copaxone - Profile (original) (raw)
on 29 March 2007 (#12602726)
Welcome!
This is a new community for Multiple Sclerosis patients, caregivers, professionals, and any others who have experience with or questions about the MS therapy Copaxone (glatiramer acetate). It can also serve as a general discussion forum for the disease itself, if such conversations and questions arise - which they probably will!
This is a very new community, so please be patient while the layout and links are futzed with. Until then, feel free to introduce yourself and start some discussion or even just a little light-hearted chat! The rules are pretty much the same as any other community:
- Be respectful of others and their unique situations regarding MS and Copaxone.
- Don't start fights and if you think you might get into one please take it up with the moderator. (That's me!)
- Keep the cursing and naughtiness to a minimum because I don't want any flak from the LJ cops.
Also, on a personal note, I hope this community will be geared mainly towards the positive discussion of Copaxone. Every therapy has its downsides, but what I'd love to do is meet a group of people who are generally happy with and support their choice of treatment. That certainly doesn't mean that you can't bitch about the things that don't always sit well with you about Copaxone - what else would we do if we couldn't vent? But if your sole purpose in joining is to post a one-line entry saying "I hate Copaxone and I'm quitting it!" then this may not be the right forum for you.
Sorry for the rant. It's negative conversation like that on forums all over the internet which inspired me to create this community, so people might hear some of the good things Copaxone can do instead of just about the side effects. I just hope once this place gets going we can all discuss MS and Copaxone in harmony... well, as much harmony as anyone gets when they have MS at all, I mean.
Take care and thanks for joining! Please let me know what I can do to make your 
copaxone experience even more enjoyable!
- Ruth
(
electrablue - electrablue @livejournal.com)
More MS Communities:
MS & Copaxone Links: (will be continually updated)
MS Watch by Shared Solutions - resource for patients on Copaxone
The National MS Society - find your chapter!
Join the Movement - by the NMSS
myMSmyWAY.com - improving MS with technology
All About MS - excellent reference site
Teva Neuroscience - makers of Copaxone
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