FRI0636-HPR Effects of Clinical Pilates Exercises Combined with Dancetherapy on Mood in Patients with Rheumatic Diseases: Table 1 (original) (raw)
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Safety of a home exercise programme in patients with polymyositis and dermatomyositis: a pilot study
Rheumatology (Oxford, England), 1999
To investigate whether a home exercise programme could safely be performed by patients with stable, inactive polymyositis (PM) and dermatomyositis (DM), regarding disease activity, muscle function, health status and pain. Ten patients with reduced muscle function completed the study. A home exercise programme including exercises for strength in the upper and lower limbs, neck and trunk, for mobility in the upper limbs and moderate stretching was developed. The patients exercised for 15 min and took a 15 min walk 5 days a week during a 12 week period. Assessments included clinical evaluation of disease activity, serum creatinine phosphokinase (CPK) levels, magnetic resonance imaging (MRI) of the quadriceps, repeated muscle biopsy of the vastus lateralis, a muscle function index (FI), a walking test and a health status instrument (the SF 36) performed at the start of the study and after 12 weeks. After 12 weeks of exercise, there were no signs of increased disease activity as assessed...
REHABILITATION OF POLYMYOSITIS – AN EVIDENCE BASED STUDY
Introduction:-Muscle weakness can influence on physical functioning. Polymyositis, a rare condition where weakness and wasting of pelvic and shoulder girdle muscles can impair physical abilities leading to dependency and disabilities. Aims and objectives of the study:-was to evaluate the efficacy of graded functional re education on quality of life in a subject with Polymyositis. Material and methodology:-This study subject was diagnosed with proximal muscle weakness (pelvic and shoulder girdle muscles) and was treated with specific strengthening exercises during the period from 08/11/2016 to 10/09/2017 , with weekly frequency of two and each session for 25-30 minutes. The results of pre and post Quality of life SF – 36 questionnaire (QOL) scores were statistically analysed. Results:-The subject has improved general and physical health and activities by 50%. Emotional health by 50%. Energy and emotional behaviour by 60% and social activities by 83%. The above results were obtained using SF-36 questionnaire before and after treatment in a subjective rating score on general, physical health, social activities, emotional health, energy and emotional behaviour on a 5 point scale. Conclusion:-The efficacy of specific exercises in polymyositis as major outcomes of this study can be validated among similar subjects with polymyositis for improving their Quality of life (QOL). Keywords: Polymyositis, exercise, QOL, SF – 36 questionnaire
Arthritis & Rheumatism, 2006
Methods. Previously performed FI (n ؍ 287) were analyzed for internal redundancy and consistency, and ceiling and floor effects. Content was evaluated and a preliminary revised FI was developed. To evaluate the construct validity of the preliminary revised FI, it was compared with isokinetic measurements of muscular strength and endurance, the Myositis Activities Profile, disease impact on general wellbeing, and creatine phosphokinase levels. Minor adjustments were made and the revised FI was investigated for interrater reliability and intrarater reliability over a 1-week period. After this, some minor, additional adjustments were made leading to the final version, FI-2. Results. Five tasks were removed from the original FI due to ceiling effects. Performance pace and number of repetitions were modified for the remaining tasks. A moderate correlation (r s ؍ 0.58) was found between the shoulder flexion task of the preliminary revised FI and isokinetic measurements of shoulder flexion endurance. Intraclass correlation coefficient (ICC) for interrater reliability of the revised FI varied from 0.86 -0.99 with no systematic differences. ICC for intrarater reliability varied from 0.56 -0.99 with systematic differences (P < 0.05) between test and retest in 3 of the tasks. The sit-up task was excluded due to low intrarater reliability resulting in the final 7-item FI-2. There was a good correlation between tasks on the right and left side suggesting that the FI-2 could be performed unilaterally. Conclusion. The FI-2 is a valid and reliable outcome measure of impairment for patients with polymyositis or dermatomyositis. It is well tolerated and the unilateral FI-2 requires a maximum of 20 minutes to perform. Further evaluation of sensitivity to change and testing in healthy individuals needs to be conducted.
Arthritis Care & Research, 2011
in validation of these core set measures, and no validation studies have yet been performed in patients with IBM, although they are now being used frequently in myositis therapeutic trials. We end the chapter with tools that have been used primarily in research studies and a few therapeutic trials, which have some supporting validation in certain subgroups of patients with myositis. These tools are primarily organ-specific measures, including strength and functional assessments and cutaneous assessment tools. Quantitative muscle testing and the IBM Functional Rating Scale are the most commonly used instruments to assess patients with IBM, and although they have little supporting validation in myositis, quantitative muscle testing has been well validated in other myopathies and has been used frequently as an endpoint in therapeutic trials for IBM. Although the methods for the assessment of myositis patients have been limited in their scope, great strides have been made in the last decade in the development of new partially validated tools (see Table 1) and international multidisciplinary consensus in using these measures that should enhance our understanding of the diverse effects of myositis on many organ systems and the development of new therapies. Physician and Patient/Parent Global Activity General Description Purpose-An overall rating of the disease activity related to myositis, defined as potentially reversible pathology or physiology resulting from the underlying disease process (1). Content-The physician global assessment of disease activity is to be judged by the physician based on all the information available at the time of the evaluation, including the subject's appearance, medical history, physical examination, laboratory testing, and the prescribed medical therapy. Adult patients or parents of children with myositis completing the patient/ parent assessments are asked to take into account all of the active inflammation in their own or their child's muscles, skin, joints, intestines, heart, lungs, or other parts of the body, which can improve with treatment. Patients over 10 years of age might also be able to complete a global activity assessment independent of their parents' ratings (5). The global disease activity score is recorded on a 10-cm visual analog scale (VAS), which is often anchored at the endpoints and middle. For patients and parents, a smiley face is often included at the 0 cm anchor and a sad face at the 10-cm anchor to improve understanding of the scale. A 5-point Likert scale can also be used as an alternative to the VAS. Number of items-One item, either a VAS or a Likert scale rating. Response options-For the VAS rating, a score of 0 to 10 (down to 1 decimal place) is used, and for the Likert scale, a Medical Research Council (MRC) grade of 0 (no disease activity), 1 (mild disease activity), 2 (moderate disease activity), 3 (severe disease activity), or 4 (extremely severe disease activity). The 10-cm VAS may have better precision, sensitivity, and specificity, but the two scales correlate highly (5). Recall period for items-Scoring of the global disease activity requires that the activity be assessed at present, although a recall period of up to 2-4 weeks for the components of global disease activity is acceptable for stable patients who are assessed less frequently. Endorsements-The physician global disease activity has been included as a core set activity measure for patients with adult and juvenile PM, DM, and IBM by IMACS (5) and as a core set activity measure for juvenile DM by the American College of Rheumatology Rider et al.
PLOS ONE
The Myositis Activity Profile (MAP) is the only disease-specific questionnaire to assess limitations in activities of daily living (ADL) in patients with inflammatory myopathy (IM). Because a German version does not currently exist, this study's aim was to translate the MAP and assess reliability and construct validity of the new version. Therefore, a cross-cultural adaptation was performed following international guidelines. Forty-eight patients with IM completed the German-MAP, twice within two weeks. They were also assessed using the Health Assessment Questionnaire (HAQ), 36-Item Short Form Survey (SF36), Manual Muscle Test (MMT8), Quantitative Muscle Testing (QMT) and Functional Index (FI-2). For discriminant validity, 48 age-and gender-matched healthy controls completed the German-MAP. Reliability was assessed using weighted kappa (Kw). Correlations between the MAP and the HAQ, the physical (PCM) and mental (MCS) component scores of SF36 and the MMT8 and QMT muscle tests were assessed using Spearman correlation analysis. Discriminative validity was assessed by calculating the Area under the Curve (AUC). The German-MAP showed substantial reliability for the four subscales (Kw: 0.65-0.71) and moderate to substantial reliability for the single items (Kw: 0.57-0.77). The MAP showed good construct validity (high correlations with HAQ and PCM, moderate with FI-2, QMT and MMT8 and poor with MCS and pain) and acceptable discrimination for three subscales and two single items (AUC: 0.65-0.79). In conclusion, the German-MAP appears to be a reliable and valid questionnaire to assess ADL-limitations in patients with IM. Further research is required, both to substantiate these results and to evaluate responsiveness.
Muscle & nerve, 2016
To assess self-reported physical functioning in patients with sporadic inclusion body myositis (sIBM), the sIBM Physical Functioning Assessment (sIFA) was developed. This research establishes the validity, reliability, and responsiveness of the sIFA in patients with sIBM. Data from 3 small, noninterventional, observational studies were analyzed. Several measures of physical function were included to assess validity. Reliability (Cronbach alpha, test-retest intraclass correlations), construct validity (correlations, analyses of variance), and responsiveness (effect size estimates) were evaluated. Cronbach alphas (range=0.86-0.91) and test-retest reliability (0.91) were highly satisfactory. Correlations with other measures provided evidence of convergent validity. sIBM patients able to walk without assistive devices scored significantly better on the sIFA (means=36.0-47.05) than those who require power mobility or wheelchairs (means=54.9-71.5), demonstrating the discriminating ability...
Comparison of Physical Activity Levels in Rheumatic Diseases
Aktuelle Rheumatologie, 2016
Objectives: The aim of this study was to evaluate levels of physical activity in patients with rheumatoid arthritis, osteoarthritis and fibromyalgia and to compare the results with both healthy subjects and each other. Methods: A group of 50 rheumatoid arthritis patients, 95 osteoarthritis patients, 82 fibromyalgia patients and 110 healthy subjects were included in this study. Physical activity levels were assessed by the International Physical Activity Questionnaire (IPAQ). Results: There were significant differences in walking and total physical activity scores in IPAQ between the rheumatoid arthritis (RA), osteoarthritis (OA), fibromyalgia (FMS) patients and the control group (p<0.05). 36.6% of the fibromyalgia group, 28.4% of the osteoarthritis group, 38% of the rheumatoid arthritis group and 22.7% of the healthy subjects were found to be inactive. 45.1% of the fibromyalgia group, 42.1% of the osteoarthritis group, 46% of the rheumatoid arthritis group and 36.4% of the health...