Portuguese validation of the Urinary Incontinence-Specific Quality-of-Life Instrument: I-QOL (original) (raw)
Related papers
Manual Therapy, Posturology & Rehabilitation Journal, 2014
Introduction: Urinary incontinence (UI) can have a large impact on quality of life (QOL), which can harm social, economic, psychological and sexual aspects. Instruments are used to assess such damages. As it comes to subjective information, questionnaires are suitable tools to measure these variables. Objective: To identify the instruments used to assess the impact of urinary incontinence on quality of life and evaluate them regarding the psychometric properties. Method: A search for articles that used specific questionnaires to assess the impact of urinary incontinence on QOL was conducted using the following descriptors: urinary incontinence, questionnaire, quality of life, in English, Portuguese and Spanish in the following databases: PubMed, SciELO and Scopus, then the validation of questionnaires in Portuguese (Brazil) to classify them as to the process of cross-cultural adaptation and psychometric properties. Results: Seven questionnaires were found: International Consultation...
Quality of Life Research, 2005
Urinary incontinence (UI) has substantial and important impacts on health-related quality of life. The purpose of this research is to report the psychometric performance of 15 different language versions of the Incontinence-specific Quality of Life (I-QOL) measure, a patient-reported outcome measure specific to stress, urge and mixed urinary incontinence. The multi-national dataset consisted of data from four clinical trials for stress incontinent females and from two additional population studies, enrolling women with stress, urge and mixed UI. All enrolled patients completed the I-QOL and comparative measures at baseline. The clinical trial populations had multiple administrations up to 12 weeks, and the two population studies included a shorter retest. Country-specific psychometric testing for validity, reliability, and responsiveness followed standardized procedures. Confirmatory factor analyses were performed to assess the I-QOL subscales. The I-QOL measurement model was confirmed as three subscales. Summary and subscale scores for the 15 versions were internally consistent (alpha values = 0.91-0.96) and reproducible (ICC = 0.72-0.97). Using changes in the independent measures of incontinence episode frequency standardized response means were predominantly strong (ranged 0.71-1.05) across 13 versions (out of 15) in association with these measures and effect sizes. These additional language versions of the I-QOL instrument demonstrate psychometric properties similar to the original version. The I-QOL has shown good results in both community studies and clinical trials with varying types and severity of urinary incontinence. It is a reliable and valid measure of HRQOL, suitable for use in a variety of international settings.
Objective: To evaluate the quality of life of incontinent women, as well as their epidemiological profile and complaints of higher prevalence, in two health clinics in Porto Velho-RO. Methods: Quantitative research, with cross-sectional design, carried out in women with complaints of urinary incontinence (UI) after 35 years of age. The questionnaire, King's Health Questionnaire (KHQ), was used, which measures the quality of life of this group through questions with ready answers, between the dates 23/09/2019 and 03/04/2020. Results: The evaluated samples were analyzed by Pearson's correlation coefficient, where the correspondence between the domains listed by the KHQ as predictors of quality of life and various urinary symptoms was observed, so that the main symptoms referred were UI, UI of effort, UI in sexual intercourse, nocturia and urgency. Which influenced, in particular, in the domains physical limitations, social limitations, emotions and sleep / mood. Discussion: UI affects the quality of life of women in several aspects, directly related to the voiding symptoms presented by patients, among which stress UI, UI during sexual intercourse, nocturia, urgency and voiding frequency stood out.
Quality of Life Research, 2008
Objectives To evaluate the measurement properties of the EuroQoL EQ-5D and two condition-specific patientreported outcome measures-the Symptom Severity Index (SSI) and the Urinary Incontinence-Specific Quality of Life instrument (I-QoL)-in women with urinary incontinence. Methods A questionnaire comprising all instruments was completed by women taking part in a clinical trial of physiotherapy for urinary incontinence. Follow-up questionnaires were at 6 weeks and 5 months. Data quality, internal consistency reliability, validity and responsiveness were assessed. Results One hundred and seventy-four patients taking part in the clinical trial completed the questionnaire. Instruments had low levels of missing data. The EQ-5D had a large ceiling effect and poor responsiveness. The SSI had poor validity and responsiveness. The I-QoL had levels of reliability that supported application in group assessment, and in some cases, individual assessment, and good evidence of validity. The I-QoL was the most responsive instrument at both 6 weeks and 5 months. Conclusion The I-QoL was the best performing instrument and is recommended as a continence-specific measure of quality of life in a clinical trial setting. The SSI and EQ-5D are not recommended. Alternative generic instruments, which support economic evaluation, require further evaluation in trials of female urinary incontinence.
Arquivos De Gastroenterologia, 2004
Background: Anal incontinence causes physical and psychological incapacity, determining impact on quality of life. However, there are no specific tools to quantify this impact in our population. Aim: The evaluation of quality of life in anal incontinence, through validation of the FIQL ("Fecal Incontinence Quality of Life Scale"). FIQL is a questionnaire composed of 29 questions, grouped into four domains: lifestyle, behavior, depression and embarrassment. For each question, the scale ranges from 1 to 4, except questions 1 and 4, which ranges from 1-5 and 1-6, respectively. Material and method: FIQL scale underwent both translation and cultural adaptation processes, giving rise to a final Portuguese version. This version was then used in a validation study to test measurement properties (reproducibility and validity). The reproducibility was tested through application of FIQL questionnaire by two observers in 50 patients with anal incontinence. After a period of 7 to 10 days, the questionnaire was applied again by one of the observers. The constructive validity was assessed by correlating the FIQL questionnaire results with both, a generic questionnaire for quality of life (SF-36) and the Jorge-Wexner incontinence score results. The discriminative validity was evaluated comparing the results of the FIQL to incontinence group with two other groups: healthy volunteers and patient with chronic idiopathic constipation. Results: The correlation among results domains of FIQL questionnaire and results of short form-36 and the incontinence score were statistically significant. The quality of life is impaired in all of domains of FIQL for incontinent patients: lifestyle: 2.4 behaviour: 2.0, depression: 2.5 and embarrassment: 1.9, when compared to healthy volunteers (3.9, 3.9, 4.1 and 4.0), and patients with chronic constipation (3.7, 3.8, 3.6 and 3.8), respectively. Conclusion: The FIQL questionnaire is effective and reproducible in its measuring properties, and it can be useful as an instrument to assess quality of life in anal incontinence in our population.
Neurourology and Urodynamics, 2021
AimThis systematic review aims to identify disease‐specific and generic quality of life (QoL) outcome measurement instruments used in populations of women with urinary incontinence (UI) and to determine the most psychometrically robust and appropriate disease‐specific and generic tools for measuring the quality of life in this population.MethodsA systematic search was conducted of PubMed, Embase, SCIELO, and CINAHL databases for studies evaluating measurement properties of QoL instruments in women with UI. The methodological quality of studies and the quality of measurement properties were evaluated using the COnsensus‐based Standards for the selection of health status Measurement INtruments (COSMIN) checklist and quality criteria. Overall, evidence for measurement properties was graded using the modified grading of recommendations, assessment, development & evaluation approach.ResultsA total of 73 studies were included, and 27 specific and 6 generic instruments were identified. The...
European Urology, 2007
e u r o p e a n u r o l o g y 5 1 ( 2 0 0 7 ) 1 0 7 3 -1 0 8 2 a v a i l a b l e a t w w w . s c i e n c e d i r e c t . c o m j o u r n a l h o m e p a g e : w w w . e u r o p e a n u r o l o g y . c o m Abstract Objective: To investigate the association between patient characteristics and disease-specific and generic quality of life (QOL) as well as the degree of bother in women seeking treatment for urinary incontinence (UI). Methods: The Prospective Urinary Incontinence Research (PURE) was a 6-mo observational study with 1055 physicians from 15 European countries enrolling 9487 women. QOL was assessed at the enrolment visit using the urinary Incontinence Quality of Life questionnaire (I-QOL) and the generic EQ-5D. A single-item instrument was used to measure the degree of bother. UI severity was assessed using the Sandvik Index. UI was categorised into stress (SUI), mixed (MUI), and urge (UUI) urinary incontinence by a patient-administered instrument (Stress and Urge Incontinence Questionnaire [S/UIQ]). Multivariate linear (I-QOL, EQ-5D Visual Analogue Scale) and logistic (bother, EQ-5D health state index) regressions were performed. Results: Mean total I-QOL scores were significantly and independently associated with UI severity, nocturia, age, UI subtype, number of selected concomitant medical conditions, length of suffering from UI before contacting a doctor, smoking status, ongoing use of UI medication, and country. After adjusting for all the covariates, the total I-QOL scores for SUI, MUI, and UUI were 62.7, 53.8 and 60.1, respectively. As with I-QOL, UI severity was also the most important predictor for bother. The number of concomitant medical conditions, together with UI severity, was the variable most strongly associated with EQ-5D. Conclusion: In addition to the UI subtypes, severity of UI should be given more importance in treatment algorithms and in treatment decision-making by both the patient and the physician. * Adjusted for the following covariates: UI severity (all), nocturia (all), age (all I-QOL scores), number of medical conditions (all), length of suffering before contacting a doctor (all), smoking status (I-QOL total and social embarrassment scores, EQ-5D VAS score), body mass index (avoidance and limiting behaviour score, EQ-5D VAS score), UI medication ongoing at baseline (I-QOL total, avoidance and limiting behaviour and psychosocial impact scores), country (all).