Evaluation of Mothers' Knowledge about Autism: Saudi Arabia (original) (raw)
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Journal of Healthcare Sciences
Background Autism spectrum disorder (ASD) has shown a dramatic rise in the past few years. It is one of the most common chronic neurodevelopmental disorders with strong genetic basis. As patients’ outcomes are implicated by their parents’ knowledge and perception about ASD. This study aimed to assess the knowledge and perception of childhood autism among parents in Jeddah, Saudi Arabia. Methodology This is a descriptive cross-sectional study that targeted all parents with at least one child in Jeddah, Saudi Arabia in 2020. An electronic self-administered questionnaire was distributed online. A total of 413 participants were included. To describe our study participants, we used frequencies for the categorical variables. Chi-square test was used to determine the presence of associations. Results A total of 413 respondents were included, most of them were females. The mean age of the sample was (41±11.35). After assessing the knowledge about ASD among our sample of patients, most of th...
International Journal of General Medicine
Background: Autism spectrum disorder (ASD) is a neurodevelopmental condition that affects young children in social relatedness and communication besides other characteristics. A community's awareness and early intervention services in diagnosing and treating autistic children are essential for preventing the expected complications, eg language delay, social interaction, and intellectual ability. Aim: To assess the parent's knowledge and perceptions regarding autism and its associated clinical features and effects. Methodology: A cross-sectional study was conducted targeting all available parents aged 18 years or more living in Aseer region. Data were collected using a self-reported questionnaire from randomly selected parents who attended outpatient clinics at Abha Maternity and Children Hospital and Aseer Central Hospital. Parents' knowledge regarding autism was assessed covering general knowledge, clinical features, social effects, consequences, and curability. Results: A total of 477 parents participated. Parents' ages ranged from 18 to 85 years. 261 (54.7%) parents were male and 216 (45.3%) were females. Nearly 65.6% of parents were university graduates and 28.3% had a secondary level of education. About 50.9% of the parents know that genetics play a major role in causing autism, 69.6% think that most children with autism have special talents or abilities, 64.2% know that delayed language development is one of the main symptoms of autism, 61.2% also know that repetitive movements of the hands and head are a common symptom of autism. About 36.9% of parents think that diagnosing a child with autism will lead to discrimination against the child, 33.3% of parents think that autism is a rare condition in this country compared to the West. Conclusion: The study showed that parents had poor knowledge levels regarding autism and its related clinical features, especially male parents with low levels of education. On the other hand, their perception of the disease and its frequency in the study area was satisfactory.
Journal of critical reviews
Introduction: One of the greatest popular neurodevelopmental disorders global is autism spectrum disorder (ASD), which is described by language postponement, reduced communication interactions and repetitive patterns of behavior produced by ecological and genetic factors. So that, autism is linked with great cost to families, individuals, societies and government. This study aimed to identify the effect of health instructions guidelines on improving knowledge and practices of mothers regarding care of their children with autism. Methods: This quasi-experimental study was conducting at Ali Al-Tamimi Center for Autism in Oniazah at Qassim region in kingdom Saudi Arabia. A convenient sample of 60 mothers and their children with autism. Data was collected through three tools were used to collect data include structured interview questionnaire consisted of two main parts include socio-demographic data related mothers, personal characteristics of the children, Mothers' knowledge regarding autism and mother practice regarding care of children with autism. Results: The result of the study displayed that the post-test of knowledge and practice among mothers of children with autism were significantly adequate when compared to pre-test. The study finding revealed that Educational Program was effective in enhancing the knowledge and good practice among mothers regarding care of children with autism. Conclusion: the educational program statistically significantly improved the knowledge and practice of the studied mothers. Recommendation: Emphasize the significance of carrying out educational programs to increase knowledge, practice and improve the coping designs of the family caregivers taking children with autism.
Knowledge Assessment Among Autistic Children’s Parents Regarding Autism Spectrum Disorder
2020
Background: Autism Spectrum Disorder (ASD) is a neuro-developmental disorder this involves difficulties in social communication and interaction as well as unusual patterns of interest and behavior.Aim: This study aimed to assess knowledgeof autistic children’s parents about ASD. Design:A descriptive design was utilized in currentstudy that carried out atthree governmental hospitalslocated in Dakahlia and Port Said Governorates.Convenient sampleof 68 parents whose children have ASDincluded in the study.Tools:A structured interview sheet was used to assess socio-demographic characteristics of the studied parents and parent's knowledge about ASD. Results: The majority of studied parents know symptoms of ASD. More than half of parents were had no knowledge about red flags of ASD.Less than two thirds of studied parents reported the relation between aggressive behaviors and ASD. Moreover, less than two thirds of them reported that children diagnosed with ASD have special skills.Additi...
Knowledge and attitude of Saudi women regarding autism
Medical Science
Autism spectrum disorder (ASD) is a neurodevelopmental disorder causing family stress. Increasing awareness about ASD will improve the mothers' engagement with their children and help them bear the stress effect of this disorder. Aim: To evaluate Saudi women's knowledge and attitude regarding ASD at Tabuk University, Kingdom of Saudi Arabia. Design: Descriptive design was utilized to fulfill the purpose of the study. Setting: This study was done at 5 colleges of Tabuk University, with a female section (applied medical sciences, science, medicine, business administration, computing and information technology) representing 25% of Tabuk University colleges. Sample: A convenience sample of women in the previous colleges (90) was taken according to inclusion criteria. Three data collection tools were used; 1) A self-administrated questionnaire sheet, including sociodemographic data. 2) Knowledge quiz 3) ASD attitude scale: to assess the attitude of women as regards ASD. Results: The participants mean age was 36.23 years, and although 52.2 % of women were inadequate knowledge, more than half of participants 53.3% were positive attitude regarding ASD. A statistically positive correlation is between the participants' knowledge and their attitude. Social status, educational level & women's work experience are significantly related to their knowledge about ASD (p< 0.05). Conclusion: Inadequate knowledge regarding ASD was prevalent among the current study participants. At the same time, most of them had a positive attitude toward ASD. Therefore, health education campaigns must be enhanced to improve knowledge and attitude about ASD.
The purpose of this qualitative study was to explore the unmet needs and experiences of mothers Of ASD children in The Kingdom of Saudi Arabia (KSA). This study employed telephone interviews with eight Saudi mothers raising a child with autism. Questions from a researcher-developed interview guide elicited responses about challenges and unmet needs. Results indicated that the majority of respondents felt they had low to no knowledge of ASD prior to and after their child's diagnosis. Six themes were identified: i) Mothers' identification of their lack of information about their children with ASD, ii) Mother's perceptions about their mental and physical well-being, iii) Mothers' recognition of their constant challenges raising children with ASD,iv) Suggestions to increase public awareness about ASD, v) Mothers' identification of their training needs, and vi) Mothers' perceptions of their children's educational needs. Respondents insisted that cultural issues such as lack of transportation and fathers' involvement did add to their burden. This study recommended that professionals and academics in KSA should take into consideration the unmet needs of mothers of ASD children when designing interventions and services for children with ASD to ensure they are tailored to the cultural context and needs of mothers.
Knowledge, Awareness, and Perceptions Regarding Autism Among Parents in Karachi, Pakistan
Background The prevalence of autism is growing worldwide. Owing to parents being the primary caregivers in most situations, their ability to recognize the signs and symptoms of autism and respond appropriately is of paramount importance in aiming to provide the best healthcare to autistic individuals. This study was conducted with the aim of ascertaining the parent's knowledge and awareness of autism. Methods A cross-sectional survey was conducted among parents residing in Karachi, Pakistan. We excluded any individuals belonging to the medical profession, those who have autistic children, and those who couldn't completely comprehend English and Urdu. A sample size of 339 parents was selected. A validated and pre-tested questionnaire was administered among the study participants to record demographic information, knowledge, and perceptions regarding autism and its signs and symptoms. Data were analyzed using Statistical Package for Social Sciences (SPSS version 23.0, IBM Corp., Armonk, NY, US). A knowledge score was calculated for opinions about autism and its sign and symptoms individually to reflect a participant's overall knowledge regarding autism. Results From our study population, 75% of our population had heard of autism, with those who knew of someone with the disorder displaying greater awareness. However, our participants displayed poor knowledge scores, with a mean score of 5.59 in the section concerning correct opinions on autism and that of 6.84 in the section testing knowledge of signs and symptoms. Despite this, 95.6% of the participants were willing to get their children treated, in the event of them being diagnosed with autism. Conclusion Unfortunately, our population displayed a lack of awareness and knowledge regarding autism. To fill this gap, awareness programs should be conducted to promote parent's knowledge regarding autism, so as to allow for early diagnoses and an appropriate treatment plan/therapy. On a positive note, most were willing to get their children tested and treated in case of a diagnosis. However, only a small number of participants knew of autism centers in Karachi. General practitioners are needed to play a key role in counseling parents about autism.
Autism Knowledge among the public in Saudis Arabia
Autism is defined as a neurodevelopmental syndrome that starts early in life and manifests as an unusual behaviors of negligence, independence, isolationism, and constant repetition that believed to be held by a defect in special areas of the brain that assembles what is known as " the social brain ". The disease is found to be highly heritable, with strong genetic association evidence. The aim of this study is to measure the Saudis general knowledge of ASD, the causes, the treatment, and their attitude toward it in order to determine the level and significance of the educational interventions needed to raise the awareness of the Saudi society about the disease and the proper ways to deal with it.
Determination of the Autism Awareness in Women Who are Future Mothers
Gümüşhane üniversitesi sağlık bilimleri dergisi, 2021
Autism Spectrum Disorders(ASB) is a neurodevelopmental disorder characterized by continuing deficiencies in the social interactions and communication and restricted and repetitive behaviors. There is no definitive criterion in autism, but there are some important indicators to facilitate early diagnosis. This research was carried out to determine the awareness of female students about autism, to determine the lack of knowledge of women about autism and to determine the factors affecting it. Turkey's Eastern Black Sea Region Gumushane, Trabzon, Rize, Artvin, Giresun, including the Eastern Black Sea which are thought to represent the best of the Region 5 provinces that agree to participate in research studying at university in 2604 has reached female students. The average age of the students is 20.81 ± 2.79. It was determined that 72.5% of the students had information about autism, 28.9% of the respondents had information about internet autism from internet, 24% from written skies, 23.3% from formal education process, and 13.4% from television. In our study, it was found that 67.5% of the students stated that the mother was exposed to radiation and / or toxic agents during pregnancy, 66.3% said genetic factors, and 57.8% stated that the mother used drugs as a cause of autism. It is recommended that community-based awareness programs and other media platforms such as radio, print and social media be encouraged in order to increase mass awareness on autism. It is recommended that autism researches should be conducted in large samples by increasing the number of awareness campaigns on autism and strategic plans on autism should be made in line with the results.
Journal of Nursing Education and Practice, 2016
Autism is currently a hot topic in the field of special education due to the high prevalence ratio of it. It is a highly variable neuro-developmental disorder that first appears during infancy or childhood and generally follows a steady course without remission. Overt symptoms gradually begin after the age of six months, become established by the age of two or three, and tend to continue through adulthood. It differs from any disabilities; the characteristics of autism generate additional stress for the parents and make the life of all the family very hard. Usually, mothers face the stressful challenges of raising a child with autism, they are concerned with their children's communication, education and related services, relationships with professionals and the independence of their children's future. Therefore, the aim of this study was to assess the influence of autism awareness on the psychological wellbeing of mothers caring for their children with autism. A descriptive research design was used. The study was conducted in two settings: the first one was the Special Needs Care Center in the Institute of postgraduate Childhood Studies which affiliated to Ain Shams University and the second one was the outpatient clinic for child psychiatric treatments at El Abassia mental health hospital. Sixty children accompanied by their mothers with certain criteria were recruited in the beginning of June 2015 to the end of August 2015. The study concluded that about two thirds of the studied sample had poor awareness regarding autism and there was a highly statistical significant relation between awareness, stress and psychological wellbeing among mothers of children with autism. The study recommended that media awareness must be increased to aid mothers in prompting tolerance and understanding of autism with a clear explanation. Furthermore, there is a necessity to counseling mothers to enhance their awareness about autism for modifying their behaviors and psychosocial skills.