Psychological distress among caregivers of patients with schizophrenia (original) (raw)

Journal of Ayub Medical College, Abbottabad: JAMC

Background: Schizophrenia is a devastating disorder not only for the patients but also for their caregivers. The caregivers of the patients suffer from psychological distress but receive minimum support from psychiatric services. Objectives were to assess the stress level in caregivers of patients with schizophrenia and to determine the association of stress with demographic variables of caregivers. Methods: It was a descriptive hospital based study carried out in Psychiatry Department of Khyber Teaching Hospital, Peshawar. Fifty caregivers were included in the study during a period of one year. Socio-demographic variables were recorded on specially designed pro forma. Stress level was assessed by using Self Report Questionnaire (SRQ-20) with a cut off score of 9 being taken as stressed. Results: Mean age of the caregivers was 45.44±14.25 years. Forty-two (84%) caregivers were males and 8 (16%) were females. Twenty-eight (56%) were uneducated, 16 (32%) had Primary education, 4 (8%) were matriculates and 2 (4%) graduates. Thirty-four (68%) of the caregivers were married 8 (16%each unmarried and widows/widowers. Thirty-two (64%) were unemployed and 18 (36%) were employed. Two (4%) had been providing care for less than 6 months, 4 (8%) for less than 12 months, 10 (20%) for less than 18 months, 2 (4%) for less than 24 months and 32 (64%) for more than 24 months. 22 (44%) were parents, 14 (28%) were siblings, 2 (4%) were children of the patients. Thirty-six (72%) caregivers were having score of more than 9 on SRQ-20. Stress showed a statistically significant association only with age (p-value <0.004). Conclusion: Psychological distress is present in majority of the caregivers of patients with schizophrenia. There is statistically significant association between age of the caregiver and psychological distress, while gender, educational status, marital status, occupational status, duration of care and relation with the patient are not associated with psychological distress.

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Factors associated with caregiver psychological distress in chronic schizophrenia

Social Psychiatry and Psychiatric Epidemiology

Background and aims Caregivers of patients with schizophrenia experience increased levels of psychological distress. This study investigated the impact of caring for patients with chronic schizophrenia on the mental health status of the caregivers and described the relationship between various socio-demographic and clinical characteristics and caregiving psychological distress. Methods The study was carried out at the Psychiatric Hospital of Athens. The Symptom Check List Revised (SCL-90-R) was administered to 87 caregivers of chronic schizophrenia patients and 90 healthy controls. The Positive and Negative Syndrome Scale (PANSS) was administered to schizophrenia patients in order to assess illness severity. Results The group of caregivers scored higher on the majority of symptom dimensions of the SCL-90-R than the control group. Clinical features of schizophrenia, i.e. duration of illness and PANSS positive and negative symptoms significantly predicted caregiving psychological distress. Caregivers' and patients' socio-demographic characteristics were not associated with caregivers' distress, with the exception of caregivers' sex: female caregivers experienced significantly higher levels of psychological distress than males.

Determining care burden and psychiatric symptom level in caregiver of schizophrenia patient

Perspectives in Psychiatric Care, 2020

Purpose: The present study was conducted to determine the care burden and psychiatric symptom levels of the caregivers of schizophrenic patients. Design and Methods: The caregivers of schizophrenic patients were included in this descriptive study. Findings: It was determined that there was a statistically significant difference in the care burden scores and the education, family type, and the presence of physical diseases of the caregivers (P < .05). It was determined that there was a statistically significant positive relation between age and care duration (r = .339, P = .001).

The prevalence of Psychological Distress and associated factors among Caregivers of Schizophrenia Outpatients: The Case of Amanuel Mental Specialized Hospital

2015

The main purpose of this study was to assess the prevalence of psychological distress and associated factors among caregivers of schizophrenia outpatients in Amanuel mental specialized hospital, Addis Ababa, Ethiopia. This study used a cross-sectional survey research design and selected 110 sample of caregivers by using purposive sampling technique. Standardized instruments were used to collect data, namely Self Report Questionnaire (SRQ 20), Experienced Stigma Scale the Family Version, and Oslo 3 items Social Support Scale (OSS-3). The results of the study showed that 53 (48%) of the participants were found psychologically distressed. Current symptomatology compared to a year ago shows a significant relationship with psychological distress of caregivers (p-value <0.01).employed and unemployed caregivers show a significant mean difference on the score of psychological distress. Spearman's correlation indicated that Experience of stigma has a positive and social support has a negative statistically significant relationship with psychological distress (p-value=.000). Logistic regression analysis indicates that caregivers who experience stigma and low social support have the likelihood of experiencing psychological distress. Mental health professionals and social workers have to give concern for the psychological wellbeing of caregivers of schizophrenia out patients.

Factors that Impact Caregivers of Patients with Schizophrenia

Current Health Sciences Journal, 2019

Schizophrenia, a term first introduced by Eugen Bleurer in 1911, is a controversial topic, a symbol of profound behavioral and personality disorders. Although schizophrenia mainly affects the patients, directly, it indirectly affects their caregivers. Because caregivers of subjects with schizophrenia experience significant burden in taking care of the patient, usually over a long period of time, we decided to analyze some of the factors that can impact the perceived level of stress. Our study group consisted of caregivers 124 patients with schizophrenia, interviewed between January 2018 and July 2019. We analyzed demographic, clinical and other medical variables of patients and caregivers. We also evaluated caregivers’ burden, using the adapted Zarit interview. The average Zarit score in our study was 42.36±8.64, which shows moderate to high burden. Several factors that influence the perceived burden of the caregiver have been identified, such as patient gender, age of onset, patien...

Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia

Background: Caregiving in schizophrenia is a demanding and exhausting activity that challenges the physical and emotional resources of family caregivers. In traditional societies such as India, this is further compounded by illiteracy, ignorance and religious and cultural explanations attributed to mental illness. Aims: This study aimed to assess primary caregivers of persons with schizophrenia in terms of their perceived burden, manifestation of psychological distress and quality of life (QOL). Methods: The study used a quantitative cross-sectional design and survey methodology to collect data from caregivers in a hospital setting in Thanjavur, India. Standardized instruments were used to collect data from patients and their caregivers. Results: High perceived burden and lower QOL were seen in the majority of caregivers. They also manifested high levels of anxiety and depression. Patient characteristics such as age, gender, symptoms and duration of illness did not influence the perceived burden of caregivers, while positive and negative symptoms and the duration of illness were correlated with their QOL. Conclusions: Findings indicate the need for intervention for family caregivers to enable them cope more effectively with the demands of caregiving. Psychoeducation and participation in peer support groups are advocated as low resource and effective outcome strategies for caregivers in India.

Quality of life in caregivers of patients with schizophrenia: A literature review.

Health and quality of …, 2009

Background: A couple of decades ago, hospitals or psychiatric institutions were in charge of caring for patients with schizophrenia; however, nowadays this role is performed by one or more patient's relatives. Evidence shows that informal caregivers experience negative changes in their quality of life (QOL). The aim of this study is to review the main factors associated with the QOL of caregivers of people with schizophrenia.

Caregiver Burden and Expressed Emotion in Caregivers of Patients with Schizophrenia

Journal of Psychosocial Rehabilitation and Mental Health, 2016

Families often bears substantial amount of burden of any chronic psychiatric illness including schizophrenia. Only few Indian studies have studied expressed emotion and caregiver burden among patient with schizophrenia in India. Therefore, we aim to explore the burden and expressed emotion in caregivers of schizophrenia patents. Consecutive patient who meet the inclusion criteria were enrolled in the study from July 2012 to April 2013 from outpatient department of psychiatry at Institute of Mental Health and Hospital Agra. Information regarding socio-demographic characteristics (e.g. age, gender, domicile) was recorded on a semi structured questionnaire. Caregiver burden and expressed emotion were measured using Burden Assessment Schedule (BAS) and Family Emotional Involvement and Criticism Scale (FEICS) respectively. Mean age of patient and caregivers of schizophrenia was 36.15 (SD = 9.58) and 39.12 (SD = 12.47) respectively. Majority of the schizophrenic patients and their respective caregivers were male (82 and 57.5 % respectively). Mean BAS, FEICSEOI and FEISCPC score were 79.7 (SD = 5.9), 2.7 (SD = 0.7) and 3.7 (SD = 0.5) respectively. There was no significant correlation between BAS domains and FEICSEOI and FEISCPC. Urban residence of the patient was positively correlated with perceived criticism. Unemployment was positive correlated with FEICSOI and negatively correlated with FEISCPC. Age of the caregiver was positively correlated with spouse related burden and negatively correlated with caregivers routine and external support. Marital status was positively correlated with physical and mental health burden and other relations and negatively correlated with external support. Occupation (unemployment) was positively correlated with BAS domains of support of patient, taking responsibility and other relations. The results of the study revealed considerable burden of care in caregivers of patients with schizophrenia. Thus, emphasize the need for psychosocial support to the caregivers to effectively cope and manage the ill family member.

Psychiatric Morbidity among Caregivers of Schizophrenia Patients – A Study in Tertiary Care Psychiatric Hospital in Dhaka

Journal of Current and Advance Medical Research, 2015

Background: Severe mental illness like schizophrenia has far-reaching consequence for both patients and caregivers and their relatives and they also experience feeling of loss and grief. They are confronted with uncertainty and emotion of shame, guilt and anger like the patients they feel stigmatized and socially isolated. Caring for a family member with schizophrenia is an enduring stressor and causes considerable amount of burden. Objective: To assess mental health status of the caregivers of schizophrenia patients. Methodology: This descriptive cross sectional study was done among the caregivers of schizophrenia patients in outpatient and inpatient department of National Institute of Mental Health (NIMH), Dhaka, Bangladesh from September 2010 to February 2011. A semi-structured Questionnaire and General Health Questionnaire-28 (GHQ-28) were applied to the caregivers of schizophrenia patients who fulfilled the inclusion criteria. Among the respondents whose GHO-28 score were 4 or ...

Burden experienced by caregivers of schizophrenia patients and its related factors

Medical Journal of The Islamic Republic of Iran

Background: Deinstitutionalization of patients with schizophrenia shifted the primary locus of care from psychiatric hospitals to family and informal caregivers. Family members often play a vital role as caregivers in the lives of individuals with schizophrenia and other serious mental illnesses. This study aimed to assess the burden experienced by the caregivers of patients with schizophrenia and to evaluate its correlation with some demographic characteristics of patients, their caregivers, and the level of expressed emotion in the family. Methods: This descriptive-analytic study was conducted on 172 schizophrenic patients and their primary caregivers, selected from the outpatient department of a psychiatric hospital in Tehran, Iran, using convenience sampling. Caregivers were evaluated with Zarit Burden Interview and Family Questionnaire to assess the burden experienced by the caregivers and the level of expressed emotion in the family, respectively. Data were analyzed using Spearman correlation coefficient and linear regression method. Data were analyzed using SPSS software (Version 21) and significance level was set at p< 0.05. Results: The level of burden experienced by most of primary caregivers was higher than moderate. The scores obtained in the subscales of emotional over involvement and critical comments were higher than the cutoff point in 51.7% and 64.5% of caregivers, respectively, and the scores had a significant direct correlation with the burden experienced by the caregivers. The findings of multiple linear regression showed that lower family income (β=-0.33, p< 0.001), higher duration of disorder (β= 0.19, p= 0.006), and younger age at onset of the disorder (β=-0.26, p= 0.001) were predictive of higher burden of disease on caregivers. Conclusion: Based on the results, some demographic factors of the primary caregivers, patients, and their family significantly affected the burden experienced by the primary caregivers. Most of the caregivers had high expressed emotions and a significant direct association existed between the expressed emotions and the burden experienced.

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