Impact of Fragile X Syndrome on Their Families (original) (raw)

Family Environment and Behavior Problems in Children, Adolescents, and Adults with Fragile X Syndrome

Nancy Brady

American Journal on Intellectual and Developmental Disabilities, 2012

View PDFchevron_right

Psychological well-being of mothers of youth with fragile X syndrome: syndrome specificity and within-syndrome variability

Susen Schroeder

Journal of Intellectual Disability Research, 2006

View PDFchevron_right

Predictors of stress in mothers and fathers of children with fragile X syndrome

Monica Cuskelly

Research in developmental disabilities

View PDFchevron_right

Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities

Diego Cadavid

Brain Sciences

View PDFchevron_right

Behavioural and emotional disturbance in fragile X syndrome

Bruce Tonge

American Journal of Medical Genetics, 1994

View PDFchevron_right

Growing up with Fragile X Syndrome: Concerns and Care Needs of Young Adult Patients and Their Parents

Sabine Mous

Journal of Autism and Developmental Disorders, 2019

View PDFchevron_right

Factors Associated with Parenting Stress in Mothers of Children with Fragile X Syndrome

Christine Blasey

Journal of Developmental & Behavioral Pediatrics, 2003

View PDFchevron_right

Raising Fragile: The Experiences & Perspectives of the Families of Male Fragile X Individuals

Joanne Shorb

2013

View PDFchevron_right

Perceived Quality of Life in Mothers of Children With Fragile X Syndrome

Debra Skinner

American Journal on Mental Retardation, 2008

View PDFchevron_right

Examination of Correlates to Health-Related Quality of Life in Individuals with Fragile X Syndrome

Lauren Schmitt

Brain Sciences

View PDFchevron_right

Neuropsychological, psychiatric, and physical manifestations in 149 members from 18 fragile X families

Gabriella Spinicci

American Journal of Medical Genetics, 1991

View PDFchevron_right

Public Health Literature Review of Fragile X Syndrome

Anne Wheeler

Pediatrics, 2017

View PDFchevron_right

Change in Behavior Problems from Childhood Through Adolescence for Children with Fragile X Syndrome

Nancy Brady

Journal of Autism and Developmental Disorders

View PDFchevron_right

Collaborative prospective study of the fragile X syndrome: Request for participation

Karen Brøndum-nielsen

American Journal of Medical Genetics, 1991

View PDFchevron_right

Collaborative prospective study of the fragile X syndrome: One���year progress report

Arie Smits

1992

View PDFchevron_right

Caregiver Preferences for the Treatment of Males with Fragile X Syndrome

Jui-Chen Yang

Journal of Developmental and Behavioral Pediatrics, 2016

View PDFchevron_right

Climbing the Branches of a Family Tree: Diagnosis of Fragile X Syndrome

Heather Hipp

The Journal of Pediatrics, 2014

View PDFchevron_right

Psychiatric disorders among women with the fragile X premutation without children affected by fragile X syndrome

Andrea Schneider

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 2016

View PDFchevron_right

Factors impacting the transition to adulthood of youth with fragile X syndrome and their families: Facilitators, obstacles and needs

Camille Gauthier-Boudreault

Research in Developmental Disabilities, 2020

View PDFchevron_right

Fragile X syndrome prenatal diagnosis: parental attitudes and reproductive responses

I. Madrigal

Reproductive BioMedicine Online, 2010

View PDFchevron_right

Behavioral Intervention for Problem Behavior in Children With Fragile X Syndrome

V. Durand, Lauren Moskowitz

American Journal on Intellectual and Developmental Disabilities, 2011

View PDFchevron_right

The aberrant behavior profile in Indonesian individuals with fragile X syndrome with limited genetic services

widodo sarjana

Intractable & Rare Diseases Research

View PDFchevron_right

Conducting Research With an Adolescent Diagnosed With Fragile X Syndrome

Chantel Weber

2017

View PDFchevron_right

“Corp-Osa-Mente”, a Combined Psychosocial–Neuropsychological Intervention for Adolescents and Young Adults with Fragile X Syndrome: An Explorative Study

Alice Montanaro

Brain Sciences

View PDFchevron_right

Understanding fragile X syndrome from a mother's perspective: Challenges and resilience

Chantel Weber

International Journal of Qualitative Studies on Health and Well-being, 2016

View PDFchevron_right

Neuropsychological studies in families with fragile-X negative X-linked mental retardation

Gabriella Spinicci

American Journal of Medical Genetics, 1992

View PDFchevron_right

Behavior Problems and Social Competence in Fragile X Syndrome: A Systematic Review

Olga Cregenzán Royo

Genes, 2022

View PDFchevron_right

Communication in Young Children With Fragile X Syndrome: A Qualitative Study of Mothers' Perspectives

Debra Skinner

American Journal of Speech-Language Pathology, 2006

View PDFchevron_right

Healthcare Concerns of Parents of Individuals With Fragile X Syndrome Preliminary Results From Qualitative Data Analyses

heidi lauckner

2007

View PDFchevron_right

Cognitive and behavioral development profile of a Saudi girl with Fragile X syndrome

Mohammed M J Alqahtani

View PDFchevron_right

Screening and Diagnosis for the Fragile X Syndrome among the Mentally Retarded: An Epidemiological and Psychological Survey

S. Mohkamsing

The American Journal of Human Genetics, 1997

View PDFchevron_right