Quality of life of parents and siblings of children with cochlear implants (original) (raw)
Related papers
Parents Perceived Quality of Life for Children with Cochlear Implants
International Journal of Otolaryngology and Head & Neck Surgery
The purpose of the study is to identify the important aspects of quality of life assessed in children with cochlear implant. Parental Perspective questionnaire with modified in Bangla was used as a data collection tool in this study. Data was collected through face to face interview with 25 parents of children with Cochlear Implant (CI) attended at Bangabandhu Sheikh Mujib Medical University, Dhaka. Among 25 cochlear implant children, the boys (12) and girls (13) were nearly the same. Results indicated that the majority of the children had difficulties with communication with known people (48.00%) and before implantation children with CI obtained no benefit at all from hearing aids (76.00%). However, the research finding shows that they are largely satisfied with the outcomes from implantation. Improvement of social relationship, family well-being, within the family, educational condition, and self-reliance was satisfactorily reported by the parents. This study would help the clinician, speech pathologist, children and parents to raise awareness about the impact of CI and its treatment.
Factors influencing the quality of life of children with cochlear implants
Brazilian Journal of Otorhinolaryngology, 2020
Introduction: The multidimensional impact of hearing loss on the various demands of life in children using cochlear implants is represented by variables that can influence the hearing, language and quality of life outcomes of this population. Objective: To evaluate the factors influencing the quality of life of children with cochlear implantation, considering age, hearing age, age at evaluation, hearing skills, spoken language, family degree of receptiveness, schooling and socioeconomic status of the parents. Methods: Participated 30 children using cochlear implants, aged 6 to 12 years and their respective parents. The children were evaluated by the categories auditory performance, by language category, and by the children with cochlear implants: perspectives parents questionnaire. Parents were assessed by the family involvement scale. Results: The cochlear implant impacted the quality of life of the children, with more significant results on the increase of the social relations domain and the decrease of the family support domain. Overall, the increase of the age in the evaluation, better hearing and language skills, the mother's level of schooling and the family receptiveness correlated with the quality of life of children with cochlear implants. Conclusion: The influencing factors that correlated with the quality of life of the implanted children were the child's older age at the evaluation, the better hearing and language skills, the mother's level of schooling and the family receptiveness.
The children speak: An examination of the quality of life of pediatric cochlear implant users
Otolaryngology - Head and Neck Surgery, 2010
To examine the results of health-related qualityof-life questionnaire scores from profoundly deaf children fitted with at least one cochlear implant (CI) and to compare their responses with those of normal-hearing mates of similar age and their parents. STUDY DESIGN: Cross-sectional study utilizing a generic quality-of-life questionnaire designed to be completed by both parents and children independently of each other. SETTING: Questionnaires completed at various summer camps designed for children with CIs in Texas and Colorado. SUBJECTS AND METHODS: Eighty-eight families from 16 states were divided into two subgroups by age of cochlear implantation: an eight-to 11-year-old group and a 12-to 16-year-old group. The KINDL-R Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents was distributed, and CI participants completed the questionnaire independently of their participating family member. RESULTS: CI users in both age groups scored similarly to their normal-hearing peers and their parents. Younger CI users scored their family domain lower compared with their normal-hearing peers. Teen CI users scored the school domain lower compared with their parents. Among CI participants, earlier implantation and longer CI use resulted in higher quality-of-life scores. CONCLUSION: Children with CIs experience quality of life similar to that of normal-hearing peers. Parents are reliable reporters on the status of their child's overall quality of life.
Parent versus child assessment of quality of life in children using cochlear implants
International Journal of Pediatric Otorhinolaryngology, 2009
Objective: Children with hearing loss who use cochlear implants have lower quality of life (QoL) in social situations and lower self-esteem than hearing peers. The child's QoL has been assessed primarily by asking the parent rather than asking the child. This poses a problem because parents have difficulty judging less observable aspects like self-esteem and socio-emotional functioning, the domains most affected by hearing loss. Methods: This case-control study evaluated QoL in 50 preschoolers using a cochlear implant and their parents with the Kiddy KINDL 1 , an established QoL measure. Children's responses were compared to a hearing control group and correlated with demographic variables. We used a questionnaire for parents and a face-to-face interview with children. T-tests were used to compare (a) paired parent-child ratings and (b) children with cochlear implants versus normal hearing. Pearson rank correlations were used to compare QoL with demographic variables. Results: Children using cochlear implants rated overall QoL significantly more positively than their parents (M Difference = 4.22, p = .03). Child rating of QoL did not differ significantly by auditory status (cochlear implant (82.8) vs. hearing (80.8), p = .42). Overall QoL correlated inversely with cochlear implant experience and chronologic age, but did not correlate with implantation age. Conclusions: Preschool children using cochlear implants can assess adequately their own QoL, but parents afford valuable complementary perspective on the child's socio-emotional and physical wellbeing. Preschool children using cochlear implants rate overall QoL measures similar to hearing peers. A constellation of QoL measures should be collected to yield a better understanding of general QoL as well as specific domains centered on hearing loss. ß
Parent-reported quality of life in children with cochlear implants differs across countries
Frontiers in Psychology
Pediatric cochlear implantation affects communication skills and quality of life, specifically how children interact with others and feel about themselves. Numerous studies worldwide examine well-being among pediatric cochlear implant users, but none to date compare condition-specific quality of life across countries. This retrospective study compares parent-reported cochlear implant-specific quality of life summary data across 14 published studies spanning 11 countries and 9 languages. Sample size ranged from 7 to 370 participants, and children across studies varied in mean chronologic age (3.1–12.2 years), implantation age (1.5–4.6 years), and cochlear implant experience (1.3–8.2 years). Parents completed the Children with Cochlear Implants: Parental Perspectives (CCIPP) questionnaire, an instrument assessing parent-reported cochlear implant-specific quality of life, in their home language. Analysis of variance tests were run for each CCIPP subscale across studies using summary da...
Issues faced by Parents of Children with Cochlear Implant in Everyday Life
2019
DOI: 10.21276/sjams.2018.6.12.27 Abstract: The current study is observational study was conducted on a total of 100 participants. The participants were parents (from either parents or both) of children with cochlear implant. The data was collected from subjects who had enrolled in different government schemes (MBSY, ADIP, RBSK) for receiving free of cost pre and post cochlear implant services. Two groups of Life Stress after CI & Depression after CI with Mean 1.92 & 2.23 & S.D 0.63 & 0.46 respectively among the response of the questionnaire 16 responses out of 28. The current study described parent’s everyday problems that are associated with raising children who undergo CI. So while planning intervention to children we need work upon the issues which parents of children with CI are going through and could at the same time empower parents to acquire specific competencies in efficiently solving problems and coping with various parenting demands.
Children with Hearing Loss Health-Related Quality of Life and Parental Perceptions
International Education Studies
This study aimed to evaluate two objectives: first, the health-related quality of life (HRQoL) and socio-demographic characteristics of children with cochlear implants (CIs) or hearing aids (HAs) on the Kid-KINDLR_children_7-13 questionnaire, and second to analyze parental background factors and the perceptions of their children with CIs or HAs on the Kid_Kiddo-KINDLR_Parents_ 7-17 questionnaire. The data consisted of 89 children with CIs and 63 children with HAs and their 89 parents, respectively. The characteristics of children and the parental factors included demographic and audiological variables. Student’s t-test and one-way ANOVA were used to analyze the two objectives. Children with CIs exhibited a perception of better HRQoL in comparison with children with HAs. Among other differences, children with CIs or HAs and their parents were significantly distinct in the variable Setting (t = 2.921, p < 0.010). Moreover, parents of children with CIs or HAs were significantly diff...
The Egyptian Journal of Otolaryngology
ObjectivesWhen children are diagnosed with loss of hearing, different aspects will influence the parents’ decision-making process of cochlear implantation. Little information is available for coping experience and challenges associated with parenting cochlear implanted children. The objective of this work was to study parental knowledge of parental expectations versus experiences about CI children and to explore the challenges they might face.Material and methodsParticipants were parents of 50 Egyptian children with CI (28 males and 22 females). The children’s ages ranged from 5 to 8 years with a mean age of 6.55 years. An Arabic questionnaire was designed to evaluate parental perspectives and challenges during the CI procedure.ResultsMost of the parents were satisfied with the amount of knowledge they received before implantation. Nearly half of parents (48%) received their knowledge about CI from the experience of others. Parents who d a sufficient awareness of the prerequisites o...
Parental perspectives on the quality of life of children with cochlear implants in Armenia
IJQHC Communications
ObjectivesThe aim of this project is to assess the quality of life (QOL) of children living with cochlear implants (CIs) in Armenia using the ‘Children with Cochlear Implants: Parental Perspectives’ (CCIPP) questionnaire.DesignA group of children received CIs after an international medical mission trip. Parents of 39 children who received CIs (30 male and 9 female, age range between 1 and 7 years, mean 6.31 years post-implantation, and mean age at time of implantation 2.92 years old) completed the CCIPP questionnaire. The questionnaire had 107 items, which were scored using a 5-point Likert scale.ResultsGeneral functioning, communication, and support of the child domains (mean 4.13, 4.01, and 4.00, respectively) achieved the highest ratings. Effects of implantation (mean 2.97) and education (mean 3.24) received less positive ratings. Communication, general functioning, social relationship, and well-being and happiness had the most positive correlations with other domains (P < 0.0...
Parents’ View on Quality of Life after Cochlear Implantation in Children with Auditory Neuropathy
The Journal of International Advanced Otology, 2019
OBJECTIVESThe aim of this study is to evaluate the quality of life in pediatric patients with auditory neuropathy according to the perspective of their parents after cochlear implantation.MATERIALS and METHODSThe pediatric patients, who underwent cochlear implantation with the diagnosis of auditory neuropathy at İzmir Bozyaka Training and Research Hospital ENT Clinic between January 1997 and May 2017, were included to the study. “Parents’ Perspective Questionnaire” developed by Nottingham Pediatric Cochlear Implant Programme was used in the study. The questionnaire was composed of 11 subscales and 58 questions in total.RESULTSThe study included 26 pediatric patients (14 female, 12 male) who used cochlear implant for at least 1 year. The mean age of patients was 10.91±3.85 (4.3–17.3 years old) and implantation age varied between 14 months and 80 months. (median; 35.65±20.03 months). Patients who attended school had more self-confidence, and also those having implant use over 6 years had a better self confidence and social relationship.CONCLUSIONCochlear implantation not only improves the ability of hearing but also provides development of speech and language skills and therefore enhancing the patient’s quality of life. From the perspective of parents, the use of cochlear implant in the children with auditory neuropathy improves the quality of life in many different ways. The perspective of parents can provide a multidimensional evaluation about the child’s progress, therefore, it should be taken into consideration by the staff in implant centers.