Conducting research in a pandemic: The power of social media

Jonathan S Hausmann et al. Eur J Rheumatol. 2020 Aug.

No abstract available

Conflict of interest statement

Conflict of Interest: J.S.H. is supported by grants from the Rheumatology Research Foundation and Childhood Arthritis and Rheumatology Research Alliance, and he has performed consulting for Novartis unrelated to this work (<$10,000). P.S. reports honorarium for doing social media for American College of Rheumatology journals (<$10,000). S.B. reports non-branded marketing campaigns for Novartis (<$10,000). J.W.L. is supported by a grant from the National Institutes of Health. P.M.M. has received consulting/speaker’s fees from Abbvie, BMS, Celgene, Eli Lilly, Janssen, MSD, Novartis, Pfizer, Roche and UCB, all unrelated to this manuscript (all < 10,000).P.M.M.issupportedbytheNationalInstituteforHealthResearch(NIHR)UniversityCollegeLondonHospitals(UCLH)BiomedicalResearchCentre(BRC).Z.S.W.issupportedbygrantsfromtheNationalInstitutesofHealthandhehasperformedconsultingforTevaPharmaceuticalsandGileadSciencesunrelatedtothisproject.P.C.R.reportspersonalconsultingand/orspeakingfeesfromAbbvie,EliLilly,Janssen,Novartis,PfizerandUCBandtravelassistancefromRoche(all<10,000). P.M.M. is supported by the National Institute for Health Research (NIHR) University College London Hospitals (UCLH) Biomedical Research Centre (BRC). Z.S.W. is supported by grants from the National Institutes of Health and he has performed consulting for Teva Pharmaceuticals and Gilead Sciences unrelated to this project. P.C.R. reports personal consulting and/or speaking fees from Abbvie, Eli Lilly, Janssen, Novartis, Pfizer and UCB and travel assistance from Roche (all < 10,000).P.M.M.issupportedbytheNationalInstituteforHealthResearch(NIHR)UniversityCollegeLondonHospitals(UCLH)BiomedicalResearchCentre(BRC).Z.S.W.issupportedbygrantsfromtheNationalInstitutesofHealthandhehasperformedconsultingforTevaPharmaceuticalsandGileadSciencesunrelatedtothisproject.P.C.R.reportspersonalconsultingand/orspeakingfeesfromAbbvie,EliLilly,Janssen,Novartis,PfizerandUCBandtravelassistancefromRoche(all<10,000). J.Y. is supported by grants from the National Institutes of Health, Centers for Disease Control and Agency for Healthcare Research and Quality and she has performed consulting for Eli Lilly and Astra Zeneca unrelated to this project. R.G. reports personal and/or speaking fees from Abbvie, Janssen, Novartis, Pfizer, Cornerstones and travel assistance from Pfizer (all < $10,000). E.S. is a Board Member of the Canadian Arthritis Patient Alliance, a patient run, volunteer based organization whose activities are largely supported by independent grants from pharmaceutical companies.

Figures

Figure 1

Number of cases contributed to the physician registry per country, and per US state.

Figure 2

C19-GRA Membership growth in Slack.

Figure 3

Proportion of

rheum-covid.org

website views from the top 28 countries.

Figure 4

New Twitter followers of @rheum_covid within the first 3 months of the C19-GRA.

Figure 5

Tweet from the C19-GRA addressing the lack of efficacy of hydroxychloroquine in protecting patients against COVID-19.

Figure 6

Number of total subscribers to the C19-GRA general mailing list over time.

References

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