Disruption of parent participation: nurses’ strategies to manage parents on children's wards (original) (raw)

Assessment of Parent and Nurse Perceptions of Parental Participation in Hospital Paediatric Care

The Open Nursing Journal

Background: Parent and nurse perceptions about the care of hospitalized children have been examined in developed countries, but little is known in developing countries. Objective: The study aims to evaluate the perceptions of nurses and parents towards parental participation in care for hospitalized children and associated factors. Methods: A cross-sectional design was used to collect data from nurses and parents in paediatric units in the Eastern Region of Saudi Arabia using a convenience sampling technique. Data were collected using the Parent Participation Attitude Scale (PPAS), and the agreement and differences between groups were analysed. Results: The present results found that both parents and nurses agreed on 7 out of 20 statements regarding parental involvement in care for their children. Nurses in paediatric surgery had a higher perception of involving parents (P = 0.002), while nurses in Well Baby Nursery (WBN) ward had the lowest perception. The present findings confirm ...

Parents’ experiences of participation in the care of hospitalised children: A qualitative study

International Journal of Nursing Studies, 2006

Background: The introduction of unrestricted visiting hours has led to the encouragement of parents to stay with and participate in the care of their hospitalised child. In order to stay with the hospitalised child, parents have to be away from home or work, which in turn impacts on their personal and family life. However, no published study on parents' experiences of childcare participation during paediatric hospitalisation has been found for a Chinese population. Objectives: This study explored Chinese parents' experiences of their participation in taking care of their hospitalised child. Design: A qualitative exploratory design was adopted to capture parents' experiences of participation. Settings: The study was conducted in four paediatric wards of a regional acute general hospital in the New Territories, a major geographical region of Hong Kong. Participants: Nineteen parents (16 mothers and three fathers) who had a child hospitalised for more than 48 h and identified themselves as staying comparatively longer with the child than their counterpart were recruited. Methods: Data were collection by tape-recorded semi-structured interview. Results: Four major categories that illustrated parents' experiences of participation in childcare were identified: reasons for staying with the child, rescheduling of family's routine, expectations of nurses, and comments on facility provisions. The findings highlight parents' desire for participation in caring for their hospitalised child, their unexpressed needs for communication and concern about the non-monetary costs of participation. Conclusions: Most parents viewed accompanying their hospitalised child as an unconditional aspect of being a parent and had a strong desire for participation. Parents' need for communication and emotional support during their participation of childcare in paediatric unit are universal. As Chinese parents are passive in seeking help, nurses should take the initiative in assessing their needs and offering them support accordingly. r

Roles of nurses and parents caring for hospitalised children

Nursing children and young people, 2016

This article reviews the literature on nurses' and parents' self-perceived roles when caring for hospitalised children, focusing on research conducted since the Department of Health published the National Service Framework for Children: Standard for Hospital Services in 2003. Three main themes emerge from the review: nurses' perceptions, parents' perceptions, and negotiation. Clarification of what nurses and parents consider to be their respective roles when caring for hospitalised children is a prerequisite for negotiation of those roles. The family's background, life experiences and circumstances influence the effectiveness of negotiation between nurses and parents. The article explores potential barriers to negotiation, including poor communication and failure to provide information. Limitations of the research and the implications for practice are considered.

Parental Participation in the Care of Hospitalized Children

Scandinavian Journal of Caring Sciences, 1994

The purpose of this study was to investigate those parts of the care of hospitalized children that their parents perform, the nursing tasks the parents themselves felt they could manage and whether parents' and staff members' opinions coincided. A questionnaire was given to parents of children between one week and five years of age who were hospitalized at a pediatric surgical department during a 6-week period (n =a), a similar questionnaire being distributed to all the staff (n = 44). The results indicate that parents stay with their children during hospitalization and that they take responsibility for their children's basic care and needs. Parents and staff members believed that parents might be able to take on a greater share of caring activities if they were given instruction and support, though there was disagreement as to which nursing tasks are appropriate for parents to take on.

A study of role negotiation between nurses and the parents of hospitalized children

Journal of Advanced Nursing, 1991

A study of role n^otiation between nurses and tiie parents of hospitalia%d dtiildren The role of the parent of a hospitalized child has changed considerably over the past 30 years Where parents were previously expected to hand responsibility for care over to their child's nurses, there is now an expectation that parents will be extensively involved in the care of their hospitalized children The negotiation of roles between nurses and parents has been advocated by workers concerned about conflicts between nurses and parents However, it is not known whether sudi negotiation takes place between nurses and parents It is clear that power is not evenly distnbuted between nurses and parents issues of temtory, stress, anxiety, uncertainty, control and conflicts ansing from parental competence all place the parent in a weaker position It is argued that the nurse holds the initiative in the deasion about whether negotiation takes place. A anaU study is descnbed in which nurses were invited to descnbes their response to their f>erception that a parent wanted to increase or decrease her or his involvement in her or his child's care The cntical incident technique (Flanagan 1954) was used to collect data Nurses' responses were categorized mto categones of 'encouragenwnt', 'explanation/advice' and 'negotiation'. Responses were then placed m more specific subcategones The inter-rater reliability of the categorization was measured. Owing to the limitahons of the study, the results can only be regarded as suggestive. Nevertheless, significant assoaation was found between the category of response and the grade of staff, with a stratified pattern of category of response demonstrated The unplicahons of the study for future research are discussed.

Parent-nurse interactions: care of hospitalized children

Journal of Advanced Nursing, 2003

Parent-nurse interactions: care of hospitalized children Background. An essential component of quality nursing care is nurses' ability to work with parents in the hospital care of their children. However, changes in the health care environment have presented nurses with many new challenges, including meeting family-centred care expectations. Aim of the paper. To report a research study examining the experiences of parents who interacted with nurses in a hospital setting regarding the care of their children. Methods. A qualitative approach was employed for this study. In-depth audiotaped interviews were conducted with eight parents representing seven families. Data collection was completed over a 7-month period in 2001. Findings. Parents characterized their experiences with nurses caring for their children as interactions, and identified the elements of establishing rapport and sharing children's care as key to a positive perception of the interactions. These elements were influenced by parental expectations of nurses. Changes in nurses' approach were reported by parents as the children's conditions changed. Conclusion. Nurses were able to work with families in the hospital care of their children in ways that parents perceived as positive. However, in parents' views, their interactions with nurses did not constitute collaborative relationships. A deeper understanding of these interactions may provoke new thinking about how to promote an agency's philosophy, and how nurses enact this philosophy in practice.

Mutual Expectations of Mothers of Hospitalized Children and Pediatric Nurses Who Provided Care: Qualitative Study

Journal of Pediatric Nursing, 2017

This study attempted to identify the mutual expectations of mothers whose children were hospitalized in the pediatric department of a university hospital and nurses who provided care. Design and Methods: A descriptive phenomenological design has been used in this study. Data were obtained through tape-recorded semi-structured interviews. This study was conducted at a pediatric clinic, at a university hospital in a small city in Turkey. Participants comprised five nurses working in the children's clinic and 24 mothers who accompanied their children to the hospital. Results: The six major themes that emerged were mothers' feelings and thoughts about the hospital experience, mothers' expectations for attention and support during hospitalization, mothers' expectations for invasive procedures, issues regarding physical comfort and hospital infrastructure, nurses' feelings and thoughts about working in the pediatric clinic, and nurses' expectations of the mothers. Conclusions: Mothers expected nurses to provide physical support including medication administration, and installing/applying IV and nebulizer treatments; and emotional support in terms of having a friendly, rather than critical attitude, and being approachable and receptive of mothers' questions and anxieties. Nurses stated that they were aware of these expectations but needed mothers to be understanding and tolerant, considering their difficult working conditions. Practice Implications: Children's hospitalization is a stressful experience for parents. Open and therapeutic communication and relationships between parents and nurses contribute to improving the quality of care provided to children and their families.

A study of parental involvement in pediatric hospital care: implications for clinical practice

Journal of Pediatric Nursing, 2004

Background: Although it has become common practice for parents to stay with their sick child in hospital, most hospitals lack routines and staff guidelines for involving parents in care processes and decisions. Aim: To gain a deeper understanding of factors that influence parental involvement and to clarify the parental role in the hospital care of chronically ill children. Methods: Semistructured interviews with 14 parents of chronically ill children. Results: Four themes were identified: support, professionalism, work environment, and responsibility. These themes describe the experience and perceptions of parents who regularly spend time in the hospital with their children. Conclusions: Clinical practices regarding parental involvement need to be established to optimize the hospital care of chronically ill children.