Mark Haydon-Laurelut | University of Portsmouth (original) (raw)

Papers by Mark Haydon-Laurelut

Research paper thumbnail of Experiences of living without a sense of smell: Like “Being Behind Glass”

PLOS ONE

This study addresses the paucity of research concerning the subjective experiences of those affec... more This study addresses the paucity of research concerning the subjective experiences of those affected by anosmia. In the study, we interviewed individuals(n = 11) recruited via the charity (Fifth Sense) and used Interpretative Phenomenological Analysis (IPA) to analyse the data. Findings revealed three main themes and seven sub themes. The main themes are Living with Anosmia; Remembrance of things old and new and Resilience. The study reveals the process of becoming aware of being anosmic and the relationships with others in this process including potentially unhelpful minimisations of the impact by professionals. In addition to a sense of isolation and insecurity, living with anosmia for some participants brought with it an identification of being ‘anosmic’ and feeling part of a community. This was in contrast to a general lack of public knowledge and understanding of anosmia. The findings of the study demonstrated the importance of smell to time, place and relationship and the reca...

Research paper thumbnail of Who and what supports systemic working in a learning disabilities context?

Clinical psychology forum, Feb 14, 2024

Research paper thumbnail of Roundtable: advantages and challenges in using systemic approaches in ID services

Journal of Intellectual Disability Research, 2008

Research paper thumbnail of Evidence based practice, practice based evidence and warm data

Research paper thumbnail of Clinical psychology and people with intellectual disabilities

Disability & Society, Jun 1, 2013

The second edition of this edited book aims to be of use to clinical psychologists, those in trai... more The second edition of this edited book aims to be of use to clinical psychologists, those in training and other professionals working with people with intellectual disabilities as well as being an academic review of the field. The book’s 17 chapters are divided into three section areas: ‘Setting the Scene’, ‘General Clinical Issues’ and ‘Working with …’. This second edition includes new chapters on ‘Working with People with Autism’ and the ‘Social Context’. , second edition, edited by Eric Emerson, Kate Dickson, Rupa Gone, Chris Hatton, Jo Bromley and Amanda Caine, Chichester, Wiley-Blackwell, 2012, 424 pp., £65.00 (hardback), ISBN 978-0-47-002971-8

Research paper thumbnail of Working with People with Learning Disabilities: Systemic Approaches

Research paper thumbnail of What are we making:the Reflexive Self-Awareness Consultation Tool (RS-ACT)

Research paper thumbnail of From either/or to both/and

Research paper thumbnail of Foreward

has been working as a freelance journalist, writing about learning disability and health issues, ... more has been working as a freelance journalist, writing about learning disability and health issues, among other things, for the past 18 years. She has had articles published in national magazines and newspapers including the Daily Mail, Mail on Sunday (Health) and Community Care. Jane has written a self-help book Bringing Up a Challenging Child at Home and a 'parent's perspective' chapter in Genetics of Mental Retardation about her experiences with Chrissy, who has a rare genetic disorder that was not diagnosed until she was 21. As well as teaching basic skills to students with learning disabilities at an FE college, Jane has worked as a Critical Reader on Mencap's information leaflets for families. She has written and delivered trainings and talks about rare chromosome disorders, learning disabilities, challenging behaviour and communication to healthcare professionals, geneticists and other parents. Jane is very interested in epilepsy, autism and challenging behaviour and shares her thoughts on her blog Sharing Stories. More recently, Jane was working as an Expert by Experience with the CQC and was involved in producing the CQC's Expert by Experience newsletter. Last year, she gained a Distinction on MSc Applied

Research paper thumbnail of Constructing Learning Disability via Dialogue the Intersection Between Practice and Theory Between the Clinic and Academia

Metalogos, Jul 24, 2020

into organized crime. During the period 2007 to 2013, hundreds of thousands of Mexicans migrated ... more into organized crime. During the period 2007 to 2013, hundreds of thousands of Mexicans migrated to the United States as a consequence of the absence of physical security in that nation due to protracted drug related conflicts and a proliferation of organized crime (Passe & Cohn 2019; Budiman, 2020). More recently, the migration of individuals from the Northern Triangle countries of Central America, Guatemala, El Salvador, and Honduras has increased significantly as governments in those three countries have been increasingly unable to provide for public safety and security as a result of the emergence of gang violence, drug trafficking, and organized crime (O'Connor, Batalova & Bolter, 2019). Since the sanctuary movement of the early 1980s, when American churches and social justice organizations provided safety to Central Americans who were fleeing ethnic genocide and the civil wars of right-wing dictatorships, the United States has seen the in migration of hundreds of thousands of Central American migrants. Many of those migrants, both authorized and unauthorized, have transited through El Paso/Ciudad Juárez port of entry (McDaniel, 2017). Recent presidential administrations of both political parties have aggressively interdicted migration from Mexico and Central America. Current federal policies seek to deter, detain, and deport migrants from Central America and Mexico through aggressive border enforcement, including zero-tolerance, family separation, parental deportation, prolonged incarceration and detention (Slack, 2019). Agencies throughout the US-Mexico border that serve the migrant population by offering legal assistance, social services, advocacy, sanctuary, and shelter have been significantly affected by the increases of migrants who have fled to the US-Mexico border under adverse circumstances. These migrants have been exposed to significant adversity and trauma in their countries of origin and enroute to the border. In addition, migrants also experience hardship upon arrival to the border region where many are apprehended, detained, or arrested, even when making legal petitions for asylum under United States law (Keller, Joscelyne, Granski & Rosenfeld, 2017; Lusk & Terrazas, 2015). Attorneys, paralegals, mental health professionals, clergy, paraprofessionals, and volunteers who work with migrants and refugees repeatedly encounter migrants who recount stories of extreme adversity, trauma, and hardship. Because agencies that serve migrants tend to be significantly underfunded and understaffed, comparatively small numbers of professionals and volunteers serve large caseloads of individuals who seek legal advice, advocacy, shelter, and

Research paper thumbnail of Covid Conversations Horror and Hope

Authors: Joe Powell, Victoria Jones, Katarina Luce, Jennifer McElwee and Mark Haydon-Laurelut Acc... more Authors: Joe Powell, Victoria Jones, Katarina Luce, Jennifer McElwee and Mark Haydon-Laurelut Accessible summary: • We wanted to record and think about the effects of the pandemic on people with learning disabilities, their families and supporters and what that means for our communities. • We took turns to talk in twos and think about what the others were saying. This is called a reflecting conversation. • There have been more human rights abuses of people with learning disabilities since the pandemic started. This has a big effect on them, their families and our communities. • The pandemic has shown that our communities have everything they need to be really inclusive of everyone. • Family therapists can be curious about the effects of the pandemic on people who have been labelled with a learning disability, their families and supporters.

Research paper thumbnail of Options: Conversation in Collaboration

The Palgrave Handbook of Innovative Community and Clinical Psychologies, 2022

Research paper thumbnail of What is systemic

Research paper thumbnail of “Everyone thought I was a very very bad person… no one want to know you like the nurses and doctors”: Using focus groups to elicit the views of adults with learning disability who use challenging behaviour services

British Journal of Learning Disabilities, 2017

Everyone thought I was a very very bad person… no one want to know you like the nurses and doctor... more Everyone thought I was a very very bad person… no one want to know you like the nurses and doctors': Using focus groups to elicit the views of adults with learning disability who use challenging behaviour services.

Research paper thumbnail of Disability:beyond individualization, psychologisation and medicalization

Knowledge about disabled people has and continues to be dominated by the medical and allied profe... more Knowledge about disabled people has and continues to be dominated by the medical and allied professions and inevitably this provides only one story of disabled life: a story of a problem seeking solutions (Grue, 2015). The rehabilitative professions write most of what is read and written about disability. As a family therapist I wondered how family therapy might be constructing disability? If, as Michalko (2012) has noted, medicine finds a home in all kinds of places to what extent has it made family therapy, and in particular its conception of disability, its home? Haydon-Laurelut, Nunkoosing & Wilcox (2015) found that contemporary family therapy journals frame disability predominantly through an individual medical model. This is perhaps unsurprising as it is reflective of the cultural dominance of this narrative of disability (Oliver, 1990). Haydon-Laurelut et al (2015) suggested that disability might have become so penetrated by medical discourse that it becomes difficult to ‘see...

Research paper thumbnail of Systemic staff consultation in staffed accommodation: what do we mean by systemic? what do we mean by working systemically?

Mark Haydon-Laurelut, Diane Bissmire & Helen Hall pick up the themes of using questions and hypot... more Mark Haydon-Laurelut, Diane Bissmire & Helen Hall pick up the themes of using questions and hypotheses in consultation to staff and management of residential accommodation. They provide a general introduction to systemic thinking including appreciative inquiry and then apply the ways of working to the context of a Community Learning Disability Service. Readers might best take the article as a worked example of explaining systemic approach to other professionals and managers. It could also be a useful template for others who need to convince colleagues of the value of a systemic approach, while giving them the experience of how positive it can be.

Research paper thumbnail of Haydon-Laurelut, M. (2016). Critical Systemic Therapy: Autism Stories and Disabled People with Learning Difficulties. In Runswick-Cole, Mallett & Timimi (Eds.), Re-Thinking Autism: Diagnosis, Identity and Equality (121-138). London: Jessica Kingsley Publishers

Re-Thinking Autism: Diagnosis, Identity and Equality, 2016

Research paper thumbnail of Internalised-Other interviewing: attending to voices of the 'other&apos

In this draft the figures are placed at the end of the paper following the reference section.

Research paper thumbnail of Covid conversations:  Horror and Hope

Context: The magazine for family therapy and systemic practice in the UK, 2021

Authors: Joe Powell, Victoria Jones, Katarina Luce, Jennifer McElwee and Mark Haydon-Laurelut Ac... more Authors: Joe Powell, Victoria Jones, Katarina Luce, Jennifer McElwee and Mark Haydon-Laurelut

Accessible summary:

• We wanted to record and think about the effects of the pandemic on people with learning disabilities, their families and supporters and what that means for our communities.
• We took turns to talk in twos and think about what the others were saying. This is called a reflecting conversation.
• There have been more human rights abuses of people with learning
disabilities since the pandemic started. This has a big effect on them, their families and our communities.
• The pandemic has shown that our communities have everything they need to be really inclusive of everyone.
• Family therapists can be curious about the effects of the pandemic on
people who have been labelled with a learning disability, their families and supporters.

Research paper thumbnail of Systemic therapy and autistic spectrum conditions

Research paper thumbnail of Experiences of living without a sense of smell: Like “Being Behind Glass”

PLOS ONE

This study addresses the paucity of research concerning the subjective experiences of those affec... more This study addresses the paucity of research concerning the subjective experiences of those affected by anosmia. In the study, we interviewed individuals(n = 11) recruited via the charity (Fifth Sense) and used Interpretative Phenomenological Analysis (IPA) to analyse the data. Findings revealed three main themes and seven sub themes. The main themes are Living with Anosmia; Remembrance of things old and new and Resilience. The study reveals the process of becoming aware of being anosmic and the relationships with others in this process including potentially unhelpful minimisations of the impact by professionals. In addition to a sense of isolation and insecurity, living with anosmia for some participants brought with it an identification of being ‘anosmic’ and feeling part of a community. This was in contrast to a general lack of public knowledge and understanding of anosmia. The findings of the study demonstrated the importance of smell to time, place and relationship and the reca...

Research paper thumbnail of Who and what supports systemic working in a learning disabilities context?

Clinical psychology forum, Feb 14, 2024

Research paper thumbnail of Roundtable: advantages and challenges in using systemic approaches in ID services

Journal of Intellectual Disability Research, 2008

Research paper thumbnail of Evidence based practice, practice based evidence and warm data

Research paper thumbnail of Clinical psychology and people with intellectual disabilities

Disability & Society, Jun 1, 2013

The second edition of this edited book aims to be of use to clinical psychologists, those in trai... more The second edition of this edited book aims to be of use to clinical psychologists, those in training and other professionals working with people with intellectual disabilities as well as being an academic review of the field. The book’s 17 chapters are divided into three section areas: ‘Setting the Scene’, ‘General Clinical Issues’ and ‘Working with …’. This second edition includes new chapters on ‘Working with People with Autism’ and the ‘Social Context’. , second edition, edited by Eric Emerson, Kate Dickson, Rupa Gone, Chris Hatton, Jo Bromley and Amanda Caine, Chichester, Wiley-Blackwell, 2012, 424 pp., £65.00 (hardback), ISBN 978-0-47-002971-8

Research paper thumbnail of Working with People with Learning Disabilities: Systemic Approaches

Research paper thumbnail of What are we making:the Reflexive Self-Awareness Consultation Tool (RS-ACT)

Research paper thumbnail of From either/or to both/and

Research paper thumbnail of Foreward

has been working as a freelance journalist, writing about learning disability and health issues, ... more has been working as a freelance journalist, writing about learning disability and health issues, among other things, for the past 18 years. She has had articles published in national magazines and newspapers including the Daily Mail, Mail on Sunday (Health) and Community Care. Jane has written a self-help book Bringing Up a Challenging Child at Home and a 'parent's perspective' chapter in Genetics of Mental Retardation about her experiences with Chrissy, who has a rare genetic disorder that was not diagnosed until she was 21. As well as teaching basic skills to students with learning disabilities at an FE college, Jane has worked as a Critical Reader on Mencap's information leaflets for families. She has written and delivered trainings and talks about rare chromosome disorders, learning disabilities, challenging behaviour and communication to healthcare professionals, geneticists and other parents. Jane is very interested in epilepsy, autism and challenging behaviour and shares her thoughts on her blog Sharing Stories. More recently, Jane was working as an Expert by Experience with the CQC and was involved in producing the CQC's Expert by Experience newsletter. Last year, she gained a Distinction on MSc Applied

Research paper thumbnail of Constructing Learning Disability via Dialogue the Intersection Between Practice and Theory Between the Clinic and Academia

Metalogos, Jul 24, 2020

into organized crime. During the period 2007 to 2013, hundreds of thousands of Mexicans migrated ... more into organized crime. During the period 2007 to 2013, hundreds of thousands of Mexicans migrated to the United States as a consequence of the absence of physical security in that nation due to protracted drug related conflicts and a proliferation of organized crime (Passe & Cohn 2019; Budiman, 2020). More recently, the migration of individuals from the Northern Triangle countries of Central America, Guatemala, El Salvador, and Honduras has increased significantly as governments in those three countries have been increasingly unable to provide for public safety and security as a result of the emergence of gang violence, drug trafficking, and organized crime (O'Connor, Batalova & Bolter, 2019). Since the sanctuary movement of the early 1980s, when American churches and social justice organizations provided safety to Central Americans who were fleeing ethnic genocide and the civil wars of right-wing dictatorships, the United States has seen the in migration of hundreds of thousands of Central American migrants. Many of those migrants, both authorized and unauthorized, have transited through El Paso/Ciudad Juárez port of entry (McDaniel, 2017). Recent presidential administrations of both political parties have aggressively interdicted migration from Mexico and Central America. Current federal policies seek to deter, detain, and deport migrants from Central America and Mexico through aggressive border enforcement, including zero-tolerance, family separation, parental deportation, prolonged incarceration and detention (Slack, 2019). Agencies throughout the US-Mexico border that serve the migrant population by offering legal assistance, social services, advocacy, sanctuary, and shelter have been significantly affected by the increases of migrants who have fled to the US-Mexico border under adverse circumstances. These migrants have been exposed to significant adversity and trauma in their countries of origin and enroute to the border. In addition, migrants also experience hardship upon arrival to the border region where many are apprehended, detained, or arrested, even when making legal petitions for asylum under United States law (Keller, Joscelyne, Granski & Rosenfeld, 2017; Lusk & Terrazas, 2015). Attorneys, paralegals, mental health professionals, clergy, paraprofessionals, and volunteers who work with migrants and refugees repeatedly encounter migrants who recount stories of extreme adversity, trauma, and hardship. Because agencies that serve migrants tend to be significantly underfunded and understaffed, comparatively small numbers of professionals and volunteers serve large caseloads of individuals who seek legal advice, advocacy, shelter, and

Research paper thumbnail of Covid Conversations Horror and Hope

Authors: Joe Powell, Victoria Jones, Katarina Luce, Jennifer McElwee and Mark Haydon-Laurelut Acc... more Authors: Joe Powell, Victoria Jones, Katarina Luce, Jennifer McElwee and Mark Haydon-Laurelut Accessible summary: • We wanted to record and think about the effects of the pandemic on people with learning disabilities, their families and supporters and what that means for our communities. • We took turns to talk in twos and think about what the others were saying. This is called a reflecting conversation. • There have been more human rights abuses of people with learning disabilities since the pandemic started. This has a big effect on them, their families and our communities. • The pandemic has shown that our communities have everything they need to be really inclusive of everyone. • Family therapists can be curious about the effects of the pandemic on people who have been labelled with a learning disability, their families and supporters.

Research paper thumbnail of Options: Conversation in Collaboration

The Palgrave Handbook of Innovative Community and Clinical Psychologies, 2022

Research paper thumbnail of What is systemic

Research paper thumbnail of “Everyone thought I was a very very bad person… no one want to know you like the nurses and doctors”: Using focus groups to elicit the views of adults with learning disability who use challenging behaviour services

British Journal of Learning Disabilities, 2017

Everyone thought I was a very very bad person… no one want to know you like the nurses and doctor... more Everyone thought I was a very very bad person… no one want to know you like the nurses and doctors': Using focus groups to elicit the views of adults with learning disability who use challenging behaviour services.

Research paper thumbnail of Disability:beyond individualization, psychologisation and medicalization

Knowledge about disabled people has and continues to be dominated by the medical and allied profe... more Knowledge about disabled people has and continues to be dominated by the medical and allied professions and inevitably this provides only one story of disabled life: a story of a problem seeking solutions (Grue, 2015). The rehabilitative professions write most of what is read and written about disability. As a family therapist I wondered how family therapy might be constructing disability? If, as Michalko (2012) has noted, medicine finds a home in all kinds of places to what extent has it made family therapy, and in particular its conception of disability, its home? Haydon-Laurelut, Nunkoosing & Wilcox (2015) found that contemporary family therapy journals frame disability predominantly through an individual medical model. This is perhaps unsurprising as it is reflective of the cultural dominance of this narrative of disability (Oliver, 1990). Haydon-Laurelut et al (2015) suggested that disability might have become so penetrated by medical discourse that it becomes difficult to ‘see...

Research paper thumbnail of Systemic staff consultation in staffed accommodation: what do we mean by systemic? what do we mean by working systemically?

Mark Haydon-Laurelut, Diane Bissmire & Helen Hall pick up the themes of using questions and hypot... more Mark Haydon-Laurelut, Diane Bissmire & Helen Hall pick up the themes of using questions and hypotheses in consultation to staff and management of residential accommodation. They provide a general introduction to systemic thinking including appreciative inquiry and then apply the ways of working to the context of a Community Learning Disability Service. Readers might best take the article as a worked example of explaining systemic approach to other professionals and managers. It could also be a useful template for others who need to convince colleagues of the value of a systemic approach, while giving them the experience of how positive it can be.

Research paper thumbnail of Haydon-Laurelut, M. (2016). Critical Systemic Therapy: Autism Stories and Disabled People with Learning Difficulties. In Runswick-Cole, Mallett & Timimi (Eds.), Re-Thinking Autism: Diagnosis, Identity and Equality (121-138). London: Jessica Kingsley Publishers

Re-Thinking Autism: Diagnosis, Identity and Equality, 2016

Research paper thumbnail of Internalised-Other interviewing: attending to voices of the 'other&apos

In this draft the figures are placed at the end of the paper following the reference section.

Research paper thumbnail of Covid conversations:  Horror and Hope

Context: The magazine for family therapy and systemic practice in the UK, 2021

Authors: Joe Powell, Victoria Jones, Katarina Luce, Jennifer McElwee and Mark Haydon-Laurelut Ac... more Authors: Joe Powell, Victoria Jones, Katarina Luce, Jennifer McElwee and Mark Haydon-Laurelut

Accessible summary:

• We wanted to record and think about the effects of the pandemic on people with learning disabilities, their families and supporters and what that means for our communities.
• We took turns to talk in twos and think about what the others were saying. This is called a reflecting conversation.
• There have been more human rights abuses of people with learning
disabilities since the pandemic started. This has a big effect on them, their families and our communities.
• The pandemic has shown that our communities have everything they need to be really inclusive of everyone.
• Family therapists can be curious about the effects of the pandemic on
people who have been labelled with a learning disability, their families and supporters.

Research paper thumbnail of Systemic therapy and autistic spectrum conditions

Research paper thumbnail of Working with People with Learning Disabilities: Systemic Approaches https://www.amazon.co.uk/Working-People-Learning-Disabilities-Approaches/dp/1352005360

Red Globe Press., 2019

This multi-disciplinary textbook provides a comprehensive guide for anyone working with people wi... more This multi-disciplinary textbook provides a comprehensive guide for anyone working with people with learning disabilities. It considers how we can engage with people with learning disabilities and their networks of relationships. Throughout, the book demonstrates how theory can be applied to practice with a wide range of contemporary examples.Each chapter is written by a key clinician or writer in this area, incorporating the disciplines of nursing, clinical psychology, and psychotherapy. The chapters also include summaries, reflective questions and explanations of key terms to reinforce themes and topics. The authors provide practical ideas for applying theory across agency contexts including inpatient hospital settings and explore the potential opportunities and future directions for the field.This is a must-read book for students who work with people with learning disabilities including nurses, psychologists, occupational therapists, speech and language therapists, psychiatrists and social workers.

This volume weaves together the most critical work in systemic theory and practice, transforming the terrain of professional practice with people identified with learning disabilities. It offers an abundance of conceptual and practical resources for practitioners, researchers, communities, clients, and families. – Professor Sheila McNamee, Professor of Communication, University of New Hampshire, USA

A thought provoking text that encourages us all to work towards more effective ways of standing in solidarity with children, young people, men and women with learning disabilities. I would recommend reading, reflecting and acting on its contents. – Ruth Northway, Professor of Learning Disability Nursing, University of South Wales, UK

This book demonstrates how we might think of working in ways that emphasise the capacities of people with learning disabilities embracing innovative and enabling practices. This will be essential reading for anyone engaged in developing practice that understands disability as a fundamental concern of contemporary society. – Dan Goodley, Professor of Disability Studies and Education, University of Sheffield, UK