Informed consent in international normative texts and biobanking policies Seeking the boundaries of broad consent
Palmira Granados Moreno
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Scientists’ perspectives on consent in the context of biobanking research
Timothy Caulfield
European Journal of Human Genetics, 2014
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Informed consent and biobanks
Ellen Clayton
The Journal of law, medicine & ethics, 2005
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Informed Consent in the Newly Established Biobank
judita kinkorova
International Journal of Environmental Research and Public Health, 2019
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Research participants’ perceptions and views on consent for biobank research: a review of empirical data and ethical analysis
Flavio D'Abramo
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The Ethics of Biobanking: Key Issues and Controversies
Heather Widdows
Health Care Analysis, 2011
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REXIC project: retrospective cross-sectional study of documentation of informed consent for research biobanking in a public research and teaching hospital
Elena Garavelli
Journal of Public Health Research, 2013
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Reconsidering Dynamic Consent in Biobanking Ethical and Political Consequences of Transforming Research Participants into ICT Users
Alexandra Soulier
IEEE Technology and Society Magazine, 2019
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Workshop Proceedings: Informed Consent in Biobanking–from the Key Barriers, Challenges, and Perceptions to Digital Innovations
Panagiotis Katsaounis
Innovations in Digital Health, Diagnostics, and Biomarkers, 2022
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Open consent, biobanking and data protection law: can open consent be 'informed' under the forthcoming data protection regulation?
dara hallinan, Michael Friedewald
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Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?
Bjørn Myskja
European Journal of Human Genetics, 2013
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Consent and Anonymization In Research Involving Biobanks: Differing Terms and Norms Present Serious Barriers to An International Framework
Arthur Caplan
EMBO reports, 2006
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Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context
John-Arne Skolbekken, Borgunn Ytterhus
Critical Public Health, 2005
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Potential harms, anonymization, and the right to withdraw consent to biobank research
Gert Helgesson
European Journal of Human Genetics, 2005
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Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research
Gillian M Martin
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Sample and data sharing barriers in biobanking: consent, committees, and compromises
Bernice S Elger
Annals of Diagnostic Pathology, 2014
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Bioethics and large-scale biobanking: individualistic ethics and collective projects*
Garrath Williams
Genomics, society and policy, 2005
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Biobanks: too long to wait for consent
Ellen Clayton
Science, 2009
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Special report Biobank research and ethics: the problem of informed consent in Polish biobanks
Krzysztof Marczewski
Archives of Medical Science, 2011
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Practice variation across consent templates for biobank research. A survey of German biobanks
Daniel Strech
Frontiers in Genetics
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Data Sharing, Biobanks and Informed Consent: A Research Paradox?
Palmira Granados Moreno
2013
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Beyond "Good Governance":Trust, Consent, Exploitation and Vulnerability in Cross-Cultural Biobanking
Nana Cecilie Halmsted Kongsholm
2017
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“Still Rather Hazy at Present”: Citizens' and Physicians' Views on Returning Results from Biobank Research Using Broad Consent
Alain Kaufmann
Genetic Testing and Molecular Biomarkers, 2017
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Biobanking and public health: is a human rights approach the tie that binds?
Ibrahim Garba
Human Genetics, 2011
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