Effect of an Educational Program on Knowledge, Strains andCoping Patterns of the Family Care Givers having Autistic Children (original) (raw)
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Background: Parents, as the main care providers for the children whose are suffering from autistic disorder need to meet the needs of their children, as well as the need to be healthy and able to assist their children development. The aims of this study were to assess caregivers' coping strategies with their children suffering from autism, develop a counseling program according to caregivers' needs and evaluate the effect of counseling program on caregivers' coping strategies. Subjects and methods: A quasi experimental design was used. A Purposive sample composed of 97caregivers of children suffering from autism (mild to moderate autism spectrum disorder (ASD) were recruited from El Amal-Al Manshood and Tafaoul Centers at Makkah Al Mukkramah in KSA. Tools of data collection: data were collected through using the following tools; A self-administered questionnaire for the caregivers, Family Adaptability and Cohesion Evaluation Scales (FACES), Family Impact of Childhood Disability (FICD) Scale and Family Crisis Oriented Personal Evaluation Scale (F-COPES). Results: The present study revealed that, there were a statistically significant differences between mean scores of acquiring social support and passive appraisal domains of, Family Crisis Oriented Personal Evaluation Scales, pre and post counseling program (T. test =2.85 and 2.75, at P value at 0.01 for both domains respectively). Meanwhile there was no statistically significant difference regarding the rest of other domains such as reframing, seeking spiritual support, mobilizing family to acquire and accept help. Additionally, the family cohesion and adaptation categories were clearly positively modified after counseling program, the percentage of family disengaged was decrease from 94.7% to 44.7%. While very connection and connected pattern were increase to 10.5% & 15.8% pre and post respectively. Conclusion: The present study concluded that counseling program improved the caregivers' coping patterns of children suffering from ASD, in addition to their families cohesion and adaptation. Recommendations: The present study recommended that continuous counseling programs are needed to improve the caregivers' of child suffering from autism for their coping patterns. Also, policy makers should integrate supportive counseling programs in the routine programs provided in all healthcare centers for children with special needs. Finally, attention should be paid to raise the public awareness about available community resources for caring child with autism in KSA. [Manal Hassan Abo El –Magd, Nahed Saied El-Nagger, Luma Ghazi Al Zamil, Samera Yaqoub Kashkar. Developing and Evaluating Counseling Program for Caregivers to Cope with their Children Suffering from Autism at Makah Al Mukramah. Life Sci J 2016;13(6):1-11].
Assess the knowledge on home care management of autistic children among caregivers
International Journal of Research in Pharmaceutical Sciences, 2020
Autism is a developmental disability, with symptoms first observed during infancy. It is characterized by variants in communication abilities, personality, cognitive abilities and social skills. Typical behaviour in youngsters relies upon kid's age character and physical and enthusiastic turn of events. A kid's conduct is said to be average at his 7th year of age when he develops a concept of himself, begins to understand, gains respect for others, and develops a sense of responsibility. Children with autism tend to have poor social and emotional relationships with peers and are highly sensitive and perform ritualistic behaviours. As a primary responsibility and also an essential thing for the mothers/ caregivers is to understand their children's behaviours than mothers of typically developing children. Accurate knowledge of autism may aid parents in relating to their children's problematic behaviours. Accepting autism may promote feelings of parenting success. The p...
The Problems Of The FAMILIES Who Have Autistic Children: A Qualitative Research
Life Skills Journal of Psychology, 2018
Autism is defined as one of the neurodevelopmental disabilities which continue for life and affect social development, communication and behaviors of the individuals in a negative sense. Purpose of this study is to determine how parents with autistic children figure out the autism, what their reactions are and what the effect of the believe is to accept it, how they declare it to the people around them and how the reaction of people is, who and how they get support from and what the possible future difficulties and requirements are. The study was based on qualitative research method and interview form prepared based on the purpose by the researcher was used in the study. The study is based on case study which is a qualitative research method and uses an interview form that is prepared by the researcher according to the purpose of the study. Study group is composed of 15 mothers and 8 fathers selected by purposive sampling method among parents of children going to special education centers. Study results have been shown that, it was found that the parents first noticed the inadequacy of language development without noticing the autism. In addition, it was seen that the first reaction of the parents' children to get autism was also the intense sadness. There is another result which is that parents need to get information about an autism with the sadness they have experienced. Parents have expressed concern about the future of their children, depending on the strength of their children's selfexpression. It has been determined that the society has negative attitudes towards autistic children and that parents would like to see the society to be more moderate towards autistic children. Results have been determined, it is important to establish empirical studies that will increase the awareness of other individuals about autism while showing the needs for supporting from autistic families. Study findings have been discussed with similar study findings included in the literature.
Caring for Autistic Children Based on the Development of a Family Stress Coping Model
Open Access Macedonian Journal of Medical Sciences
BACKGROUND: The limitations of social interaction, communication, cognitive abilities, behavior patterns, and activities in autistic children are sources of stress for parents. Parents’ negative stress assessment of autistic children causes maladaptive coping and has an impact on inappropriate caring behavior. AIM: Caring of autistic children based on the development of family stress coping models METHODS: This research was observational research by utilizing a cross-sectional approach. Participants of parents of autistic children at the Surabaya Autism Therapy Center. The determination of the amount using the rule of thumb formula in SEM is determined by 7 x 15 parameters of 105. Data collection uses a multi-stage random technique. Test the model reliability using the Structural Equation model - Partial Least Square (SEM - PLS), the structure using R Square, and evaluate using Q-square. RESULT: A significant influence occurred toward stress assessment against stress coping and stre...
International Journal of Nursing, 2014
Despite the growing incidence of autism, there is very little awareness on this developmental disability affecting 3-4 children in every 1,000 born in India today. Aim: 1. To prepare the information booklet on care of children with autism for the caregivers.2.To evaluate the effectiveness of the information booklet on the level of knowledge of the caregivers in the care of child with autism. Methodology: study was carried out by among 30 caregivers who were attending the inpatient and outpatient of child psychiatric centre, NIMHANS. A quasi experimental design with single group pretest - post test was used. A purposive sampling was used to select the caregivers. Instruments such as Socio demographic schedule, Knowledge questionnaire on care of children with autism which was prepared by the investigator was used to assess the changes in the level of knowledge among the caregivers before and after the administration of the information booklet. Knowledge questionnaire consisted of five...
Effectiveness of an information booklet on knowledge regarding care of children with autistism
2014
Methods: Study was carried out by among 30 caregivers who were attending the inpatient and outpatient of child psychiatric centre, NIMHANS. A quasi experimental design with single group pretest post test was used. A purposive sampling was used to select the caregivers. After the pre-test the caregivers were given the information booklet. The post-test was conducted on the seventh day of administration of the information booklet.
psychosocial-burden-among-caregivers-of-children-with-autism-spectrumdisorder-in-najaf-province.pdf
Caregivers of children with ASD reported more negative impact and poor psychological wellbeing. They appear to be at great risk for depression, stress, anxiety and distress; and many caregivers have managed to overcome the constant challenge by using their patience and take the consequences to adapt well in the face of adversity. The researcher highlights the family role to find themselves dealing with additional challenges to cope and accept modification, and minimizing the impact of ASD on caregivers by helping them to adjust their expectation to their children. A descriptive cross-sectional study was to determine the burden of ASD on the caregivers and to identify the level of psychosocial burden in dealing with the impact of raising a child with ASD. A non-probability purposive sample of (152) children with ASD and (152) caregivers at AL-Najaf province. The results of the study revealed that caregivers of children with ASD experienced moderate level of psychosocial burden; there were significant differences between the level of psychosocial burden among caregivers and childhood autism rating scale, whereas there is a significant difference between psychosocial burden and some of socio-demographic characteristics of Child's caregivers (gender and monthly income and GHQ). The current study recommends providing family support for families with autistic children, especially a psychological one, and educational about clinical behaviors of ASD for early detection and Family to Family Education Programs to the existing services in community mental health programs.
Journal of critical reviews
Introduction: One of the greatest popular neurodevelopmental disorders global is autism spectrum disorder (ASD), which is described by language postponement, reduced communication interactions and repetitive patterns of behavior produced by ecological and genetic factors. So that, autism is linked with great cost to families, individuals, societies and government. This study aimed to identify the effect of health instructions guidelines on improving knowledge and practices of mothers regarding care of their children with autism. Methods: This quasi-experimental study was conducting at Ali Al-Tamimi Center for Autism in Oniazah at Qassim region in kingdom Saudi Arabia. A convenient sample of 60 mothers and their children with autism. Data was collected through three tools were used to collect data include structured interview questionnaire consisted of two main parts include socio-demographic data related mothers, personal characteristics of the children, Mothers' knowledge regarding autism and mother practice regarding care of children with autism. Results: The result of the study displayed that the post-test of knowledge and practice among mothers of children with autism were significantly adequate when compared to pre-test. The study finding revealed that Educational Program was effective in enhancing the knowledge and good practice among mothers regarding care of children with autism. Conclusion: the educational program statistically significantly improved the knowledge and practice of the studied mothers. Recommendation: Emphasize the significance of carrying out educational programs to increase knowledge, practice and improve the coping designs of the family caregivers taking children with autism.
Challenges and Coping Strategies for Parents with Autistic Children
Journal of Mental Disorders and Treatment, 2018
Studies so far look at the causes and cure for autism, however, little work has been done on the challenges parents of these children face in their upbringing. This study brought out the challenges that parents with autistic children face as well as the coping mechanisms these parents adopt in their quest to cater for their children. Semi structured interviews were used as a form of data collection. Prominent themes the study highlights is the challenges of parents, which was associated with the inability of the parents to have meaningful conversations with their children, the financial burden of taking care of them, stigmatization of their autistic children as well as themselves, and the demandingness of the autistic children. With these problems, parents in the study adapted to their situation by accepting the situation of their wards, depending on God for strength, receiving support and encouragement from some family members and friends, joining support groups, as well as taking leave from work to help their children seek proper medical care. Knowing the challenges parents with children with autism face would constitute grounds for support to be given to them by professionals. If the challenges the parents are going through are clearly spelt out, therapists who deal with the families of children with this disorder will know the type of treatments to provide, even if it has not been asked for. Aside helping therapeutic professionals, the findings will also inform the teachers at special schools as to how to draw their curriculum to meet the needs of the autistic children. This goes to show that the findings of this work will make meaningful contributions to policy making, research and practice. The aim of this study is therefore to find out the challenges and coping strategies adopted by parents with autistic children. Methods The current study is designed to have a qualitative background, using the phenomenological approach. This research design was selected to assist the researcher get a better understanding of the experiences faced by parents of children with ASD and also help in gaining the opportunity to observe the nonverbal cues, aside the spoken word from the interviews that were conducted. The study was conducted in the Greater Accra region of Ghana. Majority of the research work was done at PACID, an institution for parents who have children with disabilities and certain parts of Accra. A total number of ten parents were interviewed for the purpose of this research. To ensure gender representation, the researcher interviewed two male parents and seven female parents. One of the participants was a sister who was taking care of her brother who had autism. There were variations in occupation, which included both the formal and informal sectors of the Ghanaian economy. Most of the
Objectives: This study aimed to develop a modulated program of parenting skills and to evaluate its effectiveness in reducing autistic symptoms and increasing parental adjustment. Methods: This quasi-experimental study utilized in two phases, a pretest-posttest design and a control group. First, a treatment program with both individual and group structure was constructed considering available treatments such as cognitive–behavior therapy, social stories, and play therapy catered to autistic children and the needs of their families. The program consisted of techniques such as acceptance, common cognitive errors challenge, control of thoughts, emotions and behavior, the principles of reward and punishment, and crisis management etc. The validity of the program was confirmed by four experts. Secondly, 26 volunteer qualified couples selected from the parents were referred to a rehabilitation center in Tehran, and were randomly assigned into experimental and control groups. The pretest was performed for all participants. Then, the control group was kept away from the program during the 10 sessions of group, four sessions of individual, and two sessions of family therapy for each couple in the experiment group.