Cooley's Anemia Foundation | LinkedIn (original) (raw)
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About us
Statement of Purpose The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major. Mission Our mission is advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley's anemia/thalassemia major.
Industry
Non-profit Organization Management
Company size
2-10 employees
Type
Nonprofit
Founded
1954
Locations
Employees at Cooley's Anemia Foundation
Updates
- Event: CDC Virtual Thalassemia Grand Rounds Disease Management Considers for People with Thalassemia Older than 50 Date & Time: February 21, 2025, from 2:00 - 3:00pm EST Register today here: https://bit.ly/CDCThal50
- Our foundation has been advocating for people with thalassemia for over 70 years. We will start sharing history on Thursdays going forward. Here's a special throwback of our community during the Columbus Day Parade in the 80s! See the old logo? 😏 #CAFThrowback #thalassemia #cooleysanemia #thalassemiaawareness
- Donating blood is an act of kindness that literally can save lives. Here are reasons to donate blood, especially this month since it is #NationalBloodDonorMonth
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- CAF's Staten Island chapter will be hosting a Blood Drive on January 12 at Our Lady of Pity's Gym from 8am to 2pm to help celebrate National Blood Donor Day. If you're in NYC, please attend as your involvement can help save many lives! Tag a friend to take with you in the comments! Make sure you do the following: Eat well and hydrate Bring a photo ID Feel good and symptom free Appointments encouraged; walk-ins welcome! 17+ Must be 17+ or 16 with parental consent form Meet minimum weight requirements
- Share your story with us! Let’s inspire each other to make the world a little brighter this season. 💡 Comment below and tag 3 friends to join the #70KindActsCAF challenge.
- Your dollar can save thousands of lives. Please consider donating to the Cooley's Anemia Foundation today at thalassemia.org 💖
- Happy #GivingTuesday - the international day of giving. Consider giving to CAF today in order to help us ensure that all thalassemia patients continue to thrive. Donate today at https://lnkd.in/efmQRhMV ❤️ Here’s where your money goes: 1) Funding curative options: Bone marrow transplantation & Gene therapy 2) Support for medical research programs that lays the groundwork for future breakthroughs 3) Provide newly diagnosed families with information that helps their child thrive while living with thalassemia 4) Provide vital information on social media to the entire thalassemia community 5) Fund a family of three to attend our annual Parent-Family Conference 6) Support for travel to treatment centers 7) Emotional support through a social worker 8) Educational Incentive Awards to further education for patients and children of patients