Explain the Experience of Family Caregivers Regarding Care of Alzheimer's Patients: A Qualitative Study (original) (raw)
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Iranian Red Crescent medical journal, 2012
Due to the increase in the number of Alzheimer's patients in Iran and also the limitation of cultural knowledge about caring of these patients, this study was designed to explore the perceptions of Iranian caregivers about caring Alzheimer patients in the elderly care homes. A qualitative content analysis method was conducted on two elderly care homes of Shiraz/Iran, during 2009-2011. Fourteen key informants (10 women and 4 men, between 25-35 years of age), who had been working in elderly care homes caring for the elderly with Alzheimer disease for about 1-11 years (Mean=30 months) were selected by purposive sampling method. The caring experience and ability of transferring their experience to others were the main criteria for selection of the participants. They were participated in 2 focus groups and 4 interviews. Nearly, 800 initial codes were extracted and categorized into 3 groups of "multidimensional care", "going along with the patients" and "need ...
Problems Faced by Caregivers of Alzheimer’s Patients
Volume 36, Issue 3, 2021
Care giving is a difficult task especially when it involves physical or mental retardation, and it leaves marked negative impact on primary caregivers. Alzheimer is one such ailment where the patient is totally dependent on others for each bit of their life, so the care giving of Alzheimer patients become more burdensome. The aim of this research was to examine the burden and difficulties of caregivers dealing with Alzheimer's patient, especially those living at home. Case study method was employed for this research. Eight caregivers were selected purposively, and content analysis was used to examine their perspective regarding burden and challenges. In the assessment of content, the gathered qualitative information was analyzed in a deductive manner. The results of the analysis showed that caregivers face daily challenges in terms of physical and psychological health issues, social support and resources, family conflicts, crisis, and criticism. The outcomes further elaborated t...
Frontiers in Psychology, 2021
Introduction: The needs of Alzheimer's patients are very complex and diverse and many of them are considered unmet needs. Understanding and responding to the unmet and complex needs of Alzheimer's patients can affect the quality of care. Therefore, the present study aimed to explain the perception of formal and informal caregivers of the unmet needs of Iranian Alzheimer's patients.Methods: The present qualitative study employed a Directed Content Analysis approach and was conducted in Iran in 2020. This research was done through in-depth and semi-structured interviews with 19 qualified caregivers enrolled (11 informal caregivers and 8 formal caregivers) with the mean age of 46.05 ± 10.98 years in a purposive sampling method. Interviews continued until data saturation. Data analysis was performed simultaneously with data collection. After recording and transcribing, the data were analyzed using the Elo and Kyngas method based on the National Consensus Project framework (N...
Living with and caring for patients with Alzheimer's disease in nursing homes
Journal of caring sciences, 2013
Many of the patients with Alzheimer disease are taken care of in nursing homes. However the literature on the experiences of Iranian formal caregivers of older adults with Alzheimer disease is scarce. This qualitative study explored the caring experiences of formal caregivers in nursing homes that can improve the quality of care and patient's quality of life. This qualitative study used the principles of descriptive content analysis to analyze these data. Our participants included 11 female and 3 male caregivers aged 25 to 38 years who were selected for interviewing based on a purposive sampling method. The data were analyzed with a content analysis method. Nearly 900 initial codes were extracted and categorized into 6 main themes including "managing difficult behaviors", "dependence on familial care", "continuum of different feelings", "care for a child", "living with the patients" and "not understanding the patients",...
Difficulties of Caregivers of Individuals Suffering from Alzheimer’s Disease
Socijalna psihijatrija
U današnjem društvu postoji jasan trend porasta broja osoba starije životne dobi pa time i sve veća statistička značajnost broja osoba oboljelih od Alzheimerove bolesti što generira povećanu potrebu adekvatne skrbi za oboljele. Uz formalne oblike skrbi (pružene od profesionalaca iz sustava zdravstvene i socijalne skrbi), neformalna njega značajan je resurs u pružanju skrbi osobama s demencijom. Neformalni njegovatelji su pojedinci koji se dobrovoljno brinu za člana obitelji ili prijatelja koji se suočava sa bolešću, invaliditetom ili bilo kojim drugim stanjem koje zahtijeva posebnu pažnju. S obzirom na tijek i duljinu trajanja Alzheimerove bolesti i sama skrb za oboljelog je dugotrajna i iscrpljuća, a uključuje sve razine funkcioranja njegovatelja pa ju je potrebno sagledavati u kontekstu kako ekonomskog, tako i emocionalnog, mentalnog i fizičkog stanja njegovatelja. Iako može imati i neke blagotvorne aspekte, skrb za oboljeloga je obično vrlo stresna i može u značajnoj mjesti utjecati na zdravlje i dobrobit njegovatelja te je stoga potrebno razmotriti probleme i opterećenja s kojima se susreću njegovatelji osoba oboljelih od Alzheimerove bolesti. / In modern society, the number of elderly individuals is higher and so is the statistical significance of people living with Alzheimer's disease. This trend results in a higher demand for adequate care for such patients. Along with formal care (provided by social workers and other health care professionals), informal care has become a significant resource in the nursing of individuals with dementia. Informal caregivers are individuals who voluntarily attend to the needs of a family mwember or a frend living with illness, handicap, or any other condition that requires special needs. Considering the course and duration of Alzheimer's disease, the nursing of patients can also be lengthy and exhausting. Moreover, all aspects of a caregiver's job must be taken into consideration starting the mental, emotional, and physical health to nursing expences. Although there are positive aspects, nursing an individual with dementia is extremely stressful and significantly affect the health and wellbeing of the caregiver, and therefore it is necessary to take into consideration all difficulties and problems caregivers of people living with Alzheimer's disease may encounter.
International Journal of Geriatric Psychiatry, 2002
Background Dementia is a rapidly growing problem in all parts of the developing world. Such societies are characterised by low levels of awareness regarding dementia as a chronic degenerative brain syndrome, and by an absence of supportive health and welfare services. There is reliance upon families as the cornerstone of support and care. However, surprisingly little is known of the care arrangements for people with dementia and the strain experienced by their family caregivers. Method In a qualitative study of 17 caregivers of people with Alzheimer's disease identified through an innovative casefinding program in Thrissur, South India, we obtained information on the range of care arrangements, attitudes towards care giving roles and sources of strain. Results The majority of caregivers were young women, often daughters-in-law of women with dementia. The principal sources of caregiver strain were behavioural problems associated with the dementia syndrome, and incontinence. Strain was exacerbated by the lack of supportive response by local health services, and by lack of support and, sometimes, criticism from other family members. Family conflict was commonly encountered. The majority of caregivers experienced significant deterioration in their mental health. One caregiver unfortunately committed suicide after the death of her husband. Conclusions There is a clear need for more education, advice and support for families affected by dementia. Community services in developing countries should consider training existing domiciliary outreach services, the community-based multipurpose health workers, to identify and support family caregivers.
BMC Geriatrics, 2022
Background It is believed that seniors with multiple chronic diseases are in dire need of support from their family caregivers; however, it can impose a significant burden on these caregivers. Therefore, it is imperative to take into account caregivers’ needs, as covert patients, along with the needs of patients; besides, it is necessary to develop supportive and health promotion programs for them. There is a critical gap in the knowledge about health problems related to family caregivers of the growing population of these senior citizens. The present study aimed to explain the challenges imposed on family caregivers of seniors with several chronic diseases in Iran. Methods This study was conducted based on the conventional qualitative content analysis method. For this purpose, 13 family caregivers of seniors with several chronic diseases were selected using the purposive sampling method. The study population included those referred to two health centers and outpatient clinics of tw...
Problems and expectations of caregivers of patients with dementia
2021
Background: Patients with dementia (PwD) are primarily cared by a family member or their relatives in India. In managing these patients they often face a number of problems during care and sometimes they do not have any knowledge or understanding of the problems, so problems remain unattended. Objectives: Present study aimed to find out the problems faced by caregivers of dementia patients and management strategies evolved by themselves vis a vis training needs. Methods: The primary caregivers to patients with dementia admitted to the Department of Geriatric Mental Health giving consent were interviewed using a semi-structured proforma. Information regarding sociodemographic details, caregiver tasks, problems in performing care giving tasks and their own management techniques vis a vis need for training in managing the patients were gathered. Results & Discussions: A total of 21 caregivers of patients with dementia consented to participating in the study. They reported that they oft...
International Journal of Environmental Research and Public Health, 2019
The purpose of this study was to identify, classify and analyze the perceived needs of caregivers of elderly people with dementia during the care process. A descriptive phenomenological qualitative study using seven focus groups was conducted in different primary health care centers in the province of Jaén (Spain) between July 2012 and February 2013. Eighty-two family caregivers who were caring for people with dementia in different stages of the disease were selected by purposeful maximum variation sampling. Data were analyzed and organized thematically, considering the semantic and pragmatic content and field notes. Two main categories of the perceived needs of caregivers were identified. The first was related to the management of caring for a relative with dementia, and the second was related to the management of the caregivers’ own care. Our findings support the provision of comprehensive interventions for the improvement of caregivers’ emotional health that encompass more than o...
Caring for the caregiver: experiences related to alzheimer's disease
Revista de Pesquisa: Cuidado é Fundamental Online, 2014
Objetivo: Compreender os sentimentos e dificuldades enfrentadas pelo cuidador familiar à pessoa acometida pela Doença de Alzheimer (DA). Método: Trata-se de reflexão para compreensão do fenômeno estudado, utilizando a história oral de vida à luz de Bom Meihy. Resultados: A discussão do fenômeno pautou-se na análise de cinco categorias: incorporação do papel de cuidador familiar, a vida antes e após assumir o papel de cuidador,sentimentos do cuidador após assumir o cuidado, dificuldades no cuidado, participação do grupo como alicerce para os cuidadores,possibilitando a construção de novas formas de abordagem e cuidado às pessoas que desempenham o papel de cuidador familiar. Conclusão: Percebeu-se com essa pesquisa que a situação vivenciada pelo cuidador familiar de uma pessoa acometida pela DA é uma questão de saúde pública evidenciando a premência de medidas governamentais de caráter político-social, além de programas de atenção e promoção da saúde ao referido público alvo.