Nora Groce | University College London (original) (raw)

Papers by Nora Groce

Research paper thumbnail of Capitalismo e Surdez

El Tiple, 2021

e a todos/ as os novos colegas da faculdade. Nossos agradecimentos também a Felipe Oliver, Marco ... more e a todos/ as os novos colegas da faculdade. Nossos agradecimentos também a Felipe Oliver, Marco Pestana, Luana Sidi e a todos/as os camaradas que se somaram às lutas no INES, assim como aos demais camaradas organizados nos sindicatos de servidores federais, em particular, ao SINDSCOPE, SINASEFE, FASUBRA e ANDES-SN, e aos trabalhadores da educação em geral. Uma série de profissionais, tradutores e intérpretes, colegas e voluntários apoiaram o projeto de tradução e revisão destes textos ao longo dos anos que foram levados para as salas de aula como material paradidático de estudo e pesquisa por Gil Felix. Nem todos/ as, agora, tiveram oportunidade, interesse, condição ou tempo para poder contribuir diretamente para esta publicação, contudo, no que se refere ao projeto que deu origem ao livro, todos/as contribuíram-pro ssionalmente e/ou politicamente de alguma forma nas mais diversas ocasiões quando foi realizado. Mencionamos, em especial:

Research paper thumbnail of People With Disabilities

Oxford University Press eBooks, Sep 29, 2005

Research paper thumbnail of People with Disabilities

Oxford University Press eBooks, Aug 1, 2013

© 2007 by Oxford University Press, Inc. All rights reserved. This chapter addresses social injust... more © 2007 by Oxford University Press, Inc. All rights reserved. This chapter addresses social injustice as it affects people with disabilities. Boxes in the chapter address disability and education, similarities and differences among people with different kinds of disabilities, and disability during times of disaster and political upheaval. The chapter describes the roots and underlying issues of social injustice against people with disabilities, and what needs to be done.

Research paper thumbnail of Women’s Experience of Group Prenatal Care

Qualitative Health Research, Aug 6, 2010

Group prenatal care (GPNC) is an innovative alternative to individual prenatal care. In this long... more Group prenatal care (GPNC) is an innovative alternative to individual prenatal care. In this longitudinal study we used ethnographic methods to explore African American and Hispanic women's experiences of receiving GPNC in two urban clinics. Methods included individual, indepth, semistructured interviews of women and group leaders in GPNC, participant observation of GPNC sessions, and medical record review. GPNC offered positive experiences and met many of the women's expressed preferences regarding prenatal care. Six themes were identified, which represented separate aspects of women's experiences: investment, collaborative venture, a social gathering, relationships with boundaries, learning in the group, and changing self. Taken together, the themes conveyed the overall experience of GPNC. Women were especially enthusiastic about learning in groups, about their relationships with group leaders, and about having their pregnancyrelated changes and fears normalized. There were also important boundaries on relationships between participants, and some women wished for greater privacy during physical examinations.

Research paper thumbnail of Disability

The International Encyclopedia of Anthropology, Sep 5, 2018

Research paper thumbnail of Accessible Connecticut

Yale University Press eBooks, Oct 17, 2017

Research paper thumbnail of Youth with Disabilities: Habilitation, Rehabilitation and General Health Care

Research paper thumbnail of Initiating dialogue between stakeholders and establishing a common language for community severance through cross disciplinary workshops

The concept of community severance has slowly been making its way into concrete transport plans a... more The concept of community severance has slowly been making its way into concrete transport plans and policies but it still lacks a consensual definition. This is because the issue has been approached by researchers from a range of disciplines, which have specific and diverse ways of constructing scientific knowledge. The objective of this paper, the first in a series of working papers to be generated by the Street Mobility and Network Accessibility research project is to build bridges between these different approaches and provide a base for the integration of community severance into public policy. The paper is the outcome of a series of workshops attended by a cross-disciplinary team of researchers and stakeholders, including policy-makers and local practitioners. On the basis of these discussions, a framework for cross-disciplinary research on community severance is developed, taking into consideration the chain of direct and indirect effects of transport infrastructure and motorised traffic and the range and complexity in the methodologies used for analysing and formulating solutions to the problem. In a second stage, we examine the consistency between this framework and the opinions and experiences of stakeholders.

Research paper thumbnail of Hereditary deafness on the island of Martha's vineyard : an ethnohistory of a genetic disorder

UMI Dissertation Services eBooks, 2003

Research paper thumbnail of The compounding effect of having HIV and a disability on child mortality among mothers in South Africa

PLOS ONE, May 5, 2021

Background Previous research on the association between maternal HIV status and child mortality i... more Background Previous research on the association between maternal HIV status and child mortality in sub-Saharan Africa was published between 2005-2011. Findings from these studies showed a higher child mortality risk among children born to HIV-positive mothers. While the population of women with disabilities is growing in developing countries, we found no research that examined the association between maternal disability in HIV-positive mothers, and child mortality in sub-Saharan Africa. This study examined the potential compounding effect of maternal disability and HIV status on child mortality in South Africa. Methods We analyzed data for women age 15-49 years from South Africa, using the nationally representative 2016 South Africa Demographic and Health Survey. We estimated unadjusted and adjusted risk ratios of child mortality indicators by maternal disability and maternal HIV using modified Poisson regressions.

Research paper thumbnail of Review Essay: Domestic Violence. Nigel Parton, The Politics of Child Abuse (New York: St, Martin’s Press, 1985) in Leroy H. Pelton (Ed.) The Social Context of Child Abuse and Neglect (New York: Human Sciences Press, 1985)

Research paper thumbnail of Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia

Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia Overview of resear... more Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia Overview of research Research aim: to understand the barriers that people who are marginalised face when attempting to use standard WASH facilities in Zambia and Uganda. Methods: 1. Gathering evidence before WASH intervention (baseline) 2. Developing a WASH intervention to address barriers faced (intervention) 3. Monitoring and testing the intervention and approach (monitoring) 4. Gathering evidence after the intervention to assess the impact and benefits for the target group (evaluation) Defining 'Inclusive WASH': an approach that responds to the varying needs of people and the local context, rather than promoting a 'one size fits all' approach

Research paper thumbnail of Undoing inequity: inclusive water, sanitation and hygiene programmes that deliver for all in Uganda and Zambia

Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia Overview of resear... more Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia Overview of research Research aim: to understand the barriers that people who are marginalised face when attempting to use standard WASH facilities in Zambia and Uganda. Methods: 1. Gathering evidence before WASH intervention (baseline) 2. Developing a WASH intervention to address barriers faced (intervention) 3. Monitoring and testing the intervention and approach (monitoring) 4. Gathering evidence after the intervention to assess the impact and benefits for the target group (evaluation) Defining 'Inclusive WASH': an approach that responds to the varying needs of people and the local context, rather than promoting a 'one size fits all' approach

Research paper thumbnail of The Global Polio Eradication Initiative—polio eradication cannot be the only goal

The Lancet Global Health, Sep 1, 2021

Research paper thumbnail of The role of the scientific community in strengthening disability-inclusive climate resilience

Nature Climate Change, Jan 9, 2023

The climate crisis disproportionately impacts over one billion persons with disabilities globally... more The climate crisis disproportionately impacts over one billion persons with disabilities globallythe world's largest minority group-80% of whom live in low and middle-income countries, including Small Island States. 1 During climate emergencies individuals with disabilities face two to four times higher mortality rates and are at disproportionate risk from slow onset climate change, despite having contributed little to global warming. 2 Persons with disabilities must galvanize climate action amidst a discriminatory social and institutional environment that views them as "the least worth saving." 3 These circumstances impel the question: what can the scientific community do to accelerate critically needed disability-inclusive climate resilience? Climate harm disproportionately impacts persons with disabilities because of their socioeconomic marginalization and invisibility within government and civil society at large. In climate emergencies, persons with disabilities are excluded from disaster, health, and humanitarian services. 2,4 Slow onset climate change such as sea level rise, hotter weather, and subsequent water and food scarcity, amplify existing exclusion and add further barriers. 4 Consequently, disabilityinclusive climate adaptation is required now more than ever. Yet, the Intergovernmental Panel on Climate Change (IPCC) reported in 2022 that globally "almost negligible evidence was found for the inclusion of this group." 5 Existing literature patently demonstrates the detrimental impact climate change has on persons with disabilities, 2,4 however research gaps contribute to continuing severe climate policy shortcomings. 6 Researchers and practitioners can provide a critical contribution to disability climate resilience through disability climate change knowledge production, ensuring disabilityinclusive climate governance across sectors, positioning disability centrally within climate literacy, and by supporting strategic litigation. Research indicates that risk of heat-related illness is affected by ambulatory and cognitive disability, medication, and socioeconomic factors. 7 Heat heightens the risk of negative mental health outcomes, with pre-existing psychosocial disability tripling the risk of mortality during heatwaves. 8 Antipsychotics, antidepressants, and other medications can effect thermoregulation in persons with both psychosocial and physical disabilities. 2 Clinical trials inclusive of persons with

Research paper thumbnail of US Disparities in Life Expectancy: Not One “Population Health Iceberg” But Two

American Journal of Public Health, Apr 1, 2021

Research paper thumbnail of Museums of Fine Arts

Yale University Press eBooks, Dec 31, 2017

Research paper thumbnail of Mother Father Deaf. Living between Sound and Silence . Paul Preston

Medical Anthropology Quarterly, Mar 1, 1996

rotated their views-as opposed to ex¬ amining the science behind the drug and the available data-... more rotated their views-as opposed to ex¬ amining the science behind the drug and the available data-is staggering. The author documents the confluence ofthree forces: the media, trial attorneys, and the Citizens Commission on Human Rights, which is affiliated with the Church of Scientology, and demonstrates how these entities by their actions may have scared, delayed, or prevented some patients from using an effective, safe, well-tested product. The chapter "The Regulation of Elec¬ troconvulsive Therapy: The California Experience" is also a well-written and well-documented account of how indi¬ viduals, city councils, the courts, health care-related agencies, and the legisla¬ ture can create policy that effectively overregulates and restricts how one can practice medicine. Policy was made with¬ out scientific data to support the added regulation, additional rules, laws, and guidelines, making it nearly impossible in some cases to utilize an effective, safe, lifesaving modality. This well-written, well-referenced, thorough examination of the forces that have hobbled somatic psychiatric prac¬ tice to this point should be required read¬ ing for psychiatry residents and spe¬ cialists. The explanations of the agen¬

Research paper thumbnail of Nature Centers and Walks

Yale University Press eBooks, Dec 31, 2017

Research paper thumbnail of Accessible Places in and Around Your Community

Yale University Press eBooks, Dec 31, 2017

Research paper thumbnail of Capitalismo e Surdez

El Tiple, 2021

e a todos/ as os novos colegas da faculdade. Nossos agradecimentos também a Felipe Oliver, Marco ... more e a todos/ as os novos colegas da faculdade. Nossos agradecimentos também a Felipe Oliver, Marco Pestana, Luana Sidi e a todos/as os camaradas que se somaram às lutas no INES, assim como aos demais camaradas organizados nos sindicatos de servidores federais, em particular, ao SINDSCOPE, SINASEFE, FASUBRA e ANDES-SN, e aos trabalhadores da educação em geral. Uma série de profissionais, tradutores e intérpretes, colegas e voluntários apoiaram o projeto de tradução e revisão destes textos ao longo dos anos que foram levados para as salas de aula como material paradidático de estudo e pesquisa por Gil Felix. Nem todos/ as, agora, tiveram oportunidade, interesse, condição ou tempo para poder contribuir diretamente para esta publicação, contudo, no que se refere ao projeto que deu origem ao livro, todos/as contribuíram-pro ssionalmente e/ou politicamente de alguma forma nas mais diversas ocasiões quando foi realizado. Mencionamos, em especial:

Research paper thumbnail of People With Disabilities

Oxford University Press eBooks, Sep 29, 2005

Research paper thumbnail of People with Disabilities

Oxford University Press eBooks, Aug 1, 2013

© 2007 by Oxford University Press, Inc. All rights reserved. This chapter addresses social injust... more © 2007 by Oxford University Press, Inc. All rights reserved. This chapter addresses social injustice as it affects people with disabilities. Boxes in the chapter address disability and education, similarities and differences among people with different kinds of disabilities, and disability during times of disaster and political upheaval. The chapter describes the roots and underlying issues of social injustice against people with disabilities, and what needs to be done.

Research paper thumbnail of Women’s Experience of Group Prenatal Care

Qualitative Health Research, Aug 6, 2010

Group prenatal care (GPNC) is an innovative alternative to individual prenatal care. In this long... more Group prenatal care (GPNC) is an innovative alternative to individual prenatal care. In this longitudinal study we used ethnographic methods to explore African American and Hispanic women's experiences of receiving GPNC in two urban clinics. Methods included individual, indepth, semistructured interviews of women and group leaders in GPNC, participant observation of GPNC sessions, and medical record review. GPNC offered positive experiences and met many of the women's expressed preferences regarding prenatal care. Six themes were identified, which represented separate aspects of women's experiences: investment, collaborative venture, a social gathering, relationships with boundaries, learning in the group, and changing self. Taken together, the themes conveyed the overall experience of GPNC. Women were especially enthusiastic about learning in groups, about their relationships with group leaders, and about having their pregnancyrelated changes and fears normalized. There were also important boundaries on relationships between participants, and some women wished for greater privacy during physical examinations.

Research paper thumbnail of Disability

The International Encyclopedia of Anthropology, Sep 5, 2018

Research paper thumbnail of Accessible Connecticut

Yale University Press eBooks, Oct 17, 2017

Research paper thumbnail of Youth with Disabilities: Habilitation, Rehabilitation and General Health Care

Research paper thumbnail of Initiating dialogue between stakeholders and establishing a common language for community severance through cross disciplinary workshops

The concept of community severance has slowly been making its way into concrete transport plans a... more The concept of community severance has slowly been making its way into concrete transport plans and policies but it still lacks a consensual definition. This is because the issue has been approached by researchers from a range of disciplines, which have specific and diverse ways of constructing scientific knowledge. The objective of this paper, the first in a series of working papers to be generated by the Street Mobility and Network Accessibility research project is to build bridges between these different approaches and provide a base for the integration of community severance into public policy. The paper is the outcome of a series of workshops attended by a cross-disciplinary team of researchers and stakeholders, including policy-makers and local practitioners. On the basis of these discussions, a framework for cross-disciplinary research on community severance is developed, taking into consideration the chain of direct and indirect effects of transport infrastructure and motorised traffic and the range and complexity in the methodologies used for analysing and formulating solutions to the problem. In a second stage, we examine the consistency between this framework and the opinions and experiences of stakeholders.

Research paper thumbnail of Hereditary deafness on the island of Martha's vineyard : an ethnohistory of a genetic disorder

UMI Dissertation Services eBooks, 2003

Research paper thumbnail of The compounding effect of having HIV and a disability on child mortality among mothers in South Africa

PLOS ONE, May 5, 2021

Background Previous research on the association between maternal HIV status and child mortality i... more Background Previous research on the association between maternal HIV status and child mortality in sub-Saharan Africa was published between 2005-2011. Findings from these studies showed a higher child mortality risk among children born to HIV-positive mothers. While the population of women with disabilities is growing in developing countries, we found no research that examined the association between maternal disability in HIV-positive mothers, and child mortality in sub-Saharan Africa. This study examined the potential compounding effect of maternal disability and HIV status on child mortality in South Africa. Methods We analyzed data for women age 15-49 years from South Africa, using the nationally representative 2016 South Africa Demographic and Health Survey. We estimated unadjusted and adjusted risk ratios of child mortality indicators by maternal disability and maternal HIV using modified Poisson regressions.

Research paper thumbnail of Review Essay: Domestic Violence. Nigel Parton, The Politics of Child Abuse (New York: St, Martin’s Press, 1985) in Leroy H. Pelton (Ed.) The Social Context of Child Abuse and Neglect (New York: Human Sciences Press, 1985)

Research paper thumbnail of Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia

Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia Overview of resear... more Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia Overview of research Research aim: to understand the barriers that people who are marginalised face when attempting to use standard WASH facilities in Zambia and Uganda. Methods: 1. Gathering evidence before WASH intervention (baseline) 2. Developing a WASH intervention to address barriers faced (intervention) 3. Monitoring and testing the intervention and approach (monitoring) 4. Gathering evidence after the intervention to assess the impact and benefits for the target group (evaluation) Defining 'Inclusive WASH': an approach that responds to the varying needs of people and the local context, rather than promoting a 'one size fits all' approach

Research paper thumbnail of Undoing inequity: inclusive water, sanitation and hygiene programmes that deliver for all in Uganda and Zambia

Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia Overview of resear... more Undoing inequity: inclusive water, sanitation and hygiene in Uganda and Zambia Overview of research Research aim: to understand the barriers that people who are marginalised face when attempting to use standard WASH facilities in Zambia and Uganda. Methods: 1. Gathering evidence before WASH intervention (baseline) 2. Developing a WASH intervention to address barriers faced (intervention) 3. Monitoring and testing the intervention and approach (monitoring) 4. Gathering evidence after the intervention to assess the impact and benefits for the target group (evaluation) Defining 'Inclusive WASH': an approach that responds to the varying needs of people and the local context, rather than promoting a 'one size fits all' approach

Research paper thumbnail of The Global Polio Eradication Initiative—polio eradication cannot be the only goal

The Lancet Global Health, Sep 1, 2021

Research paper thumbnail of The role of the scientific community in strengthening disability-inclusive climate resilience

Nature Climate Change, Jan 9, 2023

The climate crisis disproportionately impacts over one billion persons with disabilities globally... more The climate crisis disproportionately impacts over one billion persons with disabilities globallythe world's largest minority group-80% of whom live in low and middle-income countries, including Small Island States. 1 During climate emergencies individuals with disabilities face two to four times higher mortality rates and are at disproportionate risk from slow onset climate change, despite having contributed little to global warming. 2 Persons with disabilities must galvanize climate action amidst a discriminatory social and institutional environment that views them as "the least worth saving." 3 These circumstances impel the question: what can the scientific community do to accelerate critically needed disability-inclusive climate resilience? Climate harm disproportionately impacts persons with disabilities because of their socioeconomic marginalization and invisibility within government and civil society at large. In climate emergencies, persons with disabilities are excluded from disaster, health, and humanitarian services. 2,4 Slow onset climate change such as sea level rise, hotter weather, and subsequent water and food scarcity, amplify existing exclusion and add further barriers. 4 Consequently, disabilityinclusive climate adaptation is required now more than ever. Yet, the Intergovernmental Panel on Climate Change (IPCC) reported in 2022 that globally "almost negligible evidence was found for the inclusion of this group." 5 Existing literature patently demonstrates the detrimental impact climate change has on persons with disabilities, 2,4 however research gaps contribute to continuing severe climate policy shortcomings. 6 Researchers and practitioners can provide a critical contribution to disability climate resilience through disability climate change knowledge production, ensuring disabilityinclusive climate governance across sectors, positioning disability centrally within climate literacy, and by supporting strategic litigation. Research indicates that risk of heat-related illness is affected by ambulatory and cognitive disability, medication, and socioeconomic factors. 7 Heat heightens the risk of negative mental health outcomes, with pre-existing psychosocial disability tripling the risk of mortality during heatwaves. 8 Antipsychotics, antidepressants, and other medications can effect thermoregulation in persons with both psychosocial and physical disabilities. 2 Clinical trials inclusive of persons with

Research paper thumbnail of US Disparities in Life Expectancy: Not One “Population Health Iceberg” But Two

American Journal of Public Health, Apr 1, 2021

Research paper thumbnail of Museums of Fine Arts

Yale University Press eBooks, Dec 31, 2017

Research paper thumbnail of Mother Father Deaf. Living between Sound and Silence . Paul Preston

Medical Anthropology Quarterly, Mar 1, 1996

rotated their views-as opposed to ex¬ amining the science behind the drug and the available data-... more rotated their views-as opposed to ex¬ amining the science behind the drug and the available data-is staggering. The author documents the confluence ofthree forces: the media, trial attorneys, and the Citizens Commission on Human Rights, which is affiliated with the Church of Scientology, and demonstrates how these entities by their actions may have scared, delayed, or prevented some patients from using an effective, safe, well-tested product. The chapter "The Regulation of Elec¬ troconvulsive Therapy: The California Experience" is also a well-written and well-documented account of how indi¬ viduals, city councils, the courts, health care-related agencies, and the legisla¬ ture can create policy that effectively overregulates and restricts how one can practice medicine. Policy was made with¬ out scientific data to support the added regulation, additional rules, laws, and guidelines, making it nearly impossible in some cases to utilize an effective, safe, lifesaving modality. This well-written, well-referenced, thorough examination of the forces that have hobbled somatic psychiatric prac¬ tice to this point should be required read¬ ing for psychiatry residents and spe¬ cialists. The explanations of the agen¬

Research paper thumbnail of Nature Centers and Walks

Yale University Press eBooks, Dec 31, 2017

Research paper thumbnail of Accessible Places in and Around Your Community

Yale University Press eBooks, Dec 31, 2017

Research paper thumbnail of The long-term impact of war: Evidence on disability prevalence in Vietnam

This paper estimates the impact of exposure to US Air Force bombing during 1965-1975 on the disab... more This paper estimates the impact of exposure to US Air Force bombing during 1965-1975 on the disability status of individuals in Vietnam in 2009. Using national census data and an instrumental variable approach with the distance from the heavily bombed former North South Vietnam border as an instrument, the paper finds a positive and statistically significant impact of war time bombing exposure on district level disability rates more than thirty years after the end of the war. Impacts are highest for severe disability and among persons born before 1976. Smaller yet significant positive impacts are observed among persons born after the war due to on-going exposure to unexploded ordinance and likely other landmine and chemical weapons of war. The results are consistent with findings from other countries on the long-lasting effects of warfare on human populations.

Research paper thumbnail of Disability Identification Cards: Issues in Effective Design

Around the world, attention to the issue of disability inclusion is gaining increasing prominence... more Around the world, attention to the issue of disability inclusion is gaining increasing prominence. One strategy to promote disability-inclusion in benefit participation programs that a growing number of countries are considering is the creation of a disability identification (ID) card. There exists a long history of various types of disability ID cards (or certificates) and associated social protection schemes in highincome countries. Disability ID cards currently exist in many middle-income countries, and are under development or consideration in a growing number of low and middle-income countries. However, it should be acknowledged that many of the issues with respect to the administration of a disability ID card in low and middleincome countries differ from those in high-income countries. The purpose of this article is to discuss some of the challenges involved in creating a disability ID and identify key issues that can help in developing a framework for addressing these challenges in the context of low and middle-income countries. We argue that countries considering instituting disability ID cards must move with caution; ID card programs can only advance disability policy and the wellbeing of persons with disabilities if undertaken in well-designed manner in line with a country's administrative capacity.