Diane Pelchat - Academia.edu (original) (raw)
Papers by Diane Pelchat
Enfances Familles Generations, Apr 3, 2012
La naissance d'un enfant est une situation transitionnelle qui suscite un stress au sein de la fa... more La naissance d'un enfant est une situation transitionnelle qui suscite un stress au sein de la famille et implique la mise en oeuvre de stratégies adaptatives qui permettront graduellement à chacun de se resituer face à lui-même et face à l'autre et de faire une place à ce nouvel être. Lorsque l'enfant présente un problème de santé, le stress ressenti par les parents est d'autant plus important. Les recherches montrent que les pères et les mères d'enfant atteint d'un problème de santé vivent différemment cette expérience. Cet article vise à faire le point sur l'état actuel des connaissances de l'expérience des pères et des mères d'enfant atteint d'une problématique de santé et à proposer de nouvelles avenues de recherche permettant une meilleure compréhension de leur expérience.
The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmières
The information conveyed to patients and families dealing with a health problem such as traumatic... more The information conveyed to patients and families dealing with a health problem such as traumatic brain injury or stroke combines with what they already know to form a new pool of knowledge. The aim of this pilot study was to describe the information needs of family caregivers, their sources of information, their strategies for gathering information, and the impact of the information on their adjustment and their relationship with health professionals. Focus groups were held with close relatives of persons who had sustained a traumatic brain injury or a stroke and with health professionals from various disciplines working with theses clienteles. The information needs of relatives concerned the impact of the person's disabilities on their everyday lives. From the professionals' point of view, the information needs of close relatives concerned the person's disabilities, their coping strategies, and their information sources. Life experience was the main source of knowledge. The results form a basis for recommendations regarding interventions in acute care and rehabilitation.
The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmières
The information conveyed to patients and families dealing with a health problem such as traumatic... more The information conveyed to patients and families dealing with a health problem such as traumatic brain injury or stroke combines with what they already know to form a new pool of knowledge. The aim of this pilot study was to describe the information needs of family caregivers, their sources of information, their strategies for gathering information, and the impact of the information on their adjustment and their relationship with health professionals. Focus groups were held with close relatives of persons who had sustained a traumatic brain injury or a stroke and with health professionals from various disciplines working with theses clienteles. The information needs of relatives concerned the impact of the person's disabilities on their everyday lives. From the professionals' point of view, the information needs of close relatives concerned the person's disabilities, their coping strategies, and their information sources. Life experience was the main source of knowledge. The results form a basis for recommendations regarding interventions in acute care and rehabilitation.
L’ADÉQUATION ENTRE LES BESOINS VÉCUS PAR LES PROCHES DE PERSONNES AYANT UN TRAUMATISME CRÂNIEN ET... more L’ADÉQUATION ENTRE LES BESOINS VÉCUS PAR LES PROCHES DE PERSONNES AYANT UN TRAUMATISME CRÂNIEN ET LES SERVICES OFFERTS PAR LE CONTINUUM DE SOINS ~ Sommaire exécutif ~ SOUS LA DIRECTION D’HÉLÈNE LEFEBVRE, PH.D. Programme de recherche en réadaptation et intégration sociale en traumatologie DÉCEMBRE 2007 MSSS REPAR SAAQ
Recherche en soins infirmiers, 2009
Recherche en soins infirmiers, 2009
This qualitative research shows differences and similarities between mother and father's expe... more This qualitative research shows differences and similarities between mother and father's experience of incertitude in the process of the announcement of the cerebral palsy and the adaptation strategies used. Interviews have been conducted with 17 parents (10 mothers and 7 fathers). Results of the research reveals three main triggering factors of incertitude: incertitude in regards with the survival of the child, the unpredictability of the evolution of the child and the ambiguity of the information regarding the cerebral palsy Triggering factors of the incertitude are the same for both parents but their reactions towards the these factors and their way of coping with the situation vary.
Santé mentale au Québec, 1998
Journal of child health care : for professionals working with children in the hospital and community, 2007
The birth of a child is a transitional situation that triggers stress in the family and each pers... more The birth of a child is a transitional situation that triggers stress in the family and each person has to use adjustment strategies allowing them to reposition gradually in relation to themselves and other members of the family, and to make space for the new arrival. When the child has a health problem, the stress on the parents is correspondingly greater. Research shows that fathers and mothers of a child with a health problem experience this ordeal differently. This article reports on the current state of knowledge about the experience of fathers and mothers of a child with a health problem, and suggests new directions for research to provide a fuller understanding of their experience.
The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmières, 2008
The information conveyed to patients and families dealing with a health problem such as traumatic... more The information conveyed to patients and families dealing with a health problem such as traumatic brain injury or stroke combines with what they already know to form a new pool of knowledge. The aim of this pilot study was to describe the information needs of family caregivers, their sources of information, their strategies for gathering information, and the impact of the information on their adjustment and their relationship with health professionals. Focus groups were held with close relatives of persons who had sustained a traumatic brain injury or a stroke and with health professionals from various disciplines working with theses clienteles. The information needs of relatives concerned the impact of the person's disabilities on their everyday lives. From the professionals' point of view, the information needs of close relatives concerned the person's disabilities, their coping strategies, and their information sources. Life experience was the main source of knowledge...
La revue internationale de l'éducation familiale, 2008
Recherche en soins infirmiers, 2008
This preliminary study aimed at documenting the needs of families having a child with a disabilit... more This preliminary study aimed at documenting the needs of families having a child with a disability concerning information, from the point of view of both parents and professionals involved with them. Three discussion groups were carried out: two with parents of children with Down's syndrome or cerebral palsy, and another group with health professionals involved with them. The results show that the parents are searching for information concerning the initial health problem, the available health care and other resources that might be of help. Sources of information for parents include the health care professionals, other parents within a similar situation, the media and the Internet. The obtained information influences the parents' adjustment over their child's health situation and also impacts the relationships they have with the health care team. Some recommendations regarding intervention are proposed.
Enfances, Familles, Générations, 2005
La naissance d'un enfant est une situation transitionnelle qui suscite un stress au sein de la fa... more La naissance d'un enfant est une situation transitionnelle qui suscite un stress au sein de la famille et implique la mise en oeuvre de stratégies adaptatives qui permettront graduellement à chacun de se resituer face à lui-même et face à l'autre et de faire une place à ce nouvel être. Lorsque l'enfant présente un problème de santé, le stress ressenti par les parents est d'autant plus important. Les recherches montrent que les pères et les mères d'enfant atteint d'un problème de santé vivent différemment cette expérience. Cet article vise à faire le point sur l'état actuel des connaissances de l'expérience des pères et des mères d'enfant atteint d'une problématique de santé et à proposer de nouvelles avenues de recherche permettant une meilleure compréhension de leur expérience.
Recherche en soins infirmiers, 2002
The Program of Interdisciplinary Family Surgical Procedures (PIFSP), is oriented towards the deve... more The Program of Interdisciplinary Family Surgical Procedures (PIFSP), is oriented towards the development of partnerships between families and nurses in order to respond to the specific needs of families with children suffering from health problems. It was implemented by the accumulation of information and expertise respective of the other and in regards to their relevance. A retrospective qualitative study on apprenticeships conducted with parents and nurses during a proposal by PIFSP shows at what point parents' and nurses' educational conduits are linked to faith, thought patterns, perception and behaviour, which corresponds to a specific conception of educational medical procedures in nursing science. This is part of the paradigm structure in educational and nursing science.
Recherche en soins infirmiers, 2002
The aim of this study is to estimate parents' satisfaction following a surgical procedure on ... more The aim of this study is to estimate parents' satisfaction following a surgical procedure on their child. This includes support as well as additional information and documentation for the individual parent (cognitive and emotional), conjugal, parental and other family members. The majority of parents are satisfied with the treatment program, realizing that the treatment enables them to adapt to their new situation, that is, as parents of a newborn child suffering from health problems. This support allows them to recognize and talk about their own fears and emotions as well as those of their partner, to be reassured when facing their child's treatment, and to better understand the available resources. The results of the study show that there are significant differences in regards to the sex of the parent, the diagnosis of the child and the level of income. Mothers of children inflicted with Down's syndrome are more emotionally satisfied with the treatment than fathers, an...
Recherche en soins infirmiers, 2008
ABSTRACT
Pédagogie médicale, 2007
Contexte : Tout au long de l'épisode de soins du traumatisme craniocérébral (TCC), le type de rel... more Contexte : Tout au long de l'épisode de soins du traumatisme craniocérébral (TCC), le type de relation qui se construit entre la famille et les professionnels joue un rôle important dans l'adaptation de la personne ayant un TCC et de ses proches. Cependant, l'établissement d'un partenariat ne se fait pas sans heurts et suscite souvent de l'insatisfaction chez l'ensemble des acteurs. But : Cette étude qualitative descriptive vise à évaluer l'impact de la formation de professionnels de la santé au Programme d'intervention interdisciplinaire et familiale (PRIFAM) sur leur pratique clinique. Sujets/ matériel et méthodes : Dix-sept professionnels de la santé de différentes disciplines impliqués auprès de la clientèle ayant un TCC à différentes phases du continuum de soins en traumatologie ont été formés à l'application du PRIFAM dans le cadre d'un cours e-learning. L'expérience et les apprentissages des participants ont été documentés à l'aide d'entrevues semidirigées réalisées avant et après la formation. Résultats : La formation suscite une évolution de la pensée réflexive des participants et favorise la mise en place d'un partenariat en interdisciplinarité. La formation a un impact positif sur la communication interprofessionnelle et avec les familles, et favorise le développement d'un sentiment d'autoefficacité chez les professionnels. Conclusion : Les résultats tendent à montrer les bénéfices d'une approche réflexive centrée sur la personne et les proches pour tous les acteurs concernés. Mots clés Formation interprofessionnelle ; interdisciplinarité ; intervention familiale ; intervention centrée sur le patient ; partenariat ; pratique réflexive ; traumatisme craniocérébral.
International Journal of Nursing Studies, 1999
This study assesses the longitudinal effects of an original early intervention programme on the a... more This study assesses the longitudinal effects of an original early intervention programme on the adaptation of parents of children with a disability (Down syndrome and cleft lip/palate, i.e. DS and CLP). Variations in the effects of the programme according to the time of measurement, the type of disability and parent's gender are also examined. Globally, the results show a better adaptation among parents who participated in the intervention programme compared to those who did not participated in the programme. These parents had lower levels of parental stress, they had more positive perceptions and attitudes concerning their child's disability and their parental situation, they were more confident in their own resources and the help they could receive from others, they had lower levels of emotional distress, anxiety and depression and they perceived more emotional support from their spouse. In general, these gains were maintained throughout the year when the children were between six and 18 months of age, they were relatively similar for parents of children with DS and parents of children with CLP, as well as for mothers and fathers.
Enfances Familles Generations, Apr 3, 2012
La naissance d'un enfant est une situation transitionnelle qui suscite un stress au sein de la fa... more La naissance d'un enfant est une situation transitionnelle qui suscite un stress au sein de la famille et implique la mise en oeuvre de stratégies adaptatives qui permettront graduellement à chacun de se resituer face à lui-même et face à l'autre et de faire une place à ce nouvel être. Lorsque l'enfant présente un problème de santé, le stress ressenti par les parents est d'autant plus important. Les recherches montrent que les pères et les mères d'enfant atteint d'un problème de santé vivent différemment cette expérience. Cet article vise à faire le point sur l'état actuel des connaissances de l'expérience des pères et des mères d'enfant atteint d'une problématique de santé et à proposer de nouvelles avenues de recherche permettant une meilleure compréhension de leur expérience.
The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmières
The information conveyed to patients and families dealing with a health problem such as traumatic... more The information conveyed to patients and families dealing with a health problem such as traumatic brain injury or stroke combines with what they already know to form a new pool of knowledge. The aim of this pilot study was to describe the information needs of family caregivers, their sources of information, their strategies for gathering information, and the impact of the information on their adjustment and their relationship with health professionals. Focus groups were held with close relatives of persons who had sustained a traumatic brain injury or a stroke and with health professionals from various disciplines working with theses clienteles. The information needs of relatives concerned the impact of the person's disabilities on their everyday lives. From the professionals' point of view, the information needs of close relatives concerned the person's disabilities, their coping strategies, and their information sources. Life experience was the main source of knowledge. The results form a basis for recommendations regarding interventions in acute care and rehabilitation.
The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmières
The information conveyed to patients and families dealing with a health problem such as traumatic... more The information conveyed to patients and families dealing with a health problem such as traumatic brain injury or stroke combines with what they already know to form a new pool of knowledge. The aim of this pilot study was to describe the information needs of family caregivers, their sources of information, their strategies for gathering information, and the impact of the information on their adjustment and their relationship with health professionals. Focus groups were held with close relatives of persons who had sustained a traumatic brain injury or a stroke and with health professionals from various disciplines working with theses clienteles. The information needs of relatives concerned the impact of the person's disabilities on their everyday lives. From the professionals' point of view, the information needs of close relatives concerned the person's disabilities, their coping strategies, and their information sources. Life experience was the main source of knowledge. The results form a basis for recommendations regarding interventions in acute care and rehabilitation.
L’ADÉQUATION ENTRE LES BESOINS VÉCUS PAR LES PROCHES DE PERSONNES AYANT UN TRAUMATISME CRÂNIEN ET... more L’ADÉQUATION ENTRE LES BESOINS VÉCUS PAR LES PROCHES DE PERSONNES AYANT UN TRAUMATISME CRÂNIEN ET LES SERVICES OFFERTS PAR LE CONTINUUM DE SOINS ~ Sommaire exécutif ~ SOUS LA DIRECTION D’HÉLÈNE LEFEBVRE, PH.D. Programme de recherche en réadaptation et intégration sociale en traumatologie DÉCEMBRE 2007 MSSS REPAR SAAQ
Recherche en soins infirmiers, 2009
Recherche en soins infirmiers, 2009
This qualitative research shows differences and similarities between mother and father's expe... more This qualitative research shows differences and similarities between mother and father's experience of incertitude in the process of the announcement of the cerebral palsy and the adaptation strategies used. Interviews have been conducted with 17 parents (10 mothers and 7 fathers). Results of the research reveals three main triggering factors of incertitude: incertitude in regards with the survival of the child, the unpredictability of the evolution of the child and the ambiguity of the information regarding the cerebral palsy Triggering factors of the incertitude are the same for both parents but their reactions towards the these factors and their way of coping with the situation vary.
Santé mentale au Québec, 1998
Journal of child health care : for professionals working with children in the hospital and community, 2007
The birth of a child is a transitional situation that triggers stress in the family and each pers... more The birth of a child is a transitional situation that triggers stress in the family and each person has to use adjustment strategies allowing them to reposition gradually in relation to themselves and other members of the family, and to make space for the new arrival. When the child has a health problem, the stress on the parents is correspondingly greater. Research shows that fathers and mothers of a child with a health problem experience this ordeal differently. This article reports on the current state of knowledge about the experience of fathers and mothers of a child with a health problem, and suggests new directions for research to provide a fuller understanding of their experience.
The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmières, 2008
The information conveyed to patients and families dealing with a health problem such as traumatic... more The information conveyed to patients and families dealing with a health problem such as traumatic brain injury or stroke combines with what they already know to form a new pool of knowledge. The aim of this pilot study was to describe the information needs of family caregivers, their sources of information, their strategies for gathering information, and the impact of the information on their adjustment and their relationship with health professionals. Focus groups were held with close relatives of persons who had sustained a traumatic brain injury or a stroke and with health professionals from various disciplines working with theses clienteles. The information needs of relatives concerned the impact of the person's disabilities on their everyday lives. From the professionals' point of view, the information needs of close relatives concerned the person's disabilities, their coping strategies, and their information sources. Life experience was the main source of knowledge...
La revue internationale de l'éducation familiale, 2008
Recherche en soins infirmiers, 2008
This preliminary study aimed at documenting the needs of families having a child with a disabilit... more This preliminary study aimed at documenting the needs of families having a child with a disability concerning information, from the point of view of both parents and professionals involved with them. Three discussion groups were carried out: two with parents of children with Down's syndrome or cerebral palsy, and another group with health professionals involved with them. The results show that the parents are searching for information concerning the initial health problem, the available health care and other resources that might be of help. Sources of information for parents include the health care professionals, other parents within a similar situation, the media and the Internet. The obtained information influences the parents' adjustment over their child's health situation and also impacts the relationships they have with the health care team. Some recommendations regarding intervention are proposed.
Enfances, Familles, Générations, 2005
La naissance d'un enfant est une situation transitionnelle qui suscite un stress au sein de la fa... more La naissance d'un enfant est une situation transitionnelle qui suscite un stress au sein de la famille et implique la mise en oeuvre de stratégies adaptatives qui permettront graduellement à chacun de se resituer face à lui-même et face à l'autre et de faire une place à ce nouvel être. Lorsque l'enfant présente un problème de santé, le stress ressenti par les parents est d'autant plus important. Les recherches montrent que les pères et les mères d'enfant atteint d'un problème de santé vivent différemment cette expérience. Cet article vise à faire le point sur l'état actuel des connaissances de l'expérience des pères et des mères d'enfant atteint d'une problématique de santé et à proposer de nouvelles avenues de recherche permettant une meilleure compréhension de leur expérience.
Recherche en soins infirmiers, 2002
The Program of Interdisciplinary Family Surgical Procedures (PIFSP), is oriented towards the deve... more The Program of Interdisciplinary Family Surgical Procedures (PIFSP), is oriented towards the development of partnerships between families and nurses in order to respond to the specific needs of families with children suffering from health problems. It was implemented by the accumulation of information and expertise respective of the other and in regards to their relevance. A retrospective qualitative study on apprenticeships conducted with parents and nurses during a proposal by PIFSP shows at what point parents' and nurses' educational conduits are linked to faith, thought patterns, perception and behaviour, which corresponds to a specific conception of educational medical procedures in nursing science. This is part of the paradigm structure in educational and nursing science.
Recherche en soins infirmiers, 2002
The aim of this study is to estimate parents' satisfaction following a surgical procedure on ... more The aim of this study is to estimate parents' satisfaction following a surgical procedure on their child. This includes support as well as additional information and documentation for the individual parent (cognitive and emotional), conjugal, parental and other family members. The majority of parents are satisfied with the treatment program, realizing that the treatment enables them to adapt to their new situation, that is, as parents of a newborn child suffering from health problems. This support allows them to recognize and talk about their own fears and emotions as well as those of their partner, to be reassured when facing their child's treatment, and to better understand the available resources. The results of the study show that there are significant differences in regards to the sex of the parent, the diagnosis of the child and the level of income. Mothers of children inflicted with Down's syndrome are more emotionally satisfied with the treatment than fathers, an...
Recherche en soins infirmiers, 2008
ABSTRACT
Pédagogie médicale, 2007
Contexte : Tout au long de l'épisode de soins du traumatisme craniocérébral (TCC), le type de rel... more Contexte : Tout au long de l'épisode de soins du traumatisme craniocérébral (TCC), le type de relation qui se construit entre la famille et les professionnels joue un rôle important dans l'adaptation de la personne ayant un TCC et de ses proches. Cependant, l'établissement d'un partenariat ne se fait pas sans heurts et suscite souvent de l'insatisfaction chez l'ensemble des acteurs. But : Cette étude qualitative descriptive vise à évaluer l'impact de la formation de professionnels de la santé au Programme d'intervention interdisciplinaire et familiale (PRIFAM) sur leur pratique clinique. Sujets/ matériel et méthodes : Dix-sept professionnels de la santé de différentes disciplines impliqués auprès de la clientèle ayant un TCC à différentes phases du continuum de soins en traumatologie ont été formés à l'application du PRIFAM dans le cadre d'un cours e-learning. L'expérience et les apprentissages des participants ont été documentés à l'aide d'entrevues semidirigées réalisées avant et après la formation. Résultats : La formation suscite une évolution de la pensée réflexive des participants et favorise la mise en place d'un partenariat en interdisciplinarité. La formation a un impact positif sur la communication interprofessionnelle et avec les familles, et favorise le développement d'un sentiment d'autoefficacité chez les professionnels. Conclusion : Les résultats tendent à montrer les bénéfices d'une approche réflexive centrée sur la personne et les proches pour tous les acteurs concernés. Mots clés Formation interprofessionnelle ; interdisciplinarité ; intervention familiale ; intervention centrée sur le patient ; partenariat ; pratique réflexive ; traumatisme craniocérébral.
International Journal of Nursing Studies, 1999
This study assesses the longitudinal effects of an original early intervention programme on the a... more This study assesses the longitudinal effects of an original early intervention programme on the adaptation of parents of children with a disability (Down syndrome and cleft lip/palate, i.e. DS and CLP). Variations in the effects of the programme according to the time of measurement, the type of disability and parent's gender are also examined. Globally, the results show a better adaptation among parents who participated in the intervention programme compared to those who did not participated in the programme. These parents had lower levels of parental stress, they had more positive perceptions and attitudes concerning their child's disability and their parental situation, they were more confident in their own resources and the help they could receive from others, they had lower levels of emotional distress, anxiety and depression and they perceived more emotional support from their spouse. In general, these gains were maintained throughout the year when the children were between six and 18 months of age, they were relatively similar for parents of children with DS and parents of children with CLP, as well as for mothers and fathers.