Children with Hearing Loss Health-Related Quality of Life and Parental Perceptions

Heliyon

First, this study aimed at evaluating the health-related quality of life (HRQoL) and socio-demographic characteristics of children with cochlear implants (CIs) and hearing aids (HAs) from the 2 provinces of the Canary Islands (Spain) on the Kid-KINDL R _children_7-13. The second goal was to analyze parental background factors and the perspectives of their children with CIs and HAs on Kid_Kiddo-KINDL R _Parents_ 7-17. Finally, the third objective was to explore agreement between children's self-reports and their parents' reports concerning HRQoL. Design: The data consisted of 89 children with CIs and 63 children with HAs and their 89 parents, respectively. The socio-demographic characteristics of children and parental background factors included demographic and audiological variables. Student's t-test, one-way ANOVA, post hoc analysis and 4 concordance correlation coefficients (CCC) were used to address the 3 aims. Results: Children with CIs exhibited a perception of better HRQoL in comparison with children with HAs. Among other differences, children with CIs and HAs and their parents were significantly distinct in Setting (i.e., provinces of Tenerife and Gran Canaria) (t ¼ 2.921, p < 0.010). Moreover, parents were significantly different in some background factors (i.e., age, socioeconomic status, and learning). While Cohen's Kappa values for most dimensions were too small, the ICC and Student's t-test expressed only concordance in the overall HRQoL and Physical well-being. Conclusions: Children with CIs and their parents demostrated a perception of better HRQoL than children with HAs and their parents. Overall, children's self-ratings of HRQoL differed from their parents' reports.

Parents Perceived Quality of Life for Children with Cochlear Implants

International Journal of Otolaryngology and Head & Neck Surgery

The purpose of the study is to identify the important aspects of quality of life assessed in children with cochlear implant. Parental Perspective questionnaire with modified in Bangla was used as a data collection tool in this study. Data was collected through face to face interview with 25 parents of children with Cochlear Implant (CI) attended at Bangabandhu Sheikh Mujib Medical University, Dhaka. Among 25 cochlear implant children, the boys (12) and girls (13) were nearly the same. Results indicated that the majority of the children had difficulties with communication with known people (48.00%) and before implantation children with CI obtained no benefit at all from hearing aids (76.00%). However, the research finding shows that they are largely satisfied with the outcomes from implantation. Improvement of social relationship, family well-being, within the family, educational condition, and self-reliance was satisfactorily reported by the parents. This study would help the clinician, speech pathologist, children and parents to raise awareness about the impact of CI and its treatment.

Factors influencing the quality of life of children with cochlear implants

Brazilian Journal of Otorhinolaryngology, 2020

Introduction: The multidimensional impact of hearing loss on the various demands of life in children using cochlear implants is represented by variables that can influence the hearing, language and quality of life outcomes of this population. Objective: To evaluate the factors influencing the quality of life of children with cochlear implantation, considering age, hearing age, age at evaluation, hearing skills, spoken language, family degree of receptiveness, schooling and socioeconomic status of the parents. Methods: Participated 30 children using cochlear implants, aged 6 to 12 years and their respective parents. The children were evaluated by the categories auditory performance, by language category, and by the children with cochlear implants: perspectives parents questionnaire. Parents were assessed by the family involvement scale. Results: The cochlear implant impacted the quality of life of the children, with more significant results on the increase of the social relations domain and the decrease of the family support domain. Overall, the increase of the age in the evaluation, better hearing and language skills, the mother's level of schooling and the family receptiveness correlated with the quality of life of children with cochlear implants. Conclusion: The influencing factors that correlated with the quality of life of the implanted children were the child's older age at the evaluation, the better hearing and language skills, the mother's level of schooling and the family receptiveness.

Quality of life of parents and siblings of children with cochlear implants

Journal of otology, 2019

This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). Design: This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domainsinteraction, emotional well-being and support for the hearing-impaired child and the overall QoL-and two open-ended questions for participants to provide comments and suggestions to enhance their family's QoL. A total of 63 questionnaires were e-mailed or mailed to families who met the inclusion criteria.

The children speak: An examination of the quality of life of pediatric cochlear implant users

Otolaryngology - Head and Neck Surgery, 2010

To examine the results of health-related qualityof-life questionnaire scores from profoundly deaf children fitted with at least one cochlear implant (CI) and to compare their responses with those of normal-hearing mates of similar age and their parents. STUDY DESIGN: Cross-sectional study utilizing a generic quality-of-life questionnaire designed to be completed by both parents and children independently of each other. SETTING: Questionnaires completed at various summer camps designed for children with CIs in Texas and Colorado. SUBJECTS AND METHODS: Eighty-eight families from 16 states were divided into two subgroups by age of cochlear implantation: an eight-to 11-year-old group and a 12-to 16-year-old group. The KINDL-R Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents was distributed, and CI participants completed the questionnaire independently of their participating family member. RESULTS: CI users in both age groups scored similarly to their normal-hearing peers and their parents. Younger CI users scored their family domain lower compared with their normal-hearing peers. Teen CI users scored the school domain lower compared with their parents. Among CI participants, earlier implantation and longer CI use resulted in higher quality-of-life scores. CONCLUSION: Children with CIs experience quality of life similar to that of normal-hearing peers. Parents are reliable reporters on the status of their child's overall quality of life.

Parent versus child assessment of quality of life in children using cochlear implants

International Journal of Pediatric Otorhinolaryngology, 2009

Objective: Children with hearing loss who use cochlear implants have lower quality of life (QoL) in social situations and lower self-esteem than hearing peers. The child's QoL has been assessed primarily by asking the parent rather than asking the child. This poses a problem because parents have difficulty judging less observable aspects like self-esteem and socio-emotional functioning, the domains most affected by hearing loss. Methods: This case-control study evaluated QoL in 50 preschoolers using a cochlear implant and their parents with the Kiddy KINDL 1 , an established QoL measure. Children's responses were compared to a hearing control group and correlated with demographic variables. We used a questionnaire for parents and a face-to-face interview with children. T-tests were used to compare (a) paired parent-child ratings and (b) children with cochlear implants versus normal hearing. Pearson rank correlations were used to compare QoL with demographic variables. Results: Children using cochlear implants rated overall QoL significantly more positively than their parents (M Difference = 4.22, p = .03). Child rating of QoL did not differ significantly by auditory status (cochlear implant (82.8) vs. hearing (80.8), p = .42). Overall QoL correlated inversely with cochlear implant experience and chronologic age, but did not correlate with implantation age. Conclusions: Preschool children using cochlear implants can assess adequately their own QoL, but parents afford valuable complementary perspective on the child's socio-emotional and physical wellbeing. Preschool children using cochlear implants rate overall QoL measures similar to hearing peers. A constellation of QoL measures should be collected to yield a better understanding of general QoL as well as specific domains centered on hearing loss. ß

Parents' Perception of Quality of Life of their Elementary School Children with Hearing Impairment Using Hearing Aids

Tanta Scientific Nursing Journal, 2021

Background: Hearing impairment is the most common disabilities that have negative impact on the quality of life of affected children and their families. The aim of this study was to: assess parents' perception level of quality of life of their elementary school children with hearing impairment using hearing aids. Subjects and method: Study design: A descriptive study design was utilized in this study. Study settings: This study was conducted in audiology outpatient clinic of the School Health Insurance Hospital at Tanta City. Study subjects: A convenient sampling of 150 of elementary school students who diagnosed with hearing impairment using hearing aids and their parents which constitute 150 were included in the study. Tool of data collection: one tool was used by the researcher to collect the necessary data. Tool I: A structured interview schedule: this tool included five parts: Part (1): Socio-demographic characteristics of the students and their parents. Part (2): History of hearing impairment and using hearing aids. Part (3): History of the academic achievement of the students. Part (4): Children using hearing devices quality of life. Part (5): Pediatric Quality of Life Inventory. Results: about half (47.3%) of the child's performance after fitting of hearing aids was fair, while less than half (42.7%) of them had good, less than two thirds (61.3%) of the studied school children' parents had a fair score regarding quality of life and nearly one fifth (20.0% and 18.7% respectively) of the studied school children' parents had a good and poor score. Also there was a highly significant positive correlation between levels of pediatric quality of life inventory of the studied school children and the levels of the studied school children parents of their children using hearing device quality of life as (p=0.000) and (r=0.407). Conclusion: It can be concluded that, less than two thirds of studied school children parents had a fair score according to their children using hearing devices quality of life. Recommendations: It was recommended that, written instructions about hearing aids in the form of booklets or brochures should be provided to each child with hearing impairment using hearing aids and their parents in order to encourage them in effective adherence to the plan of care.

Parent-reported quality of life in children with cochlear implants differs across countries

Frontiers in Psychology

Pediatric cochlear implantation affects communication skills and quality of life, specifically how children interact with others and feel about themselves. Numerous studies worldwide examine well-being among pediatric cochlear implant users, but none to date compare condition-specific quality of life across countries. This retrospective study compares parent-reported cochlear implant-specific quality of life summary data across 14 published studies spanning 11 countries and 9 languages. Sample size ranged from 7 to 370 participants, and children across studies varied in mean chronologic age (3.1–12.2 years), implantation age (1.5–4.6 years), and cochlear implant experience (1.3–8.2 years). Parents completed the Children with Cochlear Implants: Parental Perspectives (CCIPP) questionnaire, an instrument assessing parent-reported cochlear implant-specific quality of life, in their home language. Analysis of variance tests were run for each CCIPP subscale across studies using summary da...

Parental perspectives on the quality of life of children with cochlear implants in Armenia

IJQHC Communications

ObjectivesThe aim of this project is to assess the quality of life (QOL) of children living with cochlear implants (CIs) in Armenia using the ‘Children with Cochlear Implants: Parental Perspectives’ (CCIPP) questionnaire.DesignA group of children received CIs after an international medical mission trip. Parents of 39 children who received CIs (30 male and 9 female, age range between 1 and 7 years, mean 6.31 years post-implantation, and mean age at time of implantation 2.92 years old) completed the CCIPP questionnaire. The questionnaire had 107 items, which were scored using a 5-point Likert scale.ResultsGeneral functioning, communication, and support of the child domains (mean 4.13, 4.01, and 4.00, respectively) achieved the highest ratings. Effects of implantation (mean 2.97) and education (mean 3.24) received less positive ratings. Communication, general functioning, social relationship, and well-being and happiness had the most positive correlations with other domains (P < 0.0...

International Journal of Audiology, 2019

The aim of this study was to describe health-related quality of life (HRQoL) outcomes of school-going pediatric cochlear implant (CI) recipients in a South African cohort from the perspectives of parents and to relate parental ratings of HRQoL to a range of demographic variables. Parents of school-going CI recipients completed the Children with Cochlear Implants: Parental Perspectives (CCIPP) CI specific HRQoL questionnaire. The effect of different demographic variables on HRQoL outcomes was also determined. The study sample included 54 parents of school-going (mean age = 12.2 years; 3.6 SD; range = 6.6-18.3 years) CI recipients with at least six months CI experience. Children's communication and general functioning with a CI received the most positive parental ratings. A number of statistically significant associations between HRQoL outcomes and demographic variables have been confirmed. A mainstream educational setting was associated with better HRQoL outcomes in terms of communication and education, while pre-lingual onset of deafness was associated with better HRQoL outcomes in terms of general functioning and well-being. Shorter duration of deafness and unilateral implantation were associated with higher parental ratings for self-reliance and well-being respectively. Longer duration of CI use was linked to better ratings for general functioning, while shorter duration of CI use was linked to improved ratings for effects of implantation. viii Parents assigned positive ratings to their child's HRQoL. This exploration of children's HRQoL related to their CIs contributes to evidence-based pediatric CI services that support optimal psychosocial outcomes.

Children with Hearing Loss Health-Related Quality of Life and Parental Perceptions (original) (raw)

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