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National Tay-Sachs & Allied Diseases Association – HomeMichael Foley2025-04-02T18:49:58+00:00
National Tay-Sachs & Allied Diseases Association
The Power of Community
Diseases
Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.
Family Support
Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.
Research
Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.
Events
Attend and support events that bring our Community together and raise awareness and critical funds.
NTSAD News & Events
Read the Latest News and Subscribe to our Community Newsletter.
April 2025 Issue
Community Connections
In this Issue:
- Annual Family Conference
April 24-27, Dallas, TX. - Empathy in Delivering a Diagnosis
- Gordon Research Conference on Lysosomal Diseases
- Advocating for Rare Research
- Child Neurology Foundations Neurology Toolkit
- Mission Moment
Tiny Hoofbeats, Big Impact
“Kensley Jo taught us strength and love. She was a fighter and a happy child.”
“We are happy to have you in our lives! You are the light and the smile of every day! We love you. Thank you for teaching us so much. Ciro te amamos.”
“Lily taught us that even through the hardest times there is so much to be grateful for. Her smile gets us through it all. She inspires me everyday to be the best I can be for her.”
Join Kensley, Ciro, and Lily’s families and our community and make a BIG impact to support families and individuals affected by rare disease with a donation of $28 or more this Rare Disease Month – February 2025.
Join the NTSAD Team!
At NTSAD, we are dedicated to supporting families and advancing research. Join us in making a meaningful impact in the lives of people affected by Tay-Sachs, Canavan, GM1 and Sandhoff diseases.
Current Opportunities:
(*Previous experience required.)
For more information and to apply, please send a cover letter with salary requirements to jobs@ntsad.org.
**Apply today and become a part of the NTSAD family!**
We Care for Rare
Jessie Jackson Juvenile GM1 Disease
“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!”
Merlie Jackson, Jessie’s Mom
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National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
The content of this website is intended for informational purposes only and not intended to be a substitute for professional medical advice, diagnosis, or treatment.
The National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
Community Connections
Get the latest news from NTSAD about our Community, the research that provides hope, and what is happening in the world of rare disease.
2001 Beacon Street, Suite 204
Boston, MA 02135
(617) 277-4463
info@ntsad.org
Tax ID
#13-1912877
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street, Suite 204, Boston, MA 02135
(617) 277-4463 | info@ntsad.org
Tax ID
#13-1912877
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