Exploring the caregiver experience: caring for a deinstitutionalised individual with schizophrenia in the Western Cape, South Africa (original) (raw)
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Schizophrenia is one of the most seriousand often one of the most disabling-types of mental illness. It is believed that about 1 % of the world's adult population suffers from it. As a result of its severity, mental health institutions are a frequent stop for many schizophrenic patients. It is chronic, complex and challenging psychiatric disorder that needs close monitoring. There are diverse cultural beliefs, etiologies, interventions are based on caregiver perceptions based on cultural beliefs. Most relapses are triggered by caregiver negligence due to lack of knowledge. Because of the severe disabling effect on the ill person, schizophrenia renders the victim totally dependent on the caregiver. And this study looks at the perceptions and attitudes of caregivers, who are the main players of the upkeep of these patients. The study looks at emotional burden of the caregiver, and the possible ways of empowering them. The researcher used à qualitative research methodology to explore the emotional caregivers' perceptions and appraisals of schizophrenia. It was noted that caregivers of schizophrenia are emotionally wounded, and often poorly informed about the illness. The research recommends the bi-focal intervention approach, which recommends the inclusion of the caregiver in the treatment plan. The study also recommends government assistance to the caregivers and or family of schizophrenic persons
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International Journal of Advanced Nursing Studies, 2016
Caregivers of patients diagnosed with schizophrenia experience moderate to severe caregiver burden and are at risk for developing mental disorders. This study explores the psychological effects and coping strategies of family caregivers of relatives diagnosed with schizophrenia in the developing world. Methods: This qualitative study used the register of a community mental health clinic at a Jamaican hospital to purposively select and recruit five primary family caregivers of clients diagnosed with schizophrenia (based on the DSM IV). Consenting participants were interviewed using a semi-structured interview guide. Data were analyzed using thematic content analysis. Results: Four of the five caregivers studied were females. Participants were either parents (4) or siblings (1) of the client diagnosed with schizophrenia and aged 42-57years. Participants experienced feelings of anger, sadness, loss of libido, loss of appetite and depression. They expressed feelings of fear, guilt, stigma and stress related to financial responsibilities in caring for their relatives. Coping mechanisms included social support from family members and their strong faith in God. Conclusion: Participants reported experiencing major psychological distress and ineffective coping. Community based management of individuals with schizophrenia should include strategies to support family caregivers.
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Schizophrenia has an impact on social functioning and participation in everyday life. Yet, there is little data on the experiences of coping with personal care and stigma among people living with schizophrenia in Ghana. This study sought to fill this gap using a qualitative exploratory study. A non-probability sampling procedure, specifically criterion sampling, was used to access a total of nine persons living with schizophrenia. Data were obtained from semi-structured interviews and subjected to Colaizzi's descriptive phenomenological data analysis approach. The study revealed that people with schizophrenia could adopt specific personal measures to take care of themselves. Some of these subjective measures included Activities of Daily Living such as washing, sweeping, maintenance of personal and environmental hygiene and medication administration. Strict adherence to treatment regimens has helped to take care of themselves so long as they were in their lucid interval. Despite ...
SCHIZOPHRENIA: ITS PSYCHOLOGICAL EFFECTS ON FAMILY CARE GIVERS IN KINGSTON, JAMAICA Background
Caregivers of patients diagnosed with schizophrenia experience moderate to severe caregiver burden and are at risk for developing mental disorders. This study explores the psychological effects and coping strategies of family caregivers of relatives diagnosed with schizophrenia in the developing world. Methods: This qualitative study used the register of a community mental health clinic at a Jamaican hospital to purposively select and recruit five primary family caregivers of clients diagnosed with schizophrenia (based on the DSM IV). Consenting participants were interviewed using a semi-structured interview guide. Data were analyzed using thematic content analysis. Results: Four of the five caregivers studied were females. Participants were either parents (4) or siblings (1) of the client diagnosed with schizophrenia and aged 42-57years. Participants experienced feelings of anger, sadness, loss of libido, loss of appetite and depression. They expressed feelings of fear, guilt, stigma and stress related to financial responsibilities in caring for their relatives. Coping mechanisms included social support from family members and their strong faith in God. Conclusion: Participants reported experiencing major psychological distress and ineffective coping. Community based management of individuals with schizophrenia should include strategies to support family caregivers.
Jurnal Ners
Introduction: Due to the Covid-19 pandemic, families are facing problems caring for and implementing Covid-19 health protocols when caring for schizophrenia patients. A lack of knowledge and behavior changes make it difficult for the families to care for the schizophrenia patients. This study aims to explore the familial experiences of caring schizophrenia patients during the Covid-19 pandemic.Methods: A phenomenological qualitative design was undertaken as of November 2020. A total of 10 participants via the purposive sampling technique were recruited. The study was conducted in Semarang, Indonesia. We used semi-structured interviews to obtain the data and we used thematic content analysis to examine it.Results: From the 10 participants, we got 3 themes, namely family fears, financial problems, and health treatment access. The themes were obtained from the families of the patients who care for them on a daily basis. During the Covid-19 pandemic, caring for schizophrenia patients ha...
The coping experiences of carers who live with someone who has schizophrenia
Journal of Clinical Nursing, 2008
Aims and objectives. The purpose of this study was to understand the coping experiences of carers living with a schizophrenic family member. Our research may be a valuable reference for mental health professionals seeking to improve the quality of care for people with schizophrenia and their carers.Design. We employed a qualitative descriptive phenomenological research methodology to understand the coping experiences of carers living with a schizophrenic family member.Methods. Purposive sampling and in-depth, face-to-face interviews were used to collect data. When data saturation was reached, the sample size comprised 10 carers (five men and five women). The interview focused on the carer's coping experience. During the process of data collection and data analyis we established epoches (bracketing) and returned to the reality of the carers’ experience to keep the data objective. Narratives were analysed according to Colaizzi's seven steps method.Results. The two most commonly used coping mechanisms that emerged from this study were psychological coping strategies (cognitive, behavioural and emotional) and social coping strategies (religious, social and professional support). Furthermore, three factors were found in the study, including low social status, traditional help-seeking behaviours and feelings of shame.Conclusion. Findings from this study demonstrate the importance of understanding the coping experiences of carers who have a family member with schizophrenia. Further research is needed to identify more important detailed factors that affect the coping strategies of carers.Relevance to clinical practice. Community mental health care professionals need to improve the quality of care for helping carers living with a family member who has schizophrenia. It is important to develop effective coping intervention strategies that help carers cope with the stress and strain of caring for a family member with schizophrenia.
Lived Experiences of Adults Who Have a Relative with Schizophrenia
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Adult relatives of persons with schizophrenia are ones who lived or still live with the sick person. The duties of caring for someone with schizophrenia, along with the pressures of raising a family, can have a negative impact on carers, in case the relative is the primary caregiver, leading to stress and burnout. Despite this, many Healthcare Professionals continue to focus on the "ill" person and ignore caregiver difficulties, despite the obvious need to understand and support them. There is a dearth in the literature regarding the lived experiences of the relatives of people with schizophrenia. This study explores the lived experiences of adults who have a relative with schizophrenia to acquire a richer and a better understanding on the impact of caregiving, with reference to their coping mechanisms.
Experiences of Family Members of Persons With Mental Illness: A Qualitative Inquiry
Global Journal of Health Science, 2019
The shortage of skilled and experienced health workers, lack of facilities, limited psychiatric care and inaccessible mental health care services in the uMsunduzi Municipality in Northern KwaZulu-Natal are causes of concern. With limited access to health services and resources, family members have no choice, but to take care of mentally ill relatives. These underlying problems have warranted the need to explore the experiences of family members living with mentally ill relatives. A qualitative, exploratory, descriptive design was used to collect data by in-depth one-on-one interviews and findings were analyzed using Tesch’s method of data analysis. This study showed that the uMsunduzi Municipality needed assistance with resources to support family members living with their mentally ill relatives and family members’ lack of knowledge and experience emerged as a major factor that influenced the care, treatment and rehabilitation of their mentally ill relatives. Compounded by inadequat...