Perceptions Regarding Precipitating Factors of Autism among Caregivers of Autistic Children and Adolescents Visiting Health Facilities in Lucknow City (original) (raw)
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Knowledge Assessment Among Autistic Children’s Parents Regarding Autism Spectrum Disorder
2020
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Parents' knowledge and Attitude Regarding their Autistic Children
Background: Autism is neurodevelopmental impairments in communication, social interaction and social attainment, the improvement of parents awareness lead to best health care to Autistic children. Aim: The aim of this study to assess the parents' knowledge and attitude regarding their Autistic children. Design: A descriptive research design was used in this study. Sample: Purposive sample equal (120) parents who having children with autism. Setting: It was conducted at child psychiatry outpatient clinic in psychiatry center at Tanta university hospital, El-Gharbia governorate. Tools: Two tools used 1 st : Interview questionnaire sheet composed of 4 parts: personal data of the parents and child, family and child past history, parents' knowledge about the autism, and the parents' reported practice about the autism. 2 nd : The attitude of the parents about the autism. Results: The study result revealed that, 50% of the studied sample had poor total knowledge. 55% of the studied sample had satisfactory total practice. 70% of the studied sample had positive attitude toward the autism. Conclusion: Most of the study sample had poor total knowledge about the autism. Most of them had satisfactory total practice. Majority of the studied sample had positive attitude about the autism. There are relation between parent socio-demographic data and their knowledge, practice, attitude regarding their children with autism. Recommendations: provide Parents by health education and Autism booklets which include the sign and symptoms of Autistic children.
Autism: impact of the diagnosis in the parents
Jornal Brasileiro De Psiquiatria, 2020
Objective: To understand how parents react to the diagnosis of autism in their child, and the manner in which the diagnosis was revealed, as well as the method through which the researcher perceived this communication. Methods: A qualitative, narrative approach was used. Semi-structured interviews were held with 21 mothers and 9 fathers of children with autism spectrum disorder (ASD) enrolled in a special needs school in Salvador, Bahia, Brazil. In another setting, a specialist university service for the diagnosis of autism located in the same city, data were collected from 11 mothers and 5 fathers receiving diagnosis using ethnographic participant observation. Analysis categories were established, and the data interpreted. Results: The categories selected were: "in search of a diagnosis", "impact of receiving the diagnosis", "patterns of diagnosis communication", and "coping strategies". Conclusion: The diagnosis of autism is often delayed due to doctors' unpreparedness. Awareness of their child's diagnosis exerts a negative emotional impact on parents, which can be softened using coping strategies and diagnosis communication that offers technical information, offers emotional support and provides hope regarding the child's development. Parents need to be cared for in order to provide for the needs of their children at the moment of diagnosis and throughout the entire process of caring for individuals with ASD.
International Journal of General Medicine
Background: Autism spectrum disorder (ASD) is a neurodevelopmental condition that affects young children in social relatedness and communication besides other characteristics. A community's awareness and early intervention services in diagnosing and treating autistic children are essential for preventing the expected complications, eg language delay, social interaction, and intellectual ability. Aim: To assess the parent's knowledge and perceptions regarding autism and its associated clinical features and effects. Methodology: A cross-sectional study was conducted targeting all available parents aged 18 years or more living in Aseer region. Data were collected using a self-reported questionnaire from randomly selected parents who attended outpatient clinics at Abha Maternity and Children Hospital and Aseer Central Hospital. Parents' knowledge regarding autism was assessed covering general knowledge, clinical features, social effects, consequences, and curability. Results: A total of 477 parents participated. Parents' ages ranged from 18 to 85 years. 261 (54.7%) parents were male and 216 (45.3%) were females. Nearly 65.6% of parents were university graduates and 28.3% had a secondary level of education. About 50.9% of the parents know that genetics play a major role in causing autism, 69.6% think that most children with autism have special talents or abilities, 64.2% know that delayed language development is one of the main symptoms of autism, 61.2% also know that repetitive movements of the hands and head are a common symptom of autism. About 36.9% of parents think that diagnosing a child with autism will lead to discrimination against the child, 33.3% of parents think that autism is a rare condition in this country compared to the West. Conclusion: The study showed that parents had poor knowledge levels regarding autism and its related clinical features, especially male parents with low levels of education. On the other hand, their perception of the disease and its frequency in the study area was satisfactory.
Knowledge, Awareness, and Perceptions Regarding Autism Among Parents in Karachi, Pakistan
Background The prevalence of autism is growing worldwide. Owing to parents being the primary caregivers in most situations, their ability to recognize the signs and symptoms of autism and respond appropriately is of paramount importance in aiming to provide the best healthcare to autistic individuals. This study was conducted with the aim of ascertaining the parent's knowledge and awareness of autism. Methods A cross-sectional survey was conducted among parents residing in Karachi, Pakistan. We excluded any individuals belonging to the medical profession, those who have autistic children, and those who couldn't completely comprehend English and Urdu. A sample size of 339 parents was selected. A validated and pre-tested questionnaire was administered among the study participants to record demographic information, knowledge, and perceptions regarding autism and its signs and symptoms. Data were analyzed using Statistical Package for Social Sciences (SPSS version 23.0, IBM Corp., Armonk, NY, US). A knowledge score was calculated for opinions about autism and its sign and symptoms individually to reflect a participant's overall knowledge regarding autism. Results From our study population, 75% of our population had heard of autism, with those who knew of someone with the disorder displaying greater awareness. However, our participants displayed poor knowledge scores, with a mean score of 5.59 in the section concerning correct opinions on autism and that of 6.84 in the section testing knowledge of signs and symptoms. Despite this, 95.6% of the participants were willing to get their children treated, in the event of them being diagnosed with autism. Conclusion Unfortunately, our population displayed a lack of awareness and knowledge regarding autism. To fill this gap, awareness programs should be conducted to promote parent's knowledge regarding autism, so as to allow for early diagnoses and an appropriate treatment plan/therapy. On a positive note, most were willing to get their children tested and treated in case of a diagnosis. However, only a small number of participants knew of autism centers in Karachi. General practitioners are needed to play a key role in counseling parents about autism.
Journal of Healthcare Sciences
Background Autism spectrum disorder (ASD) has shown a dramatic rise in the past few years. It is one of the most common chronic neurodevelopmental disorders with strong genetic basis. As patients’ outcomes are implicated by their parents’ knowledge and perception about ASD. This study aimed to assess the knowledge and perception of childhood autism among parents in Jeddah, Saudi Arabia. Methodology This is a descriptive cross-sectional study that targeted all parents with at least one child in Jeddah, Saudi Arabia in 2020. An electronic self-administered questionnaire was distributed online. A total of 413 participants were included. To describe our study participants, we used frequencies for the categorical variables. Chi-square test was used to determine the presence of associations. Results A total of 413 respondents were included, most of them were females. The mean age of the sample was (41±11.35). After assessing the knowledge about ASD among our sample of patients, most of th...
Evaluation of Mothers' Knowledge about Autism: Saudi Arabia
Basic and Applied Sciences - Scientific Journal of King Faisal University, 2021
Autism is an advanced neurogenic disease condition with specific neurodevelopmental characteristics and deficiency in social relations and interaction, as well as limited rhythmic and stereotyped patterns of actions that habitually arise in the toddler stage of life. Mothers of children with autism were found to have greater levels of childcare-associated stress. This study aims to determine mothers' general knowledge of autism. A cross-sectional study was conducted among the mothers of autistic children in Al Ahsa, Saudi Arabia, between 20 September and 20 December, 2019. The study included 63 mothers of autistic children. A 29-items questionnaire was created following a wide-ranging literature review. A pilot study was conducted on 20 mothers to assess the simplicity and understanding of the questionnaire. The data indicated that more than two thirds, i.e. 44(69.8%) of all respondents had a low level of or insufficient knowledge about autism, 19(30.2%) had a medium level, while none had a high level of knowledge. The results showed that the mother's job, the child's age, and the child order variables were important predictors, and the value was statistically significant at (α = 0.05) for the mothers' knowledge level. It could be concluded that Al Asha's mothers' children with autism lack the perception and knowledge of the signs and symptoms. Mothers were also found to need awareness programs for diagnosis and treatment approaches.
This study was conducted in an attempt to determine the demographic characteristics of parents with children diagnosed with autism and the problems they are confronted with. It is crucial to investigate the knowledge of parents on alternative treatment methods regarding the problems they experience. The sample of the study comprised a total of 123 parents training at Tunam Private Education and Rehabilitation Center, providing education for autistic children in the central district of Bursa. In the study, mothers and fathers were interviewed and 72 parents willing to participate in the study made up the sample. The questionnaire form developed by researchers was used in the collection of data. At the end of the study, it was ascertained that parents, in most cases, have problems regarding by whom the child is to be taken care of after family members die and that they are not capable of coping with the problems in providing their children with the basic needs and with social stigmas. Also, the relationship between such variables as the age of the father, the educational status of mother-father, the age of the autistic child and the knowledge on alternative treatment methods was found statistically significant.
Translational Pediatrics
Background: In recent years, parent-mediated intervention for children with autism spectrum disorder (ASD) has increased. Therefore, implementing effective parent training programs for parents of children with autism is of paramount importance, particularly in low-and middle-income countries. However, little is known about the status of and gaps in parents' knowledge on ASD, which may hinder the development of valid parental training programs. Herein, we aimed at exploring the status of Chinese parents' knowledge, attitude and behavior toward ASD, and potential factors affecting the acquisition of correct knowledge. Methods: This study used a self-designed parental knowledge questionnaire of autism (PKQA) comprising 20 questions alongside another questionnaire comprising additional 17 questions covering the aspects of family demographics, attitudes, and behaviors of parents. In total, we included 394 parents who visited the outpatient department of the Child's Development and Behavior Center of the Third Affiliated Hospital of Sun Yat-Sen University between December 2018 and May 2019, with their children meeting the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) diagnostic criteria for ASD. Results: The median knowledge score in the PKQA was 15 [interquartile range (IQR), 13-17]. Advanced paternal age and longer time interval from diagnosis to enrolling into the parent training program were associated with a lower total knowledge score (all P<0.001). Higher maternal education attainment, higher family income, child being currently under intervention, and family members sharing a common perception of the diagnosis were associated with a higher total knowledge score (all P<0.01). Reading autism-related books (P<0.001) or attending professional lectures (P=0.019) were also associated with a higher total knowledge score. Conclusions: Taken together, this study revealed that family demographics and parents' attitudes and behaviors toward ASD may significantly influence their knowledge about autism, suggesting the need for promoting more targeted parental skills training programs.