve their parent-child relationship and their feelings.
Journal of Intelligence, 2021
The inclusion of people with disabilities, intellectual in the case that concerns this research, has been one of the main concerns of society in recent years. The University of Murcia has launched the “We are all Campus” program in order to facilitate the inclusion of this group from a training perspective. Being aware of the influence of self-concept in such inclusion, this research aims to analyze the influence of the self-concept of people with intellectual disabilities in their expectations of inclusion. For this purpose, 18 subjects were asked to carry out a SWOT analysis, assessing the situation in which they find themselves through a qualitative perspective and a phenomenological design. The research reveals, among other conclusions, how important personal development is to them, especially by generating autonomy in their daily routines, and also the relevance of their relationships to feel socially included.
International Journal of Qualitative Studies on Health and Well-being
Purpose: Choice and autonomy are recognized as values facilitating genuine selfdetermination. Subsequently greater understanding of these concepts in decision-making practices of adults with intellectual disabilities is required. Aims: The twofold aim of this research study was to ascertain the core concern (most important issue) for adults with intellectual disabilities as they make choices and exercise autonomy and to develop a theory explaining how these adults attempt to resolve their core concern. Methods: This research study undertaken in a single organization in the Republic of Ireland applied classic-grounded theory methods. Participants included twelve adults who were attending day services and accessing a variety of other organizational services. Interviews were undertaken, between January 2012 and September 2013, in different contexts on up to 4 occasions (46 interviews). Data analysis utilized concurrent processes of constant comparative analysis. Results: The main issue of concern for these participants was 'control' in environments that were controlling of them and they responded by 'aligning with the flow of control' explained by how they framed control, emotionally connected and adjusted in compliance situations. Conclusions: This theory offers a conceptual delineation of the way adults with intellectual disabilities manage the daily tensions and harmonies in decision-making.
Збірник наукових праць Уманського державного педагогічного університету. , 2019
Topicality of the research is considered through the lens of evolution in education and people with disabilities in the conditions of a new model of inclusive environment. The purpose of the article is to demonstrate the technology of the development of cultural and social activity of people with disabilities in the conditions of higher education institutions in the process of project activity. Sociocultural, moral, spiritual and tutor support, based on gained experience, should provide students of higher education institutions with the help of self-selection of sociocultural and personal position, the opportunity to confidently express their opinion, to be active, to have their own social position, taking into account moral principles and spiritual inner fullness.
International Journal of Research Publications
This research aims to explore the lived experiences of special needs education (SNED) professionals who work with children with intellectual disabilities (ID). The study recognizes the crucial role played by these professionals in supporting the different facets of the development and educational needs of children with ID. By examining their lived experiences, this research aims to gain a deeper understanding of the challenges, rewards, and perspectives that shape their professional journeys. Using a qualitative approach, in-depth interviews were conducted with a diverse sample of SNED professionals, including teachers, therapists, and support staff, who work directly with children with ID. The collected data was analyzed using thematic analysis to identify recurring themes and patterns within the narratives. Preliminary findings reveal that SNED professionals face numerous challenges, including navigating individualized education plans, addressing complex behavioral issues, and adapting instructional strategies to meet diverse learning needs. However, they also report significant rewards, such as witnessing the progress and growth of their students, building strong connections with families, and experiencing personal fulfilment in making a positive impact on children's lives.
2013
Collaboration among parents, educators, and students expands the knowledge base and promotes mutual respect among decision-makers involved in planning students’ education. The relationship can help students achieve their goals. This study sought to examine the experiences among students with intellectual disability and their families in high school. I chose to use qualitative methods of portraiture and interpretative phenomenological analysis (IPA). Students, like those in this study, with low incidence disabilities are often disenfranchised because of their low proportion of the general population of high school students. The results of this study, reported in portraits, gave voice to members of this disenfranchised group. I interviewed three former students, their mothers, and one adult sister. I recorded, transcribed, and analyzed the interviews. I reported the results as portraits to capture the voices and document the lived experiences of this marginalized group. There were a f...
Journal of Intellectual Disability - Diagnosis and Treatment, 2024
Background: Intellectual disability is a disorder of intellectual development that, due to its characteristics, involves a series of limitations in cognitive functioning and generalization of learning. These difficulties can evolve with appropriate intervention, which can enhance the quality of life of these people and their families. Objectives: The study seeks to determine the quality of life of people with intellectual disabilities in general and in its different dimensions, taking into account the perception of the person with a disability and that of his/her family. Methods: This study focuses on a specific field: higher education for people with intellectual disabilities. It uses a sample of 19 young people and their 19 corresponding families to determine whether there are significant differences between the two groups, i.e., parents and children. The INICO-FEAPS tool was used to achieve these objectives. Results: The data obtained, and their subsequent analysis have allowed us to detect medium-high levels of quality of life and significant differences between the indices of both groups, highlighting higher scores in the case of families. In addition, self-determination has been revealed as the dimension with the lowest scores, followed by social inclusion and interpersonal relationships. Conclusion: This makes it possible, at the professional level, to focus on these aspects and become aware of the necessary measures to improve intervention in the educational and family environment.
(Özveri), there are 1.559.222 disabled people in Turkey. If this rate would be linked to the families of the disabled people, the number of people who spend time with disabled individuals would increase to 10 million. This number corresponds to 12.5% of the country's population. This requires sensitiveness from each individual because everyone is either a disabled person, related to a disabled person or a potential disabled person. In this case, the importance of information related to disabled people, acquired by the students in the highest institutions of the education system increases due to the fact that they are future teachers and potential managers. This research was conducted in Abant Izzet Baysal University, School of Physical Education and Sport in order to analyze and understand the effects of disability training on the students. Designed as an activity research, this study took 36 h for 12 weeks. The research was conducted with 15 voluntary students who took Physical Education and Sport for Disabled People and Sport for Disabled People classes. The data were gathered through focus group discussion and field notes. In the analysis of the data, both descriptive and content analyses were used. All of the operations were done by NVIVO 10 qualitative analysis program. Results showed that the students reached almost all phases of the cognitive domain outcomes by acquiring a level of information more advanced than the level they had at the beginning. Furthermore, especially the outcomes at the affective domain revealed that the students became more equipped in this respect.
2019
Topicality of the research is considered through the lens of evolution in education and people with disabilities in the conditions of a new model of inclusive environment. The purpose of the article is to demonstrate the technology of the development of cultural and social activity of people with disabilities in the conditions of higher education institutions in the process of project activity. Sociocultural, moral, spiritual and tutor support, based on gained experience, should provide students of higher education institutions with the help of self-selection of sociocultural and personal position, the opportunity to confidently express their opinion, to be active, to have their own social position, taking into account moral principles and spiritual inner fullness.
Disability & Society, 2017
Researchers are required to provide opportunities for people with intellectual disabilities to be included in research which affects their lives. This paper reports on one research study inclusive of 12 adults with intellectual disabilities. Ethical and methodological realities of recruiting research participants and obtaining informed consent while enlisting a classic grounded theory methodology are discussed. The findings of this paper focus on building and maintaining trusting relationships with relevant gatekeepers and engaging in reasonable accommodations to support decision-making for and with adults with intellectual disabilities. This paper contributes to an understanding of how to apply for ethical approval, negotiate access to potential participants, enlist reasonable accommodations and obtain informed consent in the context of the methodological strictures of classic grounded theory methodology. Research projects need to be carefully planned making space for the development of empathic relationships with both the potential participants and also with the structures and services supports. Points of interest • Adults with intellectual disabilities have a right to be included in research which affects their lives. • Research approaches and research ethics are important considerations when engaging adults with intellectual disabilities in research. • This article analyses the realities of recruiting and obtaining informed consent from 12 adults with intellectual disabilities in a research study utilising classic grounded theory methodology. • The methodology, classic grounded theory, facilitated the development of a theory that explained the main concern of adults with intellectual disabilities when making choices. • Researchers compelled to include people with intellectual disabilities in research must consider practices which promote trustful relationships with everybody while facilitating inclusion and informed consent.