Lauren Terhorst - Academia.edu (original) (raw)

Papers by Lauren Terhorst

Disability and Rehabilitation, 2018

Purpose: Develop and establish the content validity of the Behavioral Assessment Screening Tool (... more Purpose: Develop and establish the content validity of the Behavioral Assessment Screening Tool (BAST β), a self-reported measure of behavioral and emotional symptoms after traumatic brain injury. Methods: This was an assessment development study, including two focus groups of individuals with traumatic brain injury (n=11) and their family members (n=10) and an expert panel evaluation of content validity by experts in traumatic brain injury rehabilitation (n=7). We developed and assessed the Content Validity Index of the BAST β .

Supplemental material, SOD_supplemental_online_document for A New Measure of Research Participant... more Supplemental material, SOD_supplemental_online_document for A New Measure of Research Participant Burden by Jennifer H. Lingler, Karen L. Schmidt, Amanda L. Gentry, Lu Hu and Lauren A. Terhorst in Journal of Empirical Research on Human Research Ethics

Journal of Head Trauma Rehabilitation

OBJECTIVES To determine the covariance of heart rate variability (HRV) and self-reported neurobeh... more OBJECTIVES To determine the covariance of heart rate variability (HRV) and self-reported neurobehavioral symptoms after traumatic brain injury (TBI) collected using mobile health (mHealth) technology. SETTING Community. PARTICIPANTS Adults with lifetime history of TBI (n = 52) and adults with no history of brain injury (n = 12). DESIGN Two-week prospective ecological momentary assessment study. MAIN MEASURES Behavioral Assessment Screening Tool (BASTmHealth) subscales (Negative Affect, Fatigue, Executive Dysfunction, Substance Abuse, and Impulsivity) measured frequency of neurobehavioral symptoms via a RedCap link sent by text message. Resting HRV (root mean square of successive R-R interval differences) was measured for 5 minutes every morning upon waking using a commercially available heart rate monitor (Polar H10, paired with Elite HRV app). RESULTS Data for n = 48 (n = 38 with TBI; n = 10 without TBI) participants were included in covariance analyses, with average cross-correlation coefficients (0-day lag) varying greatly across participants. We found that the presence and direction of the relationship between HRV and neurobehavioral symptoms varied from person to person. Cross-correlation coefficients r ≤ -0.30, observed in 27.1% to 29.2% of participants for Negative Affect, Executive Dysfunction, and Fatigue, 22.9% of participants for Impulsivity, and only 10.4% of participants for Substance Abuse, supported our hypothesis that lower HRV would covary with more frequent symptoms. However, we also found 2.0% to 20.8% of participants had positive cross-correlations (r ≥ 0.30) across all subscales, indicating that higher HRV may sometimes correlate with more neurobehavioral symptoms, and 54.2% to 87.5% had no significant cross-correlations. CONCLUSIONS It is generally feasible for community-dwelling adults with and without TBI to use a commercially available wearable device to capture daily HRV measures and to complete a short, electronic self-reported neurobehavioral symptom measure for a 2-week period. The covariance of HRV and neurobehavioral symptoms over time suggests that HRV could be used as a relevant physiological biomarker of neurobehavioral symptoms, though how it would be interpreted and used in practice would vary on a person-by-person and symptom domain basis and requires further study.

Journal of Empirical Research on Human Research Ethics, 2014

Protecting human participants requires consideration and minimization of the burdens imposed by r... more Protecting human participants requires consideration and minimization of the burdens imposed by research. Effective conceptualizations of research burden should include appraisals of indirect burdens depending on research duration, intensity, and invasiveness. Introducing the concept of perceived research burden, we developed, tested, and validated a psychometric instrument for measuring burden, using vignettes of research studies presented to research volunteers and family members. We found high internal consistency of the Perceived Research Burden Assessment (PeRBA), across research scenarios (Cronbach’s alpha .87 – .96). We demonstrated convergent validity by correlating research burden with likelihood for enrolling in a research study. Because perceived research burden was largely unrelated to perceived social support, we interpreted PeRBA as demonstrating discriminant validity.

Journal of Psychosocial Rehabilitation and Mental Health

Chronic Illness

Objective Instrumental activities of daily living (IADL) are important for managing multiple chro... more Objective Instrumental activities of daily living (IADL) are important for managing multiple chronic conditions (MCC) and maintaining independence while aging. Using data from the National Health and Aging Trends Study (NHATS), we answered the question: are there differences in ability and performance of IADL among groups of older adults with 0–1 (no MCC), 2–4 (low MCC), and 5+ chronic conditions (multisystem morbidity: MM)? Methods Cross-sectional study using Poisson regression and incidence rate ratios. Participants were 6,019 community-dwelling older adults who regularly take medications. We derived composite variables for ability and performance of IADL; MCC groups were based on count of 11 chronic conditions. Results Older adults with MM had lower IADL count for ability (IRR = .81) and performance (IRR = .77), and MM group significantly predicted both ability and performance of IADL (p

International Journal of Environmental Research and Public Health

The purpose of our scoping review was to describe the current use of mHealth technology for long-... more The purpose of our scoping review was to describe the current use of mHealth technology for long-term assessment of patient-reported outcomes in community-dwelling individuals with acquired brain injury (ABI). Following PRISMA guidelines, we conducted a scoping review of literature meeting these criteria: (1) civilians or military veterans, all ages; (2) self-reported or caregiver-reported outcomes assessed via mobile device in the community (not exclusively clinic/hospital); (3) published in English; (4) published in 2015–2019. We searched Ovid MEDLINE(R) < 1946 to 16 August 2019, MEDLINE InProcess, EPub, Embase, and PsycINFO databases for articles. Thirteen manuscripts representing 12 distinct studies were organized by type of ABI [traumatic brain injury (TBI) and stroke] to extract outcomes, mHealth technology used, design, and inclusion of ecological momentary assessment (EMA). Outcomes included post-concussive, depressive, and affective symptoms, fatigue, daily activities, s...

British Journal of Occupational Therapy

Introduction The purpose of this study was to examine parental use of evidence-based mealtime str... more Introduction The purpose of this study was to examine parental use of evidence-based mealtime strategies, child mealtime behavior, and parental identification of mealtime problems over time as parents were coached to implement the Promoting Routines of Exploration and Play during Mealtime intervention as part of a pilot study. Method This repeated measures study included data collection during three phases: (a) pre-intervention; (b) intervention; (c) post-intervention. Primary outcome measures included a parental strategy use checklist (parental strategy use) and the Behavioral Pediatric Feeding Assessment (problematic child behavior and parental identification of mealtime problems). Linear mixed models were fitted to assess change over time. Results We observed significant improvements in parental strategy use ( p

BMC health services research, Jan 20, 2016

Preventive services offered to older Americans are currently under-utilized despite considerable ... more Preventive services offered to older Americans are currently under-utilized despite considerable evidence regarding their health and economic benefits. Individuals with low self-efficacy in accessing these services need to be identified and provided self-efficacy enhancing interventions. Scales measuring self-efficacy in the management of chronic diseases exist, but do not cover the broad spectrum of preventive services and behaviors that can improve the health of older adults, particularly older women who are vulnerable to poorer health and lesser utilization of preventive services. This study aimed to evaluate the psychometric properties of a new preventive services use self-efficacy scale, by measuring its internal consistency reliability, assessing internal construct validity by exploring factor structure, and examining differences in self-efficacy scores according to participant characteristics. The Preventive Services Use Self-Efficacy (PRESS) Scale was developed by an expert ...

Telematics and Informatics, 2010

While it is generally accepted that the mobile cell phone has become ubiquitous within society fo... more While it is generally accepted that the mobile cell phone has become ubiquitous within society for communicating, the actual use of the utilities on a phone have not been reported. Understanding how communication patterns are changing in society as a result of the mobile cell phone ...

Research in Nursing & Health, 2010

Psycho-Oncology, 2010

Objective-The purpose of this analysis was to provide psychometric information related to the Bre... more Objective-The purpose of this analysis was to provide psychometric information related to the Breast Cancer Prevention Trial (BCPT) Symptom Checklist in women with breast cancer prior to the initiation of adjuvant therapy and 6 months post-initiation of therapy. Methods-This investigation was a secondary analysis of baseline data from the Anastrozole Use in Menopausal Women (AIM) Study (R01 CA 107408). The data used in this study were obtained from women diagnosed with Stage I, II, and IIIa breast cancer and who received adjuvant therapy that included chemotherapy alone, anastrozole alone, and chemotherapy plus anastrozole. Data were examined before adjuvant therapy (n = 278), and at 6 months post-adjuvant therapy (n = 195). Construct validity was examined through exploratory and confirmatory factor analysis (CFA), and the internal consistency of each resulting subscale was computed. Discriminant validity evidence was obtained by correlating BCPT subscales with subscales from the MOS SF-36. Results-A seven-factor structure was extracted from the 42 items at baseline; an eight-factor structure was found using 6-month data. CFA was performed to compare the baseline and 6-month models as well as an eight-factor model recommended by Cella et al. Findings revealed that the two eight-factor models best represented the data. Low negative correlations with the subscales of the MOS SF-36 provided discriminant validity evidence. Conclusion-This analysis provides evidence for the reliability, discriminant validity, and factor structure of the BCPT Symptom Checklist. Further testing of this instrument is needed to confirm the factor structure of this measure.

Maturitas, 1996

Objective: to develop a condition-specific quality of life questionnaire for the menopause with d... more Objective: to develop a condition-specific quality of life questionnaire for the menopause with documented psychometric properties, based on women's experience. Methods: Subjects: Women 2-7 years post-menopause with a uterus and not currently on hormone replacement therapy. Questionnaire development: A list of 106 menopause symptoms was reduced using the importance score method. Replies to the item-reduction questionnaire from 88 women resulted in a 30-item questionnaire with four domains, vasomotor, physical, psychosocial and sexual, and a global quality of life question. Psychometric properties: A separate sample of 20 women was used to determine face validity, and a panel of experts was used to confirm content validity. Reliability, responsiveness and construct validity were determined within the context of a randomized controlled trial. Construct validation involved comparison with the Neugarten and Kraines' Somatic, Psychosomatic and Psychologic subscales, the reported intensity of hot flushes, the General Well-Being Schedule, Channon and Ballinger's Vaginal Symptoms Score and Libido Index, and the Life Satisfaction Index. Results: The face validity score was 4.7 out of a possible 5. Content validity was confirmed. Test-retest reliability measures, using intraclass correlation coefficients were 0.81, 0.79, 0.70 and 0.55 for the physical, psychosocial, sexual domains and the quality of life question. The intraclass correlation coefficient for the vasomotor domain was 0.37 but there is evidence of systematic change. Discriminative construct validity showed correlation coefficients of 0.69 for the physical domain, 0.66 and 0.40 for the vasomotor domain, 0.65 and -0.71 for the psychosocial domain, 0.48 and 0.38 for the sexual domain, and 0.57 for the quality of life question. Evaluative construct validity showed correlation coefficients of 0.60 for the physical domain, 0.28 fgr the vasomotor domain, 0.55 and -0.54 for the psychosocial domain, 0.54 and 0.32 for the sexual domain, and 0.12 for the quality of life question. Responsiveness scores ranged from 0.78 to 1.34. Conclusions: The MENQOL (Menopause-Specific Quality of Life) questionnaire is a self-administered instrument which functions well in differentiating between women according to their quality of life and in measuring changes in their quality of life.

Substance Abuse, 2013

This article may be used for research, teaching, and private study purposes. Any substantial or s... more This article may be used for research, teaching, and private study purposes. Any substantial or systematic reproduction, redistribution, reselling, loan, sub-licensing, systematic supply, or distribution in any form to anyone is expressly forbidden. The publisher does not give any warranty express or implied or make any representation that the contents will be complete or accurate or up to date. The accuracy of any instructions, formulae, and drug doses should be independently verified with primary sources. The publisher shall not be liable for any loss, actions, claims, proceedings, demand, or costs or damages whatsoever or howsoever caused arising directly or indirectly in connection with or arising out of the use of this material.

Brain Injury, 2020

Objective: Develop and validate the Behavioral Assessment Screening Tool for Adolescents with bra... more Objective: Develop and validate the Behavioral Assessment Screening Tool for Adolescents with brain injury. Setting: Concussion clinics Participants: Adolescents with mild traumatic brain injury 3 months after initial concussion clinic visit (n = 138). Design: Assessment development and validation (cross-sectional cohort) study Main Measures: Behavioral Assessment Screening Tool – Adolescent Results: Expert panel members added or modified items specific to adolescents to the original Behavioral Assessment Screening Tool for adults. The Content Validity Index was 97.2%. Exploratory factor analysis of the Behavioral Assessment Screening Tool – Adolescent reduced the initial 70 items to 46 primary items with a 3-factor solution: Negative Affect & Fatigue, Executive & Social Function, and Risk Behaviors. Internal consistency reliabilities ranged from good to excellent for all factors (Cronbach’s α =.80-.95). We retained four secondary maladaptive coping items (from an initial six), thou...

Topics in Stroke Rehabilitation

ABSTRACT Objective: To describe patterns of sedentary behavior over 6 weeks among ambulatory peop... more ABSTRACT Objective: To describe patterns of sedentary behavior over 6 weeks among ambulatory people with subacute and chronic stroke. Design: Observational longitudinal study with assessments at baseline (T0) and week 6 (T1). Methods: Community-dwelling people with stroke (n = 39) pooled from two studies who were ≥18 years of age were assessed for sedentary behavior at 2 timepoints (T0, T1). Sedentary behavior was measured with the activPAL micro3 following a 7-day wear protocol to obtain mean daily: total sitting time, sitting time accumulated in bouts ≥30 minutes, number of sit-to-stand transitions, and fragmentation index (sit-to-stand transitions/total sitting hours). Paired samples t-tests were used to calculate mean group differences in sedentary behavior metrics between T0 and T1 (α =.05). Cohen’s d was calculated to describe the magnitude of within-person change between T0 and T1. Results: There were no statistically significant within-person differences between T0 and T1 on mean daily sitting time (Cohen’s d= −0.21, p=.19), sitting time accumulated in bouts ≥30 minutes (d= −0.27, p=.11), number of sit-to-stand transitions (d= −0.02, p=.53), or the fragmentation index (d= −0.11, p=.92). Conclusions: Sedentary behavior metrics were stable for over 6 weeks. The number of sit-to-stand transitions per day and the fragmentation index appeared to be the most stable indicators over 6 weeks. Future research should confirm these findings and identify correlates of sedentary behavior among people with stroke.

American Journal of Occupational Therapy

Date Presented 03/28/20 This presentation will characterize our experiences integrating stakehold... more Date Presented 03/28/20 This presentation will characterize our experiences integrating stakeholder engagement into a multisite pragmatic clinical trial focused on optimizing care for nursing-home residents with dementia. We will discuss our methods for building OT capacity to conduct research that includes the voices of stakeholders. Primary Author and Speaker: Jenny Martinez Contributing Authors: Catherine Piersol, Lauren Terhorst, Sherrie Holloway, Carin Wong, Felicia Chew, Natalie Leland

Archives of Physical Medicine and Rehabilitation

European Journal of Paediatric Neurology

OBJECTIVES Sleep health in rare disease is often overlooked due to the complex nature of the dise... more OBJECTIVES Sleep health in rare disease is often overlooked due to the complex nature of the disease. For males with Duchenne muscular dystrophy, sleep assessment is typically focused on pulmonary function and identification of sleep disordered breathing. Unfortunately for young boys with Duchenne muscular dystrophy, sleep assessment is often neglected, resulting in a dearth of knowledge on sleep health in this population. This study describes sleep quantity and quality in both younger (4-9 years) and older (10-17 years) males with Duchenne muscular dystrophy (n = 19) and compares these characteristics with sleep characteristics of unaffected peers (n = 17). METHODS This study was a longitudinal, observational study. Sleep measures were collected using the parent-proxy Children's Sleep Habits Questionnaire-Abbreviated version and objective sleep measures from actigraphy (sleep efficiency, awakenings, and awakening duration) over 30 days for all participants. Means and standard deviations were examined, and effect sizes were computed to quantify the magnitude of difference between the Duchenne muscular dystrophy and unaffected groups. RESULTS Overall, boys with Duchenne muscular dystrophy were found to experience worse sleep than their unaffected peers as measured by parent report and actigraphy. Effect sizes of both measures demonstrated moderate to large magnitudes of difference in many of the sleep variables. Parents of boys with Duchenne muscular dystrophy reported higher scores (indicating worse sleep) in all subsections and total score of the Children's Sleep Habits Questionnaire - Abbreviated version. Actigraphy data indicated that the Duchenne muscular dystrophy group had lower percent sleep efficiency, more night awakenings and longer duration of night awakenings than their unaffected peers. CONCLUSION Our findings offer a novel look into sleep in young boys with Duchenne muscular dystrophy. Both parent-report and actigraphy data indicate poor sleep health in this population compared with age-matched unaffected peers. Actigraphy was found to align with parent-report of sleep in this population, supporting the use of these two different ways to measure sleep in Duchenne muscular dystrophy. Results from this study should encourage clinicians and researchers alike to further explore sleep and its impact on disease in young boys with Duchenne muscular dystrophy.

American Journal of Occupational Therapy

Date Presented 04/05/19 Identifying factors early in the rehabilitation process that predict the ... more Date Presented 04/05/19 Identifying factors early in the rehabilitation process that predict the inability to return home independently after stroke may better inform treatment decisions. Therefore, we performed a secondary analysis to examine demographic, medical, and cognitive factors that might predict nonresponse during inpatient rehabilitation. Using a backward stepwise logistic regression, we found that the variables most strongly correlated with dependence were cognitive impairment and motor impairment. Primary Author and Speaker: Sarah Walker Contributing Authors: Elizabeth Skidmore, Lauren Terhorst

Disability and Rehabilitation, 2018

Purpose: Develop and establish the content validity of the Behavioral Assessment Screening Tool (... more Purpose: Develop and establish the content validity of the Behavioral Assessment Screening Tool (BAST β), a self-reported measure of behavioral and emotional symptoms after traumatic brain injury. Methods: This was an assessment development study, including two focus groups of individuals with traumatic brain injury (n=11) and their family members (n=10) and an expert panel evaluation of content validity by experts in traumatic brain injury rehabilitation (n=7). We developed and assessed the Content Validity Index of the BAST β .

Supplemental material, SOD_supplemental_online_document for A New Measure of Research Participant... more Supplemental material, SOD_supplemental_online_document for A New Measure of Research Participant Burden by Jennifer H. Lingler, Karen L. Schmidt, Amanda L. Gentry, Lu Hu and Lauren A. Terhorst in Journal of Empirical Research on Human Research Ethics

Journal of Head Trauma Rehabilitation

OBJECTIVES To determine the covariance of heart rate variability (HRV) and self-reported neurobeh... more OBJECTIVES To determine the covariance of heart rate variability (HRV) and self-reported neurobehavioral symptoms after traumatic brain injury (TBI) collected using mobile health (mHealth) technology. SETTING Community. PARTICIPANTS Adults with lifetime history of TBI (n = 52) and adults with no history of brain injury (n = 12). DESIGN Two-week prospective ecological momentary assessment study. MAIN MEASURES Behavioral Assessment Screening Tool (BASTmHealth) subscales (Negative Affect, Fatigue, Executive Dysfunction, Substance Abuse, and Impulsivity) measured frequency of neurobehavioral symptoms via a RedCap link sent by text message. Resting HRV (root mean square of successive R-R interval differences) was measured for 5 minutes every morning upon waking using a commercially available heart rate monitor (Polar H10, paired with Elite HRV app). RESULTS Data for n = 48 (n = 38 with TBI; n = 10 without TBI) participants were included in covariance analyses, with average cross-correlation coefficients (0-day lag) varying greatly across participants. We found that the presence and direction of the relationship between HRV and neurobehavioral symptoms varied from person to person. Cross-correlation coefficients r ≤ -0.30, observed in 27.1% to 29.2% of participants for Negative Affect, Executive Dysfunction, and Fatigue, 22.9% of participants for Impulsivity, and only 10.4% of participants for Substance Abuse, supported our hypothesis that lower HRV would covary with more frequent symptoms. However, we also found 2.0% to 20.8% of participants had positive cross-correlations (r ≥ 0.30) across all subscales, indicating that higher HRV may sometimes correlate with more neurobehavioral symptoms, and 54.2% to 87.5% had no significant cross-correlations. CONCLUSIONS It is generally feasible for community-dwelling adults with and without TBI to use a commercially available wearable device to capture daily HRV measures and to complete a short, electronic self-reported neurobehavioral symptom measure for a 2-week period. The covariance of HRV and neurobehavioral symptoms over time suggests that HRV could be used as a relevant physiological biomarker of neurobehavioral symptoms, though how it would be interpreted and used in practice would vary on a person-by-person and symptom domain basis and requires further study.

Journal of Empirical Research on Human Research Ethics, 2014

Protecting human participants requires consideration and minimization of the burdens imposed by r... more Protecting human participants requires consideration and minimization of the burdens imposed by research. Effective conceptualizations of research burden should include appraisals of indirect burdens depending on research duration, intensity, and invasiveness. Introducing the concept of perceived research burden, we developed, tested, and validated a psychometric instrument for measuring burden, using vignettes of research studies presented to research volunteers and family members. We found high internal consistency of the Perceived Research Burden Assessment (PeRBA), across research scenarios (Cronbach’s alpha .87 – .96). We demonstrated convergent validity by correlating research burden with likelihood for enrolling in a research study. Because perceived research burden was largely unrelated to perceived social support, we interpreted PeRBA as demonstrating discriminant validity.

Journal of Psychosocial Rehabilitation and Mental Health

Chronic Illness

Objective Instrumental activities of daily living (IADL) are important for managing multiple chro... more Objective Instrumental activities of daily living (IADL) are important for managing multiple chronic conditions (MCC) and maintaining independence while aging. Using data from the National Health and Aging Trends Study (NHATS), we answered the question: are there differences in ability and performance of IADL among groups of older adults with 0–1 (no MCC), 2–4 (low MCC), and 5+ chronic conditions (multisystem morbidity: MM)? Methods Cross-sectional study using Poisson regression and incidence rate ratios. Participants were 6,019 community-dwelling older adults who regularly take medications. We derived composite variables for ability and performance of IADL; MCC groups were based on count of 11 chronic conditions. Results Older adults with MM had lower IADL count for ability (IRR = .81) and performance (IRR = .77), and MM group significantly predicted both ability and performance of IADL (p

International Journal of Environmental Research and Public Health

The purpose of our scoping review was to describe the current use of mHealth technology for long-... more The purpose of our scoping review was to describe the current use of mHealth technology for long-term assessment of patient-reported outcomes in community-dwelling individuals with acquired brain injury (ABI). Following PRISMA guidelines, we conducted a scoping review of literature meeting these criteria: (1) civilians or military veterans, all ages; (2) self-reported or caregiver-reported outcomes assessed via mobile device in the community (not exclusively clinic/hospital); (3) published in English; (4) published in 2015–2019. We searched Ovid MEDLINE(R) < 1946 to 16 August 2019, MEDLINE InProcess, EPub, Embase, and PsycINFO databases for articles. Thirteen manuscripts representing 12 distinct studies were organized by type of ABI [traumatic brain injury (TBI) and stroke] to extract outcomes, mHealth technology used, design, and inclusion of ecological momentary assessment (EMA). Outcomes included post-concussive, depressive, and affective symptoms, fatigue, daily activities, s...

British Journal of Occupational Therapy

Introduction The purpose of this study was to examine parental use of evidence-based mealtime str... more Introduction The purpose of this study was to examine parental use of evidence-based mealtime strategies, child mealtime behavior, and parental identification of mealtime problems over time as parents were coached to implement the Promoting Routines of Exploration and Play during Mealtime intervention as part of a pilot study. Method This repeated measures study included data collection during three phases: (a) pre-intervention; (b) intervention; (c) post-intervention. Primary outcome measures included a parental strategy use checklist (parental strategy use) and the Behavioral Pediatric Feeding Assessment (problematic child behavior and parental identification of mealtime problems). Linear mixed models were fitted to assess change over time. Results We observed significant improvements in parental strategy use ( p

BMC health services research, Jan 20, 2016

Preventive services offered to older Americans are currently under-utilized despite considerable ... more Preventive services offered to older Americans are currently under-utilized despite considerable evidence regarding their health and economic benefits. Individuals with low self-efficacy in accessing these services need to be identified and provided self-efficacy enhancing interventions. Scales measuring self-efficacy in the management of chronic diseases exist, but do not cover the broad spectrum of preventive services and behaviors that can improve the health of older adults, particularly older women who are vulnerable to poorer health and lesser utilization of preventive services. This study aimed to evaluate the psychometric properties of a new preventive services use self-efficacy scale, by measuring its internal consistency reliability, assessing internal construct validity by exploring factor structure, and examining differences in self-efficacy scores according to participant characteristics. The Preventive Services Use Self-Efficacy (PRESS) Scale was developed by an expert ...

Telematics and Informatics, 2010

While it is generally accepted that the mobile cell phone has become ubiquitous within society fo... more While it is generally accepted that the mobile cell phone has become ubiquitous within society for communicating, the actual use of the utilities on a phone have not been reported. Understanding how communication patterns are changing in society as a result of the mobile cell phone ...

Research in Nursing & Health, 2010

Psycho-Oncology, 2010

Objective-The purpose of this analysis was to provide psychometric information related to the Bre... more Objective-The purpose of this analysis was to provide psychometric information related to the Breast Cancer Prevention Trial (BCPT) Symptom Checklist in women with breast cancer prior to the initiation of adjuvant therapy and 6 months post-initiation of therapy. Methods-This investigation was a secondary analysis of baseline data from the Anastrozole Use in Menopausal Women (AIM) Study (R01 CA 107408). The data used in this study were obtained from women diagnosed with Stage I, II, and IIIa breast cancer and who received adjuvant therapy that included chemotherapy alone, anastrozole alone, and chemotherapy plus anastrozole. Data were examined before adjuvant therapy (n = 278), and at 6 months post-adjuvant therapy (n = 195). Construct validity was examined through exploratory and confirmatory factor analysis (CFA), and the internal consistency of each resulting subscale was computed. Discriminant validity evidence was obtained by correlating BCPT subscales with subscales from the MOS SF-36. Results-A seven-factor structure was extracted from the 42 items at baseline; an eight-factor structure was found using 6-month data. CFA was performed to compare the baseline and 6-month models as well as an eight-factor model recommended by Cella et al. Findings revealed that the two eight-factor models best represented the data. Low negative correlations with the subscales of the MOS SF-36 provided discriminant validity evidence. Conclusion-This analysis provides evidence for the reliability, discriminant validity, and factor structure of the BCPT Symptom Checklist. Further testing of this instrument is needed to confirm the factor structure of this measure.

Maturitas, 1996

Objective: to develop a condition-specific quality of life questionnaire for the menopause with d... more Objective: to develop a condition-specific quality of life questionnaire for the menopause with documented psychometric properties, based on women's experience. Methods: Subjects: Women 2-7 years post-menopause with a uterus and not currently on hormone replacement therapy. Questionnaire development: A list of 106 menopause symptoms was reduced using the importance score method. Replies to the item-reduction questionnaire from 88 women resulted in a 30-item questionnaire with four domains, vasomotor, physical, psychosocial and sexual, and a global quality of life question. Psychometric properties: A separate sample of 20 women was used to determine face validity, and a panel of experts was used to confirm content validity. Reliability, responsiveness and construct validity were determined within the context of a randomized controlled trial. Construct validation involved comparison with the Neugarten and Kraines' Somatic, Psychosomatic and Psychologic subscales, the reported intensity of hot flushes, the General Well-Being Schedule, Channon and Ballinger's Vaginal Symptoms Score and Libido Index, and the Life Satisfaction Index. Results: The face validity score was 4.7 out of a possible 5. Content validity was confirmed. Test-retest reliability measures, using intraclass correlation coefficients were 0.81, 0.79, 0.70 and 0.55 for the physical, psychosocial, sexual domains and the quality of life question. The intraclass correlation coefficient for the vasomotor domain was 0.37 but there is evidence of systematic change. Discriminative construct validity showed correlation coefficients of 0.69 for the physical domain, 0.66 and 0.40 for the vasomotor domain, 0.65 and -0.71 for the psychosocial domain, 0.48 and 0.38 for the sexual domain, and 0.57 for the quality of life question. Evaluative construct validity showed correlation coefficients of 0.60 for the physical domain, 0.28 fgr the vasomotor domain, 0.55 and -0.54 for the psychosocial domain, 0.54 and 0.32 for the sexual domain, and 0.12 for the quality of life question. Responsiveness scores ranged from 0.78 to 1.34. Conclusions: The MENQOL (Menopause-Specific Quality of Life) questionnaire is a self-administered instrument which functions well in differentiating between women according to their quality of life and in measuring changes in their quality of life.

Substance Abuse, 2013

This article may be used for research, teaching, and private study purposes. Any substantial or s... more This article may be used for research, teaching, and private study purposes. Any substantial or systematic reproduction, redistribution, reselling, loan, sub-licensing, systematic supply, or distribution in any form to anyone is expressly forbidden. The publisher does not give any warranty express or implied or make any representation that the contents will be complete or accurate or up to date. The accuracy of any instructions, formulae, and drug doses should be independently verified with primary sources. The publisher shall not be liable for any loss, actions, claims, proceedings, demand, or costs or damages whatsoever or howsoever caused arising directly or indirectly in connection with or arising out of the use of this material.

Brain Injury, 2020

Objective: Develop and validate the Behavioral Assessment Screening Tool for Adolescents with bra... more Objective: Develop and validate the Behavioral Assessment Screening Tool for Adolescents with brain injury. Setting: Concussion clinics Participants: Adolescents with mild traumatic brain injury 3 months after initial concussion clinic visit (n = 138). Design: Assessment development and validation (cross-sectional cohort) study Main Measures: Behavioral Assessment Screening Tool – Adolescent Results: Expert panel members added or modified items specific to adolescents to the original Behavioral Assessment Screening Tool for adults. The Content Validity Index was 97.2%. Exploratory factor analysis of the Behavioral Assessment Screening Tool – Adolescent reduced the initial 70 items to 46 primary items with a 3-factor solution: Negative Affect & Fatigue, Executive & Social Function, and Risk Behaviors. Internal consistency reliabilities ranged from good to excellent for all factors (Cronbach’s α =.80-.95). We retained four secondary maladaptive coping items (from an initial six), thou...

Topics in Stroke Rehabilitation

ABSTRACT Objective: To describe patterns of sedentary behavior over 6 weeks among ambulatory peop... more ABSTRACT Objective: To describe patterns of sedentary behavior over 6 weeks among ambulatory people with subacute and chronic stroke. Design: Observational longitudinal study with assessments at baseline (T0) and week 6 (T1). Methods: Community-dwelling people with stroke (n = 39) pooled from two studies who were ≥18 years of age were assessed for sedentary behavior at 2 timepoints (T0, T1). Sedentary behavior was measured with the activPAL micro3 following a 7-day wear protocol to obtain mean daily: total sitting time, sitting time accumulated in bouts ≥30 minutes, number of sit-to-stand transitions, and fragmentation index (sit-to-stand transitions/total sitting hours). Paired samples t-tests were used to calculate mean group differences in sedentary behavior metrics between T0 and T1 (α =.05). Cohen’s d was calculated to describe the magnitude of within-person change between T0 and T1. Results: There were no statistically significant within-person differences between T0 and T1 on mean daily sitting time (Cohen’s d= −0.21, p=.19), sitting time accumulated in bouts ≥30 minutes (d= −0.27, p=.11), number of sit-to-stand transitions (d= −0.02, p=.53), or the fragmentation index (d= −0.11, p=.92). Conclusions: Sedentary behavior metrics were stable for over 6 weeks. The number of sit-to-stand transitions per day and the fragmentation index appeared to be the most stable indicators over 6 weeks. Future research should confirm these findings and identify correlates of sedentary behavior among people with stroke.

American Journal of Occupational Therapy

Date Presented 03/28/20 This presentation will characterize our experiences integrating stakehold... more Date Presented 03/28/20 This presentation will characterize our experiences integrating stakeholder engagement into a multisite pragmatic clinical trial focused on optimizing care for nursing-home residents with dementia. We will discuss our methods for building OT capacity to conduct research that includes the voices of stakeholders. Primary Author and Speaker: Jenny Martinez Contributing Authors: Catherine Piersol, Lauren Terhorst, Sherrie Holloway, Carin Wong, Felicia Chew, Natalie Leland

Archives of Physical Medicine and Rehabilitation

European Journal of Paediatric Neurology

OBJECTIVES Sleep health in rare disease is often overlooked due to the complex nature of the dise... more OBJECTIVES Sleep health in rare disease is often overlooked due to the complex nature of the disease. For males with Duchenne muscular dystrophy, sleep assessment is typically focused on pulmonary function and identification of sleep disordered breathing. Unfortunately for young boys with Duchenne muscular dystrophy, sleep assessment is often neglected, resulting in a dearth of knowledge on sleep health in this population. This study describes sleep quantity and quality in both younger (4-9 years) and older (10-17 years) males with Duchenne muscular dystrophy (n = 19) and compares these characteristics with sleep characteristics of unaffected peers (n = 17). METHODS This study was a longitudinal, observational study. Sleep measures were collected using the parent-proxy Children's Sleep Habits Questionnaire-Abbreviated version and objective sleep measures from actigraphy (sleep efficiency, awakenings, and awakening duration) over 30 days for all participants. Means and standard deviations were examined, and effect sizes were computed to quantify the magnitude of difference between the Duchenne muscular dystrophy and unaffected groups. RESULTS Overall, boys with Duchenne muscular dystrophy were found to experience worse sleep than their unaffected peers as measured by parent report and actigraphy. Effect sizes of both measures demonstrated moderate to large magnitudes of difference in many of the sleep variables. Parents of boys with Duchenne muscular dystrophy reported higher scores (indicating worse sleep) in all subsections and total score of the Children's Sleep Habits Questionnaire - Abbreviated version. Actigraphy data indicated that the Duchenne muscular dystrophy group had lower percent sleep efficiency, more night awakenings and longer duration of night awakenings than their unaffected peers. CONCLUSION Our findings offer a novel look into sleep in young boys with Duchenne muscular dystrophy. Both parent-report and actigraphy data indicate poor sleep health in this population compared with age-matched unaffected peers. Actigraphy was found to align with parent-report of sleep in this population, supporting the use of these two different ways to measure sleep in Duchenne muscular dystrophy. Results from this study should encourage clinicians and researchers alike to further explore sleep and its impact on disease in young boys with Duchenne muscular dystrophy.

American Journal of Occupational Therapy

Date Presented 04/05/19 Identifying factors early in the rehabilitation process that predict the ... more Date Presented 04/05/19 Identifying factors early in the rehabilitation process that predict the inability to return home independently after stroke may better inform treatment decisions. Therefore, we performed a secondary analysis to examine demographic, medical, and cognitive factors that might predict nonresponse during inpatient rehabilitation. Using a backward stepwise logistic regression, we found that the variables most strongly correlated with dependence were cognitive impairment and motor impairment. Primary Author and Speaker: Sarah Walker Contributing Authors: Elizabeth Skidmore, Lauren Terhorst